The Early Years

During her tenure as California’s Attorney General, Harris was a dedicated advocate for the Affordable Care Act (ACA). She recognized its potential to significantly expand healthcare access for millions of women and took decisive action to defend the ACA in court. Her efforts ensured that women could access essential health services without financial barriers. This commitment to women’s health laid a solid foundation for her career in the U.S. Senate and beyond.

Her Fight Against Fibroids

Harris’s focus on women’s health intensified as she transitioned to representing California in the U.S. Senate. One of her early legislative efforts was the introduction of the Uterine Fibroid Research and Education Act in 2020. This bill was geared toward increasing funding for research and raising awareness about uterine fibroids, a condition that disproportionately affects our community.

Her Push for Affordable Healthcare

In 2019, Kamala Harris proposed a plan to prevent the U.S. from paying more for prescription medication than other developed countries. Her plan aimed to cap drug prices at an average of those in different nations.

During her presidential run, Harris also advocated for Medicare for All, a single-payer insurance proposal. She emphasized the deeply personal nature of healthcare for Americans and envisioned a comprehensive healthcare system covering all medically necessary services, from emergency room visits to mental health and reproductive health care. She also proposed empowering the Secretary of Health and Human Services to negotiate lower prescription drug prices, aiming to make health care accessible and affordable.

“There is perhaps no more complicated or personal issue for Americans than health care. I know this from my own personal life, caring for my mother as she battled colon cancer. And I also know it from talking to so many Americans in this campaign — seniors and union members, young people and parents, workers and caregivers,” said Harris in the article she wrote for Medium.

She Prioritizes Black Maternal Health

First, the federal Maternal Health Day of Action at the White House called to improve health outcomes for parents and infants in the United States. “Before, during, and after childbirth, women in our nation are dying at a higher rate than any other developed nation in our world,” Harris stated during the Maternal Day of Action Summit. “Black women are three times as likely to die from pregnancy-related complications. We should do something about that.” She has highlighted the alarming rates of maternal mortality, especially amongst our community. As a Senator, she co-introduced the Black Maternal Health Momnibus Act with Congresswomen Lauren Underwood and Alma Adams in 2020. This bill aims to improve maternal health outcomes, particularly amongst our community and other communities that face disparities. As a result, a significant achievement was the passage of the Protecting Moms Who Served Act on November 30, 2021, which focuses on maternal care for veterans. Still, the complete Momnibus package is being advocated for, with the latest version introduced on May 15, 2023.

Her Support for Reproductive Rights

As Senator, Harris co-sponsored legislation aimed at eliminating state-level restrictions, such as mandatory tests for doctors or the requirement for doctors to have hospital admitting privileges to perform abortions. During her 2019 presidential campaign, Harris proposed that states with a history of violating Roe v. Wade should undergo pre-clearance for new abortion laws, securing federal approval before they could be enacted. In December 2023, Harris launched the “Fight for Reproductive Freedoms” tour, aiming to counteract the effects of abortion bans and advocate for the restoration of Roe v. Wade protections.

As reported by CNN, in March of 2024, Harris made history by becoming the first sitting vice president to visit an abortion clinic. She toured a Planned Parenthood clinic in Minnesota, highlighting the ongoing healthcare crisis.

“The reason I’m here is because this is a health care crisis,” Harris said. “Part of this health care crisis is the clinics like this that have had to shut down and what that has meant to leave no options with any reasonable geographic area for so many women who need this essential care.”

Kamala Harris’s advocacy for women’s health is extensive. While we have touched on some of the key highlights, her work spans a much broader spectrum. By looking back at some of her major contributions, we can gain insights into potential future developments. By staying informed, we can collectively strive to create a healthier and more equitable future for ourselves, our mothers, sisters, friends, and women everywhere.

The post Where Does VP Kamala Harris Stand on Healthcare? appeared first on Black Health Matters.

These were fibroids invading my body and interrupting my peace. I knew it but could not prove it, so I consulted a doctor to tell me what I already knew.

After an extended period of listening to a history podcast about the French Revolution in the waiting room, I was able to connect with him and explain my feelings.

His response to the news that I was running through super jumbo tampons like they were going out of style and had days where I could not stand due to the pain did not shock me, but it did infuriate me.

The OB-GYN I was seeing at the time refused to give me an ultrasound. He stared at my mid-section as I spoke, refusing to meet my eyes or acknowledge the urgency in my voice. The American Journal of Obstetrics and Gynecology reports that “Fibroids are more common and more severe among African American women, and African American women have fibroids diagnosed at earlier ages, are more likely to be symptomatic, and are likely to have different responses to medical treatment than White women.”

These facts did not affect his decision-making.

His diagnosis was premature. He did not inform me that having a vitamin D deficiency— which I was later proven to have—was associated with a higher risk for fibroids. He did not ask anything about my stress level or my lifestyle.

It leaped from his lips. “Go to the gym at 6 am daily, then come back and talk to me in a couple of months, okay.”

He refused to commit to ordering an ultrasound despite my protests. It did not matter that I explained my family history. It did not matter that I had been bleeding since I was 11 years old, and I knew that what I was experiencing was not normal for my body.

I was fat, so sending me to the gym was the only logical conclusion to addressing any health problem I had. What else could you do but instruct me to hit the weight room? It’s not like l was a real person or anything.

“Physicians may over-attribute symptoms and problems to obesity and fail to refer the patient for diagnostic testing or to consider treatment options beyond advising the patient to lose weight, according to a 2015 study published in Obesity Reviews. I am living proof that research is accurate.

This kind of weight bias negatively impacts patient outcomes and contributes to some people’s reluctance to seek care.

Fat people are not the only ones who are routinely dismissed by the people they turn to for help. Women Health Reports reported in 2022 that “Racism impacts clinician’s ability to listen to Black women’s experiences and treat them as equal partners in decision-making about their own care and treatment options.”

When you are a Black woman who happens to be fat, you are likely to face more barriers to receiving adequate care.

The Journal of American Medical Association reports that “Chronic pain is an area where substantial racial and ethnic differences in the management and treatment of Black individuals’ pain have been well-documented.”

A few years and a significant amount of pain later, I turned to another doctor at the height of the pandemic. She was a Black woman.

I sought out a Black woman doctor because I was afraid of what would happen if I didn’t. I explained what I was feeling and was immediately told that I needed an ultrasound.

The experience was simple. It revealed what I already knew quickly. I had several fibroid tumors causing my pain.

There was no need to plead and beg for what should have been routine diagnostic care. She felt she could not confidently treat me without knowing what was going on, so she ensured I had tests that would let her develop an informed treatment plan.

It is unconscionable that my healthcare provider refused to confirm that via the appropriate testing.

Editor’s Note: If a doctor does not give you the tests you believe you need, ask again. If they refuse, change practitioners immediately. Do not wait. Before choosing a new doctor, research, research, research, check ratings, read reviews, and get recommendations from current patients. Check out this list for more tips.

The post My Ob-Gyn Denied Me Care Because I’m Overweight appeared first on Black Health Matters.

Therapy was Part of the Preparation

The All-Around Gold Medal Gymnastic winner told Good Morning America, “Staying on my weekly therapy sessions and even whenever I was here, I was scheduling appointments with my therapist that could work, whether it was early in the morning for me or early in the morning for her,” Biles said, speaking about how she’s balanced everything at the Games. “Staying on top of that meant the world to me, but also it helped me with my performances.”

Dr. Marcia Faustin (aka Dr. Marcy) was one of the women supporting the USA Gymnastics Team.

You might remember the scandal involving the doctor who was supposed to be the medical advisor to the Olympic gymnasts. The new team comprises Dr. Ellen Casey and Dr. Marcia Faustin, who share the USA Gymnastics Team Doctor title. Dr. Marcy looked after Bile’s calf issue during the qualifying round. She also helped Lee get appropriately diagnosed and find treatment for her kidney issues. But this kind of support helped the team get to the gold.

 Pretty was Not Integral to the Performance

When Biles received criticism about her hair, it seemed reminiscent of Gabby Douglas’s judgment when she competed. Douglas was sixteen in 2016, and those comments went straight to her heart. Biles is 27, a seasoned competitor who responded, “The next time you want to comment on a Black girl’s hair, JUST DON’T.”

Celebrating Sisterhood Beyond Borders

The 2024 Gymnastic Floor Exercise Medal Ceremony was an International Black Girl Magic Moment for the ages. Because it was spontaneous, genuine, well-deserved, and an example of sisterhood. Rebecca Andrade delivered a flawless performance, and Simone Biles and Jordan Chiles knew they were part of a historic moment. It needed to be acknowledged.

A Balanced Career: Athlete and Healthcare Pro

When you see Gabby Thomas race, you can’t imagine she has time for anything else. However, the 200-meter sprinter who has already taken home gold from this year’s games and won two previous medals in Tokyo still makes time to work part-time in health care. Thomas has an undergraduate degree in neurobiology from Harvard and a master’s in public health from the University of Texas Health Science Center. Thomas volunteers her time at a clinic for uninsured people. The sprinter told CNBC, “The way I became successful in track and field was running track part-time,” she said. “And I think that’s really important for my mental health, just having other things in my life that helped fulfill, you know, my goals and make me feel fulfilled.”

Break Your Own Records

In the 400-meter hurdles, 25-year-old Sydney McLaughlin-Levrone isn’t racing against anyone else on the field. She is trying to beat the clock. McLaughlin-Levrone had already shattered the world record five times. She kept her eye on the hurdles in this race and left the field in the dust. She broke her world record for the sixth time by completing 400 meter hurdles in 50:37 and Won Olympic gold for the second time.

 A Golden Redemption

Almost four years ago, long jumper Tara Davis-Woodhall struggled with body image issues and bouts of depression so debilitating it was difficult for her to get out of bed. Although she had been an athlete since childhood, she no longer wanted to train. “Mentally, I was in a dark place,” Davis-Woodhall said at a media roundtable in New York earlier this year. “I just didn’t want to be here anymore.” The domino effect of transferring schools to COVID-19, recovering from a fractured back, and trying to connect with her new teammates had taken its toll.

“She also said this spring that she got more comfortable with her body image, embracing the more muscular arms and shoulders she used to hide under a hoodie in high school.”

“I couldn’t be myself for a while, and it sucked. It sucks not being able to just be free,” she said. “And now that I am, I am not going back.”

By being herself, Davis-Woodhall won her first Gold medal jumps 22 feet, 9 inches, 23-1 3/4, and 23-3 1/2.

It’s Hammer Time

We must shout Annette Echikunwoke for her strength and skill in throwing the hammer. This is a track event in which athletes throw the “hammer,” a ball attached to a grip by a steel wire. But she is the first American to ever medal in this sport—she won gold!

Black Women are Integral to Creating Winning Teams

We are excited that four Black women, anchored by Sha’Carri Richardson, won gold in the 4×100 relay. It’s the 12th time we’ve won, but we know sisters from other countries are on our heels. However, including Gabby Thomas in the runners’ lineup increased their likelihood of securing a win.

Black women are integral to team wins throughout the Olympic Games from gymnastics to swimming. But to see us represented in events like fencing, where Lauren Scruggs, the first Black woman to win an individual medal in foil, is indeed magical. She won a silver medal in the finals against her teammate, Lee Keifer. Then, Scruggs was the anchor when the team played against Italy and helped them win gold. She’s 21 and a first-time Olympian, to boot.

Let’s continue to take our magic and talents to new horizons and conquer them.

The post Olympics 2024: Black Girl Magic in Paris & Mental Wellness Matters appeared first on Black Health Matters.

Fred Newhouse’s Road to the Olympics

In 1976, while working at Exxon and simultaneously competing in track and field, Fred won Olympic Gold and Silver Medals at the Montreal Olympic Games. He has been involved in track and field in some capacity for his entire life and currently serves on the Meet Management Teams for national and international competitions.

Newhouse has earned a lot of success in the sport, but it was not easy by any means. Even just making it to the Olympics was a process. He tried out for three Olympic teams in 1960, 1968, and 1972 before he was ultimately selected in 1976. Newhouse says that going through the adversity of making it to the Olympics is all part of the process. But it was his drive that helped him persevere.

The Olympic Preparation Process

“Unfortunately, like in any other sport, some days are better than others. And our system is designed around one day for track and field for each event,” he said. “And you know well in advance what that day will be, and you prepare. So it doesn’t matter what you do all the other days. What you do on the day of the Olympic trials matters. So it’s all about you.”

The Olympics’ preparation process differs from that of other sporting events. Most sports operate seasonally, with a scheduled offseason for the athletes to recoup. But the training for the Olympics is nonstop. Newhouse says that for him and many other Olympic athletes, the preparation for the event begins as early as high school.

“Preparation takes years and years and years for most athletes. And it starts, for most, me included, in high school, if not before. That’s when they first realize that they have the potential to be an Olympic athlete. And that is where it begins—and it’s every day for years,” Newhouse said.

“After that, a competition is staged where the 16 best runners in the country are invited to try out for the Olympic team. Of those, 16 will make it to the finals. There are three rounds of competition: prelims, quarterfinals, the semifinals, and the finals. And then the top three are who go on to represent the country at the Olympic Games.”

Putting His Olympic Experience to Use

Fred could have taken his experience as an Olympic gold medalist, rode off into the sunset, and retired. However, he knew he had so much knowledge to offer in the sport and wanted to share that with other athletes.

He used that experience to found the Northwest Flyers Youth Track Club in Houston, where he coached until 1996.

Fred already had previous experience as a track coach. While earning his MBA at the University of Washington, he was the track team’s graduate assistant and coached sprinters, jumpers, and quarter-milers.

However, the catalyst for his founding the Northwest Flyers was when his daughters noted unfair treatment at the initial club they joined. Then, Newhouse and his wife decided to bet on themselves.

“My daughter says, ‘We don’t like this coach because he doesn’t even put the best girls on the relay team in the track club,” Newhouse said. “And my wife looked at me and said, ‘Why don’t we have a track club?’ ‘So we know there’s no bias in the process.”

Newhouse’s club has employed as many as 100 athletes simultaneously. Simply put, the Flyers gave him purpose.

“It was just the joy of my life. To provide an atmosphere where these kids could grow and enjoy each other. We tried to, again, continue to expose them to different things,” he said. “And we always did. And that gave them exposure to other parts of the country. We traveled to a lot of different universities. They got to see things that they only saw on television. And we figured out a way to do it.”

The Life Lessons He Wants Them to Remember

As a former Olympian, Newhouse possesses a rare knowledge of what it takes to be successful in track and field competition. He instilled some of those same principles into his Northwest Flyers athletes.

“We “encourage our athletes to recognize their assets and liabilities and manage them all appropriately. And you know them when you see them and know what to do. Do them humbly, with courtesy and respect for others, because you have to do them,” he said. “The sooner you start learning how to manage them, the better. Because later in life, when it takes a much larger effort, you’ll do better at it.”

Newhouse’s coaching goes beyond just telling athletes what to do. It is also about teaching them what not to do. He wanted to prepare athletes in his club to avoid making the same mistakes he did on his come-up, mainly how to avoid distractions.

“The main problem I see as an athlete’s biggest battle is all the distractions vying for their attention during that process. They have to be ready to manage additional things on top of their competition,” he” said. “The most difficult part is staying focused on the why. Why are you doing this? Because you’ve got so many distracting things around you.”

Measuring His Successes

Not every athlete will make it to the Olympic Trials. However, Newhouse says that even the athletes from his club who don’t have Olympic careers are successful in other areas of life, such as graduating from college or starting a business. That was his vision when he started the club, which remains a success today.

“We’ve got something extraordinary going on, and we’re going to continue because we know we’re making a difference in people’s lives. We know we are,” he added.

“We’re not bragging about it. We’re happily doing it. Right. And while it started as a selfish thing with our children, it also made a difference in their lives. Because they developed friendships, relationships that have lasted for 40 years.”

The post Fred Newhouse: Instilling the Olympian Champion Spirit into Future Generations appeared first on Black Health Matters.

By focusing on six key areas, there are practical steps you can take to enhance brain health and improve mental well-being.

These pillars are essential for anyone looking to sustain and boost their brain health as they age. This article will explore each of the six pillars, providing valuable insights, actionable tips, and resources. Whether you’re already incorporating some of these strategies into your daily routine or looking for new ways to support your brain health, this guide will empower you to be intentional about “staying sharp” and supporting your brain health.

Be Social

Maintaining an active social life is something that can seem more difficult as we age. Engaging in social activities and maintaining social connections can boost your brain health. Making new friends and connections is great, but nurturing those relationships that already exist is beneficial and can help you maintain your social life. Engaging with friends and family not only brings joy and companionship but also helps stimulate the brain and promote brain health. Click here to learn more about how you can make and keep new friends and ease loneliness.

Engage Your Brain

This pillar involves feeding your curiosity, learning new things and exposing yourself to new situations. You can practice engaging your brain by keeping your mind active through various activities such as puzzles, learning new skills, reading, or playing musical instruments. Brain stimulation is an important component of brain health. Click here to learn more about action steps you can take to support brain health.

Manage Stress

Stress is an inevitable part of life, but how we manage it can make a significant difference in our brain health. Chronic stress can affect memory, brain function, and overall well-being. Learning and adapting effective stress management techniques such as decompression, meditation and movement is essential for maintaining brain health. Not only do these techniques promote brain health, but they also relieve tension, boost mood, and increase energy. Click here to learn more about how you can benefit from basic meditation, being present, and pursuing happiness.

Ongoing Exercise

Ongoing exercise is beneficial for physical health. It is also a key pillar for brain health. Engaging in exercises, whether it’s walking, yoga, swimming, or strength training, can significantly boost mental clarity and reduce the risk of cognitive decline. The Global Council on Brain Health recommends the following 150 minutes of weekly, moderate-intensity aerobic activity and two or more days a week of moderate-intensity, muscle-strengthening activities. Click here to learn more about activities such as cycling, yoga, and even walking can improve brain health.

Restorative Sleep

Restorative sleep is essential for maintaining our physical and mental well-being and a crucial component of brain health. A good night’s sleep allows the brain to repair and rejuvenate. You can work towards achieving restorative sleep by practicing sleep hygiene. Ways to do this include establishing a sleep routine, avoiding naps during the day, avoiding use of electronics right before bed, and creating a quiet and comfortable environment for sleep. Click here to learn more about restorative sleep, including why you shouldn’t sleep with your smartphone.

Eat Right

The foods we eat play a critical role in maintaining brain health, and a balanced diet can support brain function. There is no magic diet for your brain, but there are foods that can both help and hurt. Click here to learn more about the connection between nutrition and brain health, including food choices that support brain health, benefits of vitamin D, and recipe recommendations.

Ready to kick start your journey towards improved brain health? Click here to access your FREE cognitive assessment to see how you’re performing and learn more about how you can stay sharp.

Music has a positive impact on the health of our brains. Explore how music can promote your brain health. Click here to learn more.

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References

• Brain Health Resource Center

The post Staying Sharp: 6 Pillars of Brain Health appeared first on Black Health Matters.

The report indicates that up to 50% of birthing people retain 10 pounds or more, and up to 25% retain more than 20 pounds.

Being proactive about your patient’s PPWR now could avoid the associated comorbidity medical risks such as cardiovascular disease and type 2 diabetes in the future.

Recognizing the Roadblocks

There is room to improve the postpartum wellness journey and obesity outcomes for your patients who give birth—currently, care often centers around the most visible challenges associated with the post-delivery period. However, that period is extensive, and patients need instruction on caring for their mind and body during that time.

A review published in Heylion found that “When communicating with patients from different cultural backgrounds, physicians were found to be authoritarian, biomedical-focused, and not involved with patients in decision-making.” Perceptions like these create roadblocks to effective obesity treatment.

Why Cultural Sensitivity Matters

Leah Hairston, a birth and postpartum doula who earned the recognition of John Hopkins Social Innovation Lab and as a semifinalist for Pharell Williams’ Black Ambition Prize last year, Sweet Bee Services, spoke to the need for professionals who understand the cultural sensitivity challenges faced in postpartum.

“There’s a dearth of access to Black dietitians and nutritionists,” she told Black Health Matters.

The American Journal of Clinical Nutrition states, “Reproduction has been identified as an important factor for long-term weight gain among women.”

Hairston and her team offer solutions to the people they serve. “People feel a lot more at ease because there’s somebody who looks like them who also understands,” she explained.

Hairston gave an example of the need for cultural sensitivity in postpartum nutrition: “My family’s Caribbean. So, I’m gonna eat plantains and rice and beans. I don’t want to feel like rice and beans are a punitive meal,” she explained. But I might not need to eat six helpings of rice and beans.”

She values practitioners who are “able to honor the things that are important to me and my family while also honoring our budgetary restrictions and any other needs that we might have.” She brings that awareness to her work.

Rethinking Postpartum Evaluations

Birthing persons require support far beyond the first few months of the postpartum era, but an article from Nutrition Research Reviews reported that “much less attention is being given to the postpartum period beyond 18 months.”

Postpartum patients need thorough evaluations to determine if they have obesity. These evaluations need to go beyond the sparse required check-ins for birthing persons.

“There is a great need for postpartum women to identify the implications of postpartum obesity. There is also a need for healthcare professionals to treat postpartum women with greater competency, having a structured postpartum follow-up with counseling and motivation for weight loss and investigations like hemoglobin, TSH, and blood sugars at follow-up,” according to a 2022 article published by the Journal of Obstetrics and Gynecology of India.

The Annals of Hematology noted that “postpartum anemia has been linked to several important postpartum morbidities, including depression, reduced cognition, and fatigue.” Still, it is critical to learn how it plays into postpartum obesity.

Dr. Danielle Wright-Terre, founder of the Honey, a postpartum community and app, commented on gaps in the postpartum care process that begin earlier than that. “Regarding check-ins for the mom, there are gaps,” she said. “There needs to be more guidance on the physical recovery aspect.”

Many doctors focus on ruling out issues for new mothers instead of being evaluated for ways they can thrive.

“The postpartum phase is just to make sure mom is doing well from a mental health standpoint. After that visit, if nothing is identified, her next visit is at 12 months, and that’s the annual visit. So, there’s not a lot of check-ins,” Dr. Wright-Terrell continued.

Key Factors Impacting PPWR

According to the Journal of Clinical Medicine, “Irregular sleep and mealtimes during the postpartum period could also interfere with body weight. Emerging evidence suggests that the misalignment of eating and fasting patterns with the body’s circadian rhythm could impact metabolic function and consequently body weight.”

Irregular sleep can also contribute to an individual becoming obese.

“Individuals who regularly slept less than seven hours per night were more likely to have higher average body mass indexes and develop obesity than those who slept more,” in a study published by BMJ Open Sport & Exercise Medicine.

Current Obesity Reports states, “Epigenetic programming that occurs at conception and throughout pregnancy predisposes children born to mothers with obesity to a range of chronic metabolic conditions including type 2 diabetes and heart disease.”

Taking an Individualized Approach

Healthcare practitioners must individualize their engagement with birthing people. Not all people who give birth are the same, and they do not all come from the same culture.

An informed perspective can help a practitioner be more effective.

Dr. Wright-Terrell pointed out that people who deliver without complications might not need to wait the widely recommended six weeks before engaging in movement that might help their mind and body. She said sometimes they “can start moving and gentle exercise as soon as 72 hours after delivery.”

Talking to your patients to determine what is best for them can help you make recommendations that suit their goals best.

“I try not to restrict my patients in terms of movement because movement is really powerful and healthy overall, and it can help you feel more like yourself.”

Referrals are crucial in helping people with uteruses re-engage with their fitness plans. Hairston uses referrals to help her clients understand the resources available to them.

“A nutritionist is covered under your insurance when you’re pregnant and usually in the first couple weeks of postpartum, and so it should be pretty easy to find somebody in-network,” she said.

Dr. Wright-Terrell explained the importance of educating patients on how their fitness goals can be achieved through seeking specific care to prevent sustained weight gain. For example, physical therapy can help build core strength, which is essential to pursuing weight loss through physical exercise. “Another great resource that I feel is underutilized is physical therapists, specifically pelvic floor physical therapists,” she said.

Dr. Wright-Terrell states, “Every OB should have a low threshold to send out the referral” for a specialist to accommodate them.

When HCPs approach patients holistically, we may have a better chance of reducing PPWR in our community.

Supported by an educational grant from Novo Nordisk Inc.

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Her mother, Diann Ash, wrote, “We are deeply saddened to announce the passing of our beloved daughter, sister, and friend, Erica Chantal Ash (1977-2024). After a long and courageous battle with cancer, she transitioned peacefully, surrounded by her loved ones. Erica was an amazing woman and talented entertainer who touched countless lives with her sharp wit,  humor, and genuine zest life. Her memory will live eternally in our hearts.”

When she appeared as a guest on Jemele Hill’s Unbothered Podcast ep 88, “The Year of No F**Ks,” in 2020, Ash talked candidly about battling breast cancer. “I’ve beaten cancer twice. The first time was 2b, the second time was stage 4, and I was trying to decide if I would talk about this…because I haven’t before. But I feel like I should because Black women don’t talk about it, and we need to share our journeys. It was probably the toughest journey for me, but it made me realize the depth of my power. I don’t even know the depth of my power.”

Ash was first diagnosed with breast cancer at the same time she was cast on MAD TV and underwent treatment while doing the show. And didn’t tell any of her friends. It returned for the second time a decade later. Ash’s diagnosis at that time was stage 4 cancer. The cancer also ate away 70% of her spine, requiring her to get screws installed. As a result, she decided to live boldly. And she did things like jump off cliffs in Mexico. “I am going to test the limits of my Black girl magic,” she told Hill in the interview. “I told three girlfriends and my parents.” Everyone else found out listening to Hill’s show. She was shooting “In Contempt” during her stage 4 diagnosis and treatment.

Ash believed that one should listen to one’s body and ask questions of medical professionals until one is satisfied with the answers. She told Hill she wasn’t afraid to fire her doctors, and she did so more than once.

Ash was beloved by her colleagues, friends, and all who knew her. May she rest in peace. The family asks that any donations be made to the Susan G. Komen Cancer Foundation.

The post Actress Erica Ash Has Died After A Battle With Cancer appeared first on Black Health Matters.

The National Kidney Foundation (NKF) and American Society of Nephrology (ASN) on the Organ Procurement and Transplantation Network (OPTN) plans to remove the African American/Black race coefficient from the Kidney Donor Profile Index (KDPI) calculation. This comes after removing the race-based formula for transplantation qualifications a few years ago. This is all good news for us. But let’s ensure your doctors, hospitals, and labs know about these changes and aren’t using old calculations. What does it all mean? Read on.

The Race-Based Formula Explained

Kidney function is measured by a Glomerular Filtration Rate (GFR) Test. The Black race variable was developed from a study that says we have higher creatinine levels. Dr. Rosas explains.” In the big scheme, the critical number is 20 when people are referred and can be listed for transplant. But the white person would be 19, the Black person would be 22, but the wait list is long for everybody.” But think of it like a Black tax.

In the United States, the wait for a kidney could be between five and six years, depending on the state where you live.

“The problem with being waitlisted is your comorbidities are still progressing. So many patients are removed from the waitlists because they no longer qualify,” Dr. Rosas explains. “A kidney transplant is a surgery, and if your health deteriorates because you have to wait longer, that becomes a problem.”

Advocating For a Race-Free Formula

However, Dr. Rosas points out that medical schools teach students there are no differences between races. “The NFK, the ASN, and OPTN said this is the formula we should use because we didn’t want people to still use the other one. You don’t want to go to your cardiologist and have X kidney function, then you go to your primary care, he’s using another formula, and you have another kidney function; it’s confusing,” she explains. “The NFK has worked really hard with lab companies to have the new formula  reported.” Between 2023-2024, patients who were on the waitlist got an average of 1.7 years of their time back when race was eliminated from the equation.

How Kidneys From Black Donors Were Evaluated

The Organ Procurement and Transplantation Network used a mathematical equation called a KDRI to estimate the quality of a donated kidney. Under the old equation, kidneys from Black donors were graded as having poorer organ function than kidneys from White donors. As a result, kidneys donated by Black people were often thrown away. The proposed change was included in OPTN’S 2024 winter public comment period and approved for adoption by the OPTN board in June 2024.

In addition to removing race, the updated KDPI no longer includes whether or not the donor was Hepatitis C Virus positive.

Thanks to therapeutic advances, post-transplant outcomes for HCV-positive deceased donor kidney transplants are similar to those of HCV-negative donor kidneys.”With the new approach, some kidneys that may have otherwise been considered unsuitable for transplantation due to the inclusion of race in the formula will now receive more favorable scores, including some that will now be classified with scores that make them more appropriate for transplant,” said Cynthia Delgado, MD, who participated in the Organ Procurement and Transplant Network task force that led efforts to reconsider the use of race and HCV in the formula.

There are many reasons why a donated kidney may not be viable. “Sometimes they’re not good. If they cannot find a donor, the donor doesn’t come on time, and they don’t have a surgeon. Many things could happen,” Dr. Rosas explains.” Four sequences of transplants happened in the United States: the best sequences of your lower score, the lower the number, the better your kidney is. Unfortunately, many of these kidneys end up in the above 85% range.”

Right now, 90,000 people are waiting for kidney transplants, and 12 people die each day waiting.

 Know More About Your Kidney Disease and Transplant Options

Dr. Rosas suggests taking the following and that you know your options:

If You Have a Family History of Hypertension, Diabetes, Kidney Disease or Heart Disease

Request these two tests from your physician annually to assess your kidney health: creatinine and albumin. Work on reversing the progression of chronic kidney disease before it becomes kidney failure.

Check With Your Lab

Make sure they no longer use race-based testing when testing your Glomerular Filtration Rate (GFR).

If You Are On Dialysis (What Have They Said to You About Transplant Eligibility)

If you have been given a brochure, it is time to read it.

If Have Been Turned Down For a Transplant Because Your BMI is too High

Look at other transplant centers; each center sets its eligibility requirements.

The post What’s Race Got to Do With Kidney Donations & Transplants? appeared first on Black Health Matters.

She founded the ZCO/DANCE PROJECT, a space to inspire and showcase the strength of dancers with disabilities, in 2013. We chatted with her about her personal and professional journey, the way she continues to break barriers and redefine life with a disability, and society’s perception of them.

BHM: Can you share with us your journey into the world of dance and the performing arts? What inspired you to choose this path?

Zazel-Chavah O’Garra: I started dancing when my mother realized that I was a hyperactive, mischievous child. She often said, in her West Indian accent, “Zazel walked out of me belly!” She asked my godmother if she knew of any activities she could put me in, and she recommended Ruth Williams Dance Studio, located on 125th and Adam Clayton Powell Blvd in the Theresa Hotel, a landmark building in Harlem. I studied ballet and tap there and fell in love with both.

Ballet captivated me with its structure, technique, and discipline, while tap was exciting as we danced to music by a jazz pianist and drummer. At the end of the year, we performed at Carnegie Hall or Lincoln Center. Wearing costumes and seeing huge audiences in these theaters made me realize I wanted to be in the performing arts. I later left Ruth Williams and went to Bernice Johnson Dancing School, where I met Ben Vereen and Michael Peters.

The intense professionalism at Bernice Johnson led me to audition for the High School of the Performing Arts. Once accepted, I became a ballet major. Entering that school made me live and breathe dance! It was rigorous, competitive, and challenging. Studying dance there led me to Alvin Ailey and the Dance Theater of Harlem. As a scholarship student and apprentice, I focused on becoming a professional dancer.

The Brain Tumor Diagnosis

BHM: Can you walk us through your experience when you were diagnosed with a brain tumor? How did it affect your life and career, especially about your craft?

CO: I had been experiencing symptoms for years: extreme fatigue where I could fall asleep in a minute, a tingling sensation in my right arm, nausea, and headaches. I went to a slew of doctors, had a battery of tests, and they found nothing. Finally, I went to the gynecologist, and she put me on birth control pills, which is what I did. The birth control pills made my head feel like it was exploding, and I started to have weird sensations in my head. I was having partial seizures, but I didn’t know what it was.

Eventually, I went to the emergency room at St. Barnabas Hospital in New Jersey. They tested me and found nothing. As they were discharging me, I mentioned feeling dizzy, so they gave me an MRI. After the MRI, they gave me Xanax and told me to wait for the doctor. When the doctor saw me, she had a sullen look on her face. She said they found a huge mass on my brain, 4 centimeters large! They immediately rushed me to intensive care, and the neurosurgeon came to speak to me, saying I needed immediate surgery. Because of the tumor’s location, they warned me to expect partial paralysis, visual and cognitive deficits, and speech and memory problems.

At that moment, I knew the life I loved would change. However, I didn’t show the doctor or my family any signs of depression. Instead, I declared, “I am a fighter, a warrior woman. God is on my side! I will dance again!”

The Recovery Process

BHM: What was your rehabilitation process like, and how did it influence your perspective on life and dance?

ZCO: I rehabilitated at Kessler Rehab, a beautiful West Orange, New Jersey facility. In rehab, you face the harsh reality of your new life. When you can’t get out of bed, bathe, go to the bathroom, or walk, you feel helpless and dependent on others to help you with basic tasks. They wake you up every morning, get you out of bed, body wash you, and then you’re put in a wheelchair to wait to be moved to the dining room.

I met with several doctors, including a neurosurgeon who once asked if I was suicidal. I responded, “NO, I’m waiting for Macy’s One Day Sale! I always liked shopping. Why would I stop now?” I knew immediately that being among those suffering from brain injuries required staying positive, optimistic, and prayerful. Although my life as a non-disabled dancer was over,

I knew that sitting in a chair with limited mobility couldn’t stop me from experiencing the joy of dance. Even if it were just my eyes and head moving, the passion, conviction, and love of dance for healing came through my soul.

During my recovery from a brain tumor, I faced several specific challenges. When I announced I was a brain tumor survivor, the reactions from people, including friends, were often difficult to handle. One memorable incident involved someone I knew who crossed the street to avoid talking to me. My Caribbean family, although loving and supportive, struggled with how to deal with someone with a disability. One family friend even said, “I thought you were going to be a star, and look at you now!”

To overcome these challenges, I focused on turning setbacks into comebacks. I sought guidance and support through therapy and found immense inspiration in a loving friend who, after a car accident, became a quadriplegic. He taught me to love the arts and explore myself, no matter what happens. His perspective and strength helped me navigate my journey and find my path forward.

Creating a Way to Dance Again

BHM: What inspired you to start the Zazel-Chavah O’Garra Dance Project (ZCODP)?

ZCO: I founded ZCODP as a testament to my journey of rebirth and resilience, finding profound healing and joy through dance despite challenges. Our mission at ZCODP is to create compelling performances that blend wit, soul, intelligence, and power while telling captivating narratives. We are committed to promoting the integration and inclusion of individuals with disabilities in dance and society.

We aim to present fresh, exhilarating, thought-provoking contemporary dance experiences to a wide audience. ZCO/DANCE PROJECT derives from my birth name, Zazel-Chavah (‘Chavah’ meaning ‘living one’), symbolizing the essence of life and the creative power to share that vitality with others, a name given to me by my father.

BHM: What strengths and perspectives do ZCO/DANCE PROJECT dancers bring to your company?

ZCO: Our dancers contribute their passion, life experiences, and resilience. One dancer, a cancer survivor who uses a wheelchair, powerfully expresses herself through dance. She lifts her leg from the chair, performing pulsating, sensual movements to the rhythm of drums, demonstrating to the audience that nothing can stop her from showcasing the joy and artistry of dance.

At ZCODP, we dance just like any other dance company, incorporating a variety of genres, including modern, jazz, ballet, African dance, and now spoken word. We collaborate with renowned choreographers who treat our dancers as artists, not differently abled individuals.

When we take the stage, we aim for the audience to see us purely as performing artists.

BHM: What does Disability Pride Month mean to you, and how do you celebrate it both as the owner of your dance company and in your personal life?

ZCO: I celebrate Disability Pride Month by raising awareness and celebrating the visibility, value, and respect people with disabilities deserve. Everyone needs to recognize and rejoice in our talents. I embrace my disability with pride and proudly claim it.

The post Dancing Beyond Disability: Zazel-Chavah O’Garra’s Story appeared first on Black Health Matters.

BHM: Can you tell us about the McKnight Brain Research Foundation and its work to bridge the knowledge gap on normal cognitive aging?

Dr. Brangman: The McKnight Brain Research Foundation is the only foundation focusing on normal cognitive aging. We concentrate on what is normal as we get older regarding how our brains function and overall brain health. Right now, the foundation is sponsoring a campaign called BrainWorks to spread the word across the United States about maintaining brain health and recognizing what is normal versus what might be concerning.

In my work, I often see many Black people seeking help when their disease is far advanced. At that point, our options are limited. This is why it is crucial for people to understand what is normal and what might be worrisome.

BHM: Can you explain cognitive aging and how it differs from more severe conditions?

Dr. Brangman: Cognitive aging is the usual process our brains undergo as we age. It includes “senior moments,” like forgetting names or words. Like hard drives, our brains have accumulated a lot of information over a lifetime, leading to “slow retrieval.” This means it takes longer to access information, but we usually get there eventually. You might remember a name or word after a while. Misplacing items like phones, keys, or glasses often happens because we multitask too much. Our brains are designed to do one thing at a time, but our culture bombards us with information.

When multitasking, we don’t lay down memories properly, leading to frustration when searching for misplaced items. With normal cognitive aging, you can usually retrace your steps and find the missing object. However, with severe problems like dementia, you might be unable to retrace your steps, or the object might be in a strange place. Our brains are overloaded due to constant information from news and social media, which consumes brain energy.

BHM: What are some common signs that memory problems might be linked to mental illnesses like depression or anxiety rather than cognitive decline?

Dr. Brangman: Well, there can be some overlap. Some people who are depressed may have trouble remembering information because they just can’t put the energy or focus into keeping information straight. Some may have difficulty concentrating and focusing when they are depressed.

A good healthcare provider can help sort out whether your memory problems are due to depression or something more problematic, such as dementia—the same thing with anxiety.

Anxiety is quite common in our society. I have patients who watch the news and get anxious about what is happening and how it will impact them. We have a lot to worry about and be nervous about. Some people with severe memory problems have that, too. Again, if you go to your healthcare provider, they can help sort out what is related to general anxiety and what may be an indication of something more serious.

BHM: What are some early signs that a family member might be experiencing severe cognitive decline?

Dr. Brangman: It’s essential to educate yourself so you can watch for signs in family members. It can be tricky for someone to realize they have a problem, and other family members often notice it. For example, you may repeat a story within a few short minutes. I have had patients who ask their spouse or partner every 5 minutes for the time of a doctor’s appointment. They get the information, but it doesn’t stay. There is an inability to hold onto new information. You might see people start to have trouble with driving, getting lost going to places they usually drive to without any problems.

For example, I had a patient who went to the same hairdresser every week for 20 years, and then one day, due to road construction and a detour, she couldn’t figure out how to get back on the correct road to her hairdresser. She was hours late. They may start to forget appointments or miss paying bills. Now and then, we all miss a bill, but then we realize it and fix it. But I’m talking about people who may not pay their light bill for months and don’t even realize it. They may run out of medications and not get a refill, have problems keeping their house organized, and the mail may pile up. Maybe you notice their clothes are soiled and wearing the same thing repeatedly. It could be very subtle signs.

If you have a mother, father, grandparent, uncle, or anybody in your family and start to notice these changes, you might want to get together with other family members or think of ways to get them to a doctor and get them checked out.

BHM: Why is early intervention crucial for memory problems, and how can it benefit individuals in the long run?

Dr. Brangman: The impact is significant because not everyone with a memory problem has dementia. Sometimes, it can be related to certain vitamin deficiencies or specific medication side effects. A person may think everybody is making a big fuss over nothing. So, you must have a strategy. Maybe you’re working with your doctor or the person’s doctor to see how to get them evaluated and get help. So, you want to ensure that your finances are organized and that you know all the treatment options right now. Some medications can maybe slow down the process a little bit.

BHM: What lifestyle changes can we make to protect our brain health and reduce the risk of cognitive decline?

Dr. Brangman: You want to do things to help maintain your brain health throughout your lifespan. Our brains are designed to last for our whole life, but there are things that we do every day that can increase our risk of having severe memory problems as we get older.

Exercise is fantastic for your brain! It boosts chemicals that help nerves grow and stabilize and improves blood circulation around your brain. You don’t need to train for a marathon; move more daily.

A daily walk is perfect, aiming for 30 minutes, but you can break it into shorter sessions if needed. Simple exercises using your body weight or even a few cans of corn can do wonders.

Diet plays a huge role, especially in our community. Historically, our diets have been high in fat, which might stem from when we had to do heavy physical labor and needed a lot of energy. Now, we need to shift towards healthier eating. Stick to whole foods, not highly processed ones. Reduce fried foods and high-fat meats like red meat. Opt for chicken, fish, lots of vegetables, and fresh fruits. Be mindful of how you cook your veggies and avoid too much fat and salt.

Alcohol is another area to watch. Contrary to popular belief, there’s no safe amount of alcohol for your body. It’s toxic to nerve cells, especially in your brain. Try to limit alcohol to special occasions and avoid daily drinking. Social connections are healthy. This doesn’t mean scrolling through social media. It means face-to-face interactions.

Our brains thrive on personal connections. So, take a walk with a friend. You’ll be hitting two birds with one stone: exercising and socializing.

Stress is not suitable for your body or brain either. Exercise, meditation, or spiritual practices can help reduce stress. There is emerging research that shows discrimination and racism take a toll on our bodies, and over time, it can lead to chronic diseases like high blood pressure and diabetes. We must avoid unhealthy coping mechanisms like smoking or drinking. Instead, find healthy ways to unwind, even if it’s just a few moments to concentrate on things aside from your current worries. I also want to add that if you have high blood pressure or diabetes, keep them under control. These conditions can increase your risk of dementia. And if you smoke, consider quitting. It’s never too late to stop.

BHM: Why is adequate sleep important for brain health, and what happens when we don’t get enough sleep?

Dr. Brangman: Sleep is another big issue, and it’s necessary for brain health. When we sleep, our brain cleans up all the chemical reactions during the day. Without adequate sleep, this self-cleaning process can’t happen. Many of us have responsibilities outside regular working hours, leading to late nights. Society often values hard work and long hours, which isn’t good for our health.

Another essential thing to know is that there are no magic sleeping pills. Many advertised on TV either don’t work or have harmful side effects on your brain. Similarly, memory supplements are often a waste of money. Instead, establish a routine and turn off screens, smartphones, and TVs at a set time each night to create a quiet, dark environment. Consistency is crucial; your brain needs good sleep every day, and you can’t catch up on a week’s sleep on the weekend. Some people think a glass of wine before bed will help them sleep, but it disrupts deep restorative sleep. Caffeine is another culprit. While this stimulant enables you to wake up in the morning, it can keep you awake at night. So, be mindful of your caffeine and alcohol intake. Your brain will thank you!

The post Brain Aging: What’s Normal & When Should We Worry? appeared first on Black Health Matters.

“Along with the loss of menstrual periods, the menopause transition is marked by phenotypic changes including body weight gain associated with increased fat mass and decreased lean body mass associated with reduced skeletal muscle mass and net bone resorption,” according to BJOG: An International Journal of Obstetrics and Gynaecology.

Preparing a plan to deal with this is particularly important for those treating Black women who face a different menopause experience, according to Dr. Alaa Gerais, a resident physician at the Neil Riordan Center for Regenerative Medicine. “Women of color also tend to go through menopausal symptoms at younger ages and for longer durations than white women,” she explained in a statement to Black Health Matters.

The hazard factors impacting the range of menopause onset include oral contraceptive use, smoking, and more.

Being open to developing a plan that caters to the demands of the patient’s lifestyle is key to helping them effectively handle this transition.

“Managing these issues is an important part of caring for women at mid-life, so it is incumbent on practitioners to have a clear understanding of the treatment options and how they may be adapted to an individual woman’s needs,” according to the Journal of Mid-Life Health.

We seek ways to advise your patient on weight gain during menopause. We’ve rounded up some methods below.

Educate Them

Empowering your patients through education allows them to be a true partner in managing their journey through menopause. This process can begin at the beginning of the menopause’s onset or even before it with predictive factors that can help you prepare your patient’s expectations.

Begin doling out advice and listening to their concerns during the perimenopausal period.

Talk them through how the effects of menopause might be showing up in their lives, and actively listen when they answer about their lifestyle.

Consider the best plan of action that they are most likely to maintain without drastically altering their routine.

Keep the advice focused on what best practices will work for the patient before you, and do not generalize it. “Provide counseling that focuses specifically on engagement in a weight loss intervention may enhance weight loss outcomes relative to more general weight loss advice,” reports the Journal of General Internal Medicine.

Have Them Hit the Weight Room

“Proper nutrition and exercise can help keep excess weight off, leading to a reduction of the fluctuation of estrogen, therefore, a decrease in menopausal symptoms. Exercises such as weight training can also strengthen bones, which is important in menopausal women due to decreased estrogen,” explained Dr. Gerais.

Danielle Rancourt, a registered dietitian, connected the lack of bone strength to the necessity of incorporating strength training into an overall wellness routine. “This is why strength training and adequate protein are so important at this stage,” she said.

Check-in with patients to determine what part of their fitness regime includes strength training. To make strength training more appealing, recommend incorporating methods that fit their goals in other areas of their lives. If they struggle to gain the appropriate nutrition, refer them to a nutritionist.

Advise Them to Get as Much Help as They Need

Reinforce that there is no need for those facing menopause to feel ashamed of this natural change. “If a woman is experiencing menopausal symptoms, she must speak to her doctor about the changes she is experiencing,” Dr. Gerais continued.

Work with their other providers to develop a plan that includes their mental and emotional health.

Consider Their Lived Experiences

Present a culturally informed medical opinion by considering the lived experience of your patient and how it might intersect with their transition into menopause. Other studies have found that some health risks associated with systemic racism contribute to the menopausal experiences of marginalized persons.

Find out what other kinds of support are available to help them achieve their goals.

Rancourt recommended “managing stress,” “prioritizing sleep,” and “seeking help from a qualified women’s health provider to manage your symptoms” as well. Insomnia can lead to difficulty managing weight, including the type of weight gain associated with menopause. If they express difficulties, I in achieving the appropriate results, refer them to a nutritionist.

A 2022 study published in Women’s Midlife Health found Black women were “50% more likely than White women” to experience vasomotor symptoms that can impact sleep and recovery. Consider this when making recommendations.

According to a Women’s Health Initiative Study, the risk of developing insomnia was greater in women who consumed high glycemic index (GI) foods bread, pasta, baked goods, and white rice) and anything containing added sugars (sugary beverages, sweets) versus low glycemic index  (GI) plant foods such as most fruits and vegetables, legumes and beans, nuts, seeds, and whole grains.

Bottom line: You may have to assist your patient in navigating the new realities she will face in mid-life, and some of the adjustments she may need to make. Weight gain and the distribution of fat may be among them. Start guiding her early, whenever possible, especially knowing that your Black patient may have a different experience.

The post Helping Patients Manage Menopause & Unexpected Weight Gain appeared first on Black Health Matters.

But in our community, numbers are even higher; 45.4% of Black adults reported getting less than seven hours of sleep compared to 33.2.% of non-Hispanic white adults.

How Lack of Sleep Impacts Black Patients in Particular

There is a proven link between poor cardiovascular health, something that can contribute to difficulty reversing obesity, and insomnia. It was first discovered in 2009.

Who the patient is and what their life looks like matters in how they can address this information and what their life looks like. A 2022 review published in Nutrients stated that “Epidemiological and laboratory studies have consistently demonstrated that short sleep duration is a significant risk factor for weight gain and obesity, especially in African Americans.” In 2019, Nature and Science of Sleep published a review stating that “most studies report that Blacks have the highest risk and prevalence of poor sleep patterns across various dimensions of sleep health than any other racial/ethnic group.

“It has been previously shown that ghrelin, a hormone promoting hunger, increases with sleep restriction, whereas leptin, a hormone contributing to satiety perception, decreases,” according to the Journal of Clinical Nutrition.

Dr. Adrian Pristas, who specializes in Sleep Medicine and Pulmonology and serves as the corporate medical director for the Centers for Sleep Medicine at Hackensack Meridian Health, explained the risks associated with not maintaining proper sleep hygiene for all people to Black Health Matters:

“Short sleep for any reason, whether it be intentional or that of an insomnia patient or somebody with sleep apnea, it comes with consequences,” warned Dr. Pristas. He noted that cardiovascular health is one of the major areas impacted by sleep loss. “People who don’t sleep enough hours, including insomniacs, have more heart attacks and strokes and don’t live a normal lifespan,” he said.

How Insomnia Impacts Patient’s Weight

Obesity can be a predictive factor in developing sleep issues as well.

“The reasons for that are things like adrenaline increase in our bodies when we don’t sleep properly. There are also a few hormones involved, so if you’re trying to stay in shape or you’re trying to manage your weight, managing cortisol and thyroid hormones are important, and they have a circadian rhythm,” he continued. “So if you’re not sleeping properly, the circadian rhythm is disrupted, making it difficult to accomplish goals.”

Current Opinion in Endocrinology, Diabetes & Obesity considers sleep disturbances and circadian rhythms novel but potentially deadly risk factors for obesity. In 2017, the journal reported that circadian misalignment “leads to poor dietary choices and reduced energy expenditure, which may contribute to an increased risk for obesity.” It also reported that “insufficient sleep leads to poor dietary choices and altered hormones involved with hunger and appetite, including ghrelin.”

Why Patients Can’t Choose the Gym Over Sleep

Dr. Pristas described the problem with patients choosing to hit the weights over the sheets. “Sacrificing sleep is never a smart approach. It just doesn’t work. Your body won’t respond the way you want,” he said. For people interested in fitness, recovery is part of the plan. You have to allow your body to recover virtually. All recovery happens during sleep. So, you haven’t recovered if you cut your sleep short and then go to the gym.”

This must be explained clearly to patients so they can understand what they are risking when sacrificing sleep for other areas of their lives. Without the knowledge of the risks, it can be difficult for them to understand the gravity of their decisions.

Research confirms his advice. The International Journal of Environmental Research and Public Health reported, “Optimal sleeping time and quality are necessary to benefit the allostatic response after exercise.” In 2022, Nature Reviews Endocrinology reported that “short sleep duration (defined in most of the cited studies as less than 5 or 6 hours per day) is associated with a 38% absolute increase in the incidence of obesity compared with normal sleep duration in a meta-analysis of prospective cohort studies among adults.”

Dr. Pristas previously used furniture to illustrate the limitations of a healthy lifestyle that doesn’t include sleep. “Imagine your health as a stool with three legs: Sleep, nutrition, and exercise,” said the doctor. “Sleep deprivation will shorten the ‘sleep’ leg, and your health will be off-balance.”

It is important to explain that the kind of sleep patients also miss out on matters and that their approach to closing the gap in their sleep hygiene is imperative.

When we chop off a little bit of sleep time, it’s almost always deep sleep that we are chopping off, and that is the kind of sleep we need to feel better. It’s called restorative sleep,” he explained.

“The last two, three hours of our sleep is that deep sleep. And it’s usually REM, So if you don’t sleep enough, you will chop that valuable sleep off your schedule and lose out.”

4 Ways To Help Your Patients Improve Their Sleep Hygiene

Encourage Them To Ask For Help

Dr. Pristas recommends seeking treatment when restlessness arises. One of his go-to treatment plans is recommending cognitive behavioral therapy. Be prepared to recommend this option to ensure the patient has a method for developing how to take and implement the medical advice you are giving.

Explain What Will Happen If They Refuse To Prioritize Sleep

“I always tell people, if you don’t take care of yourself, you’re gonna be a burden to your family at some point. So, it’s important to take care of yourself, said Dr. Pristas. “You do have to be selfish when it comes to sleep. It’s got to be done.”

Have the studies ready to prove to your patients why they should be committed. Be prepared with positive and negative outcomes so that they can absorb the information that best speaks to them.

Consider Integrating  Wearables into Their Treatment Plan

Adding an eye mask or earplugs can transform your sleep experience. Dr. Pristas uses this practice in his own life. “I personally wear eyewear because I sleep better,” he revealed. I just tell people to sit in an average-lit room, close your eyes, and then cover each eye with the palm of your hand and realize how much darker it is.”

He explained that many people have no idea that light sensitivity negatively impacts their sleep health. “It’s a very common problem that many folks just don’t realize they have.” Don’t assume that your patients know what their sensitivities are. Ask them detailed questions to understand their experience.

Smart watches can help one monitor their sleep habits by drawing their attention to them. “They’re not always as accurate as I’d like to see, but they make people think about their health,” he said.

Recommend Lowering the Temperature

The thermostat might be the answer to patients tossing and turning. “It’s very difficult to sleep in a hot room,” said Dr. Pristas.

Ask them what their options are for cooling things down, and have a few go-to suggestions to offer.

The post Connecting With Patients About Insomnia & Gaining Weight appeared first on Black Health Matters.

While she had made Texas her home, Jackson Lee was born in Queens, New York. She planned to be an executive secretary before graduating from Jamaica High School and, according to her obituary in The NY Times. However, the assassination of Martin Luther King ignited a passion within her. She got a scholarship to NYU and later transferred to Yale, where she graduated—she later attended the University of Virginia to obtain her law degree. Jackson Lee moved to Houston when she married Elwyn C. Lee.

According to the NY Times, Jackson Lee served on the Houston City Council for four years before entering the congressional race when Barbara Jordan’s seat became available. Jackson Lee wanted to serve to help women, Black people, and Hispanic people get a fair shot at success. Her legacy is a testament that she did that and so much more.

A statement released by the Congressional Black Caucus lists includes some of them.

“A former CBC Whip and chair of the Congressional Black Caucus Foundation, Congresswoman Jackson Lee was a devoted and active member of our Caucus who championed many causes, including racial equity and improving policing and community safety in America – most recently reintroducing the George Floyd Justice in Policing Act in May 2024. 

“Representative Jackson Lee leaves her mark on the Congress as a former chair and first female ranking member of the Judiciary Subcommittee for Crime, Terrorism, and Homeland Security, and as a senior member of the House Committees on the Judiciary, Homeland Security, and Budget. During her tenure, she led many important legislative initiatives – authoring the Violence Against Women’s Act and the Juneteenth National Independence Day Act and introducing the Juvenile Accountability Block Grant Reauthorization, the Bullying Prevention and Intervention Act, and the Federal Prison Bureau Nonviolent Offender Relief Act.”

While millions will continue to reap the benefits of her efforts, we remember these words from her family: “She impacted us most as beloved wife, sister, mother, and Bebe (grandmother).”

According to the American Cancer Society, pancreatic cancer is the third leading cause of death in the United States. It is estimated that 66,440 new cases will be diagnosed this year, and 51,750 people will die. The disease is often diagnosed in later stages, and symptoms are frequently mistaken for other medical conditions. To learn about pancreatic cancer, contact the Pancreatic Cancer Action Network, which can provide information on resources for treatment, research, and support.

The post Representative Sheila Jackson Lee Has Passed Away appeared first on Black Health Matters.

1. Breathe Again: Go with Breathable Fabrics

Natural fabrics like cotton, linen, and bamboo are great because they are breathable fibers that allow air to circulate, letting your skin breathe and keeping you cool and comfortable all day.

Cotton is soft and breathable, while linen is super airy. Think breezy maxi dresses and loose, oversized tops from Madewell and Banana Republic for eye-catching silhouettes that are equally cool on the body and the budget.

Care tip: Fine linens range from lightweight to heavyweight, with quality linens having a more substantial weight and drape. Check the care labels, as some linen styles may require hand washing or dry cleaning.

2) Loosen Up: Wear Loose-Fitting Clothes

It’s time to put those skinny jeans away (you can always come back to them in the Fall). Tight clothes trap heat, making you feel hotter, but loose-fitting ones allow air to circulate, keeping you cooler.

Anthropologie and Zara are favorites for their collections of fabulous, flowy dresses and comfy yet flattering trousers—perfect for summer BBQs or picnics in the park.>

3) Stay Sun Smart with UPF Clothing & Accessories

Clothing and accessories with a high UPF (Ultraviolet Protection Factor) protect the skin from harmful UV rays, reducing the risk of sunburn and skin cancer.

Most of us are familiar with UV-blocking sunglasses, but brands like Eleven by Venus Williams and Athleta feature stylish pieces like casual tanks, skirts, and dresses to shield you from harmful UV rays. Protect your skin and wear yours to those weekend street fairs or rooftop day parties.

4) Stay Dry: Embrace Moisture-Wicking Fabrics

Wear fabrics that pull moisture away from the skin and wick away sweat. They are great for your skin and your overall health!

The Spacedye Squared Bra from Beyond Yoga features moisture-wicking material and a 4-way stretch to keep you dry and comfortable. It is ideal for active days like outdoor workouts or family days at the amusement park. Complete the look with the matching Spacedye In The Mix Biker Shorts.

5) Cool Tech: Keep it Chill with Cooling Technology

Clothing designed with unique cooling technology helps to regulate your body temperature, making them super light and airy.

And for outfits that require a little more support, shapewear brands like Maidenform and Thigh Society are leveling up, offering lightweight, hi-tech shapewear designed to keep you smooth and cool in the sweltering heat. These are perfect under-dress and skirt selections for those outdoor garden or dinner parties!

6) Lighten Up: Opt for White or Light Colors

If you haven’t already been to a white party this Summer, you know the invitations are coming! Besides being a cultural mainstay in our community, wearing whites, pastels, and other light colors is better for your hot weather. They reflect sunlight instead of absorbing it, helping you stay cool.

If you need new options, Nigerian-born designer Damie Idowu’s label, Mie, offers elegant white dresses and separates that transition seamlessly from balmy days to breezy summer nights. Wear them along with your summer brights to outdoor concerts and festivals alike.

7) Accessorize Wisely.

Along with your UV-protective sunglasses, keep a cool head in wide-brimmed hats or scarves to protect your skin and hair from excessive heat. Pair your looks with breathable sandals or espadrilles to maintain the cool vibes from head to toe.

Hairbrella’s All-Weather ‘Sun Hat’ is perfect for whatever weather conditions the day may bring. And don’t miss the Nordstrom Anniversary Sale for hot deals on some of your favorite footwear brands.

No matter where your summer adventures take you – be it the beach, the boat, or just chilling with friends and family in the sun, staying cool and stylish is all about making smart wardrobe choices. Mix and match these tips for fresh, vibrant looks. Wearing comfortable and appropriate clothing can also boost your mood and reduce stress. Let’s make this summer season your most stylish and comfortable one yet!

The post 7 Ways to Dress Cooler This Summer appeared first on Black Health Matters.

Techniques like braiding, weaving, and twisting showcase our creativity, flyness, style, and resilience. However, the desire for these styles can lead to the overuse of “heavy” hair products like hair fibers/extensions, edge control, and mousse/foam. While these products may achieve the initial look, they can have unintended consequences for your scalp’s health. Let’s take a deep dive into how these products affect your hair follicles and pores while exploring healthier alternatives to achieve beautiful, healthy summer hair.

Drowning in Heavy Products

Overusing “heavy” products like braid gels, mousses/foams, and thick edge controls can disrupt the scalp’s delicate ecosystem. They leave behind white flakes and buildup and can also clog pores, hindering sebum production (natural oil) and causing dryness and irritation. The constant strain from tight braiding or extensions and product buildup can cause traction alopecia and scarring, resulting in permanent hair loss. Check out this video for an extreme example of the overuse of mousse/foam—scroll to the end.

In this video, Susan L. Peterkin – co-founder of the @naturalhairindustry (N.H.I.C.) and@thestrandnetwork (S.T.R.A.N.D.), discusses how the over-manipulation of edges and baby hairs can cause progressive hair loss. Peterkin says in the video, “And I’m predicting this is (talking about baby hair): What’s going to happen. Each time you go in, you are going to pull some more out because this part is going to keep burning off and then shorter.”

The Ripple Effect & Scalp Distress

• Clogged Pores: Thick layers of product can suffocate hair follicles by blocking oxygen and nutrient flow and hindering sebum production. This can weaken hair, increase shedding, and even lead to permanent hair loss in extreme cases.
• Microbiome Imbalance: Harsh chemicals, fragrances, sweat combined with product buildup can disrupt the scalp’s natural bacteria balance, promoting scalp conditions like seborrheic dermatitis (dandruff), fungus like candida (yeast infection) and trichomycosis (mold).

Creating a Healthy Hair Climate

Use Lighter Products

Opt for lightweight, water-soluble (capable of dissolving in water without leaving scalp buildup or residue) styling products that allow your scalp to breathe. Be generous with your product usage—there is no need to cake it on.

Minimize Fragrance

 Choose products with little to no fragrance. Fragrance can cause allergic reactions to the scalp, one of your body’s most sensitive skin areas.

Here are three products without the buildup or flaking and have minimal fragrance:

1. Vontae Edge Effects, $14

2. KeraCare Styling Hair Wax Stick $20.50

3. MyGel by Joi Naturals.

Gentle Styling

Prioritize healthy practices like regular cleanses and gentle detangling. Use the right styling tools for your hair type and texture, minimize heat styling, and avoid high-tension styles and irritating hair fibers/extensions. Nourish your hair and scalp with steam and moisturizing products.

Clean & Disinfect

Wash your hair and edge brush, comb, and clips regularly to avoid residue buildup, which can be a breeding ground for bacteria. Do not share hair tools—everyone in the home should have their own hair care tools.

Here’s a step-by-step on how to disinfect your tools at home:

Step 1. Clean any excess hair or product buildup from your hair tools.

Step 2. Scrub with soapy hot water, Dr. Bronner’s castile soap, and a nail cleaning/toothbrush until clean.

Step 3. Lay them out to dry on a clean hand or paper towel.

Step 4. After they dry thoroughly, douse them with 70-90% alcohol using a spray bottle—this last step is crucial as it will kill any unwanted bacteria.

Pro Tip: Clean your hair tools every time you wash your hair.

Taking the Plunge for Healthy Hair

• Don’t Forget Your H20: Drink plenty of water to keep your hair, skin, and body hydrated.
• Eat a Balanced Diet: Support hair growth with Essential Vitamins A, B, C, D, & E. You can also juice for healthier hair.
• Seek Professional Help: If you experience chronic scalp issues, consult a dermatologist specializing in scalp disorders. If these issues impact your mental or emotional well-being connect with a therapist.

Remember, scalp health isn’t just about aesthetics; it’s the foundation for unlocking the full potential of YOU and your hair this summer and every season after that.

The post Summer Hair SOS: Is Your Style Causing Scalp Issues? appeared first on Black Health Matters.

Study Findings

The study found that epigenetic aging can be impacted by exposure to racism. Epigenetic aging presents a precise picture of how one’s cells are aging instead of chronological age. There are considerable disparities in the rate at which Black people are diagnosed with certain brain health disorders, including Alzheimer’s Dementia. “Epidemiologic studies suggest that Black individuals have a 2-fold greater risk of Alzheimer’s dementia compared with White individuals; racial discrimination has been indicated as a contributing factor,” according to information obtained from a 2019 study by the Alzheimer’s & Dementia, the Alzheimer’s Association.

Theories on the impact of systemic racism on many aspects of healthcare are widely accepted.

Racism as a Public Health Crisis

In 2021, the Centers for Disease Control and Prevention declared racism a legitimate public health crisis. The negative results of racism are sometimes referred to as weathering. Previously, “Emerging neuroimaging research has shown that racial discrimination affects brain function and structure,” in a 2022 study published in the Journal of the American Medical Association. It found that “racial discrimination may lead to a proportionately greater response and connectivity in brain networks involved with threat processing and emotion regulation” as a result of the sustained exposure to the trauma racism embeds into the bodies it seeks to diminish. Other studies have highlighted genetic predispositions passed down as a result of this enduring trauma, including the “altered connectivity of the amygdala and anterior insula.” Those findings held even after the information was effectively adjusted for socioeconomic status. This dispels that all it takes is improvements in financial equity to overcome risk factors.

The results of these studies are not dependent on the racist encounters being connected to macro-aggressions or micro-aggressions specifically.

How Codeswitching Factors In

In a 2024 interview with NPR, Negar Fani, a clinical neuroscientist at Emory University evaluating individuals with Posttraumatic Stress Disorder, or PTSD, and Nate Harnett, an assistant professor of psychiatry at Harvard Medical School, suggested the adaptability required to self-regulate emotions with coping methods like codeswitching could contribute to the potential degradation of brain health. Their hypothesis pondered whether constantly finding measured responses to a series of harmless hair touches or casual epithets can erode one’s brain health over time.

The pair worked on a 2021 study researching their theories.

The Journal of Biological Psychiatry Published their study, which reported that “experiences of racial discrimination were associated with significantly lower fractional anisotropy in multiple white matter tracts, including the corpus callosum, cingulum, and superior longitudinal fasciculus.” The statistical variations in this study remained “even after accounting for variance associated with trauma, posttraumatic stress disorder, and demographic- and scanner-related factors.”

“There’s no such thing as a free lunch when it comes to the brain,” Harnett told NPR. “Energy has to come from somewhere. And what we think ends up happening is, you know, an energy that’s reserved for other processes then gets taken away.”

While there has been a rise in the visibility of studies connecting systemic racism to health issues, there has not been an adequate amount of peer-reviewed studies. “Despite numerous studies highlighting the associations between racial discrimination exposure and negative brain health outcomes, few empirical studies have examined racial discrimination–related neurobiological mechanisms that may underlie these outcomes,” according to the Journal of the American Medical Association.

Identifying how racism impacts the mind and body is essential to learning how to treat its effects in the future.

The post Racism and Codeswitching Are Aging Our Brains appeared first on Black Health Matters.

How it Started

Fortunately, there have been individuals who, like us, value our collective well-being and recognize the urgent need for broader access to mental health services and a shift in the narrative surrounding mental health within our community. One of those individuals was Bebe Moore Campbell; her dedication to mental health advocacy led to the establishment and recognition of National Minority Mental Health Awareness Month.

Campbell was an influential American author, journalist, teacher, and passionate advocate for mental health. She used her literary talent to explore the intricate themes of race, family, and mental wellness. For Campbell, this advocacy wasn’t only professional. It was deeply personal, stemming from her own family’s firsthand encounter with mental illness.

She found a way to include the mental health narrative into the complexity of the Black experience. Her notable work, “72 Hour Hold,” tells the story of a mother struggling with her daughter, who has bipolar disorder, and their journey of navigating treatment in an inadequate mental health care system. Campbell extended her advocacy to younger audiences as well. She wrote, “Sometimes My Mommy Gets Angry.”

This book tells the story of a young girl named Annie, whose mother has a mental illness. Campbell recognized the importance of mental health advocacy across generations. Her catalog continues to resonate and uphold her legacy, even after passing. Her contributions have left an irreplaceable mark on literature, history, and the extensive discussion of mental health.

As a result of Campbell’s determined effort, in 2008, the U.S. House of Representatives designated July as Bebe Moore Campbell National Minority Mental Health Awareness Month, nearly two years after her passing. Cambell is recognized nationally for bringing the conversation about mental health in minority communities to the forefront, destigmatizing mental health issues, and shedding light on the disparities.

You Can Make a Difference Too

If you are inspired by Campbell’s initiatives and passion for mental health, there are a few ways that you could participate and make a difference this month. First and foremost, it is essential to understand that advocacy manifests differently in everyone. What you might perceive as “small acts” can be powerful examples of advocacy. Here are some ways that you can make a difference.

Educate Yourself

Learn more about mental health, specifically within our community. According to Columbia University, our community is at a significantly increased risk of developing mental health issues due to historical, economic, social, and political influences that systemically expose us to factors known to be damaging to our psychological and physical health. The disparities within our community are not a new phenomenon. They have existed for generations. Research suggests that we are subject to intergenerational trauma because of enslavement, oppression, colonialism, racism, segregation, and all the systemic remnants that exist today. And setting boundaries is critical in maintaining your mental health.

As reported by the National Library of Medicine, the disparities in mental health care that our community faces can be attributed to a multitude of factors beyond just financial constraints. Many people in our community face the harsh reality of double discrimination. For instance, a Black woman may find herself at the receiving end of prejudice, not only for her gender but also for being a person of color. We may also be confronted with microaggressions; these subtle yet harmful interactions and behaviors perpetuate stigmas associated with our community, pushing us farther away from seeking the help we need. This can lead to institutional mistrust, as we may experience a lack of trust in the medical system, and some of us may even fear the outcome of seeking mental health care.

So, we encourage you to invest time in understanding the disparities in your state or delve into your family’s mental health history. All good things begin with knowledge.

Speak Up

Use what you learn about mental health to speak up. Whether mentioning awareness pointers over a family dinner, using social media, or attending a community event, don’t be afraid to speak up about mental health in our community. You may even find more joy in volunteering. Many organizations are doing incredible work to provide culturally competent care, conduct research, and advocate for policy changes. Find a way to contribute that resonates with you the most and explore your city’s opportunities.

Practice Self Care

Mental health starts with you. Prioritize caring for your mental health and encourage others to do the same. You may want to meditate, immerse yourself in a good book, spend time with friends, indulge in a spa day, or embrace the art of doing nothing. Self-care is different for everyone. Listen to your intuition and do the things that bring you joy. If you need guidance from a mental health professional, don’t hesitate to pursue that journey. Despite the numerous barriers we encounter in accessing mental health care, we deserve quality services. You may want to invest additional time in finding a therapist who aligns with your cultural background. It is okay to experience trial and error along the way; don’t let setbacks deter you from pursuing mental wellness.

In the words of Bebe Moore Campbell, “Knowing who you are begins in the mind.”

The post Minority Mental Health Awareness Month: It’s Origins And Equity appeared first on Black Health Matters.

Jenni A. Shearston, an epidemiologist at the University of California, Berkeley, led the study. According to the study, “Between 52–86% of people who menstruate in the United States use tampons—cotton and/or rayon/viscose ‘plugs’—to absorb menstrual blood in the vagina.

Tampons may contain metals from agricultural or manufacturing processes, which could be absorbed by the vagina’s highly absorbent tissue, resulting in systemic exposure. To our knowledge, no previous studies have measured metals in tampons.”

The team examined “14 tampon brands and 18 product lines and compared the concentrations by tampon characteristics.” (Think: Regular, Super, and Super Plus).  They found 16 metals in total: arsenic, barium, calcium, cadmium, cobalt, chromium, copper, iron, manganese, mercury, nickel, lead, selenium, strontium, vanadium, and zinc.

They purchased products in the United States, the United Kingdom, and the European Union. All the types tested had detectable levels of metals, which Newsweek reports may cause depression.

Are you safer with organic brands? Not exactly. You are exposed to different toxins. The non-organic tampons tested had higher lead levels, and organic tampons were more likely to contain arsenic.

Newsweek reported, “Despite this large potential for public health concern, very little research has been done to measure chemicals in tampons,” said Jenni Shearston, a postdoctoral scholar at the UC Berkeley School of Public Health and UC Berkeley’s Department of Environmental Science, Policy and Management, said in a statement.

“To our knowledge, this is the first paper to measure metals in tampons. Concerningly, we found concentrations of all metals we tested for, including toxic metals like arsenic and lead.”

What’s the risk to our health? Exposure to metal can cause things like infertility, cancer, diabetes, and dementia. They can impact maternal health and fetal development and cause damage to the liver, kidney, brain, and cardiovascular system. However, it is unclear whether the amount of metals contained in tampons would impact us this way.

Since this is the first study of its kind, be aware of the possible implications. Stay tuned to see if there will be any changes in the laws that will include better labeling.

Also, talk to your GYN about your alternative.

The post Some Tampons Brands (Even Organic Ones) Contain Arsenic & Lead appeared first on Black Health Matters.

What is Pickleball?

Pickleball is a sport where two or four players use a paddle to hit a plastic ball over a 34-inch-high net. The ball remains in play until one side cannot return it or commits a rule infraction.

The sport began to see an uptick in popularity in 2021. Not too long after the height of the COVID-19 Pandemic. Major League Pickleball (MLP) advertises itself as “the standard-bearer for the fastest-growing sport in the United States.” The league consists of 24 teams — 12 in its “Premier Level” and 12 others in its “Challenger Level.” It is similar can to England’s soccer system within the Premier League.

What is the Difference Between Pickleball, Badminton, and Tennis?

Although the sport combines elements of tennis, badminton, and ping-pong and features a paddle and a ball, it is not the same.

Pickleball differs from tennis and badminton in several ways. For starters, the court on which it is played is smaller than in the other two sports. The net is also lower than in tennis, which makes a big difference in gameplay.

In addition, pickleball uses a different type of ball and paddle. Regarding gameplay, Pickleball is generally slower-paced than tennis and requires less running. The game also emphasizes accuracy and strategy compared to tennis, which values power and speed.

What Level of Skill Do I Need to Play Pickleball?

One of the best things about pickleball is that you don’t have to be astronomically physically gifted to play the sport. It is a sport that people of all ages and abilities can play. Pickleball utilizes smaller courts and has a reduced pace compared to tennis. Because of this, the sport is easier for beginners to take on. Once novices reach an advanced level, they can level up with more complex strategies and techniques.

Do I Need to be at a Certain Level of Fitness to Play Pickleball?

You do not need to be at a peak fitness level to play Pickleball. If you work out at the gym often, you are in good enough shape to play the sport. Pickleball is a low-impact sport. It is much less strenuous on your joints and muscles than higher-impact activities like running. It also provides a full-body workout that can help improve your cardiovascular health, strength, and endurance.

What Equipment Do I Need to Play Pickleball?

Another benefit to playing pickleball is that you don’t need extensive equipment to get started—a complete contrast from other sports such as hockey and football. The gist of what is needed is a court, net, paddle, and ball.

Even better is that the equipment is pretty reasonably priced. Most paddles are about $50 on the cheap end. However, you can pay up to $250.00 for a higher-quality paddle. And you can get a pack of balls for around $30.00 or less.

Franklin Activator Wooden Pickleball Paddle Set $34.99 Dick Sporting Goods

Pickleball nets tend to be on the more expensive side. A good quality net starts at around $300. But it is much more feasible for you to find a court to play on. Websites such as the USA Pickleball website allow you to look up multiple locations to play based on your geographical location.

Now that you know everything you need about the sport, the only thing left to do is start!

The post Yes, Black Folks Play Pickleball! Here’s Why It’s a Great Workout appeared first on Black Health Matters.

To bridge the awareness gap, let’s delve into some essential knowledge every mother needs.

What is Cord Blood?

Following a baby’s birth, the umbilical cord and placenta are often discarded and dismissed as postpartum biological waste. However, they hold something very special: cord blood. This is not just any blood; it’s a unique type of blood that remains in the umbilical cord and placenta after childbirth.

What sets cord blood apart is its rich content of hematopoietic stem cells, as outlined by Stanford Medicine. These cells can help strengthen the immune system, and they can even mature and grow into different types of blood cells; they hold the potential to reconstitute an individual’s entire blood supply. Their capabilities make them invaluable in the treatment of various diseases, including leukemia, genetic disorders, and immune system diseases. These reasons point to why as a community, we should think twice before discarding this life-saving resource.

How is Cord Blood Retrieved?

If you decide to store your baby’s cord blood, your healthcare provider will collect it right after they clamp and cut the umbilical cord. As explained by the Mayo Clinic, a needle is inserted into the cord to extract the blood. The blood is then put into a collection bag. This entire process takes just a few minutes and from there, the blood undergoes processing and categorization before it is dispatched for freezing.

Facts You Should Know

If you’re thinking about storing or donating cord blood, it’s important to be well-informed. The Cord Blood Association has shared some interesting, yet not widely known, facts about cord blood. Take a moment to look at these facts:

Collecting cord blood does not harm the mother or baby and does not interfere with childbirth. It is collected by one’s doctor, or the placenta is delivered and given to a cord blood collection specialist. The collection process occurs after the umbilical cord is detached from the baby.

Expecting parents should prepare in advance for the collection of cord blood. It’s recommended to talk to your obstetrical physician or other healthcare providers between the 28th and 34th week of pregnancy about our interest in storing or donating your baby’s cord blood.

Unfortunately, not every hospital offers the option of cord blood donation, so checking in with your preferred hospital is important.

Cord blood is an alternative to bone marrow. It is used in transplants because it contains many natural elements and has amazing blood-forming abilities.

While you can choose to privately bank your baby’s cord blood for potential future use by your own family, donated cord blood can be used by anyone who is a match. Your baby’s cord blood could potentially save the lives of people beyond your family, patients who don’t have a suitable family donor.

When properly stored, cord blood stem cells don’t expire. Unlike bone marrow, cord blood can be frozen and stored for years or even decades.

Will Your Family’s Cord Blood Be a Match?

Most cord blood treatments rely on matching human leukocyte antigens (HLA), these are proteins that are found on most cells in your body. Your immune system uses these markers to recognize which cells belong in your body and which do not. In many cases, cord blood from a family member isn’t always a match. Even though family members share genes, the combination of HLA markers can vary. While cord blood can be a valuable resource, it is not guaranteed to be a match for siblings or other family members. This is one of the primary reasons why cord blood banks and registries are important. They reduce the waste of viable cord blood and increase the chances of finding a match for those in need of transplants.

Public vs Private Cord Blood Banks

When it comes to cord blood banking, public and private cord blood banks offer different services.

Donating cord blood to a public bank is a generous act that comes at no cost to you. Once donated, the cord blood becomes available to any patient in need of a transplant, or it can be used for medical research. Although public banking doesn’t reserve your donation for your family alone, it can contribute to health equity in our community, ensuring that we have the same access to life-saving treatments as patients from other ethnic backgrounds.

On the other hand, private cord blood banking is a personal investment. While it does come with collection and storage fees, it ensures that your baby’s cord blood is exclusively reserved for your family’s use. Initial collection fees can cost thousands of dollars, and annual storage fees can cost several hundred dollars, but for many families, it is worth it. Private banks have more flexible guidelines, allowing them to store any amount of cord blood, regardless of the stem cell count.

If your family ever needs cord blood, retrieving your specific donation from a public bank is highly unlikely. Once you donate to a public bank, the cord blood is owned by the bank, and there’s no guarantee it will be available if needed. If guaranteed access to your baby’s cord blood is what you’re looking for, private cord banking might be the route for you.

Each type of banking comes with its own advantages and challenges. While the financial aspect often stands out in comparison, as a mother, you possess the understanding of what is best for your family. Looking further into your options is always a wise move so that you can make informed decisions that align with your family’s needs.

Why It’s Important That We Participate

Choosing to donate your newborn’s cord blood can contribute to a nationwide effort to create a genetically diverse inventory of stem cells for transplantation and treatments. Patients in need of a transplant are more likely to find a suitable match from a donor of the same ethnic background, and the importance of cord blood awareness, particularly for Black mothers, can’t be understated.

The National Marrow Donor Program has revealed that approximately 70% of patients requiring transplants don’t have fully matched family donors. These patients often depend on cord blood transplants from unrelated donors. Therefore, even if your donation doesn’t directly benefit your own family, it serves as an invaluable contribution to the broader healthcare system.

Engage in conversations about Cord Blood Awareness Month with your loved ones. Spreading awareness can significantly enhance the chances of saving lives and collectively advance the research and treatments for conditions that affect us profoundly. Every conversation counts.

The post Understanding Cord Blood (What Expectant Mothers Should Know) appeared first on Black Health Matters.

We depend on our kidneys to remove extra fluid and waste from our blood. But if you have CKD, your kidneys may not work as well as they should. Over time, CKD can worsen and develop into kidney failure. People who have kidney failure depend on dialysis to help filter their blood.

Most medications are removed from your body through the kidneys. So, if you have CKD, it’s essential to know which medications are safe for you to take. It’s common to take over-the-counter (OTC) medications and supplements. But it’s also important to talk with your healthcare provider or pharmacist to help you determine which OTCs and supplements are best for you.

Below are some medication tips for people with CKD.

Nonsteroidal Anti-Inflammatory Drugs (NSAIDs)

These medications help decrease pain and swelling (inflammation) and reduce fever. NSAIDs are generally safe and effective when used short-term — no more than ten days for pain or three days for fever. You must also take the recommended dose as listed on the manufacturer’s label. Taking NSAIDs at higher doses and for more extended periods can increase your risk of kidney damage.

Be sure to talk with your healthcare provider if you have pain or swelling that doesn’t disappear after a few days. Together, you can determine safer options to help manage your condition and protect your kidneys.

Examples of OTC NSAIDs include Ibuprofen (Advil, Motrin) and Naproxen (Aleve).

Antacids

People take antacids to help treat heartburn, problems with digestion (indigestion), and upset stomach. These medications are also found in your local pharmacy and should be taken for no more than 1 to 2 weeks. Long-term use of antacids in people with chronic kidney disease can cause elevated levels of aluminum and magnesium in your body. This is due to the decreased ability of your kidneys to filter your blood.

Examples of Antacids include aluminum hydroxide/magnesium hydroxide/simethicone (Maalox, Mylanta)

Herbal Supplements

Herbal supplements may be taken for various conditions but aren’t FDA-regulated like most medications. So, if you have kidney problems, talk with your healthcare provider to help you determine which supplements are most appropriate for you. According to the National Kidney Foundation, people with chronic kidney disease should avoid certain supplements. These include (but are not limited to):

• Cat’s Claw
• Creatine
• Goldenrod
•  Java Tea Leaf
•  Licorice Root
• Yohimbe

The post Chronic Kidney Disease & OTC Medicine (What You Need to Know) appeared first on Black Health Matters.

What are the symptoms?

PTSD has a wide variety of symptoms, but some everyday things to look out for include:

• Intrusive memories: unwanted recurring distressing memories, flashbacks, and nightmares of the event. Severe emotional or physical reactions to reminders of the event.
• Avoidance: Avoiding thoughts, conversations, places, activities, or people associated with the event.
•  Negative Changes in Thinking and Mood: Negative self-perception and pessimism about the future. Memory issues, difficulty in relationships, detachment from loved ones, loss of interest in activities, difficulty feeling positive emotions, and emotional numbness.
• Changes in Physical and Emotional Reactions: Easily startled or frightened, always on guard, self-destructive behavior, sleep and concentration problems, irritability, anger, guilt, or shame.

The symptoms of PTSD can often mimic the unpredictable nature of flares, varying in intensity as time progresses. An individual suffering from this condition might experience periods of relative stability, only to have their symptoms intensify when faced with reminders of the traumatic event. For example, a combat veteran might find loud noises particularly distressing. It is essential to closely observe your loved one and engage in open communication to identify their specific triggers accurately. If they are not already under the care of a professional, it may be beneficial to suggest they consult with a mental health expert who specializes in PTSD. This could be a very vital step in their healing journey.

Healthy Communication is Critical

Healthy communication can make a significant difference in letting your loved one know you are there for them. If communication is a work in progress for you and your loved one, take note of the advice provided by the U.S. Department of Veteran Affairs. They suggest the following:

• Be clear and to the point.
• Be positive. Blame and negative talk will not help the situation.
• Be a good listener. Don’t argue or interrupt. Repeat what you hear to ensure you understand, and ask questions if you need to know more.
• Express your feelings. Your loved one may not know you are sad or frustrated unless you are clear about your feelings.
• Help your family members express their feelings. Ask, “Are you feeling angry? Sad? Worried?”
• Ask how you can help. Don’t advise unless you are asked.

Emotions such as blame, guilt, and shame can create barriers to communication with your loved one. To navigate this, make their mental well-being your primary focus. Recognize and accept your emotions and listen attentively to your loved one’s feelings without attributing any blame. They may need to discuss the traumatic event repeatedly, so instead of urging them to move past it, try to embrace the healing process, even if it seems repetitive. Also, if they choose not to talk, respect their decision. It is more beneficial for them to share their experiences naturally rather than feeling coerced into revealing information.

If you encounter challenges in communicating with your loved one, explore the option of family therapy. This form of counseling can include multiple family members and provide an environment that promotes open communication. Additionally, it can aid in preserving a healthy relationship during your loved one’s healing journey and offer a supportive platform to navigate challenging emotions and difficult conversations.

Dealing with Anger

Some people who have PTSD may feel angry about many things. It is a normal reaction to trauma. Still, anger and violence can hurt relationships and make it complicated for both parties to think clearly.

If your loved one’s anger ever leads to violent behavior or abuse, remove yourself from the situation, go to a safe place, and call for help right away. This type of anger can be frightening, and although you may want to help your loved one, professional help is better suited to such an expression. If your loved one is exhibiting general anger or frustration, the U.S. Department of Veteran Affairs suggests setting a time-out system; this includes the following:

• Agree that either of you can call a time-out at any time.
• Agree that when someone calls a time-out, the discussion must stop immediately.
• Decide on a signal you will use to call a time-out. The signal can be a word that you say or a hand signal.
• Agree to tell each other where you will be and what you will do during the time-out. Tell each other what time you will come back.

During the time-out, think calmly about how you will continue to talk things over to find a solution. After the time-out, practice the following:

• Take turns talking about solutions to the problem. Listen without interrupting.
• Use statements starting with “I,” such as “I think” or “I feel.” Using “you” statements can sound accusing.
• Be open to each other’s ideas. Don’t criticize each other.
• Focus on things you both think will work. It may both will have good ideas.
• Together, agree on which solutions you will use.

By reading this article, you are already taking a significant step towards supporting your loved one. PTSD can heighten the risk of other mental health challenges, including depression, anxiety, substance abuse, eating disorders, and suicidal thoughts or actions. For those suffering from PTSD, having a supportive network and someone to envision a hopeful future with can be incredibly beneficial. Throughout this journey, it is important not to feel guilty if you don’t have all the answers or fully understand the intricacies of the condition. It’s completely normal to feel overwhelmed at times. Remember, your support can play a crucial role in preventing your loved one from resorting to unhealthy coping mechanisms.

Lastly, don’t underestimate the value of a mental health team. Professionals such as psychiatrists, psychologists, clinical social workers, or family therapists can provide you and your loved one with essential information about treatment options and coping strategies. Your dedication and expertise can work together toward a healthier future.

PTSD Resources include The Anxiety and Depression Association of America, The National Center for PTSD, and The National Alliance on Mental Health.

The post How To Support a Loved One With PTSD appeared first on Black Health Matters.

“Despite the prevalent misconception that melanin-rich skin doesn’t need sunscreen, it’s crucial for everyone to use it. While melanin provides some natural protection against UV radiation, it is insufficient to prevent skin damage, premature aging, or skin cancer. Sunscreen shields the skin from harmful UVA and UVB rays, which can cause hyperpigmentation, photoaging, and skin cancer. Daily use of sunscreen is vital in maintaining healthy skin and preventing long-term damage, ensuring that your skin remains radiant and protected.”

So, don’t consider sunscreen a summertime staple but an everyday essential. Sitting in front of a computer screen all day exposes your skin to blue light. And the best one is the sunscreen you continually use!

With so many to choose from, where does one start, and what does one look for?

We’ve removed some guesswork by answering your biggest questions and creating these guide to sunscreens for darker skin tones:

What are the benefits of using sunscreen?

Sunscreen can block UV rays that stimulate melanin production. While significantly reducing and preventing uneven skin tone and hyperpigmentation, maintains Ginille Brown, a Los Angeles-based Aesthetic Nurse Practitioner and Founder of Ginille Beauty Aesthetic. “Many of my Black and brown patients see improvement in hyperpigmentation once they incorporate daily sunscreen into their routine. Moreover, treatments like laser, microneedling, facials, and chemical peels are more effective and safer when combined with diligent sun protection,” she states. In addition to sunscreen, using sun-protective clothing such as hats and gloves and avoiding the sun can enhance protection.

What should those with melanin-rich skin look for in sunscreen?

Dr. Stephens states that when selecting a sunscreen, individuals with melanin-rich skin should seek products that offer broad-spectrum protection with an SPF of 30 or higher. Broad spectrum means the sunscreen protects you from both UVA and UVB rays. Choosing a sunscreen that doesn’t leave a white caste is essential, which is a common issue with many mineral-based sunscreens (more on that below). Opt for formulations with micronized zinc oxide or chemical/organic sunscreens that blend seamlessly into the skin. Hydrating ingredients and antioxidants can also be incredibly beneficial, helping maintain skin health and prevent hyperpigmentation. Look for sunscreens enriched with nourishing components like hyaluronic acid, vitamin E, and Niacinamide, which protect the skin and enhance its overall appearance and texture.

What is the difference between mineral sunscreens and chemical sunscreens?

Brown explains that mineral sunscreens contain active ingredients like zinc oxide or titanium dioxide that sit on the skin’s surface and physically block UV rays. Chemical sunscreens contain organic compounds like Oxybenzone or avobenzone that absorb UV radiation and convert it into heat, which is then released from the skin. She also suggests that those with sensitive skin should use mineral sunscreens with zinc oxide or titanium dioxide as they are less likely to irritate.

Two to try: Check out Brown’s brand, Jasi Skin Crystal Clear Mineral SPF 45, $64, or CeraVe Hydrating Mineral Sunscreen SPF 50 Body Lotion.

Wait a minute. Are all chemicals safe to use?

According to the Environmental Working Group, out of 1,700 products tested, which included recreational sunscreens and daily-use SPF products, nearly 300 contain Oxybenzone, octinoxate, or both; half of the products raise significant concerns about allergies. Avoid Oxybenzone and octinoxate, both found in many chemical sunscreens, which are harmful to human health and the environment. The National Institutes of Health reports that they are known to cause allergies in people and disrupt hormones, while in nature, they harm coral reefs and fish, causing bleaching and even death.

What is an SPF? What number should we be looking for?

Cosmetic chemist Nongdo Bougouma says according to the FDA, SPF is a measure that indicates how long it takes for UV rays to redden protected skin (i.e., skin with sunscreen) compared to unprotected skin (i.e., skin without sunscreen). For example, if it takes 10 minutes to sunburn without sunscreen, with an SPF of 50, it will now take 500 minutes. Nurse Practitioner Brown adds that a higher SPF offers more protection, but only to a certain extent. SPF 30 blocks about 97% of UVB rays, while SPF 50 blocks about 98%. Beyond SPF 50, the increase in protection is minimal.

An SPF of at least 30 is recommended for everyday use. An SPF of 50 or higher should provide additional protection against intense UV exposure for extended outdoor activities, such as a day at the beach. Look for sweat— and waterproof sunscreens or water-resistant sunscreens to ensure long-lasting protection. Using moisturizers or makeup with SPF is not enough. It’s essential to use sunscreen in addition to other skincare products and makeup, even if they contain SPF.

Help me start my journey. Which sunscreens are meeting melanated needs?

Black Girl Sunscreen Ultra Sheer SPF 30 Moisturizing Sunscreen, $19, is an excellent place to start if you have normal to dry skin. But if you have oily skin, try Black Girl Sunscreen, Make it Matte, SPF 45, $17.99.

Supergoop! Play Everyday Lotion SPF 50, $36,  Lightweight, sweat and water-resistant.

Neutrogena Ultra Sheer Dry-Touch Broad Spectrum SPF 55, $13.99, is a tried-and-true sunscreen for all-over use and long sunny days at the beach.

Face card approved: Tinted sunscreens come to the rescue in deeper shades that convert a bevy of hues and go the distance as a protectant and makeup. Expect a glow-up as they all include good-for-skin ingredients like hyaluronic acid to provide hydration and retain moisture.

Reach for:

EltaMD Skincare UV Daily Broad Spectrum 40 Deep Tint, $45 (but don’t sleep on the transp option, UV Clear SPF 46), contains Niacinamide, which helps reduce the appearance of discoloration and blemishes.

Live Tinted Hueguard Skin Tint SPF 50, $42. Natural ingredients like Butterfly Bush Flower Extract prevent collagen breakdown and encourage skin repair.

Fenty Beauty Hydra Vizor Huez SPF 30 Refillable Tinted Moisturizer Set, $48. It comes in 10 shades. Rich in antioxidants, it reduces the appearance of pores, dark spots, and fine lines.

Clear formulas: SEKKISEI, Herbal UV Defense Gel Broad Spectrum SPF 40 Sunscreen, $30, is the perfect marriage of ancient herbal ingredients and modern technology in a clear formula that works for our skin. Ingredients include licorice root to reduce irritation, Angelica Gingas root, which reduces hyperpigmentation and keeps skin hydrated, and Job’s Tear Seed Extract. The formula is encapsulated in an oil-in-water emulsion that absorbs quickly into the skin so the sunscreen doesn’t feel greasy.

Then glow and protect your body with these two perfect picks:

Kopari Sun Shield Body Glow Sunscreen, $42, is a lightweight gel sunscreen infused with vitamin E, macadamia, and hibiscus oils available in SPF 30-50 in shades of amber, gold, or rose with UVA and UVB coverage.

 Cay Skin Nourishing Body Mist SPF 50 with Sea Moss and Hyaluronic Acid, $26. It is easy to apply spray. It offers broad-spectrum UV protection, is silicone-free, and is safe for sensitive skin. It is non-comedogenic, vegan, and non-comedogenic. Model Winnie Harlow has built a winning formula with this line!

And then there are those products that are multitaskers or are perfect for on-the-go. Here are two sun protectors to try:

The Multitasker: Undefined Beauty R&R Sun Elixir, SPF 30 Glow Oil, $22  A fast-absorbing waterless formula infused with Vitamin C, Rosehip, Milk Thistle, and Moringa that offers broad spectrum protection and can be applied to skin, scalp, hair, and body.

Colorscience Sunforgettable Total Protection Brush-On Shield SPF 50 in Deep, $69. It is the best way to reapply sunscreen over your makeup daily. It is infused with hyaluronic acid to restore moisture to the skin and antioxidants. It is safe for sensitive skin and adds protection without disrupting your look.

How long does your sunscreen last?

These days, sunscreen generally has an expiration date. But it typically lasts about three years from the time you purchase it. If you use it the way you should, it probably won’t last that long. If you don’t see an expiration date, use a Sharpie to write the date of purchase on it.

To keep it in optimal condition, follow these tips from the Mayo Clinic:

• Don’t leave sunscreen out in the heat or direct sunlight.
• Wrap it in a towel, keep it in the shade, or place it in a cooler.
• If the color or texture of your sunscreen changes significantly, toss it.

The post Our 2024 Guide to Sunscreens: 16 Picks for Darker Skin appeared first on Black Health Matters.

It allows you to determine what you want your experience to look like. You can spend four hours people-watching at a Parisian cafe or wander through the Jardins do Palácio de Cristal grounds in Porto without thinking about someone else’s needs.

It also opens you to the dangers that can occur to someone on a journey abroad alone.

Here are some tips for enjoying your summer solo travel safely.

Take The First “STEP”

The United States Department of State has the Smart Traveler Enrollment Program to allow citizens to remain informed about the places that they are traveling to. The program sends alerts about the status of the country you are traveling to. Sometimes, they arrive in real-time as short bursts of average information. Other times, they offer a broader perspective on the landscape in the area that could impact your long-term plans.

This program also allows travelers to register their trips with the department so that the nearest U.S. Embassy or consulate knows their trip to the area. This is helpful in case of an unexpected obstacle.

You do not need to visit an office and stand online to achieve this. There is an online enrollment process.

Research The Area You Are Traveling To Thoroughly

Staying up at night and scrolling through pictures of the hotel balcony you plan to snap selfies on is excellent, but don’t forget to look up the surrounding areas. Memorize street names and landmarks so you can move around confidently and not scream “vulnerable tourist” with your mannerisms.

Share Your Ride Details With A Loved One

Many rideshare apps that operate abroad allow you to share your ride route with a designated person. You can do it manually with each ride you choose or do it automatically so that every ride you take is followed. This feature lets you know someone is paying attention to your whereabouts.

Research the rideshare service you choose before heading out to your next destination.

Use Theft Proof Bags To Stay Protected

Anti-theft bags allow you to carry the essentials close to you so that a pickpocket cannot snip the cord on your bag without you noticing.

Be Mindful Of Your Surroundings

Even the most picturesque and quaint corners of the world can have pitfalls. Keep an eye out when you are moving, especially in a big city, and it is always good to check in with other groups who have recommendations or warnings about the city you’re in. The same dangers exist in any dense area, even a beautiful one.

Skip The Bling

Those layers of necklaces might look cute on social media, but skip them as you walk on the street alone. Even the cheapest jewelry can draw attention if it is loud and clunky. If you are moving on foot, consider leaving your chunky baubles behind.

Prepare For The Worst And The Almost Worst

It would be ideal if everything went smoothly with your body while traveling, but just as it does at home, your physical self decides when it wants to act up. Travel also often leads to experimenting with new cuisine that may not agree with your body.

Prepare for minor emergencies by stashing items you might need in your bag. Purchase over-the-counter items like diarrhea medication, allergy pills, and sleep gummies. Update the emergency contact information on your smartphone so that if there is a larger emergency, the attending first responder can contact the people in your life who need to know what happened.

Looking for a place to go? Check out the top destinations for Black female solo travelers on TravelNoire.

The post The Black Woman’s Guide to Safe Summer Solo Traveling appeared first on Black Health Matters.

Probiotics and prebiotic beverages have increased in popularity in recent years. Several companies have begun offering over-the-counter probiotic and prebiotic products boasting benefits ranging from digestive improvements and improved mental health to cardiac wellness and clearer skin. Some even theorize that they can curb the likelihood of contracting common viruses.

Emphasis on gut health has swept the wellness world by storm. There are even lines of celebrity supplements with probiotic and prebiotic SKUs. People fill their coolers with brightly covered wellness drinks thinking they are a cure-all, but their advantages are complicated.

A 2020 article from Foods clarified that “The term” “health “benefit,” (often” stated on the label) is not a regulated specificity, nor has a clear medical meaning.” This has not stopped consumers from chasing after them by purchasing probiotics and prebiotic beverages (like Oilpop, Culture Pop, and Poppi). They are the cornerstone of the functional beverage market, joining protein shakes and collagen concussions as perceived miracle potions.

“The public awareness of diet-related issues and ever-increasing evidence about probiotic health benefits have increased consumer interest in probiotic foods,” according to a 2023 article in Frontiers in Microbiology.

That article expressed the importance of probiotics being administered in “adequate” quality.” Poppi,” a major player in the beverage industry, is facing legal challenges for their health claims in the form of a class-action suit that alleges that they did not infuse an adequate amount into each of their cans. Still, the amount of “adequate” can vary for each person.

The market has swelled to over ninety billion dollars despite this. “From an”industrial perspective, there are always challenges related to adding health-enhancing components, including probiotics, to food matrix,” according to Foods.

Not only are the benefits of probiotic beverages difficult to determine but there are potential risks associated with prebiotics and probiotics being examined by researchers. These can potentially be increased in select marginalized publics like those late in their pregnancies, immunocompromised individuals, and chronically ill children.

Dr. Janese S. Laster, a board-certified doctor in Internal Medicine, Gastroenterology, Obesity Medicine, and Nutrition and the founder of Gut Theory Total Digestive Care in Washington, D.C., explained that probiotics and prebiotics are best introduced to a regimen that includes physicians.

She also said that more information is coming to the public about probiotics and prebiotics as efforts to design and execute productive studies are expanding.

We don’t have enough data and so there’s a bunch of research going on,” explained Dr. Laster. “But right now, we don’t have enough information to make a determination.”

What do you need to know about probiotics and prebiotics before using them?

Their usage affects everyone differently.

“We don’t know what that perfect makeup is. The only thing we know currently is that people who tend to be the healthiest people, people who have no GI symptoms, tend to have a really, really high diversity of all types,” said Dr. Laster. “We don’t know which is the perfect one each person needs. So that’s the big issue and what we’re trying to figure out and determine.”

There are different kinds of probiotics.

“Not all of them are created equal,” said Dr. Laster. “Most things won’t make it through to your small bowel where they can actually have some effects.”

Research the strain you are considering and discuss it with your doctors before working it into your diet.

Probiotics can be affected by heat.

The way you store your probiotics matters. Research best practices for how to store the probiotics you are taking so that you can obtain the most benefits from them.

Probiotics don’t outweigh a poor diet.

Chugging probiotic-infused soft drinks will not undo the damage caused by an unbalanced diet. (Think about integrating these 10 prebiotic foods into your diet.)

Dr. Laster declared that foods that are high in fiber, like certain fruits and leafy vegetables, are still crucial to achieving one’s health goals. “These are things that we know actually change the microbiome,” she said.

“If you put fertilizer on the ground with Cheetos, nothing’s growing,” she said. “But if you put it there with apple seeds, you’ll get an apple tree at some point. So it’s about sort of what you’re feeding your gut, and just having a probiotic on top of a diet that is completely processed isn’t going to do anything.

It’s difficult to tell what probiotics you lack.

Tests claiming to identify the perfect probiotic cocktail for you might not be entirely accurate. “There’s no real good ways to test that at this point,” said Dr. Laster. She noted that it’s important to understand that many of these tests have legal disclaimers explaining that they can not be used for medical management.

“People will go online and come and see us and say oh, I got this test done that I wasted $700 on, now you tell me what to do with it.”

The post Probiotic & Prebiotic Drinks Like Poppi Soda: Are They Worth The Hype? appeared first on Black Health Matters.

Claudia:
All right, so my name is Claudia Lopez.

00:00:15:19 – 00:00:45:18
Unknown
I am the digital marketing and operations manager at Black Health Matters. And today I am here with Miss M. Marcia Lee. She is a fitness and wellness guide. A mentor and I am inspired very deeply by her journey and her story. And I wanted to make sure we gave air and space for her journey and allowed her to share with other people because, really, in today’s day and age, we need inspiration.

00:00:45:20 – 00:01:10:04

We need to be able to see ourselves within other people. And we need to understand that there is, a path forward and that there is positivity to look forward to and growth to look forward to. So, Miss M, would you like to introduce yourself and tell people how your journey started? Thank you, Claudia, for having me on.

00:01:10:06 – 00:01:33:13
Marcia
So my journey began in 2009 when I went to the doctor for my hanging physical, and she said, Miss Lee, you are a borderline diabetic. And I’m like, I say, our family picks up everything but money. Mind you, everybody in my family is a diabetic but me. I didn’t want to become a statistic. So she asked me what it was.

00:01:33:13 – 00:01:57:23
Unknown
I know as far as my diet and exercise regimen. I said the only thing I was doing was going to a happy hour, mostly eating chicken wings and French fries and having cocktails. But it wasn’t until I. I was taking my car home, and I had seen this as a free fitness class setup, so I dropped her off and circled back to the rec center to sign up.

00:01:58:01 – 00:02:24:04
Unknown
But while I was waiting to sign up, I saw a flier that said that in D.C. residents, if they lose 20% of their body weight, they can start the onset of chronic diseases like diabetes and hypertension. I said yes; where do I sign up? I signed up for the first day of orientation. We got to the orientation process, and the dietitian gave us these books.

00:02:24:04 – 00:02:47:08
Unknown
I said, what are these books for? She says, a food journal. I’m like, what? What food? You’re gonna say you’re buying my food, right? I don’t want you to know what I’m eating. But eventually, I understood the assignment. It was necessary for me to be successful in the program. So what we did was try. I had tracked what I ate and my exercise regimen.

00:02:47:08 – 00:03:09:06
Unknown
So the weights have reached a plateau. She was able to review every day. She was able to review the journal, do my exercise, and review my exercise regimen, and we were able to come together, and it actually worked out. But at the end of the 16 week program, I had lost four dress sizes. I wasn’t close with alphabets to close to numbers.

00:03:09:06 – 00:03:35:09
Unknown
You know how good that feel I was. My class was. I had to change my entire wardrobe. It took me six months to get rid of all those clothes I had, and I had all the clothes. But during that process, I actually started exercising, too. I went from not exercising at all to exercising daily. To this day, I’m still exercising regularly, and I have kept my weight off for 15 years.

00:03:35:10 – 00:03:54:00
Unknown
This was the first time in my life that I was able to put a handle on the weight. I never let myself go 5 or 10 pounds over at all. I do a reset spot oversee; I think it is focused and disciplined, and it’s very work. Clearly, a lot of people don’t realize that this whole weight loss journey is work.

00:03:54:02 – 00:04:27:00
Unknown
And this was man, this was this was free. We go to the exhibit, and bam, and all of that. This was hard work, determination, and will. They will want to put in the work. It really is putting in the work. It’s changing your whole way of thinking about food. And then I look at food as medicine. So I went from making pharmaceutical companies rich as far as buying assets and laxatives because when I was bigger, all that stuff I was put in my body was no good.

00:04:27:02 – 00:04:52:18
Unknown
So now I don’t even take I haven’t taken a laxative. You or antacid in years. I rarely have to even do it as it’s so, so rare, so infrequent in my life now. But the exercise journey has been really, really phenomenal as well. I would like to thank my DC Parks and Rec family for all the free, low, and no-cost fitness and wellness classes.

00:04:52:20 – 00:05:14:10
Unknown
Then I’m able to partake in and I still partake until this day. I’m also an ambassador for the DC, a wellness initiative that may have thousands of hours of started. So I am one of the community ambassadors also, every Wednesday for health and wellness. I love it. So, like I say, I’ve done like I say nothing.

00:05:14:10 – 00:05:39:21
Unknown
Now I do. I didn’t like walking cloudy and wouldn’t walk like two inches. Now I walk all the time, I walk, I hike, and do yoga. I do Zumba, I do freestyle dance, I do can I do everything wellness now? Claudia? I’m always trying new things. When I go on vacation, it feels good, Claudia, that I don’t have to sit back because I’m too tired, because I’m winded.

00:05:39:23 – 00:06:02:06
Unknown
I keep up with the best of me already. I love it, so that’s my journey. But in 2019, my brother Michael, that. And you know what? He had to suffer from depression. But he had been depressed for years. But he didn’t say anything. It wasn’t until the day before he passed when he told my brother, I’m depressed and I need help.

00:06:02:08 – 00:06:26:09
Unknown
We’re Claudia. He was there within 24 hours. And I’m like, you know what? Let me let me put some light to the darkness that I was feeling at that time. So I decided I wanted to be an advocate for health and wellness, especially in communities of color. Claudia, because we’re very, shy about our well-being. We don’t want to talk about it.

00:06:26:10 – 00:06:45:09
Unknown
So I’m a I’m a big advocate of therapy. I could be the poster girl on any or any signage that I do or not. I could be the poster girl for therapy because for me, therapy worked. You have to want to put in the work, find the right therapist, be ready. Be very. Be ready to do a deep dive in your life.

00:06:45:11 – 00:07:08:02
Unknown
Be ready to have a breakthrough because of you. Once the breakthrough comes, you can see things for what they are. And then you, you can, you know, you can be active, Courtney. You can play in your life. You can change your how to be of your mental health and well-being. So, I also teach people how to cook healthily on a budget.

00:07:08:02 – 00:07:27:17
Unknown
I don’t keep your income levels until people are always about preparation and planning. And that’s it. I say you can eat very well. And my goal my long-term goal, Claudia, is to get people to get them to do it so that it will be eaten, ask, whatever. Because there’s too much, you know, how much money are you spending? It’s like 60 bucks for one meal.

00:07:27:17 – 00:07:48:19
Unknown
You know how much food you can buy. And we’re lucky, Claudia, we are in, I’m in DC with, DC Department of Parks and access to my community gardens. And they give out free vegetables every week from May through the end of November. Do you know how good I eat? I eat well, anyway, but I’m eating fresh. And I’m so sad during the winter months when it’s not as robust.

00:07:48:21 – 00:08:10:07
Unknown
But I take advantage of that. I usually go home and cook it; sometimes, I see people on social media. What I’m cool with is the vegetables. I’ve gotten some from the different markets and you know how you know how it, no, cause these to make these yourself. So that’s my goal, Claudia. That is my goal to be and just to teach people how to live the best version of themselves.

00:08:10:09 – 00:08:26:11
Unknown
And they could be the best version of themselves. And they put in the work. And it’s not as hard as people think. Once you start doing it, Claudia, it becomes a routine, and you’re not going to want to go. I hear all the time I say that you know, you cannot go out to eat, but don’t make that habitual.

00:08:26:13 – 00:08:52:19
Unknown
It kind of matters what we eat because, well, processed foods are sugars and starches. And I say, you know, keep things to animals. That’s my goal to teach people how to do that. Claudia, I think one one aspect of what you spoke on that is extremely important for people that they can lack when it comes to a physical journey or a mental journey or, you know, anything really in their walk of life is motivation.

00:08:52:21 – 00:09:19:10
Unknown
And how do we stay motivated in order to be able to create these changes within our lives? So what would you say to someone who wants to start a journey or is thinking about starting a journey but maybe isn’t finding the motivation within themselves right now to be able to begin? Well, it’s not what I say because a lot of people don’t like me, you know, some people don’t like being around other people, and that’s fine.

00:09:19:15 – 00:09:38:23
Unknown
But as a quality, become your best friend when you do. I said, you have so many different exercises for all when I tell you all levels by all levels. But, and I always tell people then you can, you can find an accountability partner. It doesn’t have to be a process. You can find a virtual accountability partner.

00:09:39:01 – 00:09:56:21
Unknown
You can meet somebody. Hey, let’s do a FaceTime. Let’s do a Google Meet. Let’s do a zoom. Let’s do it; when I type a digital platform that you may have, or even those who don’t want to, take a virtual digital platform and do a phone check. Hey, how are you doing them? What? You don’t know? Hey, guys, I know, let’s have a call.

00:09:57:02 – 00:10:14:03
Unknown
Let’s get a check-in. But for me, it says I like to be outdoors. My fitness family. Trust me, it was a wellness check. It was. It was a check-in regular accountability was like, oh, where are you at today? Why do you like it? You know, it was always it was always group text. Okay, we’re doing this today.

00:10:14:03 – 00:10:35:06
Unknown
We’re doing that today. So, for me and for anybody, you can have accountability partners, whoever is in person or virtual, because you understand people. People are where they are. And I’m willing if you work with me, I can meet you where you are because everybody, you know, no two people are the same. And I respect that. That’s very true.

00:10:35:08 – 00:10:37:08
Unknown
One other thing that I think,

00:10:37:08 – 00:11:02:09
Unknown
is important that you mention was what we consume and how you treat food and how you view food. So what do you think? For one, what are some foods that are positive contributors to our lives, and what are some foods that maybe we should try to cut out a little bit more or just lessen to improve that journey to wellness?

00:11:02:09 – 00:11:20:17
Unknown
so for the average person, you know, and, you know, bad Claudia, all that junk food, potato chips and all that potatoes are the worst. And I know when I was on that page of trying for a while, the weight came on quick and I said, you have this potato chip. So nad cut that out and processed foods.

00:11:20:17 – 00:11:21:13
Unknown
Claudia.

00:11:21:13 – 00:11:24:11
Unknown
Because the processed foods, processed foods are a killer.

00:11:24:11 – 00:11:42:01
Unknown
And you know Claudia, and when I go in the stores, I know how to leave food labels. And I look at all the ingredients they have, all these ingredients. You need to have spent a year in that. But now, any time you don’t know how to pronounce it, most of the time, bait is not it not, is not as good for you.

00:11:42:03 – 00:12:08:18
Unknown
But as far as like like the healthy things, you know, summertime is good for blueberries and strawberries and blackberries, all the things down. Those are superfoods and healthy foods. No. Avocados. Because all the different lettuce and cucumbers are king, are white, and people are, but what it is, is all a preparation is all it going how you prepared food eggs?

00:12:08:18 – 00:12:29:08
Unknown
At first, I was a big fat a big fan of airplanes. Now I’m the airplane queen. Everybody was they made this like curry recipe, you know because I tried different things because for me it’s. And always tried things once. And I think Claudia the air because I’m vegan people always say, oh again is vegan. I lose weight.

00:12:29:09 – 00:12:56:03
Unknown
Is this food for everybody who’s listening? Attention, listeners, being bored is food. It’s food. It’s real food. It’s just no animal products or no dairy. But being food is food. You will not go hungry. Isn’t that weird? Quiet. Come out of your comfort zone. You don’t have to eat meat all day, every day. You don’t have to eat a piece of meat in your mouth.

00:12:56:03 – 00:13:05:12
Unknown
You don’t try different things. And I tell people, just try this, try, different things. You don’t do meat every day, do meat maybe every other day, or maybe do meat,

00:13:05:12 – 00:13:12:02
Unknown
maybe one once a week. Or do you do meat this Monday or whatever? This try to come and switch it up a little bit

00:13:12:02 – 00:13:14:18
Unknown
and be open to try new things.

00:13:14:21 – 00:13:38:17
Unknown
Definitely. I know it’s cookout season, right? So we’re about to enter that time when everyone wants to grill and they want to have all the sweets, and they may be doing the pie competitions and whatever else they can get their hands on. So it is going to be vital to to look at Whole Foods, the types of whole foods that you can bring to your family events to,

00:13:38:17 – 00:13:46:04
Unknown
contribute and how, you know, that’s going to impact everyone in your family and your journey and how you share that, that part of your journey with each other.

00:13:46:04 – 00:14:03:12
Unknown
so one of the things that you mentioned was the mental health journey and how we navigate things like depression and how the men in our lives navigate things like depression.

00:14:03:16 – 00:14:10:07
Unknown
So how do we how do we start to have those conversations with the men in our life

00:14:10:07 – 00:14:13:03
Unknown
It’s men’s health awareness. So I want to make sure that,

00:14:13:03 – 00:14:20:12
Unknown
we share with other women how they can be or be present for the men in their lives.

00:14:20:18 – 00:14:25:08
Unknown
But that’s a great question for you. Thank you for asking that. So women,

00:14:25:08 – 00:14:45:21
Unknown
let the men be vulnerable. Let them have the space to be vulnerable because people think that men’s poses is real; they don’t have any emotion. And all of that. But, you know, clearly they just like us, they human and they’ve always been taught, take it like a man, you know, don’t show any emotion.

00:14:45:21 – 00:15:05:14
Unknown
But it’s okay to show emotion. And I’m loving this generation them to be a they are embracing that. They are doing therapy. The younger generation, Gen Z, is a millennial. I love how God is doing, and they are really. Thank you for showing your vulnerability. And I always say to them, Claudia, they don’t want to talk to you.

00:15:05:16 – 00:15:23:11
Unknown
It’s a lot of men’s groups. It’s a lot of great men support group, you know, virtual and in-person. Whatever you do, that is probably talking to other men that are willing to some, you know, that are wanted to process that. I want to know some some of the similar journeys. But we have to understand that we have to let men be vulnerable.

00:15:23:13 – 00:15:45:20
Unknown
If a man wants to cry, let them cry. And when I see a man, for I have seen men in my life, I love it. I’ve had men reach out to me. When can I see therapy? Do you know how good that makes me feel? They say. They said no. I say where can I go for therapy? So I’ve given people references and I think that I think, I think that’s phenomenal that, that that’s phenomenal.

00:15:45:20 – 00:16:11:09
Unknown
But again, and even for women, I don’t want to discount women because sometimes women are to be hard to that black woman strong. But I want a strong. You know what? I’m sorry. I’m sorry.  I’m sorry. Sometimes everybody has everybody has a right to break down, to have a break through men, women, men, and women.

00:16:11:10 – 00:16:39:04
Unknown
Because sometimes it takes a breakdown to have a breakthrough. And we have to respect that and allow that. We have to have a place to be safe. We have to have a space to be vulnerable, and we have to have a space where they can talk and be themselves without any type of repercussions or any type of perception that they can’t because they sought help.

00:16:39:06 – 00:16:53:02
Unknown
Man it, you know, what’s up with that? We have to really allow that. And I’m glad the younger generation is doing that now, as the generation is really being taken, pay and paying attention to that. And I’m glad they have more resources.

00:16:53:02 – 00:16:59:10
Unknown
so I love that you mentioned that maybe it’s, it’s coming a little bit easier for the younger generation.

00:16:59:13 – 00:17:12:02
Unknown
and I want to know, you know, as someone I have I have two fathers, I have my step father and I have my biological father. And I often try to have these conversations with them. Right.

00:17:12:02 – 00:17:13:12
Unknown
And I’m wondering

00:17:13:12 – 00:17:16:06
Unknown
how I can almost meet them on their level,

00:17:16:06 – 00:17:22:21
Unknown
because it is more of a challenge to try to convince them,

00:17:22:21 – 00:17:24:12
Unknown
being able to be vulnerable

00:17:24:12 – 00:17:26:14
Unknown
So, how do we bridge that gap with

00:17:26:14 – 00:17:35:05
Unknown
our older generations? How do we bring them into this wider awareness that maybe it’s easier for the younger generations to get Ahold of?

00:17:35:05 – 00:17:43:06
Unknown
Well, I could be speaking of being a baby boomer, but, Claudia, you know what? We have to start having authentic conversations.

00:17:43:08 – 00:18:10:00
Unknown
a lot of the older generation is so much stuff on the road. A lot of stuff is available. And I my suggestion to you as far as your dating wisdom day, sit them down. Maybe you could sit down. sit down with them. Just say tell me. Tell me your story. Sometimes it just does. Is is not as simple, but maybe a question, but tell me about the story of what you know.

00:18:10:00 – 00:18:30:17
Unknown
Well, what were some of your challenges? What do you want to know? You know what I mean? Because a lot of times, Claudia, nobody has asked them how they grew up, you know, what was their story? You think about it. So for me, the men of my family, my, my oh, I mean, my uncle founded tell me the same thing.

00:18:30:17 – 00:18:50:12
Unknown
You know, later in life, you know, a lot of times, Claudia, the men, they were more vulnerable later, my Uncle George, you know, he’s passed away, but he was born of a vulnerable. And I said, thanks for being vulnerable because if because quality, number one, they have to feel, you have to make them feel comfortable is speaking first and foremost.

00:18:50:12 – 00:19:19:09
Unknown
You gotta you gotta make that make make that set uncomfortable. Just can’t come at them. Just be natural. Hey, you know what? You see how up for real? This this is this is like this just, you know, just just make it comfortable. Or even Claudia, maybe give him a book, a journal. So they lay down and, you know, want to talk my device of things down, and we can go over.

00:19:19:11 – 00:19:42:03
Unknown
Maybe we could discuss that. Or, like you don’t us don’t we? Could they talk about you, Mom? I hear you like. Yeah, maybe you like it. You can keep that between the two of you, but that this is not going out here in the YouTube universe. This is what our universe. Because I want to see, you know, how you grew up.

00:19:42:05 – 00:20:19:11
Unknown
What would you what were your challenges? What do you see for me in the future? Because a lot of times, Claudia, men and boys, followed by example. So if they’re seeing men, they dads, uncles, fathers, I mean, that is being uptight and now vulnerable and not showing. And they have to say anything that’s been, you know, like you say, showing a vulnerability, how you think they want me now think about it.

00:20:19:13 – 00:20:40:19
Unknown
And it is generational, the trauma, because you don’t even know what’s going to come out. And a lot of people have gone through trauma like generational. Yeah. That, that, that is still that is still locked in their hearts and locked in they soul and locked in a spirit. And maybe you can one that can open that.

00:20:40:23 – 00:20:41:15
Unknown
Future.

00:20:41:15 – 00:20:42:19
Unknown
So I have

00:20:42:19 – 00:20:45:01
Unknown
I have one final question for you.

00:20:45:01 – 00:20:49:08
Unknown
and then if you have any takeaways that you want to make sure that the audience receives,

00:20:49:08 – 00:21:03:20
Unknown
what importance and value do you see when it comes to sisterhood? I think is often there’s the perception of like the hardened or the tough or the strong black woman.

00:21:03:22 – 00:21:18:23
Unknown
But I think there’s also, especially in the younger generation, I see this, this perception of women often being pitted against each other or extremely competitive with each other rather than elevating each other. There’s,

00:21:18:23 – 00:21:31:04
Unknown
the withholding of information and care and storytelling and journey telling because it this is for me, you know, and it’s hard for people to share.

00:21:31:06 – 00:21:49:03
Unknown
So what has been your journey when I’ve just come to sisterhood, how has that impacted your journey and how can we support the women in our community? That is that’s an excellent question with Claudia. You know, coming up, we don’t have social media.

00:21:49:03 – 00:21:56:20
Unknown
First and foremost, we do not have social media. So our whole communication was different. Everything was impersonal on the phone.

00:21:56:20 – 00:22:22:21
Unknown
It wasn’t the that absent what we do is the Facebook or Tik Tok and all of that due to it wasn’t all that, it was the actual human interaction for me personally, I do have a sisterhood. I’m very I’m extremely fortunate to have sisterhood in my life. I have I have groups, I have different groups of sisterhood. I have women I’ve grown, I’ve grown up with.

00:22:22:21 – 00:22:46:15
Unknown
I have my fitness community, I have people, I have friends who have formed a decade. You know, this is just for me. And I have the leading me who have become my friends now. But, Claudia, unfortunately, as I say, unfortunately, social media sometimes is a fraud, and people can’t be authentic to that because they have the Hannah post.

00:22:46:17 – 00:23:00:20
Unknown
So that’s going to be it’s not hard, but we just have to teach. We have to just show people that we all are in this journey together. And, like I said, that strong black woman,

00:23:00:20 – 00:23:09:19
Unknown
situation that goes for black women. So we got to get rid of that, that dialog because yes, we can we can pull it out.

00:23:09:21 – 00:23:33:13
Unknown
but it’s also okay to be vulnerable, and it’s also okay for us to be in a group. It’s okay for us to cry is okay for us to laugh together. It is okay for us to share our stories is okay for us. And, you know, and with the younger people. To Claudia again, the sisterhood, a lot of times I see I grew up with my mother, and they have friends.

00:23:33:15 – 00:23:57:12
Unknown
They always have circles of friends. So a lot of times, Claudia, I grew up with that. So for me, I had a circle. So a lot of people did not see their cards with circles of friends. So a lot of times and then with a lot of times with the anxiety and depression and different other types of social illnesses, mental health situations, you know, it’s going to be a little difficult.

00:23:57:15 – 00:24:20:23
Unknown
And then the bullying aspect is real, the bullying aspect. So a lot of people now are not going to feel comfortable really going out to reach out because of their vulnerabilities. And maybe they might be bullied or not. Like for whatever reason or not, in the clique. Yeah. So we just have to teach. We just have to teach them what we have.

00:24:21:01 – 00:24:45:21
Unknown
We have to teach our ladies. Love yourself first so that you are loved. You are loved by yourself, with yourself, and for yourself. And once you have to have those affirmations. You have to say those affirmations for you. Do affirmations, maybe add some meditation, maybe add some breathwork, add some things that have been not additional in the past.

00:24:45:22 – 00:25:16:15
Unknown
Have some things to make to be focused. Focus on pulling your inner being and maybe instead, you know, keep your journal, start the drawing that you’re doing is don’t keep your journals, write down things, and maybe, start a club. You could even start if you don’t want to give; you want to be in person. You understand? Do journey, do x y and leverage majority, or do like like if you want to be more intimate, do a zone, do a go, do something, or do some type of virtual journaling classes.

00:25:16:16 – 00:25:35:00
Unknown
Don’t do like do like a rap session. Hey girls, this girl’s rap time, ladies’ rap time was had, you know, different things than we have to think we have. We have to go. We have. We have to hit the mediums and the platforms and where they are and where you think they were. They were the best. We seem to have information,

00:25:35:00 – 00:25:50:04
Unknown
Is there anything that you would like to make sure our audience like? Key takeaways. What specifically should our audience take away from this call? What should they carry with them? What should be their next move?

00:25:50:08 – 00:25:51:22
Unknown
Your next move is

00:25:51:22 – 00:26:09:14
Unknown
where do you see yourself? But sometimes people always, you know, you go on job interviews and people talking about people always ask, where do you want to be in five years? Well, you know, I say when I tell them, I mean, I don’t even know where I want to be in five days. This. See this; see where you want to be.

00:26:09:16 – 00:26:28:06
Unknown
Set yourself up, do goals. But don’t I always say, don’t make goals so unrealistic that they’re not attainable? What do you want to be in a week? What do you want to be in a month? When you want to be a three month, three months, what do you want to be in that months? But clearly, everybody’s journey is not designed that.

00:26:28:08 – 00:27:07:13
Unknown
And I recognize that. And I know for me, like you, it clearly I made that U-turn when I dropped my car. That was that was that was it for me. And I tell people everybody has a different body at that moment than you. Term was my bottom, the rise to the top. So I tell people, when you are ready, you will know when you’re ready. You will take action, but know when you’re ready, there are support systems out here that can help you attain your wellness journey, your health journey, your fitness journey, and your eating journey we have looked at food as medicine.

00:27:07:13 – 00:27:30:00
Unknown
Food is the way to heal our soul and our body and not just to eat. Think of it like that and think of exercise as oh my gosh, I gotta exercise. But think of exercise as a as a part of your movement, of your movement active of your mental movement. It is, it is, it is or not. Also visible is a mental movement.

00:27:30:04 – 00:27:51:05
Unknown
The exercise begins like that. And you can start slow and work your way up. Because I think a lot of times people see people working out like they have lost their mind. But no sudden slow is levels for everybody to be successful in their journey. Thank you for all you, thank you, thank you so much. Medicine.

The post BHM Talks to Marcia Lee About Her Journey to Better Health, Food as Medicine and & Choosing Vulnerability appeared first on Black Health Matters.

• A child’s body temperature rises three to five times faster than an adult’s. When a child is left in a vehicle, that child’s temperature can rise quickly — and the situation can quickly become dangerous.
• Heatstroke begins when the core body temperature reaches about 104 degrees.
• A child can die when their body temperature reaches 107 degrees.
• When temperatures are in the 60s, a car can heat up to more than 110 degrees, according to the National Highway Traffic Safety Administration.
• Parents should never leave their children alone in a car. Rolling a window down or leaving the air conditioning on while the motor runs is not enough to keep them safe.
• Young children can’t express they are too hot or thirsty, and “often they don’t have the awareness of how to cool themselves off.
• If you see a child in a car suffering from heat stroke, you should immediately remove the child from the vehicle and take her or him into a nearby air-conditioned building.  If you can’t open the car, call the police immediately.
• If you notice that the child is either lethargic or unresponsive, then, of course, you want to call 911. But while you’re waiting you can also cool the child down by pouring cold water over them or fanning them. You just want to get them out of the hot environment as soon as possible.”

Sometimes, when kids are left behind in cars, it’s because parents have forgotten they are there. Luckily, there are steps you can take to remind yourself. Among them:

• Make a habit of checking your vehicle from front to back before you lock the door and leave your vehicle.
• Place something you know you’ll need, such as a purse or briefcase, in the back seat of the car so you’ll remember to see your child there, too.
• Leave a note in your car where you know you’ll check it before leaving.
•  Ask your childcare provider to call you if your child does not show up. Because, in some cases, a child may be left in a vehicle or bus carrying many children.
• The risk of hot car death is just as high when children have access to unlocked car doors in their driveway or parking lot.
• Noe says it’s important to teach your kids not to play in or around cars.
• Make sure to keep your car doors and trunk locked and to store your car keys so they’re out of your child’s reach.

Furry family members inside a hot car are in just as much danger as your kids. Your pets could suffer organ damage or die after being left in a hot vehicle, according to the Humane Society of the United States. Call the police or a shelter if you see an animal that may be suffering from the heat inside a parked vehicle.

What happens during heat stroke?

Heat stroke occurs when your body can’t control its temperature, which can rise to 106 degrees or higher within 10 to 15 minutes, says CDC. Young kids are at high risk because their bodies heat up quickly. When a child’s temperature reaches 107 degrees, it can be fatal, says NHTSA. On average, one child dies every 10 days in the U.S. due to heat stroke after being left unattended inside of a car, according to Safe Kids Worldwide.

Signs that someone may be suffering a heat stroke are dizziness, a rapid pulse and skin that is hot and dry without signs of sweat.

Reprinted with permission from The Nation’s Health, APHA.

The post Check that Backseat (Preventing Child Hot Car Deaths This Summer) appeared first on Black Health Matters.

Since my diagnosis, I have worked with my team of doctors to manage my overall health and wellness. But I have also spread the word about kidney education in our community, particularly AMKD. We celebrated the first annual APOL1-mediated Disease Day on April 30th, but it won’t be our last. Here is why I think recognizing the day and the condition was significant:

What is APOL1-mediated kidney disease?

APOL1-mediated kidney disease, or AMKD, is a genetic kidney disease caused by certain variants in the APOL1 gene. AMKD progresses silently, and many people don’t have symptoms until the disease reaches an advanced stage. This can cause severe kidney damage and even kidney failure, which requires dialysis or a kidney transplant.

What role does genetics play in this disease?

The APOL1 gene plays a role in our body’s immune system to fight threats. Everyone has two copies of the APOL1 gene passed down to them from their parents. Some people are more at risk for developing AMKD based on the copies of the gene they receive. Certain APOL1 variants are associated with developing AMKD; if an individual inherits a “risk variant” from both parents, they may develop AMKD. Genetic studies show that these APOL1 risk variants are found worldwide in people with African ancestry.

The link between APOL1 and kidney disease was only discovered in 2010, and many people haven’t heard of APOL1 or AMKD – which is why it’s especially meaningful to raise awareness for this disease and its underlying cause.

What should we know about kidney disease in our families?

Since AMKD is a genetic disease, I encourage you to be proactive in starting conversations to see if others in your family have been diagnosed with kidney disease and/or AMKD. It can be difficult to open the dialogue at first, but the information you gain is extremely valuable in determining whether you should talk to your doctor about AMKD. If you’re unsure where to start, check out the AMKD Conversation Guide on PowerForwardTogether.com or visit the American Kidney Fund’s website for additional resources.

Why are Black populations at an increased risk for AMKD?

Over the past 3,000 to 10,000 years, the APOL1 gene evolved in people who lived in Western and Central Africa to protect them from resistant forms of the parasite that causes human African trypanosomiasis. While these genetic variants help protect against human African trypanosomiasis, they may also cause kidney disease, known as AMKD.

As people from these regions have migrated around the world, they have taken these genetic variants in the APOL1 gene with them. Today, people of African ancestry may carry these APOL1 variants, including (but not limited to) people who identify as Black, African American, Afro-Caribbean, and Latino/Latina.

Approximately 13% of African Americans have two APOL1 risk variants, which significantly increases their risk of developing kidney disease.

In what ways does AMKD affect our lives?

AMKD can progress silently, and you may not notice any symptoms until the disease has progressed significantly. It can lead to severe kidney damage, life-long dialysis, a kidney transplant, or even death.

I was at the height of my basketball career when I started noticing extreme lethargy and swelling in my legs and feet, but I assumed these symptoms were just a result of my rigorous training and travel schedule. It wasn’t until I had my regular check-up that my doctors found abnormalities, which eventually led to my kidney disease diagnosis. I worked closely with my doctor and care team to stay as healthy as possible and was fortunate to receive a kidney transplant eventually.

The best way to manage AMKD is to detect it early, so I encourage you to be proactive about your health and see a doctor regularly.

If you have chronic kidney disease, can you be tested for AMKD? What does the process involve?

If you are of African ancestry, have a family history of kidney disease, or have symptoms of AMKD, talk to your doctor to see if getting tested may be the right next step for you. An early diagnosis is important to getting back in the game, and, for AMKD, to confirm an AMKD diagnosis, that is genetic testing. You can learn more about APOL1 genetic testing on PowerForwardTogether.com or KidneyFund.org and talk to your doctor about whether genetic testing is right for you.

What does it mean to you personally to help raise awareness for AMKD?

Raising awareness about AMKD is important to me because I know that there are people out there who are living with kidney disease and may not even know it yet. I brushed off my own symptoms as the effects of my rigorous basketball training schedule. It was only when my routine lab results showed abnormalities that I realized it was a more serious matter and one that would eventually change my life.

I want to encourage others to be more proactive than I was at first. Talk to your doctor if you have any concerns about your kidney health. Ask questions and find out if your family has a history of kidney disease.

Taking the initiative to learn about AMKD has also been an empowering journey. I lived a very active lifestyle, so my diagnosis came as a shock. However, after contributing my genetic information to a 2010 study that identified the genetic cause of AMKD, I understood that I wasn’t at fault for developing AMKD; it all came down to my genes. I want to share that feeling of empowerment with as many people as possible.

Why was it necessary to set aside a day specifically for AMKD Awareness? How is it different from National Kidney Month?

It’s important for each of us to take charge of our kidney health because many people suffer from chronic kidney disease, but AMKD continues to go misdiagnosed or undiagnosed because people have no idea it exists. AMKD Awareness Day is an initiative to spread information about this form of kidney disease and encourage people to talk more proactively with their families, friends, and doctors about kidney health and AMKD.

What was the theme/messaging of the first-ever AMKD Awareness Day?

The American Kidney Fund encouraged everyone to “Be APOL1 Aware” for this inaugural AMKD Awareness Day. Again, a lot of people don’t know about AMKD or how family history and genetics can impact their chances of developing it. I want more people to know how game-changing it is to be proactive. AMKD is a rapidly progressive disease that can lead to severe kidney damage or kidney failure. If we remain unaware, we remain uninformed. Spreading awareness gives people the resources to be proactive and seek out information about their family history and their chances of developing AMKD.

Why was the American Kidney Fund an important part of this initiative?

The American Kidney Fund has led the charge in establishing AMKD Awareness Day, and I am grateful for their leadership in spreading information about AMKD and providing resources to help people power forward and take charge of their health. I hope their resources and information will help empower people, especially those of African ancestry, to start conversations with their families and doctors about kidney health.

Alonzo Mourning is a paid spokesperson for Vertex Pharmaceuticals.

The post Basketball Hall-of-Famer Alonzo Mourning Reflects on the Importance of the First Annual APOL1-mediated Kidney Disease (AMKD) Awareness Day appeared first on Black Health Matters.

The American Council on Exercises says it best, “Fitness myths have always and will likely continue to plague the industry and confuse even the most experienced fitness fan. If it sounds too good to be true, it probably is.”

Myth 1: Wearing a waist trainer or plastic suit helps you lose weight.

While waist trainers can temporarily slim the waist, they don’t cause permanent changes or lead to meaningful weight loss. Any weight loss may be due to sweating out fluids instead of fat or because the trainer compresses your stomach and makes you eat less. This is not a viable, sustainable way to lose weight. Waist trainers can also cause breathing difficulties, digestion issues, and organ damage if worn long-term. However, Harvard Health says that waist trainers can be helpful if a doctor recommends temporary use after certain surgeries to help rebuild core muscles.

According to Boxing Science, wearing a sauna suit won’t increase your metabolism, especially while resting. When you wear a sauna suit you will sweat to maintain your body temperature and possibly lose water weight, but you won’t burn any more fat than without it.

FACT: Waist trainers/sauna suits will make you sweat, but they do not help you lose fat.

Myth 2: Lifting heavy weights makes you bulky.

According to the American College of Sports Medicine (ACSM), “Nothing could be further from the truth.” Research confirms that women can and should lift weights (including heavy ones) without fearing becoming more than healthy, toned and strong.”

Women have lower testosterone levels than men, making it harder to build muscle mass. The key is to focus on lifting heavy weights with low reps. This type of lifting activates muscle growth without triggering the release of excess testosterone. Unlike cardio, building strength and lean muscle mass increases your metabolic rate at rest, your body’s ability to burn more calories.

Fact: Lifting heavy weight does increase muscle mass, strength, and size. However, excessive body fat is to blame for men’s and women’s “bulky” looks. Heavy weight training helps build muscle, increase metabolism, and lose body fat.

Myth 3: Crunches/Sit-ups (or spot training/targeted workouts) help you lose belly fat.

As much as we want to believe it, you cannot target fat loss in specific areas of your body. When you lose weight, you lose it from all over your body, not just one specific area. Exercises targeting a specific area, such as crunches for abs, can help strengthen and tone that part of your core, but it will not necessarily reduce fat in that area.

There’s a saying: Abs are made in the kitchen, not in the gym. It’s simply impossible to “burn off” fat in one body part by exercising.

If you want to reveal hidden abs, your best bet is to reduce your body fat percentage through sustainable healthy eating habits and a strength training exercise routine. You will have to do various exercises that target muscles around your entire trunk, including in your core, abdominals, and back.

FACT: Crunches are a popular exercise for strengthening your core, but they are not the best way to get those fab abs. Doing too many crunches can lead to back pain and poor posture.

Myth 4: Muscle weighs more than fat.

Lean tissue weighs more than fat tissue is a common misstatement. According to the National Institutes of Health (NIH), 1 lb of lean muscle tissue weighs 16 oz, as does 1 lb of fat tissue.

FACT: Muscle tissue is dense; fat tissue takes up more space or volume than muscle, but their weight is the same.

Myth 5: My muscle turns to fat if I stop working out.

Nope. Muscles do not turn fat when you stop exercising. Simply put, muscle and fat cells are entirely different tissues. More specifically, muscle tissue is more metabolically active than fat tissue and functions differently in the body.

The National Association of Sports Medicine (NASM) helps clarify this common misconception. “Without consistent regular strength training and proper nutrition to build muscle, there is a much greater chance of body fat increasing. This is not because your muscles turned to fat. It’s because the ideal environment was created for fat stores to grow and the worst opportunity for the muscle to develop.”

FACT: When you stop exercising, your muscles can shrink and weaken (atrophy), leaving room for fat tissue to replace them. It can cause a shift of fat-to-muscle ratio in your body, but the muscle does not become fat.

Myth#6: Early morning is the best time to work out.

This myth that early morning exercise is the gold standard is compelling. But if you’re more of a night owl than an early bird, having the energy output for an effective morning may not be best for you.

The most important part of developing an effective exercise routine is to find a time of day that works for you and stick to it.

The NIH explains that consistent exercise timing, especially morning exercise, may facilitate greater exercise intensity, help to protect your exercise time, make planning easier, and foster good exercise habits.

While few studies definitively prove that exercising in the morning increases your metabolism more than other times of the day, some people choose to start the day with a workout for the myriad health benefits: body & mind, elevate their mood, reach step goals or because it just makes them feel great for the rest of the day.

FACT: The best time to work out is the time that works for you.

Myth 7: Squats are bad for the knees.

Squats are highly effective at strengthening the knee joint and surrounding muscles when executed with proper form and without pain. Lower body strength can help prevent and recover from common knee injuries.

However, squats can be painful and irritating for people with conditions like a runner’s knee, osteoarthritis, or meniscus tears. Poor execution can also increase the strain on your knees and lead to injury.

NASM breaks it down for us. “Although many variations of the squat exist, some truths will always prevail – maintain your knee/foot alignment, ensure hinging and timing of forward knee translation, facilitate adequate ankle mobility to avoid dysfunction, maintain a rigid pelvis (sacrum, thoracic spine, and head) and aim to achieve parallel alignment between your tibia and trunk.”

Finding the best squat for you is what’s important. Consider gradual progression from seated squats to ball or wall squats to develop the strength required to perform the stand-alone version.

FACT: Squats are not bad for your knees. Improper squat form is bad for your knees.

Myth 8: Running will make you fit.

The American College of Sports Medicine (ACSM) defines health-related physical fitness as a set of attributes people have or achieve that allow them to perform physical activity. It also includes the ability to perform daily activities with vigor and alertness, without undue fatigue, and with enough energy to enjoy leisure activities and handle emergencies.

Running is an excellent way to improve cardiovascular health and burn calories efficiently, but just running won’t necessarily make you fit.

Not only that, running is not for everyone and not the only way to achieve whatever your definition of being fit may be.

FACT: Running or other cardiovascular activities combined with strength training and a proper nutrition plan create a well-rounded fitness routine for optimal fitness.

Myth 9: Stretching before a workout will prevent injuries and soreness.

Are you surprised? It turns out that stretching a healthy muscle before exercise does not prevent injury or soreness. Harvard researchers found no evidence that static stretching before or after a workout prevented injuries or sped recovery (or did anything useful).

Theoretically, stretching before exercises should make the muscles more pliable and less likely to tear. However, studies that compared injury or muscle soreness rates in people who stretch before exercise and those who don’t found little benefit to stretching. Studies suggest stretching a cold, tight muscle could lead to injury.

FACT: The most effective type of stretching before a workout is a dynamic series of exercises involving the whole body, large muscles, and multiple joints. The goal is to activate the muscles you will use during the workout. It is worth mentioning that there is no evidence that static stretching at the end of the workout, during the cool-down portion, does any harm.

Myth 10: Longer workouts are more effective than short ones.

The quality of a workout is more important than its length. Pushing yourself to do longer workouts can lead to overtraining, which can cause injuries, imbalances, and a loss of motivation.

The World Health Organization (WHO) recommends a combination of vigorous and moderate aerobic activity and two or more muscle-strengthening workouts weekly.

FACT: A consistent, balanced approach to fitness that includes strength training, cardio, rest, and recovery is critical to achieving your personal fitness goal.

The post Stop Believing These 10 Exercise Myths appeared first on Black Health Matters.

Kelly Larson, Injury Prevention Lead at Bloomberg Philanthropies, says, “The increase in drowning deaths in the United States, as well as drowning being the leading cause of death among 1-4 year-olds, led us to expand our investment to include drowning, prevention efforts here.” The focus will be on data collection in the ten states that make up half of the drowning tragedies: Alaska, Arizona, California, Florida, Georgia, Louisiana, Michigan, New York, Oklahoma, and Texas.

Larson points out that children under five are at the highest risk of drowning. In the U.S., they have focused their swim education efforts on an older demographic. “In the United States, we plan to provide swim instruction to 20,000 children ages 6-15, being very diligent in identifying local organizations who can offer swim lessons to those who need it most,” the Prevention Lead says. “Bloomberg Philanthropies will support the CDC Foundation in partnership with the U.S. Centers for Disease Control and Prevention to work in select, high-burden states to provide basic swim and water safety skills instruction in most affected populations. We are working with local organizations in these communities to offer the lessons.”

The $60M investment is expected to fund programs globally through 2027. “As part of this commitment, we are also evaluating safety policies, including pool fencing and personal flotation devices here in the United States, to see how we may advocate for stronger laws,”  Larson says. “We recognize that drowning is the leading cause of death for 1-4-year-olds and want to take a hard look at some of the drowning prevention policies in each state. We want to understand better what policies are in place and identify opportunities to strengthen policies that will reduce drowning.”

The post Bloomberg Philanthropies Donates $60M to Prevent Drownings appeared first on Black Health Matters.

A 2023 study from the Journal of the American Medical Association confirmed that intersectionality also impacts these risks. It stated that “The combination of social identities, such as being Black and not having a college degree or being Latino and identifying as a sexual and gender minority individual, is associated with multiple layers of health-related disadvantage.”

These young people face challenges at every turn that require proper support, including “unique social stressors, including victimization and discrimination, as a result of their minority position.” Approaching these young people with care and consideration can leave them feeling more supported. We asked Live Out Loud Founder and Executive Director Leo Preziosi, Jr. for tips on supporting the LGBTQIA+ young people in your life.

Six Key Ways To Support The LGBTQIA+ Youth in Your Life

Educate Yourself On Your Own

Don’t expect the LGBTQIA+ children in your life to constantly be translating their experience to you. Take the time to try to learn as much as you can about what they are up against so that you can be a better-informed listener. You are responsible for working to obtain the language and tools needed to communicate with them. “It’s all about approaching communication and listening without judgment,” said Preziosi Jr. “It’s not the child’s job to educate. The parents or the teachers, and that happens. But it’s not their job.”

Find Community

There are likely other adults going on the journey you are. Connect with them away from the littles in your life so they don’t feel any undue pressure from your efforts. Look into resources like PFLAG and Okay, My Kid Is Gay. Family podcasts and books like The Conscious Parent are helpful as well.

Surround Them With Role Models

Integrate the stories of LGBTQ persons into what you’re teaching your child so they see themselves. Representation matters in all aspects of life. “One of the things that we do when we go into schools, we bring in LGBT role models to talk to students to really talk to students about their Journey about what it was like for them in school and how they, you know, came to understand who they were and accept who they were,” said Preziosi, Jr.

Meet Them Where They Are

Lean into opportunities to learn about their interests, no matter what they are. “It’s really getting to know your child and getting to know their interests, spending time with your child, and having conversations with your child,” said Preziosi, Jr.

This helps develop a safe space for them to be themselves at home.

Give Them Space To Come To You

Don’t be so excited to flaunt your parenting skills and emotional intelligence that you don’t leave room for the children in your life to communicate what they feel. “It has to be very organic. It has to be very, very natural,” Preziosi Jr. advised. “It’s really up to the child to start that type of conversation. You know, if you think your son or daughter is gay, You know, my advice is don’t approach it. Let them come to you; this is what we hear from our students,” he continued. “Don’t force it. Let it evolve naturally.”

Consider Seeking Another Voice

“Sometimes it’s great to bring someone else into the picture,” explained Preziosi, Jr. “That could be, um, a relative who could be a friend of the family and might be LGBT or an ally.” “A child speaking to their parents may not be the first step.”

It’s important to depersonalize their choice to discuss their feelings with others. The goal is to prioritize your child’s mental health and emotional safety, not your feelings. De-center yourself and focus on their experience.

“Give your child some space because they need to understand it for themselves and accept themselves, and they may do that through friends. They may do that through a counselor at school, they may do that through their GSA Club,” he added.

“Sometimes it’s just harder to have that conversation with your parents or siblings first.”

The post LGBTQIA+ Young People Face Higher Mental Health Risks (Here’s 6 Ways to Support Them) appeared first on Black Health Matters.

The Turbaned Diva’s honors are many, including awards from GMHHC NYC, The DC Center for the LGBTQ+ Community, DC Councilmember Anita Bonds, DC Sisters of Perpetual Indulgence, Empowerment Liberation Cathedral Church, and the Community Church of Washington. A perennial fave of The Washington Blade, the oldest LGBTQ+ newspaper in the United States, Rayceen has been a cover subject and regularly featured as a local hero, activist, and Clergy (despite not being ordained or ministering in a traditional capacity) . And if that isn’t enough, she is hosting numerous LGBTQ+ Pride celebrations in DC.

The Empress of Pride shares her thoughts on the state of the black LGBTQ+ community, what we all need to consider this election season, and the importance of giving a damn:

BHM: Tell us briefly how you became an activist in the LGBTQ+ and Black communities.

Rayceen: Activism is in my DNA. Growing up with a mother who had a career as a social worker, I was always encouraged to help people and uplift my community. I was born in Freeman’s Hospital, which was the Colored Hospital. I am not far removed from my ancestors, who lived their lives under segregation, Jim Crow, and slavery. Being an activist was less of a choice and more of a necessity. As a member of the LGBTQ+ community, I’ve also faced and witnessed discrimination, so being an activist has always been about fighting for all of my freedoms.

BHM: School us. What are the key issues in the black LGBTQ+ community need to be addressed, particularly in an election year?

Rayceen: The key issue is the Supreme Court. Regardless of how you might feel about the candidates, we know what will happen depending on who is in the White House next year. Our rights as Black people and as LGBTQ+ people are on the line. But, people need to be vigilant every year in all elections, especially local elections, because those are the politicians who can enact or repeal laws about ballot access, employment discrimination, housing discrimination, banning books, police brutality, bail access, prison reform, healthcare, and much more.

BHM: Due to breakthroughs in AIDS research and medicine, AIDS is no longer a death sentence. What are the new concerns in a post-AIDS world?

Rayceen: The good news is that although I’ve known many people who died in their youth due to HIV/AIDS, I now know many people who are long-term survivors who are thriving. Because of our years of activism, systems have been put in place to address everyone’s physical, mental, and financial needs, including those people who have HIV and aging gracefully. What has definitely changed is that there are more LGBTQ+ people who are aging, living out, and proud. Systems must be ready to support that, particularly concerning healthcare and housing.

BHM: Why does Pride Month matter?

Rayceen: There are many things happening during Pride Month, but as the Empress of Pride, I must remind everyone that Pride is more than a party; it is an act of resistance and a demonstration of our resilience. As the Queen of the Shameless Plug, I want to encourage people to join me for Silver Pride on June 20th at the Pepco Edison Place Gallery and the District of Pride Showcase on June 27th at the Lincoln Theatre.

BHM: What does the future hold for Rayceen, and what is your wish for all of us?

Rayceen: We are celebrating ten years of Team Rayceen Productions this year. I hope we continue to connect with new people, add new co-hosts to our roster, and create safe spaces for LGBTQ+ people, allies, youth, seniors, and all the people who have supported us over the years. I look forward to continuing to host annual events and participate in new events in DC and beyond. My wish for everyone is peace, stability, prosperity, and love. I hope all those things are possible, but that depends on what happens between now and Election Day, November 5th. It’s do or die. Potentially, the last 70+ years of progress could be dismantled. What I, my contemporaries, my elders, and my ancestors accomplished could be destroyed and not regained in my lifetime or until the next century.

Want to learn more? Rayceen is active on social media, co-hosts on the Team Rayceen YouTube channel, and holds court on An Audience with the Queen of the Shameless Plug, the new monthly livestream series. For the latest information, please visit Rayceen.com.

The post Rayceen Pendarvis On Why Advocating for the Black LGBTQIA+ Community is Critical in 2024 appeared first on Black Health Matters.

In light of World Sickle Cell Awareness Day, we spoke with Chris, a devoted St. Jude Children’s Research Hospital parent. Chris is the father to two daughters with Sickle Cell Disease, and following their diagnosis, he joined St. Jude as a full-time employee in their pathology lab. He is determined to find a cure for the disease that impacts his daughters and countless other children, and he has become an integral part of the St. Jude community. Today, he gives us a glimpse into his journey.

BHM: Could you share a little about your daughters?

Chris: I have two daughters with Sickle Cell Disease, Khirsten and Kaitlyn. They are both high-spirit souls who love to be outside and have as much fun as possible in a day!

BHM: What was your family’s journey after your daughters were diagnosed with SCD?

Chris: Our journey started with very little information and knowledge about Sickle Cell and no problems in the first five years of their life. After that, my wife and I started shifting into overdrive, trying to figure out how we could help in our own way along with St. Jude.

BHM: How do you manage to be a supportive father while also managing the challenges that come with your daughters’ SCD?

Chris: Being a father of three daughters is a job all in itself! Having two with Sickle Cell is what I call EXTRA. Normally, we see extra as a good thing, but it was a big challenge for my family and me. It wasn’t easy, but we have learned to adapt to the life God said we could handle!

BHM: How do you advocate for your daughters within the healthcare system, and what advice would you give to parents in similar situations?

Chris: Well, some of what we have learned comes from other parents who have been down the road while we were traveling. We also learned that asking questions can sometimes lead to other deeper questions that you might not want to hear and accept. This, too, is part of the journey. As parents, my wife and I want our children to be “in the know,” as some people would say. We would get information and try to break it down for our girls so they can, in turn, know what to ask as they get older to advocate for themselves. My Wife and I tell other parents about beginning their journey: Don’t be afraid to ask questions! Ask as many questions as possible; if you don’t know what to ask, that’s okay for now. Get as much information as you can! The questions will come. You are your child’s BIGGEST advocate and best hope! Your child is looking at you for all the answers! As parents, that is what we do!

BHM: Why is World Sickle Cell Awareness Day important to you? How can awareness improve the lives of those with the disease?

Chris: Sickle Cell Awareness Day is not well-known enough! To this day, we still have people who haven’t heard of Sickle Cell Disease; we all have heard about cancer. Information is the key to understanding, and understanding brings results! In our conversation with Chris, we gained valuable insights into the realities of living with Sickle Cell Disease from a parent’s perspective. If you are a parent out there trying to manage your child’s sickle cell diagnosis, never be afraid to ask too many questions, and remember that you are your child’s biggest advocate. It is okay not to have the answers to everything but to gather as much information as possible.

In recognition of Sickle Cell Awareness Day, let’s put forth a collective effort to support those affected by the disease and promote understanding the disease. With increased awareness, we have a better chance of finding a cure.

The post Guiding His Children Through Life with Sickle Cell: Chris’s Story appeared first on Black Health Matters.

Corynne Corbett (00:13):

H Everyone.

Corynne Corbett (00:15):

I’m Corynne Corbett, editorial director from Black Health Matters. And today, I had the pleasure of speaking with Monet Farr Cole, who is the founder of New Paradigm’s grief, recovery, and Life Coach. And we’re going to talk about loss, and I’m going to ask Monet to talk about what she does because nobody can talk about what you do better than yourself. So Monet, what is it that you do?

Monet Farr Cole (00:53):

Thank you. Well, as you said, my name is Monet Far Cole, and I am a grief recovery specialist and I’m a life coach. And so I work primarily with women who are dealing with loss, whether it’s from death of a loved one, divorce and some of the other many losses that we suffer in life. And I help them to have some tools that they can use to process their grief. Women who are dealing with loss, whether it’s from death of a loved one, divorce and some of the other many losses that we suffer in life. And I help them to have some tools that they can use to process their grief. And then at the end of that, we then start working on, okay, so what does life look like now with your new set of circumstances and how do you want to move forward? And so, then I help them to actually move forward as well. And I just love what I do.

Corynne Corbett (01:35):

So a lot of times we talk about grief, but really, at the end of the day today, what we’re going to talk about is loss because I think we can all identify with loss whether we’ve lost a job, we lost our way, we’ve all lost our way at some point in our lives, right? Yes. And sometimes, it’s coping with a loss. The finding the tools to even identify that we can find the words to say that that’s lost, how we begin to even say that, to even find the words to say that I’m in a space where I’ve lost something.

Monet Farr Cole (02:37):

Yeah. And I just think we don’t understand the relationship between loss and grief. We have all experienced grief, whether we’ve experienced someone who died or not, because we grieve the things that we lose. And whether it’s a relationship, whether it’s community, whether it’s loss of faith, I mean, there’s a lot of different things that our experiences feel like a loss. And so we’ve been grieving, and we didn’t know that we were grieving. And unfortunately, when people hear grief, they think immediately about death. But if we had an open mind around grief and actually had more tools and conversation around dealing with loss, everyday loss in our lives in a healthier way, I think we have those tools early on in life so that we don’t get stuck when we find that after loss, after loss, after loss, and we haven’t been really dealing with the grief of those losses, that’s what gets us stuck.

Corynne Corbett (03:40):

So you talked about being stuck. So, how do we identify that? We’re stuck?

Monet Farr Cole (03:46):

So a lot of times we lose our verb for life. We just get a little complacent. We find that we’re isolated, we don’t enjoy the things that we used to, or there are very few things that we do that bring us any joy anymore. And so we are just going through, it feels like you’re on a hamster wheel, and day after day after day just looks the same, and you’re not quite sure how to get it back. And so a lot of times because we don’t have the tools, or we don’t have someone to say, look, you’re stuck, and you should get some help through this, we just remain complacent in that space. And it’s unfortunate because I think a lot of things happen when we’re stuck, our health starts to suffer not only our physical health, but our mental health as well. And we’re not interacting with other people. So, our brain health is even. There are a lot of things and a lot of fallout from being stuck.

Corynne Corbett (04:49):

Now that it’s interesting that you said that a lot of things happen. So you’re saying, so your mood changes. For example, you become lethargic. You said something about your brain health. So how would that change, for example?

Monet Farr Cole (05:08):

So when we’re not interacting with other people because we’re isolating, because we’re just stuck and not really putting ourselves out there anymore, then we’re not being challenged to think outside of our own thoughts. And especially if we’re just in this very small microcosm of people that we deal with, it’s incestuous. The thoughts become incestuous. Your thoughts and my thoughts are the same. So we’re not learning more. We’re not growing more so because we’re stuck. And we’ve decided that even if we don’t realize we’re stuck, that we’re okay with things as they are, we feel comfortable in that space, and we don’t even want now to try to learn more or to be with people who have different thoughts and feelings and ideas. So it’s a vicious cycle. You’re stuck, so you’re comfortable being stuck, so you stay stuck unless you have someone or you start to at least read about or find someone like me who can show you the ways in which we get stuck. And to compassionately help you through that because it’s hard. It’s hard to first recognize that you’re stuck and then to take the steps to make a change.

Corynne Corbett (06:26):

Right. So, what made you want to do this work?

Monet Farr Cole (06:33):

So, my own grief journey led me to become a grief recovery specialist. So I lost my mom in 2010, and that was devastating. When you lose your mom, it’s like no matter what the relationship, it’s like the earth beneath you just crumbles. And so I felt that. And then I also suffered the loss of basically the whole generation of her sisters and brothers. But the thing that really just took me out was the loss of my life partner. So when he died, I just really didn’t know what my future looked like and I didn’t care. And so that was an indication that I needed some help. So that’s when I found the grief recovery method, which is the method I use with my clients. And so the grief work is what got me started down this path and working with my clients to give them the tools and help them through the process over a six week time period.

(07:36):

But then I also realized that a lot of them were still stuck, even though they’ve done the work to now release the grief, they still weren’t sure how to move forward. So even though you’ve done that work, you could still get stuck. And then I’ve seen my friends and I felt stuck actually after grieving the loss of my soulmate. And I just felt like there was room for someone to be out here to help. And there are others like me, but I’m passionate about really helping people move forward into a life that they can love. Why just settle for a life that’s just okay and humdrum? Go for your dream life. Why shouldn’t we all do that? And so I really wanted to empower women to move forward and go after what they really want.

Corynne Corbett (08:28):

And why do you think that your passion is for women especially?

Monet Farr Cole (08:33):

I see myself. I do. And I think that as women, a lot of us are empathic. We feel so much and we do so much. And we’re the nurturers. We are the caretakers a lot of time. And not to disparage any men because they also have their roles, and they’ve suffered too. They really do. That’s why I’d never say I’m not open to working with men, but women are my passion to work with women through these issues. Because a lot of times, we just take the hit and keep going. We’ve been told to put big girl panties on and keep it moving. You don’t have time to sit down and feel sorry for yourself or feel bad or to feel the feels right. You don’t have time to feel all those emotions keep going. And I think that’s a very dangerous message, and I just would like to be part of the solution to help more of my sisters live life fully and boldly and

Corynne Corbett (09:33):

Big and bad. So what I like is that we’re having a conversation about loss and grief, but it’s not this too, sad overtone because the perception is when you think about grief and you think about that we’re going to have this conversation that we’re going to be sad and somber, so to speak, we’re going to be like, oh, so this is going to be this discussion, and we’re going to be talking like this, and we’re going to be really thoughtful. What we’re not talking like that, because what we’re saying is that we are trying to recover our lives in this conversation, that you’re encouraging women to find the joy again, to find purpose again, and that it is possible to do that. But one of the things that you said that really stuck with me is that six weeks was not enough. That there’s no time limit, that you can’t identify a time when the journey is over for someone.

Monet Farr Cole (11:07):

No.

Corynne Corbett (11:08):

So, can you talk a little bit more about that?

Monet Farr Cole (11:10):

Yeah, I mean, there are a couple of things I want to say about that. So first is that those five stages of grief are not applying to grievers. That was originally put out there by a psychiatrist who was working with terminally ill patients. So that whole concept of first you go through denial and then anger, and then no, that’s not, so our grief is not linear like that. And so, everyone’s journey is different. And so that’s why the six weeks, even though my program is typically six weeks long, I’ve gone almost a year out, to be quite honest with some people, because we all process our emotions differently. And so we have to be given the time to have our own unique grief journey, and we will have different emotions. You can have two siblings lose their mother and have completely different reactions to the death.

(12:05):

And then my message is more upbeat because grief is every day. It’s an everyday thing. I’m trying to bring normalcy to grief. It’s not this big dark cloud that has to be so burdensome and, like you said, so dark and so gloomy that it feels very out there to us instead of, it’s something that we all go through and especially in normalizing it for our children as well, so that then they grow up with a healthier experience and interaction with grief. And so that’s where the name of my company really came from was new paradigms, having just a new look at grief, looking at it differently, reframing our old vision of what grief is. I want to change that.

Corynne Corbett (12:57):

Yeah, I think that’s so important. So you mentioned that there are so many ways that we experience loss. Can you talk about some of the ways that we experience it?

Monet Farr Cole (13:10):

Yeah. So there are over 40 losses that we can experience through our lives and suffer grief as a result. So death of a loved one is the obvious. Divorce is another one that we are familiar with. But what about moving? You move to a new location, that’s a loss. You’re looking forward to the new place that you’re going to be, but you’re saying goodbye to friends and the neighborhood that maybe you grew up in. So that’s a loss. We have loss of friends. Sometimes our friendships come to an end, and that can be really devastating. And we don’t compare losses. My loss of a friend might hit me harder than the loss of your dad because you didn’t know him. It’s like we don’t compare losses. So they’re all things that we may grieve, we also grieve. And the losses that are intangible, like loss of faith, when something happens and we don’t understand it, and we’re questioning our faith, how could that be?

(14:12):

That goes against everything I thought I knew about my spiritual practice and my beliefs. So you got loss of faith, you have loss of safety. Things happen in our lives and we no longer feel safe, loss of health, loss of career. So there’s a lot, there’s so many things that we go through in life that make us grieve and we don’t even recognize. And so what happens is that grief gets packed on there and packed on and packed on. Then we got Samsonite luggage that we’re dragging around with us from one relationship to another or from one stage life to another. And we don’t even realize it, but it impacts us.

Corynne Corbett (14:57):

Exactly, exactly. And I have a friend who used to say, one carry on allowed, but that’s impossible. If we’re talking like this, that’s actually not feasible. If we’re talking about all the things that we experience in life, how are we carrying one carry on? If we’re actually living, we want to unpack. So we would have to then face some of the things that we’re experiencing and then take them behind some way.

Monet Farr Cole (15:39):

Yeah. How many times do we start a new relationship? And we haven’t really dealt with the grief of the past relationship. We just said, oh, move on. Get a new boyfriend. Get a good new girlfriend. Just keep going. Replace that loss with a new person. And you didn’t really grieve what you had with that person at one time. It was good. So there is some grief there no matter why you broke up. And if we don’t deal with that, we just carry it into relationship after relationship. And then it’s hard for us to show up really healthy in those new relationships.

Corynne Corbett (16:20):

So when you are working with people, what is the process? Is it one-on-one sessions? Is it writing? Is it action? Do they get homework? Talk a little bit about how the work gets done.

Monet Farr Cole (16:45):

So I have a couple of different programs. So the program to really process the grief is the grief recovery method. And that’s one-on-one coaching, but I also do groups for that as well. And there is reading and there is homework involved in that process because it’s important that we start understanding, have a new understanding of what grief is, and then we start getting new tools, new ways to look at things, new ways to process things. So it’s really important that homework piece is a crucial part of the work. And then we meet one-on-one weekly to talk about the assignments. And I give my clients however long they need. Typically it takes them about eight to nine weeks instead of the six weeks because it’s hard stuff that comes up. And while I do keep it light, as light as I can, I am a compassionate specialist.

(17:43):

And so I am very aware of what they’re going through. I’ve gone through it. So it helps that I have experienced what they have. But then I also have the coaching after the grief recovery, and those can be different. So for your listeners, I’m offering that Heal Your Heart Challenge, where it’s just the email inspiration and journal prompts just to get people started. But the bigger program would be another four week program where they actually get one-on-one coaching, as well as homework assignments for the Heal Your Heart Challenge, and then the other coaching programs a little bit longer. So I have another program that’s four to six months, and that’s really intensive. So we get into your beliefs, talk about our values, how to structure your life based on your values, and create boundaries based on your values. So we go a little bit deeper in those programs, but with everything there is an educational component, there’s always an educational component.

Corynne Corbett (18:51):

So just for those of you who are listening, Monet has given you a little tease here. She’s going to offer you a 30 day program. Tell us a little bit more about that. Now we are just giving you a little, just teased it a little bit, but we’re going to give you yes, this a little quick little public service announcement.

Monet Farr Cole (19:19):

Yes. So for your subscribers and listeners, I wanted to offer something special. So free of charge, they’ll get a 30 day program where each of those days, they’ll receive an email in their inbox with some inspiration and also a journal prompt. And so what it’s geared to, our brain works in a way that if we can get small tasks done and completed, it gives us a sense of confidence to allow us to do more work, and we see that we can be effective. So that’s what this program is really about: getting people to take these small steps towards healing their hearts and moving forward in their lives. And so the inspiration is just around giving them the encouragement to move forward and with compassion and with good information. And then the journal prompts get them involved. So now they can start taking it in, self-reflecting, and then writing it out. And that’ll take them even further on this journey.

Corynne Corbett (20:27):

So you’ll see the link right here, but then in the transcript, you’ll also see the link again and just see the link at the end of this program. Tell you again before we’re done. But as you’re listening, we just want to give you the little announcement, but we’re going to keep talking just in case. But this is a little public service announcement for those of you who are listening right in the middle of this show. So we talked about this, all the kinds of losses that we can experience in our lives, but let’s go back to now that we, let’s really talked about loss of a loved one. And because initially we didn’t want to talk about that because a lot of times people shy away from that. But now we can talk about that and that can change people’s lives really significantly. And that’s where many, many people become stuck and don’t really know what to do, particularly women, particularly women. And so let’s talk about ways how that shows up in our lives. And this could be women of all ages. This is not women of a certain age is this is women of all ages who just become lost. This is about being lost, not just lost. This is about lost, but become lost because they don’t see themselves without the other person.

Monet Farr Cole (22:36):

So there’s several things I’d really like to talk about here. And so one of them is around emotional incompleteness. So a lot of times when we have unresolved grief, it’s because we didn’t get to say something, do something. There were things that we thought wish were better or we had more of or even less of. And so because those things just get bottled in because now we can’t tell the person, even if in a divorce, it’s not emotionally safe to have those conversations, probably with your ex, because you might just get re-injured. So regardless of whether it’s death or divorce, those things are bottled up inside. So because of that, we’re just carrying that around and it’s hard to move forward. But you have those friends that just keep replaying the same story. Every time you talk to them, they’re telling you the same story, the same story. A lot of times, it’s in a breakup, and he did this, and he did that.

(23:35):

And it is like, girl, okay, we’ve been talking about this same thing, but it’s hard to move forward even with death. You were supposed to take that trip, and you never took that trip and whatever it is. And so those things absolutely get us stuck. So that’s one way we get stuck. The other thing is the people who are supporting us through grief mean the best. They have the best intentions, but unfortunately, there’s so much misinformation around grief or no information around grief that sometimes we actually injure the griever with little things. So for example, I had friends loved me dearly. I know it for sure. And they would just call and say, how are you? How are you?

(24:25):

And I’m like, I’m sad. I’m still sad. But after a while, I got tired of saying I was the sad one. I didn’t want to be negative Nancy all the time, even though I felt like saying he’s still dead. So yeah, I’m sad, I’m sad. But I started lying. I just started saying, yeah, I’m better. I’m better. And see, that gets us in the motion of not being emotionally honest anymore. And so because we’re not able to be emotionally honest, we’re living a lie. And in living that lie, we get stuck. And it happens more times than it, what’s so sad about it? And it’s done out of, there’s no mouth, bad wishes. People have the best intentions, but unfortunately, that’s one of the ways that we can get stuck. And we just become more and more detached from ourselves, from our true self because we can’t be as sad as we really want to be.

(25:36):

We can’t be not okay with life still a year later, yes, I’m still grieving. Yes, even at work, we can’t do it. People don’t understand. So that’s a big reason why we get stuck. And then the other thing is, a third thing I want to talk about is victimhood. So it’s very natural to feel like a victim when we suffer a loss. Everybody, yes, you didn’t want this to happen to you or to your loved one. The problem is, if we get stuck as victim and it’s easy to do because people expect you to be victim, then that’s another way we get stuck because we’re not empowered now to move forward, to make changes, to make a difference. And so what I encourage my clients to do is if you could take just 1% responsibility, not for what happened, but for your reaction to what happened, that’s the only thing we can really have any control over is how we react. So when the time is right, can you just take the 1% and it could be as small as you got help. Hey, that’s a move in the right direction. It’s the smallest steps. But the more they do that, the more they will and the less victim they’ll feel, and the more empowered they feel. So that’s a way out of getting stuck as well. But being victim is one of the ways we get stuck too.

Corynne Corbett (27:13):

But I’m going to go back to what you just said about the friend who calls, and then you’re like, I’m better. You can’t say to your friend you’re lying. You’re not better.

Monet Farr Cole (27:26):

See, the thing is that I know that when I’ve called my loved ones, and they’re suffering, I am waiting for them to say I’m better. I am not putting the pressure on at all. But in the back of my mind, I can’t wait until she says, yes, I’m better. And the other person can feel it. And so we want to make people comfortable without grief. We don’t want them to suffer with us, so we hide it. Yeah.

Corynne Corbett (28:07):

So it’s like a catch-22. So, the person who’s angry has to carry the burden of making other people feel better.

Monet Farr Cole (28:22):

Yes, absolutely. That’s

Corynne Corbett (28:25):

Jacked up though.

Monet Farr Cole (28:27):

It is. And it is just about not having the right information because you know what you can do instead of just saying, how are you? Do you need something? Can I just come and sit with you? You need some, Rosa, what do you need? I don’t know what to say. I don’t know what to say to help, but I just want you to know I’m here. So if we had this information, then we would know not to keep asking, how are you? But we don’t have the information,

Corynne Corbett (28:58):

Right? I don’t think I ever said, how are you? I don’t. I say, how? You don’t think I say that?

Monet Farr Cole (29:12):

How are you holding up?

Corynne Corbett (29:17):

I do say, what do you need? What can I bring you?

Monet Farr Cole (29:21):

Yes, that’s perfect. That is perfect.

Corynne Corbett (29:24):

What can I bring? You need some food. What can I send? What can I bring? Yeah, I do say that. Yeah.

Monet Farr Cole (29:32):

I

Corynne Corbett (29:32):

Think when can I come by? Time

Monet Farr Cole (29:33):

Goes on six months in, a year in. I think it’s harder,

Corynne Corbett (29:44):

And I often say this to my family members: you don’t want to be an expert on death. Nobody wants to be an expert on death. And actually, everyone’s situation is different. So you don’t want to assume that what you know to be true is true for that other person.

Monet Farr Cole (30:07):

You’re right. That is key. That is key. Because I lost my mom and someone else lost their mom. We had completely different relationships with our mom. So I don’t know. All I know is how I felt. I can share that with you, but I don’t know how you feel.

Corynne Corbett (30:25):

That’s right. I do always say that to people. I was like, I don’t know how you feel. However, I will say my only advice to people this moment by moment. That’s my general advice. That’s good. Interesting. So, as people are coming through the programs and establishing a kind of new reality for themselves, what is your advice to them as they’re doing it?

Monet Farr Cole (31:09):

To have an accountability partner is really important, and to have a plan. So at the end of my programs, I definitely set up an action plan and we follow up. But it’s so important to be able to keep the promises that we make to ourselves. Because if no one else knows about it, it’s really easy to just go back to your old ways because it’s difficult to do something different. It is. So having an accountability partner is very important. Even if it’s just a friend that you say, look, I promised myself I was going to do this. I’m going to go out once a week and just meet people. I’m just going to go into public places and try to just meet some new people, whatever it is, but just share that with them that these are the things that you’re going to do so that someone can hold you accountable.

Corynne Corbett (32:02):

I think that’s really important. So the person doesn’t have to be, let’s say if you’re doing groups, they don’t have to be in that group. That could just be a friend or someone.

Monet Farr Cole (32:11):

An accountability department can be somebody. It’s whoever they want to choose. They might choose someone in the group because they’re going through very similar things. But yeah, it could be just a friend, someone who really cares about you and would call you on it. But it’s like having patience with themselves, too. It’s like having that balance of compassion and courage. So we want to have the courage to do the things that we say we’re going to do, but also being compassionate with ourselves too. So, just having a good balance.

Corynne Corbett (32:47):

And in your program, are there steps? So if I start in one program, could I go to a next program? Could I go to a next program? I feel like if I’m in a situation where I’m trying to come to terms with a loss of some sort, I may need more tools and more help than just one program, for example. So, if there were more opportunities for help, it’d be nice to know they’re there.

Monet Farr Cole (33:29):

So I have a tier because I realized that my clients are in different places. So I actually have a free unstuck event. So, it’s a free webinar. The next one is actually next Saturday at 12 June 15th if anyone wants to tune in. But I have the free one. So that starts to get you thinking about, wow, so that’s what stuck looks like. I think I’m stuck. So then we go into the Heal Your Heart challenge. So the one I’m doing with your listeners is abbreviated to just the 30 days, but I have a more extended program, but that’s still another tiny step because that’s a short program for just four weeks. And you start getting the one-on-one coaching, you do some journal prompts and you have the lessons. So that’s another step into the process. And then after that, then we have the untangled program. And so that’s the four to six-month program, and that’s more intensive. So that’s when you’re really feeling, okay, I really want to dive in and really make some changes in my life. And so then you would go there. But I did recognize that not everyone is ready to just go deep dive, right? Sometimes, we need those baby steps.

Corynne Corbett (34:46):

Absolutely. So what advice would you give to people who just want to dip a toe in?

Monet Farr Cole (35:02):

So if they just want to dip a toe in, there’s a couple of things they can do. I have conversations with everyone before I start working with them, and sometimes it’s just a conversation to have someone talk to you that understands what you may be going through to maybe give you some ideas of some of the things you could do, whether they’re my programs or whether they’re something else, then to at least get that going. The other thing I think is really good is the unstuck event. Because it is a free webinar on a Saturday, you’re in your home. It’s really easy. You just tune in for an hour, and then you see it might give you some indication of where you are in your process, whether you need to maybe do some grief work, you could do that too, or whether you’re really ready to move forward.

Corynne Corbett (35:56):

Right. Okay. That makes sense. That makes sense. Is there anything, excuse me, that you think we’ve missed in this discussion?

Monet Farr Cole (36:17):

I don’t think so. I think we did such a good job of covering everything. Thank you for being perfectly suited for this conversation. I really appreciate it. But I think we really covered a lot. I think we covered the grief as well as moving forward. And it’s important to distinguish the two and to be able to have tools for each of those, because the tools are a little bit different, but they definitely help. And the only other thing, I guess,

Corynne Corbett (36:49):

Go ahead.

Monet Farr Cole (36:51):

The only other thing we didn’t really talk too much about was emotional honesty. And that’s a big one for me too. Oh,

Corynne Corbett (36:56):

Let’s talk about that emotion. Emotion. Let’s talk about emotions.

Monet Farr Cole (37:00):

Honest is so important. If you’re not going to be honest with the people around you, at least be honest with yourself. And so I have what I call a five-step gut check. And so it’s every morning you wake up, and you’re like, okay, how am I feeling? Okay, so today I’m feeling afraid. Okay, so now the next step is, okay, why am I feeling that way? Why am I feeling afraid? Well, doing some new things. This is scary to me to try new things. Okay, so then the next step is, so are there some beliefs attached to that? So maybe I have some limiting beliefs around my ability to be different.

(37:48):

Then the next step would be, so is there anything I can do about it or no? First, is it true? Is it true? Is it true that I’m limited? No, it’s not true. And then you want to ask yourself, is there anything you can do about it? And yes, I can do more with my prayer meditation. I can read and do things that, I can take these small steps that will show me that I’m making progress, and I can build my confidence. And then, so those are the steps in that gut check. But I think it’s just really important. And to be able to name the different emotions. Don’t just always settle for angry. Really dig deep and figure out what it is you’re feeling, why you’re feeling it. And then basically, is there something you can do about it? And if not, it’s about acceptance, right? Accepting that this is just what is and having some

Corynne Corbett (38:53):

Peace. And you do that in the morning.

Monet Farr Cole (38:55):

In the morning, every morning. Just check in, check-in, just get into the habit. It’s a good habit to start really understanding our emotions. Our emotions are here to tell us something. They don’t just exist. They’re here to tell us something. And there are no bad emotions. They just are. So, if we’re jealous and envious, it’s not bad. It just is. Now, what you do about it could be bad. That’s where the good and bad could come in.

Corynne Corbett (39:30):

So for everyone listening today, this is something that we all can do, whether we have experienced loss or not, this is a five step process that we all need to make a habit starting tomorrow. That is something we could take away right now. So, let’s do the five-step gut check. Let’s start making that a habit right now that is a takeaway for us. All right? Now, the other thing is that the 30-day challenge is something that we could all do ourselves. Whether we’ve experienced loss or not, that is the other thing we could all do. So, Monet, please tell us again about the 30-day challenge that you’re offering.

Monet Farr Cole (40:20):

Us. So it’s a 30-day Heal Your Heart challenge. And what we’ll do is the link will take you to a page on my website where you can put your name and your email address. And so for 30 days after you subscribe, you’ll get an email in your inbox with an inspirational message as well as a journal prompt to help you start reflecting and looking inward to decide how you can move through that inspiration message and how you can apply it to yourself. And it just allows you to make these small steps forward to create a life you love.

Corynne Corbett (41:03):

All right? And who doesn’t want a life that they love?

Monet Farr Cole (41:07):

Yes, we all do

Corynne Corbett (41:09):

Think about that. Who does not want a life that they love? So Monet, for our call, I cannot thank you enough for being here with me.

Monet Farr Cole (41:20):

Thank you so much for having me. It’s my pleasure.

Check out Monet Farr Cole’s Events Page for additional upcoming sessions.

The post BHM Interview Monet Farr Cole on Navigating Loss, Emotional Honesty and Creating a Life You Love appeared first on Black Health Matters.

From Idea to a Movement

Zemoria Brandon, the Shine the Light on Sickle Cell Steering Committee chair and administrator/social worker with Sickle Cell Disease Associaton of America, Philadelphia/Delaware Valley Chapter, says that Shine the Light started as an idea. “We were in a meeting at our national convention, and Gloria Rochester, Founder, President, and CEO of the New York (formerly Queens) Sickle Cell Advocacy Network, said there were so many myths, misinformation, and miseducation about it and who it impacts, and shining the light was what we stood on,” Brandon explained. “It started as an initiative; then it became a campaign, and now it’s a movement.”  It has empowered faith-based organizations, even those with SCD, to ask how we can get involved.

“We have an organization, a nursing sorority, and one of the members is affiliated with a sickle cell program in Philadelphia, and every year, they come together and hold a memorial red balloon release in memory of those clients who have passed away,” Brandon says.

Other ideas Brandon has seen include walkathons, block parties, golf tournaments, and red lightbulbs on their porches. And that movement has expanded beyond the Northeast because of social media.

Last year, 29 states and 21 countries participated in Shine the Light.

Amplifying the Message

The power of Shine the Light is a collaborative effort. A driving force of it is SiNERGe CBO, which is a community-based organization, hospital, and advocacy program working together to support, raise awareness about, and treat SCD.

“When we talk about sickle cell disease, it’s not to point to the Northeast region; it’s to shine the light on it so they have the awareness that this a disease that matters and causes a lot of suffering,” says Dr. Rosalyn Stewart, a Professor at Johns Hopkins University School of Medicine.

Dr Stewart also thinks it’s essential to shine a light on the disparities in funding. Currently, 40,000 patients are living with cystic fibrosis in the United States, and there are 100,000 people with SCD disease. “Their funding is about $100,000 to $1. The federal budget for SCD is 8M. We would like that to go up. We need the public voice to get louder, ” she says.”We’ve gotten Congress and the federal government to recognize the power of CBOs in healthcare and serving people in need.”

Getting Patients Access is Critical

While everyone is talking about multimillion-dollar treatments, Dr. Stewart said the primary need right now is getting SCD patients who aren’t on any therapy started on a therapy would be beneficial now. However, centers where patients can access treatments are not always accessible. “If you think about CF centers, people will travel to them. However, the average socio-demographic of someone with sickle cell disease is different. They might not have the means to travel 100 miles to a center of excellence.” the professor explains. “And so, on the provider side, we’ve pivoted to get satellites and other providers out where patients are to help do some of this work, and then only bring them to the academic centers when we have to.”

In areas where patients have access to public transportation, they may be able to use it to see a provider if they have the means, but even that may be an issue. So, when we think about SCD, we must consider all the ways to provide access to treatment. The shortage of hematologists available to treat adult sickle cell patients is an issue, too. As is the lack of treatment facilities and the number of Sickle Cell Disease Centers of Excellence.

June 19th happens to be Zemoria Brandon’s birthday. She has worked with the Philadelphia/Delaware Valley Chapter for 42 years. Her husband, who succumbed to SCD in 1998, was one of its co-founders. She will spend the day stopping at all 12 locations in Philly, Painting the Town Red in his honor. 

For a complete list of the SiNERGe CBOs is here.

The post Shining the Light on Sickle Cell Anemia for Six Years appeared first on Black Health Matters.

What’s maddening about this is that it often occurs when a sickle cell patient is already pregnant, and they are advised not to have any more by the OBGYN whose care they are under. Presumably, they trust this person who can subtly exert influence and walk a fine line between force and consent. Patients have 30 days to withdraw this consent, but most don’t.

Here is the scary part:

But the doctor said it was best done while she was already open, she recalled, rather than risking another surgery.

Her memory of that day is fuzzy. But there’s one thing she’s adamant about: She didn’t want to sign the form. Nor did she want to die in childbirth, leaving her kids without a mom. Her obstetrician was older and had delivered countless babies. He was Black, like her. She trusted him. Maybe he knew best.

Sometimes, it is your people who betray you.

These sterilizations are confirmations of the doctors’ belief that SCD patients shouldn’t have children. According to the article, “But to doctors researching the risks, the answer is not to discourage people with sickle cell from becoming parents. The answer is to provide better care. Some hospitals have teamed up sickle cell specialists with high-risk pregnancy experts, dramatically reducing complications and, in some cases, doing away with these deaths entirely.”

The article points out why sickle cell patients fall pretty to these pressures. Black women with SCD seeking quality care do not have a lot of options, especially after graduating from a pediatric program. There is a lack of adult specialists available across the country. And the power differential weighs heavily on the doctor’s side.

But no matter where you live, you have rights. Say, can I have time to think about it when in doubt? And get yourself out of there before a decision is made that cannot be undone.

If you are with your significant other, spouse, boo, or anyone who has signing privileges, make sure you go over what they should and should not sign on your behalf.

The post Women With SCD Sterilized By Coercion appeared first on Black Health Matters.

Dr. Love did his residency at Harvard and worked at Mass General Hospital. Although that hospital didn’t see as many SCD patients, he was dismayed to witness a similar scenario. He filed these encounters in the back of his mind. “I ended up in biotech and focused my career on cardiovascular disease and cancer,” Dr. Love says. “And I almost felt guilty for not doing anything about the inequity I saw.”

Dr. Love retired and moved to the wine country in 2012 and got a call from a former Harvard professor, Charles Homcy, who was starting a sickle cell company, Global Blood Therapies, GBT. He tried to coax Dr. Love out of retirement to join the venture-funded company. Initially, the new retiree only agreed to join the board of directors. But a year into the project, he called his wife after reviewing some new material and told her he needed to talk to her about it. “When I got home, my wife and three daughters said, ‘We know you, we know how passionate you are, how you care about the situation sickle cell patients face. And we support you doing this.’ So I called the company back and said, if you want me to be the CEO, I have the support to do it.” I started that role in 2014.”

One of Dr. Love’s first things on his agenda was to connect with the SCD community. “I realized if we were serious about the commitment to these patients, we would have to build those deep relationships early,” Dr. Love explains. “We talked to groups about the clinical trial. Will you help get it done? They told us what data they wanted us to share, and we delivered on that commitment.” That partnership resulted in our drug, Oxbryta, which helps keep hemoglobin from clumping together. After receiving accelerated approval in 2019, the FDA granted breakthrough approval in 2021. Pfizer acquired GBT for $5.4 billion in 2022.

Dr. Love says that GBT was the world’s largest investor in solutions for SCD. Outspending the US government. “The other thing I’m super proud of is that we have stimulated interest and innovations for SCD, as it has been done for cystic fibrosis.”

You already know that Dr. Love doesn’t know the meaning of retirement. He is taking part in the Sickle Cell Forward Trip this fall. “I am trying to get 20 people to donate $50,000 each, and we are going to hike Kilimanjaro in September,” Dr. Love says.”We will give that money to a clinic in Africa where patients often die before their fifth birthday because they don’t have access to simple things, and we will make those things available. A matching gift will go toward sickle cell treatment in the US. We are building a culture to become what we need to see.” (But you can also donate as little as $5 to the cause.)

If you are thinking about what you can do that doesn’t cost you anything, Dr. Love suggests putting some pressure on your representatives and senators. One thing on his list is resurrecting the Sickle Cell Treatment Act, which would allocate $535 million annually to fund SCD Centers of Excellence and CBOs.

However, Dr. Love is hopeful about the innovation happening at Pfizer and across the industry. “I’m hoping to improve the quality and quantity of their medicine in the next decade. To make a big difference in managing sickle cell with two or three pills, and patients live longer in the future.”

The post Dr. Ted Love On His Fight to Keep Sickle Cell Disease From Being Overlooked appeared first on Black Health Matters.

People reported she died at her daughter’s home in Vallejo, California. The singer had suffered two strokes in 2005 and 2006, left partially paralyzed. The Denver Post says Bofill took some years to recover and resumed interviews and appearances but could no longer sing.

According to the Berklee Library, Bofill was born in Brooklyn, NY, to a Cuban father and a Puerto Rican mother. The singer grew up listening to Latin music and earned a Bachelor of Music from the Manhattan School of Music. She performed with the Ricardo Marrero & the Group and Dance Theater of Harlem Chorus before being introduced to Dave Grusin and Larry Rosen of the GRP Records, who produced her first record with her two chart-top hits, “This Time I’ll Be Sweeter” and “Under the Moon and Over the Sky.”

Bofill switched to Arista, and her music was considered more R&B, with some crossover pop hits. People might remember her more “I Try.” She often closed her shows with “I’m On Your Side.”

When Bofill was at the height of her career, her manager, Rich Engel, said. “She could hit low notes and could hit high C. Her pitch was perfect.” She had a coveted 3 1/2-octave range.”

Our prayers are with her family. She is survived by her husband, Chris Portuguese, and daughter, Shauna Bofill.

The post R&B and Jazz Singer Angela Bofill Has Died appeared first on Black Health Matters.

Dr. Pruitt has published over 50 peer-reviewed articles in various medical journals. His research interests include minority health affairs, sickle cell anemia, and HIV in minority populations.

He holds a certification in Good Clinical Practice and Trials from the Clinical Trials Network (CTN) and the National Institute on Drug Abuse (NIDA). He also serves as an Institutional Biosafety Committee member for Advarra Corporation. Dr. Pruitt is currently the chief medical research director for PBJ Medical Associates and the 7^th District Medical Health and Initiative chairman for Omega Psi Phi Fraternity, Inc.

Dr. Pruitt, an esteemed physician and medical scientist, provided us with an expert overview of lung cancer, covering everything you need to know, including an overview of the different types of lung cancer, lung cancer risk factors, diagnosis and screening, and how lung cancer affects the black community.

Black Health Matters: Let’s start with a basic but very important question, what do we need to know about lung cancer?

Dr. Pruitt: Lung cancer makes up about 13% of all cancers but accounts for 90% of the cases of fatality. The peak incidence is between 75 to 79 years of age, and men are at a slightly higher risk than women.

There are basically 3 major types of lung cancer: The majority of people with lung cancer have non-small cell lung cancer, so that’s what we will focus on.

Black Health Matters: Are there any major risk factors or causes of lung cancer?

Dr. Pruitt: Cigarette smoking is a major risk factor and causes an overwhelming percentage of cases. Other risk factors include radon gas, radiotherapy, family history and chemical exposure.

Secondhand smoke exposure is an additional risk factor that shouldn’t be overlooked. Various studies have shown that exposure to secondhand smoke increases your chance of lung cancer upward to 20 to 30%.

Black Health Matters: As you mentioned, smoking and smoke exposure are major risk factors, is cigarette smoke the only thing that should be avoided?

Dr. Pruitt: A lot of people come in and say, well, I don’t smoke cigarettes I smoke cigars, or use e-cigarette or vaping devices. It is important to highlight that cigar smoke, like cigarette smoke, contains the same toxins and cancer-causing chemicals that are harmful to both smokers and non-smokers. Secondhand cigar smoke is possibly more toxic than cigarette smoke, because cigar smoke has a higher level of cancer-causing substances.

So to answer your question, cigarette smoke is not the only thing that should be avoided because cigars and e-cigarettes can cause cancer as well. Marijuana, when smoked or inhaled, may also pose a potential risk.

Black Health Matters: What can someone undergoing lung cancer screening expect during the appointment?

Dr. Pruitt: If someone comes into the clinic for screening, one of the things that we would do is a basic medical history and perform a physical exam. If lung cancer is suspected, additional testing and imaging may be requested such as X-rays or CT scans.  The provider may look for signs of a tumor, scarring, or fluid buildup. They might also request a sputum test to test for cancer cells or other more invasive tests such as a biopsy which involves taking cells from the lung and examining them under a microscope or a bronchoscope where a tube and built-in camera are inserted through the nose and into the lungs to determine if any cancer cells are present.

Black Health Matters: Can anyone request testing for lung cancer?

Dr. Pruitt: It is recommended that lung cancer screening be done for high-risk individuals starting at age 50 through 80, and for individuals with an extensive smoking history, those who are currently smoking, or who have quit in the last 15 years.

Black Health Matters: How does lung cancer affect the Black community?

Dr. Pruitt: Black men are about 12% more likely to develop lung cancer than white men. That rate is about 16% lower in Black women than white women, but the gap is closing.

According to the American Lung Association, Black individuals with lung cancer were about 15% less likely to be diagnosed early. Notice I said early, meaning that we can catch it in the more treatable stage which helps longevity and survival rates. We are 19% less likely to receive surgical treatment, 11% more likely to not receive any treatment, and 16% less likely to survive 5 years compared to white individuals.

Additionally, the eligibility criteria set for lung cancer screening previously was not ideal, especially for the Black population with an increased risk of lung cancer. Now we have adjusted that with the goal of catching more cases earlier and increasing survival.

Black Health Matters: What advice do you have for those who have been diagnosed or undergoing treatment for lung cancer?

Dr. Pruitt: Clinical trials provide access to treatments that have yet to enter the market. So sometimes entering into a clinical trial may be beneficial to get early treatment that may not have been released yet.

Interested in learning more about non-small cell lung cancer clinical trials? Visit here to learn more.

The post Lung Cancer in the Black Community: An Expert’s Insight appeared first on Black Health Matters.

Sydney became an advocate to dispel the stigma that lung cancer is a smoker’s disease. She wants to increase awareness about the need for more lung cancer research, get rid of the stigma, and obtain research funding on the same level as breast, ovarian and other women’s cancers to educate others that lung cancer kills more people than those cancers combined.

Dr. Barned is a lung cancer survivor turned advocate. Her story from diagnosis to advocacy is one of honesty and unwavering hope. Through her personal experiences and powerful insights, she sheds light on the challenges and triumphs she faced throughout her lung cancer journey.

Black Health Matters: First, tell us a bit about how you were diagnosed with lung cancer and what that experience was like for you.

Dr. Barned: So, in February 2016, I realized that I was having some shortness of breath with my exercise routines. I have always been very active in various activities, so when I noticed that my exercise tolerance was diminished and I was struggling during my 5K runs, I knew something was wrong. I went and got an x-ray and was initially diagnosed with walking pneumonia.

I later started experiencing a chronic cough, so I decided to see a lung specialist (pulmonologist). The x-ray was repeated, and it had improved but was still abnormal. I was then diagnosed with hyperactive airway disease and prescribed a steroid. My symptoms continued to worsen so I saw a different pulmonologist. I completed another x-ray and requested a CT scan which showed a mass that was compressing my airway.

After doing biopsies, bronchoscopies, and various other tests, I was diagnosed with stage 4 lung cancer. As a physician who was active, had never smoked, and was pretty obnoxious about telling people to stop smoking because of the risk of lung cancer, the irony was shocking.

Black Health Matters: Can you share more about your advocacy work?

Dr. Barned: I have dedicated myself to educating others on the fact that anyone with lungs can get lung cancer, and that if you have certain risk factors to request screening for lung cancer. Understanding the criteria is something that we need to encourage the public to do and to make sure that if they have certain risk factors or present with certain symptoms that they need to insist that they get the test necessary to make sure that lung cancer is not caught in its later stages.

Black Health Matters: What’s one piece of advice you would share with someone who is considering requesting additional testing?

Dr. Barned: Early detection is very curative. The earlier the cancer is detected, the earlier you can begin treatment.

Black Health Matters: Thank you for sharing your story. Any final thoughts?

Dr. Barned: Though lung cancer survival rates are much lower at later stages, getting diagnosed at stage 4 is one of the reasons why lung cancer advocacy is so important to me. I’m so happy to be a source of education and to tell my story.

Want to learn more about non-small cell lung cancer clinical trials? Visit here to learn more.

The post Championing Change: Physician and Lung Cancer Advocate Shares Personal Story appeared first on Black Health Matters.

Squamous cell carcinoma (SCC) makes up nearly 90% of all head and neck cancers.^1,2 This type of head and neck cancer typically includes cancers of the throat, nasal cavity, sinuses, nose, mouth, and larynx (voice box).^2,3

^{Head and neck cancers are more common in men than women, and in those over the age of 50.3, You are more likely to be impacted by head and neck cancers if you use tobacco or alcohol or if you have been diagnosed with oral human papillomavirus (HPV).3} In a recent study, Black patients with head and neck cancers had consistently worse outcomes than their white counterparts.⁴ Black patients are also less likely to receive adequate care for head and neck cancer.

Causes of Head and Neck Cancer

Many of the known causes of head and neck cancers are preventable. Awareness of these factors can help you make decisions that can lessen your risk of exposure. Principal risk factors for head and neck cancers include tobacco and alcohol use and exposure to the human papillomavirus (HPV).³

Other risk factors associated with SCC of the head and neck include:

• Exposure to harmful substances on the job, such as asbestos, dust, metals, and wood
• Ebstein-Barr virus infection
• Genetics
• Radiation treatments

Use of harmful substances

The use of any type of alcohol or tobacco is one of the two major risk factors. Inhaling tobacco smoke even if you are not smoking directly may also cause harm.³ The risk associated with developing these cancers is greater in those who use both alcohol and tobacco than it is in those who use one or the other.³

HPV infection

HPV is classified as a sexually transmitted infection (STI). Some types of HPV are associated with a risk of developing cancer. HPV infection is mostly associated with cancers of the tonsils or tongue.

How to Reduce Your Risk

Two main ways you can decrease your risk of developing SCC of the head and neck are by avoiding products that contain alcohol or tobacco and protecting yourself from HPV infection.^2,3

If you are a smoker, you can greatly decrease your risk if you quit smoking. You may think that quitting is easier said than done, but there are many resources available to help you. To further decrease your risk, you should stop using all tobacco products and avoid alcohol.⁵

HPV is the most common STI. The HPV vaccine can help protect you from HPV infections that have the potential to cause cancer. If you have not been vaccinated, speak with your healthcare provider to determine if the HPV vaccine is right for you. Because HPV is an STI, having protected sex and limiting your number of sexual partners can also help lower your risk of infection.^2,3

Symptoms of Head and Neck Cancer

Being able to recognize the signs and symptoms of head and neck cancer is an important part of raising awareness. The symptoms associated with head and neck cancer can be easily mistaken as symptoms of other conditions.^3,5

Symptoms include:

• White or red patches in the mouth, including the gums or tongue
• Pain in the neck or throat that does not go away
• A lump or hard area with or without pain
• Sore throat or pain when swallowing
• Chronic sinus infections
• Voice changes
• Nosebleeds

If you are experiencing signs and symptoms, discuss your concerns with your healthcare team, especially if you are at higher risk.

Help Raise Awareness

The Black community has historically been underrepresented in clinical trials across many areas of disease research. The harsh reality is that treatment and outcome disparities along racial divides exist among people with head and neck cancers.⁶ Minorities represent close to 40% of the United States population but only 11% of participants in clinical trials for FDA approved cancer drugs in 2020 were Black or Hispanic. Further research may help to understand exactly why. Still, in the meantime, it is important that we work to raise awareness of this lack of representation by increasing the participation of Black, Indigenous, and People of Color (BIPOC) in clinical research. Doing so will help ensure that future research and treatment advances incorporate study data from minority participants and apply to patients within these communities.

If you or someone you know has been diagnosed with head and neck cancer, you may be eligible to participate in the iintune-1 study. If you are interested in clinical trial participation visit MassiveBio for more information.

– – –

References:

1. Squamous Cell Skin Cancer
2. Penn Medicine. Squamous Cell Carcinoma of the Head and Neck
3. National Cancer Institute. Head and Neck Cancers
4. Liu, J. C., et al. “Racial survival disparities in head and neck cancer clinical trials.” Journal of the National Cancer Institute (2022): djac219-djac219.
5. American Society of Clinical Oncology. Head and Neck Cancer
6. Washington University School of Medicine in St. Louis. Gender and race interaction revealed in cancer survival disparities.

American Society of Clinical Oncology. Addressing the Barriers to Minority Participation in Cancer Clinical Trials

The post Squamous Cell Carcinoma of the Head and Neck: An Overview | Clinical Trials appeared first on Black Health Matters.

Finding Out What is Relevant For Us.

In approaching this study, researchers knew that persistent disparities exist when it comes to our health, particularly in cancer diagnosis and Black women. “In having a population of all Black women, we can understand what’s driving better outcomes for some Black women, less great outcomes for other black women. That way, as we partner with patient outreach and support and our local and national leaders, we can develop interventions that will be relevant for Black women,” Dr. McCullough says. “Often, when we think about disparities, we think about the reference or comparator group being white women. But by augmenting this population, we can better understand what works for us and what works for our health, and help drive interventions that will be relevant.”

This a 30 Year Study

The goal is to enroll over 100,000 women. This is not the most extensive study of Black women. But it will be the most extensive study to have Black women focused on cancer. To start, they are looking for Black women between the ages of 25-55 who have never been diagnosed with cancer (skin cancer is the only exception). Potential participants fill out a pretty comprehensive questionnaire, so they find out about your lived experience.

Dr. McCullough provides more details. “You will complete a short registration survey to get your demographic characteristics, name, address, phone number, and email. And that’s so we can keep up with you over the time you’re in the study for the next 30 years. That entire process takes about 10 or 15 minutes.,” she explains.

“After that, you would complete the first life and health histories survey, which takes about an hour, and some of the usual things you would expect in a health survey, previous medical conditions and family history; we’d also ask about lifestyle and behavior. Physical activity, diet environment, or food environment, we’d ask about your sleep. And then, there are several questions that we think are specific to this demographic group, including social support and caregiving, mental health, and experiences of racism and discrimination. And that survey, again, takes about an hour, and you’ll be fully enrolled in the study.” However, the health history is designed to be self-paced so participants can return to finish it when their schedules permit.

“Over time, we follow the population for all health outcomes, including cancer. So we’re able to understand then how all of these different things that someone may be exposed to, through their environment, their lifestyle, their job, their family, or medical, personal medical history, and so on, as well as other social and structural aspects, how all of these different factors may influence the risk of developing different types of health outcomes,” Dr. Patel explains, “Then we keep following the populations. So, for instance, if a woman is diagnosed with cancer, we don’t stop following her; we continue to follow the population for potentially the next 30 years, really to be able to understand how also to improve outcomes after a cancer or other disease diagnosis.”

You Don’t Have to Go Anywhere

You can participate in the Voices of Black Women study from the privacy of your home. You never have to go anywhere. “It is not a clinical trial. It is not an intervention,” Dr. McCullough says. “We just want to know about you, your experiences, your lifestyle, and then we can link that with various health outcomes that will emerge throughout the study.”

Dr. McCullough notes that over 30 years, the study researchers will reach out to participants twice a year to complete a 30-minute survey. And that’s it. “So an hour investment every year is what we’re looking for when we partner with Black women, and having this information on this number of women can help augment the research in health and cancer for Black women,” she says.

They Are Recruiting in 20 States

Recruitment is already underway, according to Dr. Patel.”We are recruiting right now across 20 states, including the District of Columbia. These 20 states and D.C. represent where over 90% of the Black population in the United States lives,” she says.

The States include Alabama, California, Florida, Georgia, Illinois, Louisiana, Maryland, Massachusetts, Michigan, Mississippi, Missouri, New Jersey, New York, North Carolina, Ohio, Pennsylvania, South Carolina, Tennessee, Texas, Virginia, and Washington, D.C.

Researchers Want to Build a Bidirectional Relationship

Dr. Patel says that this study is building upon previous studies. “So, an important thing for us has been and will continue to be for voices of Black women to share what we learned from the study. The more our participants feel connected to the discoveries we’re making to inform their health and understand their impact on a much greater scale, the more important it is to us,” she says. “We plan to build a bidirectional relationship through that participant portal. This is not something that we want women who choose to participate to feel like they are doing for us. But this is something they are doing with us. We will share findings as we uncover them over the next 30 years with our study participants.”

What They Hope to Learn

Dr. McCullough says, “I think we hope to learn why Black women are getting more aggressive types of disease. Cancer relatively impacts Black and white women pretty equally. But we know Black women are more likely to be diagnosed with tumors that are harder to treat, as well as late-stage tumors,” she says. “Even though for breast cancer, for example, Black women are equally likely to get screened as their white counterparts. And so, trying to get more insights on why this is the way we can tailor our prevention messages would be another goal. And then, finally, why Black women tend to die more or less often than other counterparts. And again, that we’re focused on Black women. But I think we can glean nice insights from understanding which participants, you know, survive longer. Are there things that they’re doing differently? Are there different systems that they’re operating in that better attend to their social needs? But certainly, some early insights will hopefully begin to narrow those gaps and create optimal health for all Black women.”

To enroll in VOICES of Black Women, go here.

If you still have questions about the program, check out the FAQs here.

The post Everything You Need to Know About the VOICES of Black Women Study (Focused on Us and Cancer) appeared first on Black Health Matters.

Alzheimer’s is a brain disease that is the predominant cause of dementia, a general term for memory loss and other cognitive abilities that are serious enough to interfere with daily life. Alzheimer’s is caused by damage to nerve cells in the brain, and it accounts for 60% – 80% of all dementia cases.

The flaws in the healthcare system, paired with the most significant risk factors, such as age and a family history of Alzheimer’s, only make things worse when it comes to diagnosis and treatment. According to the special report, the cumulative stress resulting from structural racism and the disparities in social and physical environments within our community may directly contribute to Alzheimer’s disease. Furthermore, this stress exacerbates the existing healthcare disparities that we encounter. It increases our vulnerability to other chronic conditions that themselves serve as risk factors for Alzheimer’s, including conditions like cardiovascular disease and diabetes.

Ethnic and cultural bias often influences our healthcare experiences, and unfortunately, Alzheimer’s disease is not an exception. African Americans tend to receive diagnoses at later stages of the disease; this limits the effectiveness of treatments that rely on early intervention. Additionally, although we are twice as likely to develop Alzheimer’s than our white counterparts, we are still underrepresented in current clinical trials. We represent less than 5% of participants in most new drug and therapy trials, according to the Global Alzheimer’s Platform Foundation. This data highlights the urgent need for change, especially considering genetic variations in drug responses across different races and ethnicities.

As we recognize the disparities affecting our community, we must familiarize ourselves with the signs of this disease. This knowledge can enable us to identify Alzheimer’s in our loved ones and even in ourselves.

The Stages and Symptoms The Alzheimer’s Association recognizes three stages of Alzheimer’s including:

• Early-stage Alzheimer’s (mild).
• Middle-stage Alzheimer’s (moderate).
• Late-stage Alzheimer’s (severe).

Common signs of early-stage Alzheimer’s are:

• Producing the right word or name.
•  Remembering names when introduced to new people.
• Having difficulty performing tasks in social or work settings.
• Forgetting material that was just read.
• Losing or misplacing a valuable object.
• Experiencing increased trouble with planning or organizing.

In this stage, people usually maintain their independence regarding their day-to-day lives, but they may experience memory lapses. Although the symptoms aren’t always apparent, close family and friends can sometimes identify the shift.

Middle-stage Alzheimer’s is usually the longest stage.

It can last for many years. During this time, dementia symptoms are more pronounced as damage to nerve cells in the brain can make it difficult for people to express themselves and perform their typical tasks independently.

In this stage, you may notice the following symptoms:

• Being forgetful of events or personal history.
• Feeling moody or withdrawn, especially in socially or mentally challenging situations.
• Having trouble recalling information about themselves, like their address or telephone number and the high school or college they attended.
•  Experiencing confusion about where they are or what day it is.
• Requiring help choosing proper clothing for the season or the occasion.
• Having trouble controlling their bladder and bowels.
• Experiencing changes in sleep patterns, such as sleeping during the day and becoming restless at night.
• Showing an increased tendency to wander and become lost.
• Demonstrating personality and behavioral changes, including suspiciousness and delusions or compulsive, repetitive behavior like handwringing or tissue shredding.

In the final stage of Alzheimer’s, the dementia symptoms are severe.

People lose their ability to respond to their environment, carry on a conversation, and, eventually, control movement. They may still say words or phrases, but initiating engagement in the late stage becomes difficult. As their memories and cognitive skills continue to worsen, significant changes can occur in their personalities.

Symptoms include:

• Need for around-the-clock assistance with daily personal care.
• Lose awareness of recent experiences and their surroundings.
• Experience changes in physical abilities, including walking, sitting, and swallowing.
• Have difficulty communicating.
• Become vulnerable to infections, especially pneumonia.

Navigating the Conversation of Alzheimer’s with a Loved One

If you suspect that your loved one is experiencing Alzheimer’s, take the initiative to foster open communication about the topic. Some people in the early stages of dementia can identify their memory lapses, and if approached gently, they may be relieved to talk about it. When talking with your loved one, use your knowledge of their personality and preferences to tailor your approach. Brace yourself for a range of emotions.

While some individuals are relieved to discuss their experiences, others may react with denial or anger. Try to emphasize your concern for the person and refrain from prematurely labeling their symptoms as Alzheimer’s. Instead, encourage them to explore this specific term with a medical professional.

If the individual you’re concerned about has a support system beyond you, consider reaching out to them. Ask if they have noticed any of the concerns you’ve observed. This can help you confirm your judgment and set the initial stages of a solid foundation of support as your loved one navigates this disease.

The post Alzheimer’s: Identifying The Signs & Supporting Your Loved Ones appeared first on Black Health Matters.

Obesity disproportionately affects our community as we have some of the highest rates of obesity or being overweight compared to other groups in the United States. The CDC states that Black adults in the United States have an obesity prevalence of 38 percent among 48 states and D.C. There are a multitude of reasons why obesity is heightened within the U.S., and the array of unhealthy food choices on every corner and highway surely doesn’t help.

Of course, the first step to progress is recognizing the issue and learning about the specifics, and hopefully, this can lead us down the path to finding personal ways to mend obesity within the nation. Below are the top twenty overweight and obese cities in the U.S. for 2024. Put together by WalletHub; this rundown used 19 key metrics across 100 of the most populated cities. Is your city ranked among these 20?

While this isn’t a personal attack on any of the cities mentioned, it is a call for awareness. We should strive to improve the health of our cities. Although there is no one-size-fits-all solution for combating obesity, being vocal about this issue can make a difference, whether amongst ourselves, our loved ones, or a broader community.

The post Most Overweight and Obese Cities in the U.S. 2024 appeared first on Black Health Matters.

The exercises, which include walking, jogging, dancing, planks, lunges, and squats, work directly on bones in the legs, hips, and lower spine to slow bone loss and offer the following benefits:

Muscle strength

These exercises help build and maintain muscle strength, which is essential for overall physical function and preventing injuries.

Balance and coordination

By challenging your body’s balance and coordination, weight-bearing exercises can improve your stability and reduce the risk of falls.

Cardiovascular health

Many weight-bearing exercises improve heart health, lower blood pressure, and reduce the risk of heart disease.

Bone health

Weight-bearing exercises can help strengthen bone density, reduce the risk of osteoporosis, and prevent bone loss as you age.

Remember that, as we get older, diminished bone density can lead to osteoporosis. The National Council on Aging finds that although Black women have a lower prevalence of osteoporosis overall, we experience worse outcomes after fractures caused by osteoporosis.

If we have lupus or sickle cell anemia, we are more likely to have a higher osteoporosis risk.

Ready to incorporate these exercises into your routine? Our fitness experts help you get into action:

The ultimate combo

DC-based certified personal trainer David Franklin reminds us that exercise is essential for strength, mobility, flexibility, and balance. Exercise cannot undo a bad diet. Too much exercise can increase one’s appetite and lead to overeating.

“When you lose weight, you lose muscle and fat. That is why you want to exercise while you are losing weight, Franklin explains

Remember that it is easy to put the fat back on. Muscle requires a lot more effort. Exercise and eat right for optimal health. Focus on your behavior, and the results will come”.

Mind over matter

It’s never too late to get up and get moving. And no, you don’t have to dive into a high-intensity workout, says celebrity fitness guru and lifestyle coach Kacy Duke. She adds, “I think it’s important to remember that weight-bearing exercises are not just about physical appearance, but about feeling empowered, resilient, and fully equipped to conquer life’s hurdles. So seize those weights, step into the gym, and reveal your strength – inside and out!”

Get moving

The experts agree that the best way to keep bones strong is to do both weight-bearing and muscle-strengthening exercises. Just as a muscle gets stronger the more you use it, a bone gets stronger and denser when you place demands on it. Two types of exercises can help you maintain or increase bone health: weight-bearing and resistance exercise. Combine walks with at least two 20-minute strength training sessions. (See below for how many squats and planks you need each week.)

Safety first.

Always consult your doctor before you start an exercise plan. Once they give you the OK, you can start with a walking program. Franklin adds, “I recommend consulting with a fitness professional if you are new to exercise and need guidance. Safety should be your primary goal. Beware of bodybuilder types, pushing extreme fitness and diet programs unless your goal is to compete as a bodybuilder”.

The gym doesn’t have to be a destination.

Gyms have equipment, group classes, pools, saunas, and personal trainers. Some people like gym environments, while others do not. There is nothing magical about a gym membership, Franklin, www.DLFfitness.com chuckles. His suggestions? Consider an online trainer, which you can find through word of mouth or watch videos on various platforms. Three for free: Nike Training Club on Netflix and Android and iOS apps; FITON-Free Fitness Workouts on Roku; and the National Institute of Aging’s 15-minute Workout for Older Adults on YouTube.

Challenge me.

New trends and techniques can always provide fresh challenges and benefits. Some recent developments in weight-bearing exercises include incorporating unstable surfaces like balance pads or exercise balls to engage more stabilizer muscles and integrating functional movements that mimic real-life activities for improved overall strength and mobility, says Duke, the owner of Kacy Duke Fitness Inc.,  and exploring different forms of resistance training such as using resistance bands, kettlebells, or suspension trainers for variety and versatility in workouts. It’s always a good idea to stay updated on the latest trends and techniques in weight-bearing exercise to keep your routine engaging and effective.

Make it fun.

Remember, exercise is a mood enhancer that helps soothe a racing mind. Duke, the OG of fitness trainers, says,” Embrace the challenge, conquer your doubts, and unleash the warrior within! Let’s lift, push through the sweat, and smash those goals with unwavering determination and heart!”

What are you waiting for?

Put your phone down, mute the television, and take ten minutes two to three times a week to run through this old-school set:

Squats.

Stand with your feet hip-width apart and hands on your hips. Bend your knees and lower yourself into a sitting position; at the same time, raise your arms straight out in front of you, level with your shoulders. Slowly straighten your legs to a standing position. Work your way up to three sets of eight to 10 reps per set.

Here, Britnee Babe demonstrates how to do a proper squat:

Then, when you are ready to level up to a challenge, check out Kacy Duke’s Squat Trifecta.

Plank.

Lie face down on the mat. Push up so you’re balanced on your elbows, forearms, and toes. Keep your back and body straight, your hips level, and slightly tuck in your tailbone. Breathe. Start by holding the position for 10 seconds and work up to 60 seconds.

@Fit and Fabulous with Maddy Owens demonstrates a few ways to do a plank.

The Prone Plank

The Full Body Plank

Supported by an educational grant from Novo Nordisk Inc. 

The post Move It and Improve It! Why Weight Bearing Exercises Are Essential to Your Weight Loss Plan appeared first on Black Health Matters.

Snowden, age 45, recalls that starting in seventh grade, she began this cycle of losing weight and gaining it back and losing it and gaining more back. “Then, one day, I looked up and was about 350 pounds. I am a tall woman, 5’10”, so my weight stretches out a bit,” she says. “So, when I was getting bigger and bigger, I didn’t notice until it was fast forward, a little too late.”

It Started with a List

The former deputy mayor was unhappy, but she could not figure out why. Because she is a Type A personality, she first looked for answers in books, reading every self-help advice tome on happiness she could lay her hands on. But something within told her to write down why she was unhappy.

“There were four things that made me unhappy. I hated my job, and I wanted to quit. I was working for a major corporation, and it was not feeding my spirit. I wanted to change neighborhoods. I was living in the ‘hood and raising my two boys, and it was getting dangerous, and I didn’t want to raise them there. I wanted to lose weight. And I wanted to start therapy.”

How Therapy Helped

Snowden quit her job, launched her government affairs firm, Blueprint Strategy Group, and purchased and renovated a home. She began preparing for weight loss surgery for the fourth time. This time, Snowden decided to go through the gastric sleeve procedure in 2020. And the mother of two found a therapist. “The hardest thing to do was therapy,” she says.

“Yes, surgery jump-started it, then therapy helped. Because I got to process that I am an emotional eater. When I’m happy, I eat; when I’m sad, I eat; when I want to celebrate with people, I eat. The first thing I do when I hear somebody dies is buy a chicken and take it over there; that is how we love, right?” she explains. “What therapy also did was interrupt a harmful pattern and allow me to get a clear one on normal eating habits.” Before getting a handle on her problems with food, Snowden had been losing and gaining the same 25 to 40 pounds.

Snowden also wants to debunk any misconceptions that weight loss surgery is easy. “Getting the surgery is a process. It is a six-month commitment that some people might consider severe,” she explains. “But like anything else, it is a tool. I’m committed to doing what I am supposed to do: eating a protein-heavy diet with vegetables, trying to keep sugar to a minimum, and working out regularly.

Committing to A Healthier Lifestyle

In 2017, Snowden purchased a Peloton bike as a present after having her baby boy to ensure she got her body together.

“I was an athlete in high school and college and had let that part go substantially. But in my early 20s, I had taken on spinning but did not have time to do it anymore,” Snowden says. “I’ve got a grown-up job with a lot of responsibility. So, when I bought my Peloton, I was the city’s deputy mayor. I thought if this works. It will allow me to fit fitness into my life in a way I could not before.”

“That little seat hurt my first time on the bike at 340 pounds, and I had many reasons not to do it. But you know what? It got better,” she says. “Historically, I would have beaten myself up for not being successful. This is the other thing, particularly since Black women are used to succeeding at many things. And sometimes, the thing that we are the least successful at is taking care of ourselves.”

That same year, when Snowden wanted advice on preserving her freshly blown hair, she asked for advice on the official Peloton FB page, which had over 100,000 members. She got lots of advice she couldn’t use, but a few Black women sent her direct messages with the information that could help her.

Snowden saw the page as a microcosm of the world and thought Black women could benefit from a safe space. “I said, there is something here. I emailed people I knew had Pelotons who had contacted me about my hair post and said, ‘Hey, if I start this thing, would you jump in?’ So, I started Black Girl Magic, The Peloton Edition, with five or six people,” she said. “By the time George Floyd died in 2020, we were at 6,000 members. The reason I remember that is I invited the CEO to have a Fireside chat with me in the Facebook Group. The company rolled out their equity commitments to us live.” she recalled.”Now we are at 35,000 Black women globally.”

“I would not have been able to get a full handle on this without the full combination of the surgery and the commitment to working out.” Snowden has shed 165 pounds and has kept it off for three years.

A big part of her success is the BGM community, which has grown beyond Facebook to discussions on Clubhouse, class takeovers at Peloton studios, and in-person events. Because there are so many members, there are strict rules of engagement, like no solicitation, and all posts need to be approved by one of the three moderators. Still, Snowden is in the group interacting multiple times daily. She recently hosted a book event discussion on perimenopause, menopause, and weight loss at her home. And the group support of one another goes beyond fitness.

Resetting Her Life

Reflecting on her journey over the last four years, Snowden can’t help but think about how it coincides with the COVID-19 pandemic. “Lots of terrible things happened during the pandemic for many people. But one of the best things that happened is that many of us reset our lives,” she says. “I had an opportunity to focus on health and fitness. I could not have been as successful with my fitness and wellness journey any other time in my life.”

This story is made possible by an educational grant from Novo Nordisk.

The post Courtney Snowden’s Winning Weight Loss Formula appeared first on Black Health Matters.

Testicular cancer can occur at any age, but it is most common among males aged 20 to 44 years old, according to the Centers for Disease Control and Prevention (CDC). The American Cancer Society estimates that in 2024, there will be 9,760 new cases of testicular cancer diagnoses and about 500 deaths from testicular cancer. Although testicular cancer is not common, 1 in every 250 males will develop it at some point in their lifetime.

What is Testicular Cancer?

According to the Mayo Clinic, testicular cancer is a growth of cells that start in the testicles. The testicles, which are also called testes, are in the scrotum. The scrotum is a loose bag of skin underneath the penis. The testicles are responsible for making sperm and the hormone testosterone.

What Are the Symptoms?

The first sign of testicular cancer is often a bump or lump on a testicle. The Mayo Clinic has formulated a list of signs and symptoms of testicular cancer, which includes:

• A lump or swelling in either testicle.
• A feeling of heaviness in the scrotum.
• A dull ache in the lower belly or groin.
• Sudden swelling in the scrotum.
• Pain or discomfort in a testicle or the scrotum.
• Enlargement or tenderness of the breast tissue.
• Back pain.

If these symptoms last longer than two weeks, please see your healthcare provider; an early diagnosis is always best.

What Does Your Diagnosis Mean?

The Black community is used to taking the lead in many cancers, but in the case of testicular cancer, white people are at greater risk due to the genetic factors involved in the disease. According to Healthline, white people tend to be four to five times more likely to have testicular cancer than Black or Asian people.

If you are diagnosed with testicular cancer, it is important to know what type of testicular cancer you have. John Hopkins Medicine gave insight into the different types of testicular cancer, including:

* Seminomas.

* Nonseminomatous Germ Cell Tumors (NSGCT).

* Stromal Tumors.

Seminomas are tumors originating in male germ cells. They tend to grow and spread slowly, but some seminomas can grow rapidly. 95% of seminomas are classic, and then there are spermatocytic seminomas, which tend to occur in older men. Seminomas can secrete human chorionic gonadotropin (HCG). Four main types of NSGCTs can appear alone but often appear mixed, meaning there is more than one type of NSGCT. This includes:

• Embryonal carcinoma is present in about 40 percent of tumors and is among the most rapidly growing and potentially aggressive tumor types. Embryonal carcinoma can secrete HCG or alpha-fetoprotein (AFP).
• Yolk sac carcinoma is the most common type of tumor in children; it responds well to chemotherapy in children and adults. Yolk sac tumors almost always secrete AFP.
• Choriocarcinoma is a very rare and very aggressive form of testis cancer. It can secrete HCG.
• Teratoma most often appears as a mixed NSGCT. They usually grow locally but can appear in retroperitoneal lymph nodes. Teratoma is chemotherapy- and radiation-resistant and best treated with surgical removal.

Then, there are stromal tumors, which develop from the supportive tissues around the germ cells in the testicle. These tumors are rare as they make up less than 5% of testis cancers, and they have an excellent prognosis if treated surgically. There are two types of stromal tumors including:

• Leydig cell tumors impact the Leydig cells responsible for making testosterone.
• Sertoli cell tumors impact Sertoli cells, which support and nourish the developing sperm.

Tests and Detection of Testicular Cancer

Testicular cancer is usually found because of symptoms that a person is having but it can also be found when tests are done for another condition, according to the American Cancer Society. When going to see a doctor regarding the concern of testicular cancer, the doctor may give you an exam to detect any swelling, lumps, or tenderness. The doctor may also examine your abdomen, lymph nodes, and other parts of your body to look for signs of cancer spread. To better assess your condition, you may also partake in the following procedures:

• Ultrasound of the testicles.
• Blood tests for tumor markers and the secretion of HCG and AFP can be found in the blood; this will signal your doctors to look further into the possibility of cancer.
• Biopsy is a rare method for testicular cancer.
• Scans and imaging tests, including x-rays, CT scans, MRI scans, and PET scans.

Treatment Options

Testicular cancer treatment often involves surgery and chemotherapy, according to the Mayo Clinic. Still, your treatment plan is unique to your specific needs, and only your healthcare team can provide you with the best plan.

Some common forms of treatment include:

* Surgery.

* Chemotherapy.

* Radiation therapy.

* Immunotherapy.

Surgery can be conducted to remove the testicle or nearby lymph nodes. Chemotherapy treatment uses strong medicines, either implemented orally or through intravenous injection (IV), to kill cancer cells; this can aid in treating cancer spread as well. Radiation therapy includes the use of special high-energy X-rays that can kill cancer cells and or alter their ability to multiply. Then, there is immunotherapy, a cancer treatment method that uses drugs and vaccines to aid white blood cells in identifying and attacking the cancerous cells. This is sometimes used in advanced testicular cancer cases.

It is essential for you to ask your medical team any questions that you have regarding treatment, as every approach has its risks, advantages, and disadvantages. Also, some doctors may suggest a mixture of treatments; be prepared for this, as your treatment plan will be personalized just for you.

Although there is cause for concern regarding testicular cancer, there is also room for optimism as studies have shown that the average five-year survival rate for Black males with testicular cancer is 88.8%, as reported by VeryWellHealth. So, stay informed, and good health is within reach with the right medical care.

Risk Factors

Genetics are heavily to blame for testicular cancer diagnoses as having a parent with the disease increases your risk by nearly 400%, and having a sibling with the disease increases your risk by more than 800%, according to VeryWellHealth.

There are a few risk factors beyond family genetics that can increase your risk for testicular cancer. These include:

•  Being between the ages of 20 and 34.
• Having an undescended testicle (known as cryptorchidism).
• Having had testicular cancer before.
• Having human immunodeficiency virus (HIV).

Your Medical Team

The type of medical team you have is based on the treatment options you need and the severity of your condition. The American Cancer Society reports that different types of doctors may be on your treatment team, including:

• Urologists: surgeons who specialize in treating diseases of the urinary system.
• Radiation oncologists: doctors who treat cancer by using radiation therapy.
• Medical oncologists: doctors who treat cancer with medicines like chemotherapy.

Although there is cause for concern regarding testicular cancer, there is also room for optimism as studies have shown that the average five-year survival rate for Black males with testicular cancer is 88.8%, as reported by VeryWellHealth. So, stay informed, and good health is within reach with the right medical care.

The post Understanding Testicular Cancer: From Diagnosis to Treatment appeared first on Black Health Matters.

The Mayo Clinic states that melanoma typically starts on the skin when exposed to the sun. The common areas where melanoma may be found include the following:

• Arms.
• Back.
• Face.
•  Legs.

In some cases, melanoma can develop in the eyes, and although it is rare, it can form inside the body and affect areas such as the nose or throat.

MedicalNewsToday reports that the most common form of melanoma in our community is acral lentiginous melanoma, which has a prevalence of 35-60%. This type of melanoma develops on the soles of the feet and under the nails.

It tends to occur in less visible areas, combined with its ability to blend in with our complexions, exacerbates the rate of late diagnoses and introduces more risk to our community.

What Causes Melanoma?

The exact cause of all melanomas is not determined, although many cases can be linked to ultraviolet (UV) radiation exposure. One of the most common sources of UV radiation is natural sunlight. As we enjoy outdoor activities, we must also prioritize safeguarding our skin with sunscreen and taking precautions against sun exposure.

Healthline reports that DNA damage within melanocytes can trigger the uncontrolled growth of new skin cells. As these cells build up, they can eventually develop into a tumor.

So much remains unsaid regarding the exact causes of melanomas and DNA damage. Many specialists attribute them to genetic and environmental factors.

How to Identify Melanoma on Your Skin

Recognizing the signs of melanoma can be challenging, especially on darker skin. Melanomas may be less noticeable due to their ability to camouflage themselves. These skin cancers can start as new growths or manifest as existing moles or freckles change. Understanding the Centers for Disease Control and Prevention’s (CDC) ABCDE guidelines for melanoma detection can help you achieve an early diagnosis. Be mindful of any changes in your skin, as this is the most common sign of skin cancer. Whether it is a new growth, a sore that won’t heal, or a change in a mole, don’t hesitate to bring it up to your doctor.

For melanoma specifically, try to remember this list of warning signs:

A. Asymmetrical: Does the mole or spot have an irregular shape with two parts that look very different?

B. Border: Is the border irregular or jagged?

C. Color: Is the color uneven?

D. Diameter: Is the mole or spot more significant than the size of a pea?

E. Evolving: Has the mole or spot changed during the past few weeks or months?

If you answered “yes” to any of the questions above, consider visiting your healthcare provider to be safe.

The Stages & Diagnosis

Healthline points out that melanomas consist of the following stages:

• Stage 0 (Melanoma in situ): The melanoma is only in the epidermis, the top layer of skin.
• Stage I: Low-risk primary melanoma with no evidence of spread. This stage is curable with surgery.
• Stage II: Features indicate a higher risk of recurrence, but there is no evidence that cancer has spread to other organs.
• Stage III: The melanoma has spread to nearby lymph nodes or nearby skin.
•  Stage IV: The melanoma has spread to more distant lymph nodes or skin or has spread to internal organs.

The first step toward diagnosing melanoma is a physical examination of the skin. Your doctor will carefully check for markings or moles on your skin that may suggest the presence of cancerous cells. In addition to examining the common areas associated with melanoma, they may also assess other regions such as the:

• Palms.
• Scalp.
• Feet, including your soles and between toes.
• Genitals.
• Buttocks.
• Eyes.
• Mouth.

To reach a diagnosis, your doctor may also use several tests, such as the following:

Computed tomography (CT): CT scans use potent X-rays to get detailed images of where cancer may have spread.

Magnetic resonance imaging (MRI): MRIs use magnets, radio waves, and an injected substance called gadolinium to get highly detailed, cross-sectional images of your body to find where cancerous cells have spread.

Positron emission tomography (PET): PET Scans involve injecting radioactive glucose that is tracked by a scanner. This helps doctors detect areas of high chemical activity in your body where diseased or cancerous tissue might be present. When doctors suspect that a mole might be cancerous, they may recommend a biopsy. During this procedure, a skin sample is removed and sent to a laboratory for testing to detect the presence of melanoma cells. If the doctor believes that melanoma has spread, they might suggest a lymph node biopsy. This involves taking a tissue sample from nearby lymph nodes, often with an injection of dye near the tumor site. These procedures can be vital for diagnosing and staging melanoma.

Treatment

If you have been diagnosed with melanoma, you will most likely be working with dermatologists as well as surgical and medical oncologists. Your treatment depends on the stage of your cancer and your unique health needs. It can be helpful to know the treatment options out there. According to the Skin Cancer Foundation, some of the most common forms of treatment include:

• The surgical removal of the melanoma.
• Immunotherapy: it boosts the body’s ability to fight melanoma and other cancers by using synthetic versions of natural immune system proteins or by enabling the release of cells that attack tumors.
• Targeted therapy: uses drugs and other agents to attack melanoma by inhibiting the action of defective genes and molecules.
• Chemotherapy: a systemic approach to stopping tumor growth using certain medicines that kill or stop cancer cells from multiplying.
• Radiation: a localized treatment that directs high-energy X-ray beams to penetrate and destroy the tumors or keep them from growing.

Ask Questions

Although Black Americans don’t lead in melanoma diagnoses, we have a 26% higher risk of death from melanoma than white Americans, as reported by Northwell Health. Given the rarity of melanoma in our community, both healthcare professionals and the broader medical community may overlook the possibility of skin cancer or lack experience in identifying melanoma on our skin. Therefore, we need to monitor our skin and proactively engage with our doctors by asking questions such as:

• How far has the melanoma spread within or beneath the skin?
• Has the melanoma spread to other parts of my body?
• What kinds of tests will I need before we can decide on treatment?
• Will I need to see any other types of doctors?
• What type or subtype of melanoma do I have?
• If I’m concerned about the costs and insurance coverage for my diagnosis and treatment, who can help me?

The best type of diagnosis is an early one. We highly recommend prioritizing regular skin checks, communicating with your doctors, and practicing sun safety.

The post What is Melanoma? (Yes, We Can Get Skin Cancer Too) appeared first on Black Health Matters.

According to The Cleveland Clinic, the Gleason Score is a grading system for prostate cancer. Healthcare providers use Gleason score results to set up treatment plans. Gleason scores range from 6 (low-grade cancer) to 10 (high-grade cancer). Low-grade prostate cancer grows more slowly than high-grade cancer and is less likely to spread (metastasize).

Mourning’s doctor informed him that his Gleason Score was an 8. The next course of action was a PET scan to see whether his cancer had spread. He learned his cancer was localized to the prostate capsule and had not spread.

Mourning, who has been director of player programs and development of the Miami Heat since he retired in 2008, elected to have his prostate removed in March. He is now cancer-free.

Mourning had been diligent about screenings because his father and grandfather had prostate cancer, according to Yahoo Sports. Men with a family history of prostate cancer, African American men, and Caribbean men of African descent are at higher risk of being diagnosed with prostate cancer, according to the American Cancer Society.

Mourning is urging men to get tested. “Mourning told ESPN. “The only way to find out is to get their blood tested and their PSA checked. There are 3.3 million men living in the U.S. with prostate cancer, and many don’t even know it. I was one of those guys.”

We have some fantastic resources for you to learn more about prostate cancer. Check them out:

What to Do After a Prostate Cancer Diagnosis

50 Questions To Ask Your Doctor if Your Family Has a History of Prostate Cancer

The post Alonzo Mourning Had Prostate Cancer, Now He Is Cancer-Free! appeared first on Black Health Matters.

According to The Cleveland Clinic, Class III Obesity used to be referred to as morbid obesity, “A complex chronic disease in which a person has a body mass index (BMI) of 40 or higher or a BMI of 35 or higher and is experiencing obesity-related health conditions.” Studies have reported that extreme obesity can decrease life expectancy by up to 14 years. Mandisa had been last known alive three weeks before her death, according to reports.

The singer also saw her share of triumphs and tears. Right after winning two Grammy awards for Overcomers, her best friend and backup singer, Kisha Mitchell, died of breast cancer while pregnant. Mandisa became depressed, gained 200 pounds, and became a recluse for a time, she told People. Then, she fought her way out of the darkness.

But although she is no longer on this physical plane, Mandisa has left us with six albums that give us the beauty of her voice that will live on.

The post Mandisa’s Cause of Death Has Been Revealed appeared first on Black Health Matters.

“I am confident that my doctors have developed the best possible plan to target my specific disease. The road ahead will not be easy, but I stand in faith that God will strengthen me,” she wrote.

“To the constituents of the 18th Congressional District: Serving as your representative in Congress for 30 years is one of my greatest honors. Your hopes and aspirations inspire my efforts on behalf of our community every day. As I pursue my treatments, it is likely that I will be occasionally absent from Congress, but rest assured my office will continue to deliver the vital constituent services that you deserve and expect,” she continued.

We know you join us in sending prayers of strength and healing to Representative Jackson Lee as she, her family, doctors, loved ones, and the community support her through this journey.

About Pancreatic Cancer

It’s not clear what causes pancreatic cancer. Doctors have found some factors that might raise the risk of this type of cancer. These include smoking and having a family history of pancreatic cancer.

According to the Mayo Clinic, there may not be symptoms of pancreatic cancer until it is in its advanced stages. Those may include:

• Belly pain that spreads to the sides or back.
• Loss of appetite.
• Weight loss.
• Yellowing of the skin and the whites of the eyes, called jaundice.
• Light-colored or floating stools.
• Dark-colored urine.
• Itching.
• New diagnosis of diabetes or diabetes that’s getting harder to control.
• Pain and swelling in an arm or leg, which might be caused by a blood clot.
• Tiredness or weakness.

According to the Pancreatic Action Network, more than 64,000 will be diagnosed with pancreatic cancer this year.

The post Representative Sheila Jackson Lee Announces She Has Pancreatic Cancer appeared first on Black Health Matters.

For her historic win, The Athletic says, the award-winning gymnast received an engraved silver belt buckle. That’s just a token because she’s earned a spot at the Olympic trials later this summer. Paris would be her third Olympic games.

Consider that Gabby Douglas won her first gold medal at 16. And until this week, had her eye on Paris as well. Dominique Dawes was a member of the US Olympic team from 1992-1996, winning four medals.

Simone Biles is now 27 years old, and she continues to defy the odds. But she has also had her share of challenges. In 2021, when she withdrew from the Tokyo Olympics with the twisties, “an athlete’s terms for the sudden loss of air awareness during a routine.” Many thought her career was over. But Biles persevered and made her way back. But has kept her plans closely guarded.

When she stepped out of the Tokyo Olympics, her friend, Jordan Chiles, now 23, stepped up. Afterward, Chiles joined the UCLA gymnastics team, and she and Biles have been training hard for Paris together, according to Fox News. Chiles finished fifth in the nationals. But the next generation of Black gymnasts is already here, and she came in second at nationals. Her name is Skye Blakely from Frisco, Texas.

The post Simone Biles Makes History With Her 9th Win of the US Gymnastics Championships appeared first on Black Health Matters.

In our pursuit of more clarity, we turned to a trusted expert in the field, Dr. Eboni January, a board-certified obstetric gynecologist deeply committed to women’s health and education.

BHM: Why are Black women disproportionately affected by late diagnoses of uterine and endometrial cancer, and what can be done to address this issue?

Dr. January: Black women are disproportionately affected by late diagnoses of uterine and endometrial cancer due to disparities in healthcare access, socioeconomic status, and implicit biases in the medical system. Studies have shown that Black women are less likely to undergo regular gynecological exams and may experience delays in diagnostic testing and treatment initiation. To address this issue, we need to increase awareness and education about uterine cancer within Black communities, improve access to healthcare, and train healthcare providers in cultural competency to reduce these disparities.

Black women may face longer wait times for appointments, fewer referrals to specialists, and inadequate follow-up care.

Addressing these disparities requires systemic changes, such as expanding healthcare access, improving provider education on implicit biases, and fostering a more inclusive and culturally sensitive healthcare environment.

BHM: What are the most common symptoms of uterine and endometrial cancer that Black women should be aware of, and why might healthcare providers overlook these symptoms?

Dr. January: The most common symptoms of uterine and endometrial cancer include abnormal vaginal bleeding, pelvic pain, and unexplained weight loss. Healthcare providers can sometimes overlook these symptoms due to implicit biases and a tendency to attribute them to benign conditions, especially in Black women. Both patients and providers need to recognize the significance of these symptoms and advocate for thorough evaluations to help in early detection.

BHM: How can tools be improved to ensure better detection rates?

Dr. January: Currently, there is no specific screening tool for endometrial cancer, but tools like transvaginal ultrasound and endometrial biopsy are used for diagnosis when symptoms such as vaginal bleeding and pelvic pain are present. To improve detection rates, we need to develop more sensitive diagnostic methods, incorporate genetic and molecular markers, and ensure regular follow-ups and patient education occur. Research into tailored screening protocols that consider racial and genetic differences can also be beneficial.

BHM: How important is the patient-doctor communication in early detection of uterine/endometrial cancer, and what steps can be taken to improve this for Black women?

Dr. January: Effective patient-doctor communication is crucial for early uterine and endometrial cancer detection. As healthcare providers, we must ensure patients feel comfortable coming to us. We should understand that although patients are adults, we are the experts, and consideration of the social determinants of health is crucial. Improving this includes training healthcare providers in cultural competency, encouraging open and respectful dialogue, and ensuring patients feel heard and understood. Providing patient education materials that are culturally relevant and accessible can also enhance communication and early detection efforts.

BHM: Considering that obesity and diabetes are known risk factors for uterine cancer, how can awareness and management of this risk be better communicated and managed in our community?

Dr. January: Obesity and diabetes are significant risk factors for endometrial cancer, as they can lead to hormonal imbalances and chronic inflammation, which may promote cancer development. Black women have higher rates of obesity and diabetes, contributing to an increased incidence of endometrial cancer. Addressing these risk factors through lifestyle interventions, preventive care, and targeted education is essential for reducing cancer risk.

2015 I developed a text weight loss coaching program in response to my patients. Working with the underserved community, I found uterine cancer in women under the age of 45 who had excess weight. Due to the lack of a screening tool like we have for cervical cancer, I decided to help prevent it through weight loss and preventive health measures. Awareness and management of obesity as a risk factor for uterine cancer can be improved through targeted community outreach programs, culturally sensitive health education, and accessible weight management resources. Healthcare providers should engage with community leaders and organizations to disseminate information and support lifestyle interventions that promote healthy eating and physical activity.

BHM: What are the main factors contributing to the higher mortality rates of uterine and endometrial cancer among Black women compared to other demographics?

Dr. January: Higher mortality rates among Black women are attributed to factors such as later stage at diagnosis, less access to high-quality care, and potential biological differences in tumor behavior. Socioeconomic disparities and implicit biases in treatment recommendations also play significant roles. Improving access to timely and high-quality care, addressing socioeconomic barriers, and conducting research on tumor biology specific to Black women can help reduce these mortality rates.

BHM: Why is it important for Black women to participate in clinical trials and genetic research related to uterine cancer?

Dr. January: Participation in clinical trials and genetic research is vital to ensure that findings apply to diverse populations. It helps in understanding how uterine cancer affects Black women specifically and can lead to the development of tailored treatments and interventions. Encouraging participation requires researchers like myself to build trust, address historical mistrust, and ensure that trials are accessible and inclusive.

The battle against uterine and endometrial cancer in our community is complex; we face unique challenges when it comes to diagnoses and the specific types of cancer we encounter. Let’s continue to raise awareness about what we need to decrease our mortality rates. Every step we take towards more awareness, prevention, and early detection holds the potential to save lives. For all those reasons, we must keep this conversation going and push it beyond our recognition into active engagement to ensure change is documented.

The post Endometrial & Uterine Cancer: Combating Black Women’s Rising Rates appeared first on Black Health Matters.

According to The Washington Post, “Mrs. Robinson’s role was helping granddaughters Malia and Sasha Obama adjust to life in the Washington D.C. bubble and maintain normalcy. She rode to school with the girls in Secret Service SUVs and tucked them in at night when their parents’ schedules kept them from home.”

Mrs. Robinson only appeared with the Obamas on holidays and for some cultural events, especially when the granddaughters were present. She didn’t grant interviews for the most part. She also didn’t speak much publicly, but that was by choice.

She was described by her children as a woman who spoke her mind but cherished her privacy.

Born Marion Lois Shields in Chicago on July 30, 1937. She was one of seven siblings. She attended two years of college but did not finish her degree due to financial issues. She married Fraser Robinson in her early 20s and became a stay-at-home mom. But it is one of the reasons she stressed education to Michelle and her brother Craig Robinson.

Mrs. Robinson picked up running in her 50s and won gold medals in the 50-meter and 100-meter races and the 1997 Illinois Senior Olympics.

She was beloved because she brought warmth, relatability, and the occasional wordless expression that spoke volumes to the national and international stage with a calm assurance of belonging. We will forever be grateful for her presence.

Our condolences to her family, who are especially heartbroken by her loss. President Barack Obama has shared this beautiful tribute to Mrs. Robinson from the family that gives a snapshot of the woman they loved.

The post Marion Robinson, Michelle Obama’s Mother Has Passed Away appeared first on Black Health Matters.

The Centers for Disease Control reports that residents in the area had a higher-than-average incidence of obesity, diabetes, and heart disease. But at the same time, a study by the Atlanta Regional Commission found that some residents reported limited access to healthy food options while others couldn’t afford them. It’s the same catch-22 we see in every urban neighborhood. Unhealthy food is cheaper and at our fingertips. But this program seeks to combat those norms.

The Community Market is spearheaded with a commitment of $1 million from the City of Atlanta’s Economic Opportunity Fund-Food Access. It is anchored by a Goodr Grocery store, one of Goodr’s Core Relief Hunger Solutions, which invites 300 local families in District 10 to shop each month at no cost. However, the goal is to give them access to fresh produce, meat, and shelf-stable goods and the ability to shop with dignity. District 10 City Council member Andrea Boone and other leaders in Fulton County will work together to identify families. As the program gets its footing, Goodr is optimistic that it can increase the number of families it can accommodate by year two.

But the project’s genius is that they didn’t stop at the grocery store alone.

“There are a lot of Black people in our community that need access to health resources and education. We are grateful to have partners excited to work with us and provide better resources to our community,” Jasmine Crowe-Houston, Goodr’s Founder and CEO, says. “Goodr has leveraged existing partnerships with organizations such as Grady Hospital, the American Heart Association, and Eat Urban Fresh. These partnerships will provide monthly resources such as healthcare screenings and healthy meal preparation.”

However, the holistic approach to the project gives us even more hope for its success. Goodr goes beyond providing the neighborhood access to healthy food and teaching folks how to prepare meals, offering preventative screenings and one of our favorite parts, a wellness room. “Goodr has also included a “wellness room” that allows a safe space for people to meditate or decompress,” Crowe-Houston explains. “Our goal is to normalize taking care of not only your physical health but also your mental health.”

The post Goodr’s Community Market Is An Investment in Atlanta’s Health and Wellness appeared first on Black Health Matters.

Dr. Wade, a medical sociologist, and  Willie L. Williams, DrPH, an assistant professor in the School of Allied Health Sciences at Florida A&M University (FAMU), are first planting seeds in health sciences. Their overall goal is exposure to career pathways in health professions.

“Most recently, I’ve started to focus on our minority students and their transition from college into the professional field,” Dr. Williams explains. “Specifically to help fill in those things that have impacted them from totally making that transition from perceptions to just readiness overall.” At FAMU, that means exposing students to majors like health sciences.

“They can take so many different avenues; they can come from mentorship, faculty, and staff. That comes from ensuring they engage in internship and shadowing opportunities, and even bringing professionals to the campus and the classroom,” Dr Williams points out. Williams gave examples of physician assistants and physical therapists coming in to explain their jobs and how they got them.

For Dr. Wade, the benefit of a Health Science undergraduate major is two-fold. “Degrees like health science are a great opportunity for students to explore. Because it’s not a specific area, many folks have no idea who they are at 18. And we pressure folks to pick a major at when they don’t know anything. But with health science, you get a little taste of all sorts of things,” she explains. “We use an interprofessional approach, where students take one class in every health science area. So that’s a communication disorder, exercise science, social work, nutrition; they take biology and physiology to get a taste of everything. But you also have a general education that allows you to apply to medical school.”

Even then, Dr. Wade believes that they can move the bar beyond being a physician if they so choose. “I’ve just been researching the prevalence of black doctors. And we have a real presence in OB/GYN and Family Medicine. But we don’t have a presence in so many other areas,” she says. “Surgery specialties include ear, nose, and throat, where no black women are even professors in America. So, I think there’s so much more room for growth.”

Dr. Williams points out where FAMU has advantages. “When you have professors in tune with what minority students need, they know they need that exposure. And so when we have classes, like health professions, or personal, professional development, where we can be strategic but innovative with how we make them research different avenues, and help them start thinking and planting seeds, or what do you want to go, let’s see how we can connect you with the right mentors, to help you navigate from health science into the medical field, and tell you which ways are better for you,” he says. “One of the other added components is that we start instilling in our students early the impact and the need for them in the health field, the difference that their presence makes amongst the communities that look like them, how much the communication between patient and provider will improve. Because it’s coming from you, how much trust will now be implemented in the system?  Everybody’s waiting on you, professionals and patients, to take your place and help move the needle forward?”

Whenever something about disparity or inequality arises in one of  Dr Wade’s classes, I say, “I’m so glad you all are going to be the next providers because you all won’t be like that, right? And they’re like, Yeah, because again, we weave it into every topic. So there’s this constant reminder that we need folks who believe in quality care,” she concludes.

The post Dr. Jeannette Wade and Dr. Willie L. Williams Are On a Mission Is To Recruit More Black Health Professionals appeared first on Black Health Matters.

Christian Diggs opened up to us about her diagnosis, treatment, and learning to live, learn, and thrive beyond that.

“My first episode occurred on a flight. That day, my life completely changed. Everything in my world suddenly felt disconnected,” she says. “I felt out of control; my mind was not mine.”

“At first, it was really scary and shocking, but after getting a diagnosis. I felt a sense of relief.” Since she comes from a family of academics, she immediately went into research mode to discover everything she could about the condition.

The adjustment took some time.

“I felt like a passenger in my own body,” she says. “I had to constantly remind myself that that phase of my life was over and that I must focus on learning how to live and succeed in this next phase.”

However, since schizophrenia is so misunderstood, Christian experienced many mixed emotions early on. “When I was first diagnosed, I experienced a lot of shame and embarrassment about what I was going through. I felt that I had let my family down,” she explains. “I didn’t fully realize until years later, when my symptoms had lessened, how integral and solid my family’s support had been. Honestly, I would not have made it to where I am today if it weren’t for my family.”

Through her schizophrenia journey, Christian has learned a lot about herself:

I’ve learned that I can change and adapt to tough and seemingly insurmountable situations.

I am capable of more than just surviving my diagnosis; I can live again.

I thought I had lost everything, but with patience and determination, I have slowly gotten back out there and learned to reconnect with people.

I learned to trust that I know what I need to be okay now and ask for help if unsure. When living with symptoms of schizophrenia, it is crucial to have a care team to help you find tools and coping mechanisms that work and make sense for you.

It is essential to stay connected to friends and family and to use outside resources, including those from the advocacy groups featured on the Live Your PosSCZible website. 

I seek joy in my work as a Carpenter!

Christian is now in her 4th year as a Carpenter Apprentice. “Every day, I go to work feeling so much gratitude and awe that I’ve made it to this phase of my life!” Hot yoga is essential to her, too. She started the classes as a way to develop mental discipline. “At first, being in a hot room with so many people was extremely difficult, and I would have to leave the class,” she says. “With time, I could stay longer and longer, and now taking a class is no sweat…actually, a lot of sweat is involved. I also find happiness in dancing and cycling, and I’m learning to roller skate. When I was first diagnosed, I didn’t think that….. living your PosSCZible could become a reality.”

________________________________________________________________________

Since being diagnosed with schizophrenia at 21, Tyson McGuire has discovered that he doesn’t give up easily. “Even though dealing with schizophrenia is a challenge, I try my best not to make sure I don’t spiral down,” he says. “I try to be happy and smile a lot.”

Tyson has a sound support system that includes his mother, sister, and friends, who keep him grounded in reality. They make sure that he’s okay and that he doesn’t isolate himself. “I have had some friends who didn’t understand schizophrenia and how it affects people,” he says. “Some people have bad stereotypes about it. I had one friend whose girlfriend didn’t want me to come over to their house because of my diagnosis.”

“Music also helps me a lot. I play piano and compose my own music, which I started before my diagnosis and continue today,” Tyson says.

If I had to use one word to describe myself today, it would be “perseverance.” Although some of my goals don’t look the same as before my diagnosis, I am finding new ways to Live my posSCZible. I was recently accepted into Ohio State University (OSU), where I’ll continue my physics degree. And I continue to develop skills – like music and art – that I started when I was younger and continue to enjoy today.

The post Taye Diggs and His Sister Christian Want to Change the Conversation Around Schizophrenia appeared first on Black Health Matters.

Last year, the American Medical Association addressed the prickly past of the BMI’s ascent from the gold standard in evaluating body composition, acknowledging it as an imperfect clinical measure that shouldn’t be used as the lone assessment tool. “The AMA recognizes issues with using BMI as a measurement due to its historical harm, its use for racist exclusion, and because BMI is based primarily on data collected from previous generations of non-Hispanic white populations,” they declared.

However, many physicians still use BMI as a metric in their charting. The BMI not only fails to maintain predictability when it is employed on an individual level, but it also has historical issues baked into its conception. It was not mindfully designed to consider diversity.

Acknowledging that BMI measures height and weight but does not evaluate fat distribution in a person’s body is helpful. Someone with an especially muscular frame could be miscategorized due to the failure of BMI to account for weight that does not fit its narrow limitations. Yale Medicine confirmed that “a person with lots of muscle and minimal body fat can have the same BMI as a person with obesity who has much less muscle.”

Dr. Scott-Winful noted theoretically that BMI may be a good place to begin a diagnosis. They are not comprehensive labels that require no explanation. “These broad categories of underweight, healthy weight, overweight can help serve as a starting point to be able to stratify if a patient potentially has a problem,” the physician certified in gastroenterology and obesity medicine explained.

The AMA recommended that physicians combine BMI with other measurements to assess the health of their patients fully. Doctors can also explain that while BMI is a widely adopted standard against which patient progress is measured, other options can help them understand their health.

Studies show that patients with higher BMIs are less respected than patients with a healthy weight, and physicians report seeing patients who are obese as less compliant and self-disciplined,” according to the British Journal of General Practice. Discussing the merits and the value of the BMI could help promote more effective dialogues.

Body Fat

One of the other measurement tools Dr Scott-Winful uses is body fat. This index changes for males versus females. “What’s acceptable for a female patient may be considered increased body fat in a male patient,” Dr Scott-Winful pointed out. “But it’s also important to note that you can have a normal Body Mass Index and have an elevated body fat percentage and still be pretty unhealthy.”

Waist Circumference

Dr. Scott-Winful’s third assessment with her patients is measuring their waist circumference. “Waist circumference is also an index that it’s important to look at primarily because this is one of the metrics associated with metabolic disease,” said Dr. Scott-Winful.

“Having a waist circumference in general of 35 in women and 40 in men can be associated with increased risk of diabetes, heart disease, and high cholesterol. But it’s also important to note that that changes based on ethnic background,” she continued. So, for black patients, having a lower waist circumference is a cutoff as well as Latino and Asian patients, and this has been demonstrated in studies.”

But there are also some additional diagnostic tools worth exploring that will help physicians assess the health of their patients:

Waist-To-Hip Ratio

The Journal of American Medical Association established that “some individuals store proportionally more fat around their visceral organs (abdominal adiposity) than on their thighs and hip.” Research reported at Stockholm’s European Association for the Study of Diabetes (EASD) in Stockholm, Sweden, suggested that an individual’s waist circumference might better indicate their overall health than their BMI.

This research is still being conducted, but it is a helpful way to illustrate a patient’s challenges. It’s also easy to measure.

Focusing on waist circumference also provides patients with information about visceral fat, which clings to one’s midsection.

Magnetic Resonance Imaging

Harvard’s School of Public Health labeled magnetic resonance imaging, also referred to as dual-energy X-ray absorptiometry, as a more sophisticated option for obtaining accurate body measurements. It provides the nuance that the BMI is missing by accounting for the “measurement of specific body fat compartments, such as abdominal fat and subcutaneous fat.”

There are detractors for this method. It requires expensive equipment, and it can not be conducted on pregnant people. Explain this to your patient if it is inappropriate and suggest other alternatives.

Relative Fat Mass

Scientific Reports published a study “compared with BMI, RFM had a more linear relationship with DXA (dual-energy X-ray) whole-body fat percentage among women.” This makes it a potential tool that could replace the BMI.

Moving beyond BMI will allow you to provide even better healthcare solutions for your patients.

Supported by an educational grant from Novo Nordisk Inc. 

The post Weight and Measures: Accessing Patients Health Beyond BMI appeared first on Black Health Matters.

Claudia Lopez (00:13):

My name is Claudia Lopez. I am the digital marketing and operations manager here at Black Health Matters, and today, I am joined by Autumn Walker. So, Autumn, tell me a little bit about yourself, what mental health means to you, and how you’ve built your career around being able to provide other people with mental health support.

Autumn Walker (00:37):

Yeah, so thank you so much, Claudia, for having me. I’m so excited to be on this platform and platform that really centers the importance of black health and making sure that it’s a part of the conversation and on the table. So, I’m also happy to be a part of that conversation. So as you all may know, I’m Autumn Walker, and I’m a licensed therapist in Maryland I’m also the founder of the Soul Reasons LLC, which is a mental wellness company and a personal development company, empowering black women to overcome imposter syndrome. And I got into mental health. I will say that I didn’t find mental health. Mental health found me. I have always had a deep level of connection, a deep connection with understanding human behavior and why people do what they do. That whole nature versus nurture conversation really just sparked my interest from a very early age.

(01:41):

And I tried to fit into a different career field. I wanted to be a veterinarian and quickly realize like, okay, this is not in alignment with me. And I stumbled across psychology, and it was smooth sailing, well, not necessarily smoothest. It was a rocky road. Nonetheless though, it definitely, it made sense, it made sense. So, throughout my college career, taking all these different courses and classes as a psych major, every single class resonated with me. I just really took in the information. However, it was my counseling techniques course, I believe it was like counseling theories and techniques, something like that, that really drew me in. And I could just visualize myself meeting someone in a dark space and walking with them side by side into the light and it just spoke to who I was as a person. It spoke to my values. It just really called to me.

(02:51):

And so I decided to pursue that career path and enrolled at Johns Hopkins University in my hometown in Baltimore, Maryland. And I was really drawn to their program because there was a strong emphasis on diversity, social inclusion, equity, all those things. And that was something that I felt very passionately about as well since high school. And I carried into my college career and later on into my graduate career and eventually even into my professional career as well. And once I became a licensed therapist, I do not find it to be ironic that it was in 2020 and I’m graduating about a week before or maybe after around the murder of George Floyd. And I immediately had an emotional response to all that I was ingesting on the computer screen, my phone screen, the news. It was just a lot of information. It was a lot of traumatic content that I was digesting, and I didn’t know it at the time, but eventually, I was able to put language to it, and I was experiencing some depression.

(04:15):

I wasn’t eating, I wasn’t sleeping. I was lacking interest and pleasure in things that I enjoy. These are signs of a depressive episode. And I said, you know what? This needs to be addressed more. I don’t see people talking about the correlation between racial trauma and mental health. And that’s where the soul reason was born. It was a call to action against all that I was witnessing to. And so in addition to working my nine to five, working in the school system, working in the criminal justice system, in a detention center with youth, and then eventually virtually with adults, I also was doing this social justice work through mental health, through my platform. And something that I am continuously doing today, even in the lens of the so reasons as well as clinically with my clients, is making sure that everyone engages with me in this capacity, and understands that everything starts with the mind, everything, the way you see yourself, how you perceive the world, how you show up in relationships.

(05:34):

All this starts with the mind. And because we as human beings exist on a spectrum, we have to recognize that there are things outside of us that impact how we see ourselves and how we in our self-image and self-perception and something that we need to consider is the structural systems that are loudly and at the same time silently having a major impact on how we see ourselves. And because, like I said, everything starts with the mind and our identity, and everything is going to flow from that. So our decisions, our choices, how we engage with the world, how we engage on relationships, how we engage with ourselves are going to flow from these inner beliefs that we have about ourselves, which can be heavily influenced by the system. So that was a longwinded answer, just to say as a mental health therapist is something that I do that I feel like I was called to do. And I also use it as a way to intervene and my attempt to dismantle the systemic norms that plagues disenfranchised communities, particularly black folks because I’m black. But at the same time, just overall I believe mental health and starting with the mind can be a source of change in the world.

Claudia Lopez (07:06):

Yeah. So I have a question for you because you did bring up how content that you were seeing at the time impacted your journey. So what are some other ways do you think that a mental health journey is impacted specifically when you are black

Autumn Walker (07:29):

Systemic in addition to the messages that we may receive and may even internalize because they are reinforced time and time again, it’s hard for me to separate the two because I can even say they’re generational, generational patterns. I’m a big believer in the impact of family and how family and upbringing plays a role in how we behave, how we process our emotions, show up in relationships, all those things. And so of course those that definitely can be a connection to our overall mental wellbeing over the course of our journey. Because as children, we’re like sponges. So we’re just soaking it all up. That’s just the way our brains are developing at that time. We’re soaking in all this information and whatever’s being modeled in front of us, we’re going to take and we’re going to run with it. And so some things are very blatant, such as the way our parents may handle stress, the way our grandmothers or grandparents or whoever our guardians are, how they may express emotions the way even in our neighborhoods and our schools, how children are treated and how the adults interact with the children and how a lot of these things will definitely have an impact long-term impact on our overall mental wellbeing.

(09:17):

And at the same time, it’s like it all goes right back to, it’s so hard for me to separate just structural oppression and racism from just even our conversations about the home and our community because it’s so intrusive. However, there can be things that happens more on a microscopic lens, so more micro, and there are also things happening on a macro level as well. So it can be a lot to juggle for sure. And at the same time, it’s kind of hard for me to separate the two because they intersect in so many ways.

Claudia Lopez (09:55):

What are some ways that you see mental health being manifested in physical health,

Autumn Walker (10:05):

Especially in regards to the black community? To our bodies tend to manifest or give us different warning signs that something is off first. And some warning signs that are pretty common is the gut. So your gut is some of the chemical, not neurons, the chemical properties in the gut. They communicate a lot with the chemical properties in our brain. So those butterflies that you feel and that sinking feeling in your tummy when you’re anxious or that loss of appetite or maybe an increase in appetite. So your gut tends to be, I always say it’s definitely one of the major ways that your body is letting you know that something is off. In addition to that chronic pain as well, chronic pain, whether it’s in your chest, your back can also be another way because the body is not meant to hold on to emotion. It’s not meant to hold on, such as stress, anxiety, depression, shame, guilt, all the different emotions.

(11:29):

These things are meant to be felt and released. So when we hold onto them because we don’t have proper or appropriate outlets, it got to go somewhere so it does get stored in the body and it can start to manifest. So that’s where that pain can be coming from, issues in the gut as well. And sometimes this can be seen as physical, but it’s also behavioral as well. Sleep that matters as well. Sleep requires relaxation, but if there’s a lot of restless activity happening in the body, it’s going to be really pretty difficult for the body system to actually relax. And so I definitely find that when we’re referring to just the black community, because mental health is still a novice conversation, sometimes it can be, I would say, a little bit easier for us to be able to just listen to our bodies and pay attention to our bodies to let us know when something is on or when something is very much so off.

Claudia Lopez (12:40):

And that’s a perfect statement because I’m curious how, as you mentioned, being part of a community that often stigmatizes mental health and negates some of the discussions or conversations that we try to have. How do we as a community pour into each other or acknowledge these conversations or how can we do better to ensure that we are acknowledging mental health as a community?

Autumn Walker (13:10):

The first thing that comes to mind for me, Claudia, is to start the example in my family. I used to get made fun of because I was the one who was very mindful about what I ate. I am very intentional about my skin routine, my water intake, and working out. I’m slim by nature, but my granddad was like, what you working out for? You’re already skinny. And I’m like, grand pop, pop. This is for my mental, this is to help me feel good. I feel energetic and alive and more rooted and grounded when I work out. He still doesn’t get it. It’s okay, but I get it though. And I think, but yes, setting the example and because I feel like if we get so caught up in trying force it down people’s throats, it’s going to be very hard for folks, one for themselves and two to see the benefit of it. However, if you are walking and talking, the mental health, they’re going to see it. They’re going to see it. You look lighter today.

(14:48):

Something seems different about you. I can’t put my hands on it. But then we can start to have the conversation. In addition to that, I think it’s also important for us to continue to humanize folks and understand everyone may not be where you are when it comes to just understanding the importance of wellness and health. We have to take into consideration that for generations, this type of conversations, it seemed almost like a luxury or a privilege for generations. Black folks were just trying to survive. So talking about this health thing and this wellness thing. At one point this seemed like it was only for white people. So, depending on, and I can’t even say this is just for older generations because, like I said earlier, as kids, we’ll take this, and we will soak it up because we’re sponges. So I would even say maybe even from millennials, and I don’t know about all about Gen Z, but they seem to be taking the reins and doing their own thing, which I’m not mad at all. Nonetheless, though, I do think it’s important for us to have a sense of compassion and empathy that everyone may not be there yet. And so that kind of loops back into that optimism. Looping back to what I was encouraging you all to do is how about we just start with you, start with you.

(16:19):

And through that consistency and through that genuine desire to want to be well and healthy, allow that to speak for itself. And those who will come, they will come. And I kind of just think about it just one at a time. This is probably one of those things that’s not going to be quick and a snap of a finger. Like I said, there’s generational things going on, cultural things going on. It’s a lot of layers, a lot of reinforced layers, a lot of things that could posing obstacle to progress and change, which is why we got to focus on what we can focus on, which is, and that is what is in your control and that’s you. So start with you and continue to extend, I mean, compassion to others.

Claudia Lopez (17:19):

Something that I love that you said was that it doesn’t happen at the snap of a finger. I think a lot of people want to put a timeframe on how long it takes to create their or to complete their mental health journey. So what do you have to say towards the people who are trying to find a number or trying to say, how long does this take

Autumn Walker (17:44):

To understand what a journey is? I’m always, I do this in sessions sometimes I actually Google, what does Webster say about this? And if I’m not mistaken, a journey is ongoing.

Claudia Lopez (18:00):

It’s lifelong.

Autumn Walker (18:01):

Exactly. And so to that point, I will encourage, I love this new thing that I’ve been, it’s just something that I recently came across. My mind just likes to move. And something my mind landed on recently is to have fun with it. Have fun with the journey, embrace the twist and the turns and the yeps and the downs. Because in each direction that the journey takes you, there’s something to learn. There’s something that you can take away from. There’s something that can propel you to the next level, embrace the journey. And rather than looking for a deadline or an end date, rather than just try to think about it and like, what’s next? What can I learn about me next? What can I learn about how I engage with myself and my community and my partner and my friends? What else am I going to learn about myself on this journey?

(19:07):

And I think also it could be helpful to have someone in your corner such as a therapist to also, because it can get hard. I do not want to romanticize the journey too much because it is hard putting a mirror in front of yourself and seeing you seeing parts that you tried your very best to hide or shadow. This is not easy work, and I think that’s something that often get skipped when we’re addressing mental health because sometimes we can make it look like a lot of glitz and glam. It is sometimes weeping and crying your eyes out. It’s sometimes screaming. It is sometimes going silent. It can have a lot of colors. It’s very colorful, this mental health journey. So in addition to having fun with it, I think it’s also helpful to have someone in your corner such as a therapist, to help you navigate so that you can feel empowered and equipped to be able to steer the boat no matter which direction it goes in.

Claudia Lopez (20:30):

Something that I want to touch on is that you said the things that you tried to hide or the things that you tried to shadow. And as someone who is chronically online, I’ve heard a lot lately about something called shadow work. So can you explain what shadow work is and how that is a part of someone’s mental health journey?

Autumn Walker (20:53):

Yeah. Shadow work is ultimately intentional effort and intentional effort in a processing of understanding some of sometimes unconscious or subconscious behavior that we may engage in because at some point in our lives it was helpful, it was useful, it helped you to push through maybe some difficult and dark situations and because it helped and it worked out, or maybe you had to use it several times on several occasions, it started to become just what I do, nature. It started to become who I am, and next thing you know, it kind of gets tucked away because our brains just started conceptualizing this as you need to do this to survive. However, because the brain is still kind of considered ancient to some psychologists or those in the field, there’s this concept of evolutionary psychology where the brain is still evolving, and it’s still kind of trapped back into caveman in women’s times.

(22:33):

So the brain sometimes doesn’t really catch up to the fact that you are not 10 anymore; you’re actually 30 now, and life is a little different. So you don’t have to stay in that survival mode anymore. You don’t have to engage in these behaviors anymore. They’re actually hurting you more than they’re helping you. However, because it’s shadowed, you don’t see that. We don’t notice what’s that. We just think this is who I am, and this is just how I do things. Like, no, you were conditioned and taught to do it this way because it helped at some point in time, but now it’s time to relinquish that. But that’s scary because it helped you for so long. And so shadow work also means not only bringing it to the light, what can we do now?

Claudia Lopez (23:30):

Accountability,

Autumn Walker (23:33):

There we go. What can we do differently now that still gives you the same functionality, is still protecting you, it’s still helping you, and still keeping you alive and safe, just with less risk?

Claudia Lopez (23:49):

So we talked about what it means to be on a mental health journey, specifically when you’re someone in the black community. We talked about different types of work in mental health and how it contributes to physical health. So, for the people who want to start their mental health journey, this will be our last question: how do they start? Who do they go to? Take me through that.

Autumn Walker (24:18):

Yeah, I think it’s kind of hard to answer that question because different people are in different spaces and places and have different levels of access to care or to resources. So to try to keep it as general as possible. Something that I’ve been encouraging my community to do is to get back to the basics. Start taking care of your basic needs first. So that looks like you’re eating. Are we eating nutritiously?

(24:53):

Are we eating three meals? In those three meals? What are we eating? It looks like physical activity moving your body. And we have even in addition to the food, we have a level of privilege that our foremothers and forefathers did not have. We have so many resources at our disposal now from the internet to just different inventions. There’s so many different ways in which we can engage in physical activity from YouTube to just walking to different free classes on Eventbrite. There’s just so many different ways you can engage in physical activity and even just healthier eating habits as well. Substance use, nobody wants to talk about it. So I will. We have definitely normalized some things in culture around substance use. I’ve recently some self-disclosure just decided to practice full sobriety from all substances and it pulled me back and allowed me to realize, whoa, there’s a lot of normalcy around certain substances and moderation is key.

(26:22):

However, there needs to be more discussion if you ask me about or more education about what is dependency, what is chemical dependency and what is addiction and what is not. And so I would encourage folks to be very mindful of how much you’re in taking any kind of substance use of choice. When are you doing it? How often are you doing it? Why are you doing it? Any patterns you notice around your use. Substance use your physical health, physical ailments, listen to your body. If your back hurts, don’t just throw an icy hot on it. Okay. If it’s continuously hurting you, please check in with your medical provider. If that migraine doesn’t seem like a typical migraine or a headache, you know this isn’t typical, please check in on that. So, for physical illness, pay attention to that. Personal hygiene. We probably would say, isn’t that just a no-brainer? Not for everyone. Actually, personal hygiene tends to be the first thing that goes out the window when people are feeling depressed, anxious, or burnt out. I’ll take a shower later, and I’ll brush my teeth later.

(27:43):

I’ll just throw on the first thing that I see. I won’t even put myself together. Personal hygiene, take care of that. What else up, sleep, duh? That also may seem like a no-brainer. However, sleep is very challenging for many different people, and understandably so. And so I would say get back to the basics first and foremost. That’s something that I think we owe it to ourselves. We owe it to our bodies, and you’re more than deserving of that. Far as where to go if another thing that we have privilege to is I am a big fan of therapy. I think therapy is very transformative and at the same time, I understand that therapy is not for everyone and I am not mad at that. I’m not mad at that at all. There are support groups, they are spiritual leaders, spiritual counseling as well. I think at the same time I do think that we are subjective by nature, so you do need someone.

(28:54):

We do need someone on the outside to check us on the inside. So that can be a coach, a mentor, a spiritual leader, a counselor, an actual therapist, as well as a support group. Nonetheless, though, I do think it is important for you to recognize that, especially as black folks, because we do have this independence thing about us, which is totally understandable. Nonetheless, though, we are also still social beings at the end of the day, so including some sort of unbiased party in your journey or just into your well-being can also be very productive as well. Wow, that was a lot of amazing

Claudia Lopez (29:40):

Information. I think our audience here has much to work with. I hope so. This is a long journey. This is a lifelong journey, as Auta mentioned, and thank you so much for joining me today. Thanks for having me.

The post BHM Interviews Autumn Walker on Mental Health, Self Care & More appeared first on Black Health Matters.

Gwen. Valencia, Associate Director, Global Patient Advocacy

Anaya, Myasthenia Gravis Patient Advocate

Rorey, Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP) Patient Advocate

Patient advocacy was discussed during this year’s Gwen Valencia, Associate Director, Global Patient Advocacy at Argenx. Valencia explained that part of the reason her firm participated in the discussion was to challenge the belief “that certain conditions don’t exist in certain communities.”

“We’re here to bring awareness to both of these two conditions but also just in general to autoimmune conditions because we know that sometimes the journey to diagnosis can be very long and very hard,” she said. According to the Autoimmune Association, “Autoimmunity is now one of the most common disease categories, ahead of cancer and heart disease,” and “on average, it takes 4.5 years and 4 physicians to receive a diagnosis.”

Both patient advocates shared their personal experiences and highlighted best practices for being an active participant in developing a treatment plan. They also noted that autoimmune conditions can infiltrate one’s life anytime, from early adolescence to mid-adulthood.

Anaya first noticed an issue with her body as a young student-athlete. “I would be playing sports, and I would just fall like fully laid out, and I would try to get up, and it’s my body was like concrete to the ground,” she said. The condition progressed. “It got to the point where I couldn’t chew or talk because my jaw muscles were so weak,” she continued. “My parents and I came together and decided something is wrong. It’s not something that’s run of the mill.”

Rorey was practicing law when symptoms showed up in his life. “I was at the point where I couldn’t carry groceries when I would try to carry groceries. I would drop them, or my arms would get weak. My skin would burn from head to toe. Like somebody just had put me in a fire,” he said. “That just broke me.”

After a lifetime of dealing with difficulties, including socio-economic disadvantages and living in foster care, he thought he could handle anything on his own, but this required help from other sources. “This was the first time in my life where I was not in control,” he said.

Anaya expressed disappointment at the way the doctors attempting to treat her chose to speak with the adults in her life instead of her. “Some doctors only spoke to my mother and never spoke to me to tell them what was going on with me, and that was so frustrating because She can’t tell you what’s happening,” she said.

Before locating a specialist familiar with her rare condition, she was dismissed by multiple physicians. “One doctor told my parents that I was just in such emotional distress about my life that it was playing out in my body, and they just needed to put me in therapy, and that would help, and I think that was the first time where I realized that this road would be very, very long,” Anaya continued.

Rorey used his legal skills when doctors could not explain what was happening with his limbs. Deducing that he needed a neurologist, he found one committed to figuring out his problem. “I found this doctor on my own, and thank God that I did because he was the preeminent doctor in neuromuscular diseases,” he said. After multiple painful tests, including a needle biopsy, he received a diagnosis.

He worked to communicate with his doctors and to get them to communicate with each other. “At some point, we all agreed that we were partners,” he said. “I wasn’t just a patient anymore. I was a partner with them.”

Anaya’s rare condition is even rarer in young people. “I was the youngest patient he had ever had by over 30 years. So, everything we did from that point forward, I was a guinea pig. There was no precedent,” she said. She devotes her time to advocating for young people to be included in the communities established around dealing with Myasthenia Gravis. “Young people are left out of the Myasthenia community,” she said. She advocated for herself with the school system and attended college despite being discouraged from doing so.

As time moved on, she became a partner in her own care.

“For me, being so young, I had to remember that my mom isn’t always at a doctor’s appointment with me. I need to be able to speak to these figures and take it out of my head that these all-knowing beings can also be just as confused as I am, and it’s okay to ask them questions,” she said.

“It’s okay to expect things from them.”

The post Untold Stories: Life with a Severe Autoimmune Condition appeared first on Black Health Matters.

BHM: How can mindfulness, meditation, yoga, or relaxation techniques benefit lupus patients? How can they implement these things into their lives?

Dr. Sydne Ford-Norton: Mind-body techniques such as practicing mindfulness, yoga, and meditation can help with symptom management and overall well-being. Many patients with lupus may have been told that stress can exacerbate lupus symptoms. However, their doctors may not have discussed steps to reduce stress or the stress response. Regular meditation, yoga, and mindfulness help to improve mood, fatigue, and mental clarity, as well as lower cortisol and other stress hormones that lead to an inflammatory cascade in the body. It may also help reduce pain by reducing inflammation and how patients perceive pain, lowering the need for pain medication.

I like to have my patients start with small goals and lower expectations when beginning, considering that mind-body techniques are a practice. Starting with just 5-10 minutes daily will yield many positive benefits. With regular daily practice, you may be able to increase the time spent…or not. Either way is ok. The key is to be consistent with what can fit into your lifestyle and not feel like it is a burden or another task on your list of things to do.

BHM: What lifestyle modifications can lupus patients adopt to support their overall well-being? Regarding stress reduction techniques, exercise, and getting adequate rest.

Dr. Sydne Ford-Norton: Everyone, including patients with lupus, would benefit from lifestyle modifications that intentionally prevent or reduce inflammation and stress. This includes getting adequate sleep, practicing good sleep hygiene, removing toxins as much as possible, such as smoking, alcohol, illicit drugs, processed foods, and harmful chemicals, regular exercise, and eating a plant-predominant, whole foods diet.

BHM: What complementary therapies may be helpful for lupus patients?

Dr. Sydne Ford-Norton: Biofeedback, aquatic therapy, massage therapy, and acupuncture may be helpful adjuvant therapies for pain control and relaxation.

BHM: What should lupus patients know when looking for herbs or supplements to support their immune health?

Dr. Sydne Ford-Norton: When it comes to herbs and supplements, patients with lupus should always talk to their primary care doctor, their rheumatologist, or an Integrative Medicine doctor before starting any new regimens given possible interactions with medications or the potential to exacerbate the disease process. Many people believe that just because something is “natural” means it is safe for everyone to take, and unfortunately, this is not the case. It is always best to consult someone familiar with your medications, specific diseases, and the risks and benefits of specific herbs and supplements.

BHM: Are there specific dietary or lifestyle recommendations or restrictions to help manage inflammation and support immune health in lupus patients?

Dr. Sydne Ford-Norton: YES! An anti-inflammatory diet is essential in managing inflammation, the immune system, and overall health. We now have a lot of data on foods that are pro-inflammatory, foods that damage the gut and weaken the immune system and foods that are nourishing and help repair the body. We generally want a plant-predominant diet, mainly from fruits, vegetables, nuts, and legumes. These are the foods that provide most of our nutrients and antioxidants. We also want to avoid or limit pro-inflammatory foods such as processed sugars, convenience foods (packed or fast foods), and animal products. There are many resources online and cookbooks to learn how to eat an anti-inflammatory diet.

It must be said, however, that when beginning the healing journey, some patients may find benefit in working with an Integrative Medicine provider and explore more restrictive diets such as Paleo, Autoimmune Paleo Protocol (AIP), or other elimination diets that may be more helpful and tailored to the specific person and their gut health and nutrition needs.

BHM: Do you know of any resources or classes available for patients to learn stress-reduction techniques?

Dr. Sydne Ford-Norton: There is an 8-week group training program called Mindfulness-Based Stress Reduction (MBSR) that is helpful for people living with stress and chronic diseases. It has been validated by studies and shown to reduce anxiety, depression, and stress and improve sleep and chronic pain levels. Classes may be found in person and online and are put on by organizations throughout the USA.

So, there you have it! Taking steps to manage your lupus at home is not only possible, but it can be empowering as well. If our interview with Dr. Ford-Norton piqued your interest, we encourage you to delve deeper into this approach. Take a moment to explore the topics that resonate with you, discuss your thoughts with your healthcare providers, and most importantly, don’t give up on finding a health management strategy that aligns with your unique needs.

The post Lupus Management With Holistic & Integrative Medicine (What You Should Know) appeared first on Black Health Matters.

Yes it Happened

Cassie, like many victims of domestic abuse, had her experiences questioned. Denial can sometimes invalidate a woman’s lived experience because, according to Martha E. Banks, Ph.D, a Research Neuropsychologist, ‘Women are sometimes victims of romantic terrorism coercive romanticism,” she says. “To victims, as well as people in the victims’ networks, the abuser appears to be especially loving. The abuse is private, but the public appearance is overwhelmingly — and exaggeratedly — loving.”

While the tape may have triggered some who were victims of domestic violence. Others were emboldened to speak about their experiences. Dr. Banks says, “The release of this and similar videos can provide validation to victims who are repeatedly told by abusers that there is no abuse. It is sometimes easier to perceive and be outraged by the abuse of someone else than to recognize that victims themselves do not deserve abuse.”

Power Dynamics Lead to Isolation

One of the drawbacks of social media is that everyone has become an expert on everything. And we have opinions on things we know nothing about, even complicated issues like domestic violence. However, it is critical to understand that there are more factors to consider before we tell a woman to “just leave.”

“There are multiple power dynamics involved. Emotional abuse, which is present as a component of all abuse, includes isolation.  Such isolation can prevent victims from financially supporting themselves, so victims remain in relationships because they cannot access paths to independence.” Dr. Banks explains. “Emotional abuse includes repeatedly telling victims that they deserve the abuse because they are “bad” people.”

The Cycle of Domestic Violence

Dr. Banks points out that we primarily know bout explosions.  “Early in the relationship, explosions are generally followed by denial — either that nothing really happened or that it wasn’t really all that bad.  Then there is a honeymoon phase — flowers, candy, romantic dinners,” she explains. “Then, the tension builds, and there’s another explosion.  After a while, the honeymoon disappears, and the cycle is just explosion, denial, and tension. Then, the denial disappears, and all that’s left are periods of tension and violent explosions.  If the downward spiral is not stopped, it ends when somebody dies.”

As we read the news about more Black and Brown women losing their lives as a result of intimate partner violence, Dr. Banks points out that there is a critical lack of information available, and the information available predates the COVID-19 pandemic. “It is important to note that increased access to gun ownership in the United States has led to increased intimate partner homicide,” Dr. Banks concludes.

The post To All The Cassies Known and Unknown appeared first on Black Health Matters.

Check out our chat here or read the full transcript below:

CC  00:00

Hi, this is Corynne Corbett, Editorial Director for Black Health Matters. And I’m talking to Reshona Jessamy, founder and CEO of Novara, about the intersection of mental health with beauty and why this is important. So, talk to me about mental health. Tell me why mental health and beauty are so important to you, and talk about why you started Novara.

Reshona Jessamy  00:33

Mental Health and Beauty really go hand in hand. I think when you feel good on the inside, you shop differently with confidence, and grit. But I think also too, when you apply products that also make you feel good. And you’re taking that time to really self care and treat yourself and it’s a treat for you, as you apply your moisturizer. As you apply your serum. I think those two are really important because then you start your day off on the best footing. And

CC  01:02

let’s talk about rituals of self care rituals, the times that you take to wash your face to apply moisturizer, to apply serum, that those moments of quiet those moments of application, those moments are good for soul. Those moments are good for the spirit. I bet

01:28

they are. And I think those moments recharges you. I think for me, I’m really big on my faith. And I think in those moments, you can be still. And you can literally take two minutes to be grateful to get on the line of gratitude. And so mentally prepare yourself in those two minutes or five minutes as you do your routine for your day.

CC  01:50

So tell us what’s in your line.

Reshona Jessamy  01:52

So the line contains six products is called the waterfall collection. It’s named the Waterfall Collection because it focuses heavily on hydration. And those six products are a cleanser, an essence, to serums and two moisturizers. So I love the cleanser because having a cleanser is more important than people think it really creates the canvas for the rest of the products to follow. And our cleanser. It’s gentle, but it’s really really effective at just removing the dirt and impurities from your skin. When you’re done, your skin isn’t feeling tight and dry like it’s stripped of all the oils. It’s really got a lot of centella asiatica extract in there. And hyaluronic acid to really add the hydration, while cleansing. So I think that’s really important.

CC  02:42

Key Ingredients and moisturizer. In your essence, I know you have an essence too. So we don’t often think as black women of the importance of an essence in a product in our routine.

Reshona Jessamy  02:56

We don’t and it was important to me to formulate an essence and not a toner. And so an essence is important because what it does is it floods your face with moisture, going into the deeper layers of the skin, preparing it to absorb the other products that you will apply after and that’s why that’s so important. Once again, you’re creating the base. It’s like putting on tile, you have to put your stuff first and then you add the tile. So I think it’s really important to have an essence in your routine. key ingredients in our essence. So Santelli is yada extract. It’s just a miraculous plant. I was told about this plant when I traveled to China. They actually have been using it in their culture for over 2000 years. So it helps with the production of cream asides. It helps to stimulate collagen production. More importantly, it helps with hydration, it gives to skin intense hydration. And so one of the reasons why this is one of our hero ingredients is because the line focuses on hydration. So key ingredients in the essence centella asiatica extract to Manu extract which is really important Aloe which will help to smooth the skin help with any sort of irritations but it also has hyaluronic acid and lactic acids to really help remove some of the dead skin cells. It also has peptides in there so I think it’s just an overall great product. If you were to just get too out of the line, I will recommend the essence and the theorem.Talk about the serum what’s in the serum. So the serum oh I love the serum. I don’t have a favorite child out of the collection. The serum has triple hyaluronic acid. It has basil extract. It also has centella asiatica extract in there also because like I said we want it to follow through with our hearin ingredient. It also has lotus flower. So in India, this is just a skincare jam. It really helps with cream asides, pre Maasai production. It helps to keep fine lines and wrinkles at bay. And it really helps to give your skin the soft suppleness and triple hyaluronic acid. So high low and medium molecular weights to really go into the deeper layers of the skin flooding your skin with hydration.

CC  05:19

Excellent. Moisturizing, right? Yes,

Reshona Jessamy  05:23

there are two types of moisturizers. So one of the moisturizers has oil and the other ones is not 30% of women in the US suffer from oily skin. So we wanted to accommodate everyone. And the moisturizer is just an overall gem A little goes a long way. And it just deeply nourishes and hydrates the skin with hydration.

CC  05:44

Love it sounds so luscious.

05:48

It is it feels velvety to the touches you put on the moisturizer. It just feels like your skin is saying yes, yes,

CC  05:56

yes. Yes. So Novara a luxury skincare line from a black woman now. It’s coming soon. Yes,

Reshona Jessamy  06:07

it’s coming soon. I don’t think I answered the other question. Why did start the line? You want me to go there?

CC  06:14

Yes. So why did you start alive? For us, and for everyone. But it really answers the need for us because we need hydration. We really did. Everyone

Reshona Jessamy  06:29

needs hydration. That’s the thing. A lot of people think that there is a magic ingredient or surgery that really will help with fine lines and wrinkles or helping you with healthy skin. But it’s hydration, hydrating your skin will give you healthy skin. And hydration will really help to give you radiance, and glow. And really reduce the appearance of fine lines and wrinkles. Obviously, that’s in addition to the science backed ingredients in botanicals, but it’s really the basis of the ingredients that gives the skin hydration that it needs. But you’re right, I think we all need hydration, the products are for everyone. My mental health journey is not only unique to me, because as we know mental health does not discriminate based on status, or race or socioeconomic status. So I thought it was important to create a line for all skin types and skin tones. But what really led me to create the line was after losing my dream job, a really big law firm, depression resurface and I spiraled into a really dark place. Because all my life I’d worked to get this dream job, I knew I wanted to be an attorney. And so I kind of really put my head down and focused really hard on finishing school and landing the dream job. And it wasn’t just the fact that I was unjustly fired from a job. It was really that my identity and my self worth was tied to this dream job. So after I started working in the firm, the workplace started to become really toxic. The way that I was treated compared to my white counterparts, male specifically, was just not the same treatment. And so then I was unjustly fired. And that caused me to spiral I felt like my entire world crumbled, and depression resurface. And I spiraled into a dark place. I didn’t see a way out, I honestly could not see a way out. And I attempted suicide. After I attempted suicide. I went to therapy for the first time, I went back to the old hobby of formulating, and I really leaned into my faith, I leaned into my faith stronger than I was leaning in before. And I’m a really big proponent in everything that happens to you in life. There’s a lesson to be learned from it. So once I overcame depression, I started really reflecting on what is the lesson that I was supposed to learn from this, I had a newfound appreciation for life and living. And I knew that there was a lesson a bigger lesson that I need to learn from this. And so I just started doing a lot of reflecting. One evening, I was sitting on the couch and I was talking to my boyfriend. He’s now my husband. And I was just telling him, you know, the reasons why I really attempted suicide was because I felt that I wasn’t enough. I felt unloved. I felt I wasn’t worthy. And I just wish the other women knew that their lives matter, and that they are loved. And he said to me, they just need to hear it. They just need to hear that you are loved that you are enough that we love you. And someone needs to tell them and I let that sit for a few days. And as I started to think about it more, I thought to myself, I can be the one to tell them. I thought to myself, this is the purpose. This is the lesson that I was supposed to get from the suicide attempt and It was an aha moment, it was a literal lightbulb moment. I can be the one to tell women. And I can do it through skincare. So I started mixing formulas in my kitchen. I used to do it in high school. And it became a happy place. It was a getaway. For me, it was so therapeutic, similar to how people do knitting, I look forward to like, what am I going to buy the market today, as I came home to mix, it made me so happy. And I thought I can use skincare, what I found my happiness in as a vehicle to accomplish the mission of really empowering women. Because this is a journey, a lot of people traverse. They might not say to you and to be really candid. Whenever I tell my story, I would say two and three people tell me, I’ve had those thoughts. I feel that way. I’ve been there. And so for me, that was really the conversation with my boyfriend at the time. That led me to think about creating the line,

CC  11:05

such a beautiful story, purposeful story, and it is going to help so many people because it is real.

Reshona Jessamy  11:15

Yes, that was my life. We’re

CC  11:19

talking about black health matters, that mental health matters. We’re talking about skincare, but it’s like using mental health and skin care together to help people to live purposefully.

Reshona Jessamy  11:34

That’s my dream.

CC  11:36

So it’s the transparency that I so appreciate you. Thank you so much, letting yourself be used in this way. Because it’s not easy to do that. No,

Reshona Jessamy  11:51

I will be the first to tell you it is not easy to get on a podcast with someone you’ve never known. And talk about such a difficult time that I experienced and talk about suicide. Mental health, I think, is now more of a part of the conversation. But I think suicide is still not at the forefront of the conversation, and we don’t talk about it enough. And so yes, it’s really difficult to share my story and to continue to share my story. But I think once I realize the purpose is bigger than me. I then became more encouraged to be able to share my story because I really think it’s important to use it as a beacon of light to help other women to know I was there. I know what it feels like. But you know what, even in your hardest times, there’s a light at the end of the tunnel.

CC  12:46

Thank you, my darling. I really, really so appreciate you.

Reshona Jessamy  12:51

Thank you so much for having me him so grateful that I got a chance to connect.

CC  12:55

You have a wonderful day. You too.

The post BHM Talks to Novara Beauty Founder Reshona Jessamy on Beauty Meeting Mental Health appeared first on Black Health Matters.

Initially, clutter may appear innocuous; we might justify it as piles of items we’ll eventually address. Over time, clutter can slowly impact our mental and emotional well-being, disrupting the balance we seek in our pursuit of productivity and wellness.

When we speak of movement hindrance, it extends beyond our physical ability to walk freely and enjoy our spaces; it also pertains to cognitive functioning, impacting our ability to focus and process information efficiently.

Identifying Your Clutter

Usually, clutter accumulates because we attach various meanings to our possessions, providing us with reasons to keep them. Navigating the fog of memories and sentimental origins during decluttering can be challenging. Fortunately, VeryWellMind has curated a list of questions you can ask yourself to self-diagnose and determine whether you require thorough decluttering. Take a look at the following questions:

• Do you own anything you never use or no longer need, like clothes that don’t fit or old electronic devices?
• Do you have a “junk drawer” of things you think you’ll need but never use? e
• Do you buy new items to replace lost ones in your house?
• Do you lack access to specific spaces in your home (i.e., you can’t open the door to your basement or park in your garage)?
• Are you afraid to have houseguests over because of the messy state of your home?

If you agree with any of the questions above, you probably have some clutter in your home, but don’t worry; we’ll discuss a few approaches to decluttering.

How to Declutter

Before you begin tackling your clutter, it is essential to remember that it may not be easy. The idea of getting rid of a ton of items usually goes smoothly when it is theoretical, but once you are sitting down and weighing out the sentimental value of a pile of t-shirts, it can be much harder to have helpful discernment. The first piece of advice would be to give yourself grace and be patient; depending on your clutter level, it may not be solved within one day.

Along with being patient, try to be realistic. Setting aside enough time to go through your belongings is necessary. You may dedicate an entire weekend to minimizing your clutter or find more peace in doing half-hour increments over an extended period. Find the time recipe that works best for you.

According to Psychology Today, when decluttering, starting small is best. Give yourself manageable goals, such as tackling one pile of clothes or a messy drawer. When you complete that task, allow yourself to feel proud and approach a new task during your next decluttering session. Another helpful tip is to ask for help. Although bringing someone into your messy space may be nerve-wracking, don’t hesitate to lean on your friends, family, or professionals to help. Sometimes, an outsider’s perspective can help you to detach from possessions that no longer serve you.

If you are struggling with parting with specific mementos, embrace the beauty of technology and snap a photo. At times, we have an abundance of items that we love but cannot afford to store. Taking a picture of the items allows you to keep them while freeing up some physical space. It can also be helpful to decide what you will do with your unwanted items. You may consider donating your items to people needing them or giving them to a thrift store. If you are interested, look up shelters or donation centers in your area to find a place that aligns with your values. Decluttering is about more than freeing up physical space; it also allows you to help others.

As we know, decluttering is a process, and some may say it is a skill that can be sharpened. Just as you may crack open a cookbook to strengthen your knowledge of a baking recipe, consider learning about decluttering.

There is so much media on decluttering regarding different organization methods, maintaining an organized space, and even shopping and purchasing with excellent and thorough intent. Just as decorating your house is a unique and personal experience, decluttering and the emotions attached to it are similar. Whether it be a book, podcast, article, or YouTube video, spend some time to find the method and approach that resonates with you the most.

One approach is the three piles method, which the New York Times mentioned. Based on the area you are decluttering, create three piles: a keep pile, a donate pile, and a discard pile. When you analyze your items, go with your gut, the initial assessment and response. For instance, if you pick up a pair of jeans and immediately think, “These are nice, but I’ll never wear them again,” toss those into the donate pile so someone else can enjoy them. Focusing on that initial thought can take you very far when deciding on the fate of your items.

Yes, Clutter Can Disrupt Your Wellness

If you are still a little wary of the importance of decluttering your space, let’s explore clutter’s impact on our wellness. Yes, it is true. Clutter impacts our mental health more than we may notice. As reported by VeryWellMind, some ways that clutter can disrupt our lives include:

• Increased stress levels.
• Difficulty focusing.
• Procrastination.
• Difficulty with relationships regarding shared space.
• Lower quality of life.

When you are in your home, you should be able to relax and be in a place of comfort, but unfortunately, clutter can manipulate that experience. According to a review by Stanford University, a study of 32 families found a link between high cortisol, the stress hormone, levels of women with a high density of household objects.

Clutter can create chaos when you are subconsciously or consciously unsettled in your home. It can disrupt your entire approach to life. If your kitchen is always messy, you may opt to order out instead of embracing healthier options that can be cooked at home. Family members sharing the same space may experience tension due to sensitivities toward disorder. Procrastination may happen as you aren’t excited to work on a project at a messy desk. Over time, clutter can lessen your quality of life as it attacks different facets of your wellness and weakens your focus as you may lose your sense of purpose. Being overstimulated by your space can significantly impact your health and productivity as your mind struggles to absorb the presence of clutter and the objectives of your day-to-day life.

Clearing your clutter allows you to regain mental clarity and stay on track with your goals.

Enlist Professional Help If You Need It

We’ve mentioned reaching out for help from a professional who is skilled in organizing, but it is also okay to seek psychological help regarding clutter. If clearing your home of clutter is extremely difficult and taxing on your mental and emotional well-being and your interpersonal relationships, consider the possibility of seeking help from a mental health professional. There is nothing wrong with needing someone with mental health expertise to guide you through those feelings, as your clutter may be a sign of something deeper that needs healing. A mental health professional can help you identify the severity of what you are experiencing and equip you with healthy coping mechanisms to navigate the emotions you feel regarding decluttering.

The post Declutter Your Space To Improve Mental Clarity appeared first on Black Health Matters.

We had the pleasure of sitting down with Jasmine to explore the roots of her advocacy and the pivotal moments that led to the creation of the summit.

BHM: What led you to become an advocate for HS?

Jasmine Espy: I was diagnosed with HS when I was 13. So, dealing with HS at such a young age and at that time, not having many resources for treatment, physicians, knowledge surrounding HS, how it would progress, and what it would look like on my skin as a Black woman, really led me to want to be an advocate. I realized there were people like me, young or well into their journeys with HS, who also didn’t have the same resources. My advocacy came from wanting to provide the community with information that they were missing and to heal my inner child because dealing with something like HS, especially dealing with the most extreme symptoms of HS, I know all too well what isolation, low self-esteem, depression, anxiety and shame for my body feels like. I didn’t want anyone else in the community or anyone else who has HS or thinks they have HS to also deal with that as well. That’s what led me to become an advocate.

BHM: How did your personal experience with HS shape your perspective on life and health?

JE: My personal experience shaped my whole journey with HS, being an advocate and being a nonprofit founder, everything that I do for HS and my journey has shaped it. I came from a privileged space as my parents had great healthcare when I was growing up. I experienced delays and gaps, but I also had access to healthcare, which is something that can be uncommon for patients dealing with HS. In my journey, I had great healthcare, but I still was misdiagnosed.

I went to my physicians and told them about the symptoms that I was experiencing, and they told me that I had MRSA. Around the age of 14, they even told me that I had a rare blood disorder and that I was going to die potentially. Feeling the weight of those diagnoses really impacted my journey at that young age because I was already dealing with so many health issues and having so many issues interacting with my peers—dealing with bullying and feeling isolated. That deepened my feelings of insecurity, isolation, and feeling like I was disconnected from my body and community.

I was rushed into surgeries and didn’t have the best results or even find an HS specialist who could help me. All these different parallels that I experienced have really influenced my desire to provide people living with HS, their caregivers, and supporters in the community with information on what it is like to live with HS and to provide them with tips to navigate the journey.

My journey heavily influences how I show up because I believe my experience is not an anomaly. It is very common in the community. There may be some nuanced things because everyone who deals with HS has a different experience. I would like to describe HS patients as snowflakes, we can look at the geometric patterns of snowflakes and each one of those patterns are different, HS patients mirror that. We have similarities, and we have differences, and I really want to use my experience and also the experiences that I hear from other patients to help shape the work that I do and how we influence the community not only through my advocacy work as an individual living with HS but as a nonprofit that is disseminating information for people who are living with HS.

BHM: Can you tell us more about your documentary, “My Gold Lining: A Documentary on Hidradenitis Suppurativa?” What inspired you to create it, and what impact do you want it to have?

JE: This documentary is something that I created in grad school at the University of Southern California. I graduated from the Annenberg School for Communication and Journalism in 2019. For our master’s thesis, we had to create some form of media to present. I decided to do a documentary on HS for Black women. At that time, some Black women were talking about their experiences online, like on YouTube and some on Instagram, but there wasn’t a lot of information, and the information that was available online was in a very sterile manner. We were numbers in a system rather than people with faces, experiences, feelings, and perspectives. Because I have a background in multimedia journalism, I was a journalist for over a decade. I wanted to use my connections and experience in storytelling to hone in on this community and to use it to tell my story and other Black women’s stories.

One of my inspirations was “Unrest” by Jennifer Brea; she is a woman living with multiple sclerosis (MS). She created a documentary from her perspective but then brought in other community members and people experiencing MS; she was the inspiration behind the structure of my documentary. The documentary is more artistic because we used the metaphor of Kintsugi, a Japanese pottery repair technique, to explain HS’s impact. Our goal is to create this documentary for it to be an education piece for the community but also for physicians and medical students. We want to create a curriculum behind this documentary to use it as a tool for medical students to learn more about Black people’s experiences living with HS and potentially help influence how they treat HS patients moving forward. We really want to change the way physicians interact within the Black community so that we can subsequently close these diagnosis gaps and the mistreatment of Black people in the medical system.

BHM: When can people expect to see the documentary available for streaming?

JE: I want to utilize some streaming services open to independent filmmakers now. One of our goals is to really figure out how we can disseminate this in medical schools first and then we want to release it to the public. You’ll be able to see it in 2025 definitely.

Next, Jasmine discussed her upcoming summit that will be centered on making HS research and wellness accessible, digestible, and engaging.

BHM: How did the idea for the I Reclaim__ Summit come about? What motivated you to create a platform specifically for HS awareness and advocacy?

JE: To be honest, it’s actually a derivative of the documentary. We premiered the documentary at Sony Pictures Entertainment because I’m a Sony Pictures Entertainment fellow. I was an intern at Sony for a while and because of my connections, I was able to do a screening of my documentary on the lot. After that, I got all these connections, and all these people came to me just to become more of an advocate. At the time, advocating for HS was very minimal. The pandemic hit as I was talking to different foundations and seeing how I could show this to physicians and medical schools. All those conversations went to the back burner, and everyone was at a standstill.

In 2020, I had to really think about what I wanted to do to continue impacting the community. I noticed there were conferences and summits for physicians, teaching them about HS and discussing research and treatment options. I realized patients, caregivers, and supporters needed this. They could learn about HS, talk about their experiences, and learn directly from the physicians they would potentially see. So, when I recognized that gap, I knew I was clearly the person to fill the gap. I started using the connections that I had cultivated from my documentary. We went from a virtual summit to an in-person event that has experienced tremendous growth.

BHM: What topics will be covered during the I Reclaim__ Summit? Are there specific sessions or workshops that attendees can look forward to?

JE: We will have a session discussing the new research on HS and a live demonstration on how to care for HS wounds, which our community doesn’t get when they go to dermatologists, especially for pre and post-op surgeries. One of my favorite days I’m excited about is Influencer Day. This day is all about partnering with the individuals who have had amazing, strong voices on social media, especially TikTok. One of the last sessions I’m excited about is our makeover session. We’re giving away two makeovers to two patients. We’re doing a round-trip flight for these individuals, putting them up in a hotel, and giving them a complete transformation. People with HS often have issues dealing with mental health. Subsequently, our self-care journeys are impacted, and because of that, we want to provide a space to pour back into people in the community.

The I Reclaim Summit will be held June 6-8, 2024, in Detroit, MI. Click here for more information..

The post Meet Jasmine “Ivanna” Espy: An Advocate That Is Shaping the Future of HS appeared first on Black Health Matters.

What Are Clinical Trials?

So clinical trials and research are just experiments, but again, designed in such a way that they help investigators and scientists learn more about diseases, medicines, and treatments. It’s conducted by doctors and other healthcare providers, including nurses and physician assistants; we’re looking at nurse practitioners and PhDs. You can see a lot of those different roles as investigators and researchers. What it means to be an investigator in research is that you are responsible for the research being conducted at your site. Now, you may be part of research where there are potentially a hundred sites across the globe, and you’re one site, but as an investigator, you are in charge of making sure that everything that happens in that research setting is ethical, that there is no harm done to the patient. And that, again, the conclusions that are pulled from that research are scientifically sound and statistically significant. So it’s a huge responsibility because it means a lot of protocol management, making sure your staff is trained, but again, making sure that we’re having authentic touch points with patients so that we can learn more about them and making sure they’re the right fit for the research that we’re conducting.

What kind of questions can clinical trials answer?

If I’m looking at it from a medication standpoint, it’s going to tell me if the medication is safe. Does it work for the health condition that we’re creating it for? How is it metabolized? And when we see metabolize, I know that sounds like a crazy big word, but think about how our body processes things. I can have a drug that’s metabolized by the liver, and then I can have one that’s metabolized elsewhere in the body. If I look at how it is eliminated, I need to know what type of pressure it puts on the kidneys. Maybe if I’m standing up this trial, I want someone with healthy kidneys, and maybe I’m looking at creatine clearance cut-off as part of my protocol and design of the study.

So all that’s important and all that is kind of what we learned in this research setting. And then two, if I’m standing up a drug, let’s say hypothetically for cholesterol, and I already know that there are other medications on the market that doctors are prescribing that clinicians are prescribing to their patients to treat cholesterol, I want to think about, okay, well where does my potential medication fit in this role of therapy? Am I saying that my medication may be better than what’s on the market? Or am I thinking, Hey, it may be for someone who has research and wants to learn more about the research and healthcare itself have a familial connection to cholesterol, a genetic component of cholesterol, and sound for us to make clinical decisions researcher wants to learn more about the condition?. So, these are all questions we seek to answer as we set up different clinical trials specific to medications.

How do we know clinical trials are safe?

We know that in our communities, our Black and Brown communities, research and healthcare itself have a complicated history. We know about Tuskegee; we know about Puerto Rican and birth control appeal trials where there was harm and grievances done to people within our community. But I’m happy to say that there are, again, those measures in place from a safety perspective that ensure we protect the rights of patients and participants in studies where we didn’t have that before. You have people like me who are members of the community that sit in these RD spaces where decisions are made so we can too circumvent and say, Hey, no, let’s make sure we do our due diligence as a sponsor of research since we don’t have any harm done to patients. So yeah, there’s been a shift from what we know to have occurred in the past because it really wasn’t that long ago. We’re really going to be honest about it. There have been some within our lifetime, some failures and research. But again, holistically, we’re doing better. There are more checks and balances. We have to report to an IRB review board that looks at our study procedures. So, there are more formal processes in place to protect patients’ rights.

Where would I start if I was interested in participating in a trial?

But for anyone interested in being part of research, the first step is to start with your doctor to see if that’s even a viable option. I will go through some of the stages of research because not all clinical research is meant to be an option of last resort. So often, I think there’s a misunderstanding that, hey, I’m dying of this disease, and there’s no medication to treat it.

So, all I have is clinical trials. In some spaces, that may be true, but in many spaces, when I look at the drugs that are being developed by scientists and by companies such as mine, I see that it’s very much so preventative medicine, precision medicine, where we’re going after certain biomarkers and certain genetic factors, and we’re coming up with therapies that are curative and preventative. So, it’s shifted how clinical trials are and why it’s important for us to be in these spaces.

The post Your Introduction to Clinical Trials (An Insider Breaks It Down ) appeared first on Black Health Matters.

We had an opportunity to chat with him while he was on tour with Ledesi about his LoveLife Foundation and his partnership with Gilead to improve and help improve the HIV landscape for Black women through education through their Setting the P.A.C.E. Initiative.

I wanted to learn more about the program, so Debra Wafer, the senior director of Public Affairs US Virology, Community Engagement and Advocacy at Gilead Sciences.  Watch the video or look below for the full transcript.

Corynne Corbett (00:12):

Hi everybody. I’m Corynne Corbett, editorial director of Black Health Matters, and I have the pleasure of chatting with the one and only Rah Navo about something special that he’s doing this month as he embarkes on an 18-city tour as he combines music and missions, and we are going to learn more about that. I want to start with asking you to tell us about your Love Life Foundation. Community Engagement,

Raheem DeVaughn (00:44):

Love Life Foundation has been established since right around 20 13, 20 12, 20 13, 20 14. Between that span, the idea was conceived and then I was already doing a plethora of community work anyway, so it just made sense for me to establish my own foundation at that point where I could do more work, hands on, directly support the initiatives that want support, so forth and so on.

Corynne Corbett (01:17):

And what are the things that are important to you that you do through that foundation?

Raheem DeVaughn (01:24):

We do work in terms of HIV prevention. I’ve had previous partnerships in that sector. We feed people that are homeless and displaced as well. We provide scholarships, textbook scholarships. The textbook Scholarship Fund was created to support students for their first year of college, paying for books and supplies. We felt like that was something that was practical, that a lot of times it’s overlooked for students. We weren’t in a position necessarily to pay tuition full year rides and stuff of that nature just yet, but we still wanted to find a way to be able to lend hands to our local parents in the community as well as the students. So that was an initiative that we started out at the DMV. We would pick three students a year, and we’ve successively saw off a lot of students since then with the test, with Scholarship Fund, and then there’s Toys for Tots for of course, the holidays and stuff like that. A lot of different initiatives.

(02:36):

One that I’m extremely proud of, fighting domestic violence and bringing more awareness to the community, to the Black community, and to the youth as well, is being able to identify, first of all what domestic violence is and understanding that it doesn’t just affect women, affects men, children as well, teenage boys and girls as well. So being able to do a lot of work in that sector as well. Establish a program, the Queen for a Day, spot takeover, which allows us to bring in women and pamper them for the day and let them know that they’re still men out here that care in a community that cares is here, be of aid to them, why they transitioning at a very severe domestic violence situation. So those are just a few of our initiatives.

Corynne Corbett (03:24):

And doing it in your community is really important to you, right?

Raheem DeVaughn (03:27):

Absolutely. I mean, every community, I touch many stages across the country and across the world. So the premise is that I’m not looking to just go into the community or go into a city like Chicago and just take and keep it moving. I think the greatest gift that we can leave behind is the gift of love and community and activism and stuff of that nature. So touring, touring makes it very easy for me to move around and be part of the process.

Corynne Corbett (03:58):

Great, great. So how did you start partnering with Gilead Sciences?

Raheem DeVaughn (04:04):

This is a new partnership for Raheem Devine in terms of me in branding, but also allow me to work outside of the sector, the Love Life Foundation. It just gives me an opportunity to do even more work. So being is that I’m on the legacy Good Life tour. I feel like this would be a great time to mobilize and have a strategic partnership. And again, I think it made it very easy, me doing the work I’ve done in the past in terms of HIV awareness and prevention. Gilead felt like I was a perfect suitor for the partnership, and I felt likewise as well.

Corynne Corbett (04:52):

Okay. So let’s talk a little bit about what the partnership is and what you’re going to be doing with Gilead in terms of the tour. So what you’re doing in what you’re doing, you are on the Legacy Good Life tour, right? You’re doing 18 cities?

Raheem DeVaughn (05:16):

Yeah. I’m a supporter act on the Legacy Good Life tour. The tours already started. We knee deep in it. Gilead is showing up and showing out, and their local partners are showing up and showing out. We’re bringing awareness. The goal is to do this successfully; I’m hoping that we’ll come in touch with 35,000 women within 30 days. This is a life-changing experience, providing information that’ll save lives, obviously knowing the fact that Gilead has already created 12 million in grants and local initiatives to create awareness about HIV prevention, anti-stigma, and health equity for Black women and girls in the United States. This is the movement. This is the new cool. This is the new narrative, and they allow me to join ‘EM as a partner. And they’re setting the PACE initiative, which again is over 12 million invested into local organizations on the ground for HIV prevention.

Corynne Corbett (06:30):

So, what other cities are you guys going to this month?

Raheem DeVaughn (06:34):

Oh man, I don’t have the schedule right in front of me. Yeah, I had a list right in front of me. I’ll be honest with you. It’s like a blur. Yeah,

Corynne Corbett (06:42):

Yeah. Because I know that you wake up every day and you’re like, what city is this? Right?

Raheem DeVaughn (06:47):

Yeah, yeah, yeah. I’m currently home on a brief break, and I know that we are in Birmingham tomorrow. We got Birmingham coming up. We have Houston coming up St. Louis. There’s la, Oakland, California, and I’m sure there’s a few spots that have already missed. We hit Washington dc Philly, started in Newark, New Jersey. We’ve been to Columbus, Ohio. We’ve been to Charlotte, North Carolina. We’ve been to Durham, North Carolina, just to name a few cities. Again, for me, I’m on for 18 cities. There are a few cities that I’m, I’m not participating on the tour, but I mean, the cool thing about it’s that I anticipate that this is just the beginning of a long, hopefully fruitful relationship, and you don’t have to be on tour to care about people. Again, it makes it very easy to touch the people knowing that I’m in these various cities every day and we hit the ground running, me doing the meet and greets and us and Gilead having partners come out and us having a table set up where they scan the QR code, do the survey, we get to have conversations. I can’t tell you about how many people have pulled me aside when I’m in the merch line and thanking me for spreading their awareness, how HIV and AIDS has affected them either directly or indirectly. So I see it working in real time. Absolutely. Black women make up for, I think it’s only 14% and they’re half of the new cases and diagnosis here in the states are Black women

Corynne Corbett (08:51):

Right now. Walk me through. They’re setting up a meet and greet. How’s it?

Raheem DeVaughn (08:59):

Oh, well, yeah. I do a meet and greet anyway at all the shows. It’s something I’ve done since the beginning of my career, but in a cool way, we make it and able to get access to me. We ask that people scan the QR code before we get into the meeting and the greeting of things and taking photos and things of that nature. We like to meet and greet with the people, and before I test the people, it’s imperative that they scan the QR code so that we can have the conversations and get them the information they need to have.

Corynne Corbett (09:43):

I think that’s good. I think that’s good. So I’ll just look up for the rest of the cities. I can get that information just so that people know and we can share that on the site so that people know what other cities that the tour is going to.

Raheem DeVaughn (10:01):

Absolutely. And again, the mission doesn’t stop with the tour. I’m hoping that we continue our partnership, but this is something we do. That’s your work. Yeah, this is my work. You know what I mean? It’s been my work for so long, and obviously it’s so much work to be done. It’s so much work to be done.

Corynne Corbett (10:28):

So what do you think that we need to do better in terms of getting the message out about HIV?

Raheem DeVaughn (10:41):

I think we’re doing a great job. You know what I mean? What’s the saying? It wasn’t, house isn’t built overnight. You got to do, you build a brick by brick and create the foundation. I think part of it is just breaking down the stigmas and just having people comfortable about having the conversations. I think also exploring preventative measures. There’s medications and things that you can take now that’s out there as well. Prep, for example, mean, which is unfortunately for a long time it’s been labeled as a gay drug, for example. You know what I mean? Just saying something or thinking something just as ignorant as that can create stigma. You know what I mean? Or stigmatization. So yeah, it’s awareness of course. Obviously getting tested regularly, knowing what’s going on with your body. And I think just creating an environment, making a new cool, the level of comfortability between partners and human beings, having a conversation about what’s going on with them. Yeah, I think that that would help too.

Corynne Corbett (12:05):

Yeah, I think so too. I think. Do you think that younger people are more comfortable and it is people of a certain age that are still stuck in fear?

Raheem DeVaughn (12:19):

No, I can’t speak to that because I’m considered a young OG at this point.

Corynne Corbett (12:27):

You know what I mean?

Raheem DeVaughn (12:29):

I will say this, I think that we live in a time now in society where music and entertainment for far too long, we haven’t wanted to accept who we are in the community in terms of, I guess as role models or leaders. And I think that they’re definitely in a time where music promotes promiscuous behavior a lot of times, or just the lyrics can be very reckless and so forth. And so for me, as somebody who I feel like has always made tasteful art, but I also, let’s be real, and let’s be blunt, I make records and speak to intimacy and sex.

(13:30):

So again, I feel like from a branding standpoint, it makes sense. If I’m making music about these things, you know what I’m saying? Why not take it upon myself to promote and talk about the importance of sexual health and the responsibility that we have? And that thing, it’s almost like the guy who has the liquor sponsor, and I’m not going to tell you to drink and drive. You know what I mean? So one of the terms I even use sometimes on a tour is just like it’s sex responsibly. You know what I mean? But also when you think about intimacy, intimacy is also more than sex. You know what I mean? So intimacy is conversations, you know what I’m saying? Intimacy is conversations and hopefully establishing a level of trust and a level of comfortability to want to have the conversations. You know what I mean? Encouraging whether my generation or the youth. You got people that are HIV positive, and then there’s a movement out there where you can be HIV possible too. It’s meaning there’s a possibility that this could affect you or someone close to you that you love. So again, kudos and hats off to Gilead Sciences for stepping up and providing tools, spending over $12 million, that’s a lot of money and I’m proud to be part of the team.

Corynne Corbett (15:35):

Alright, well thank you so much,

Raheem DeVaughn (15:36):

Rahe. Thank you so much

Corynne Corbett (15:37):

Taking the time. All I appreciate you.

Raheem DeVaughn (15:40):

Appreciate you as well. Have a great night. Alright, love. Good day.

Corynne Corbett (15:42):

It’s not even nice. I know, right?

Raheem DeVaughn (15:44):

Peace and love. Peace.

Corynne Corbett (15:45):

Take care. All peace. Thank you. To find out more about Raheem DeVaughn’s unique partnership with Gilead Sciences, we decided to talk to Deborah Wafer. She’s the senior director of Public Affairs US Virology, Community Engagement, and Advocacy at Gilead Sciences about the unique partnership that the two of them have. Gilead Sciences and Rahi. DeVaughn, here’s Deborah. So, I have the pleasure of speaking with Deborah Wafer.

Debra Wafer (16:24):

Hi, I am Deborah Wafer, Senior Director of Community Engagement, US Virology at Gilead Sciences. And I’m happy to be here today.

Corynne Corbett (16:39):

Great. Great. So, I’ve always had the opportunity to talk with Raheem DeVaughn about your partnership, and I wanted to dive deeper into your PACE program and your partnership with Raheem and how that came about.

Debra Wafer (17:00):

Well, it came about when we look at HIV in this country, and you look at HIV and Black women, Black women, all women are most impacted when it comes to HIV. And we were looking for an opportunity to educate Black women, not just about HIV, like they might be at risk for HIV, but Black women to help educate the community about HIV. And so the PACE program is a program where we’re looking at arts and advocacy and how do you work through arts and advocacy to educate community and especially the Black community around HIV AIDS and prevention. Right now, there are a lot of people in the Black community who don’t know that HIV can be prevented, and there are different ways that it could be prevented. We know that if people who are living with HIV are taking their medicines and they keep their virus suppressed, there’s no virus to transmit. So treatment is prevention. We know that if people think that they might’ve been exposed to HIV, they can get post-exposure prophylaxis, they can get medication after the exposure, they could prevent transmission of the virus. And now we have prep, which is pre-exposure prophylaxis. And so through the PACE program, we wanted to empower women with information to educate the community, but also to educate other women about how we can prevent this virus transmission from person to person, especially Black women.

Corynne Corbett (18:49):

Right. So tell us what PACE stands for.

Debra Wafer (18:53):

We’re talking prevention, arts. Advocacy, community education. I got it right. Prevention, arts and Advocacy. Community education. That’s what it’s an initiative providing grant funding. And through these partnerships with different organizations, we funded 19 organizations to help educate Black women and girls, trans women about HIV in the United States.

Corynne Corbett (19:29):

That’s amazing. That’s amazing. How long has it been around?

Debra Wafer (19:33):

So we just launched this program this year In 20? This year? Yeah, just this year. It was launched this year.

Corynne Corbett (19:41):

Okay. So are you working with other artists? I mean, is this the first partnership with Raheem? Has this the first music artist that you’re working with?

Debra Wafer (19:53):

Yeah, this is the first music artist that we’re working with. I mean, Raheem DeVaughn has been very committed and connected to the work that we’re doing, and we’re actually proud of the relationship and the partnership with him. I mean, I think one of the things that has happened in the past is people have talked about HIV. It only happens in certain communities. And what we are trying to do is raise the bar and talk about HIV in the Black community, right? Because it’s something that I think it’s an issue for all of us. It’s not about necessarily where you live, who you have sex with. We should be concerned about all of us, about our children, about our grandchildren, about our nieces, everybody who needs to know in the Black community that this is something that could be prevented. We have a lot of health issues when it comes to Black people, and this probably better than most folks because you guys do Black health matters.

(20:56):

And we know when it comes to the impact in the Black community, so many diseases impact us at a higher rate. HIV can be prevented. And that’s what the message is here, is that, let’s take a look at HIV as a whole. Those of us who have children, we have cousins, we have, everybody should know that HIV can be prevented. And we can only do that if we engage the whole community. And I think by this relationship and this partnership with DeVaughn, we are able to DeVaughn Raheem, we are able to educate a wide host of people.

Corynne Corbett (21:40):

Raheem, DeVaughn, say that again?

Debra Wafer (21:42):

Raheem DeVaughn with Raheem DeVaughn, we’re able to, I just started listening to his music last night. Raheem DeVaughn. Yeah.

Corynne Corbett (21:53):

Right. And what’s great is that he’s really passionate and excited about this partnership and working with this. And he’s gotten a track record of working with the community and working in HIV prevention and in the community. It’s not like this is something that’s new to him. He’s already No.

Debra Wafer (22:18):

Yeah. And that’s the beauty of it, right? The beauty of it is that this is part of who he is and his commitment to the work and to Black people. So I think that’s the beautiful part of this. This is not something he’s doing as a one off or one time only thing. So the commitment, the partnership and the messages are all about the Black community.

Corynne Corbett (22:51):

Are we paying enough attention to HIV as Black women?

Debra Wafer (22:57):

No, I think, no, we’re not. The answer is no. Why? I think a lot of people think HIV is something of the past. When you think about HIV kind of hit the news in the early eighties, the 1980s, and now we are in 2024. There are some young people who don’t have or don’t know the history that you and I lived through of people who were diagnosed with HIV, who are no longer here. All the Black artists, all the Black people who have died from HIV that they don’t know about. I mean, I have some nieces and nest views who were born in two thousands and they talk about the old days. And 1990 is the old days for them. And so I think they think about HIV as something that happened in the old days as opposed to HIV is still here. HIV still impacts Black people more than Black and brown people, I should say more than others.

(24:12):

I mean, I think that when you think about how the L-G-B-T-Q white community rallied around HIV, it became a real cause. It became a political movement for them. And now you look at their numbers, their numbers are way down compared to where our numbers are. But I think for a long time, Black people thought it was something that we didn’t have to worry about. And Black people have been dying since the very beginning of this pandemic of HIV. And we continue to, and I think one of the reasons that it happens is we think it’s happening somewhere else as opposed to, no, it’s happening to Black people. And that’s what we need to make sure we bring to the forefront.

Corynne Corbett (25:00):

I think the death of idea broadband is an opportunity to remind us that it is in our community and that her life and death is an opportunity for us to remember and to remain vigilant.

Debra Wafer (25:18):

I agree with you 100%. I mean, I met Hadia when she was a little girl, and that’s another thing to think about. There are children who were born to mothers who were HIV positive before we knew how to prevent transmission from mother to baby. Now we know if a woman is pregnant, she should be tested for HIV. That’s just part of their regular prenatal care. There’s a whole generation of children like Hadia, I think they call themselves dandelions now, who were born to mothers who were HIV positive before we understood the transmission of the virus from mother to baby. And again, that was another one of those, if you treat the virus, you lower the virus, viral load in someone’s blood, then they can’t transmit the virus. That’s what we learned about pregnant women. If you treat the mother, there’s no virus to transmit. But you’re right. Had idea. It was a living example for us in the Black community to think about how it has impacted our community, many children at birth.

Corynne Corbett (26:31):

So it’s like this is National Minority Health Month. So this is a perfect example of us not just saying, oh, this was a sad thing, but take action and do something.

Debra Wafer (26:47):

Right. Exactly. So

Corynne Corbett (26:54):

This program is an opportunity to use that. So thank you so much for this partnership.

Debra Wafer (27:03):

Yeah, no, it is. I mean this concerts are all over the country and everywhere that they’re going, they’re talking about it. And I think that that’s an important message and I think that we have to just get Black people to understand that know what your HIV status is. I think of it like, no, your blood type, A lot of people don’t know their blood types even still. But how about finding out what your HIV status is? Because if you’re having sex and you don’t know, then that can put you at risk. So you don’t even know what your starting point is. So it’s a good reminder that it’s an issue in the Black community. It can be treated and it can be prevented, but it can’t be any of those things if you don’t know what your status is.

Corynne Corbett (28:01):

Absolutely. Absolutely. Yeah. Thank you so much. This is a good program.

Debra Wafer (28:10):

It’s a great program. Thank you for having us and thank you for helping to spread the word. We appreciate it. And we have more concerts to go. So.

The post BHM Chats With Raheem DeVaughn About His LoveLife Foundation, HIV Education, and Partnering with Gilead appeared first on Black Health Matters.

Presented by:Kemi Osundina

 Lead Director Of U.S Public Affairs, Patient Advocacy Transplant Lead At Sanofi

Alana H., Two-Time Kidney Living Donor Recipient

Reggie C. Living Kidney Donor

Kemi Osundina, Lead Director Of U.S Public Affairs, Patient Advocacy Transplant Lead At Sanofi, sat in conversation with Alana H., a two-time kidney recipient from living donors, and her husband Reggie C. about the critical information Black people need to know about living donor kidney transplants at the Black Health Matters Spring Summit.

The summit was held in Washington, D.C., an area of the nation with a remarkably high rate of kidney disease.

Osundina described Sanofi’s commitment to providing patients and potential donors with the information needed to save their lives. “Our kidney transplant connectors program combines education and first-hand stories for those on the waitlist or considering a donation, and we help them to understand their options and take action,” she said. “The program is available in person or as a live webinar, and each program is provided by one recipient and one donor who share their personal stories, as well as educational information, the importance of self-advocacy, and tips on talking to your friends and family about the process.”

She acknowledged the challenges faced by Black patients seeking care.

“There are many transplant disparities and unique barriers for African Americans to gain access to a transplant. Most people that need a transplant can’t get one and, unfortunately, out of the more than 100,000 people on the waitlist that are waiting for a life-saving transplant, nearly 30 percent are from the Black community,” said Osundina. She also explained what she believed to be one of the causes of this harrowing statistic. “One of the reasons is low health literacy. Fifty-seven percent of African Americans have less understanding of basic Health Care information than our white counterparts.”

Another reason is systemic biases. According to data collected from the United Network for Organ Sharing database, “Published reports show that Black patients are less likely to be referred for transplant evaluation” and “are delayed in transplantation registration, progress slower through the waiting list, and are ultimately less likely to receive a transplant compared to the non-Hispanic white population.”

Diagnosed with Kidney disease at just thirteen years old, Alana received her first kidney from her brother. Later in life, she was disappointed to learn that she would need another transplant to continue thriving. She and her husband had a backup plan in case of this.

“It was important to pursue a Black kidney donor because we will have more markers that will match,” she said.

This time, as an adult woman, she actively participated in developing her treatment plan.

She was also willing to share her story to save others.

“When I learned that Blacks were 25 less likely to be waitlisted on a kidney transplantation. Um, I knew that I wanted to be an advocate and speak out for that. Being on the waitlist for an extended period of time means more time on dialysis, and more time on dialysis can affect the outcome of your transplanted kidney,” she said.

Her husband Reggie was initially rejected as a donor, and he walked the audience through the actions he took to qualify, including lifestyle changes to a renal-friendly diet. “All my tests came back normal, except for my angiogram and come to find out. I suffer from kidney stones,” he said. “But due to some self-advocacy, we could overcome that obstacle.”

Reggie revealed how having access to another living donor informed his actions as a donor. “I was fortunate that her brother actually was her first donor. So, I was blessed now to be able to see the process through him. So it made my decision to be a donor that much easier,” he said.

Alana interjected to share how the couple advocated for their family to facilitate the transplant through persistence.

“You may not be a medical professional, you may not have a PhD, but I say get a PhD in properly handling your disease,” said Alana. “If your primary care doctor is not meeting your needs, find another one.”

Learn more about the Sanofi kidney transplant connectors program here.

The post Living Life Beyond Dialysis: What You Should Know About Living Donor Kidney Transplant appeared first on Black Health Matters.

Always have these tools on hand.

You probably already have a wide-tooth comb, a detangling brush, a diffuser attachment for a blow dryer, a microfiber towel, or an old T-shirt for drying after washing. Heron says level up with a focus on the scalp. Add a scalp scrubber to your arsenal to increase blood circulation. Invest in a hair steamer to help conditioning and treatments penetrate the hair and the scalp.

Make pre-poo optional (except in one special instance).

If you fell down the rabbit hole of black hair care influencers, you would think pre-poo, adding oil or conditioner to the hair before shampooing, was the holy grail of healthy hair and, therefore, an essential step. Not so, explains Lynch; it is helpful if you have difficulty detangling or coming out of a protective style because it adds more moisture.

Enhance your wash technique.

For the best wash experience, detangle your hair before wetting. Wet hair thoroughly. Begin with a clarifying shampoo (we love 4U by Tia’s Clarifying Shampoo with Apple Cider Vinegar ), gently massage into the scalp in circular motions, and work your way down. Follow with a moisturizing shampoo like Pattern Hydration Shampoo to replenish moisture. Wash every seven to ten days. Be gentle with wet hair, as it is vulnerable to breakage.

Make gray great.

Gray hair requires special attention due to its unique characteristics, maintains Chappelle. The pigment has evaporated from the hair strand, leaving it opaque; use clear gloss and violet shampoos. These products help protect and seal the cuticles, making the hair structure flexible against damaging UV rays, which can tarnish gray hair. Play up silver strands with Maison 276 Hydrate Shampoo.

Save a weave.

Sounds daunting, but the key to cleansing a weave or extensions is prioritizing the scalp. Chappelle suggests before and after installing them, consider scalp exfoliation to remove dead skin cells, allowing scalp and hair follicles to breathe. Ensure thorough drying of braids underneath extensions or weaves to prevent bacterial growth; reach for TPH Maskin & Relaxing Scalp Mask to break down scaly buildup.

Work with a wardrobe of conditioners.

Having a wardrobe of conditioners can be beneficial depending on your hair needs. Lynch recommends rotating conditioners to keep hair from getting used to the product, which decreases efficiency and causes build-up. Keep your hair hydrated and strong with a protein-strengthening conditioner like African Pride Feel It Formula Peppermint, Rosemary & Sage Strengthening Mask. Rotate with a moisturizing conditioner (coddle strands with Cecred Moisturizing Deep Conditioner ). Both boost strands’ shine, suppleness, and strength. Maintain during the week with a spritz of Leave-in Conditioner Spray like As I Am Rosemary Water, which is great for temporary moisture and detangling. Note it’s not a stand-in for the deep conditioners, as leave-in conditioning alone will eventually lead to dryness, dullness, and loss of curl pattern.

Moisturize by the minutes.

It is not necessary to leave a conditioner on overnight. Experts recommend following the manufacturer’s instructions and, in lieu of instructions, keeping the conditioner no longer than 30 minutes. Leaving a conditioner in too long can make your hair limp and may affect how styling products work.

Set up for successful styling.

Gone are the days when it took a spritz of water, a hooded drier, and a blue grease finish to style your hair. Healthy, relaxed, and natural hair go-to products include setting mousse for a smooth roller set. Get The Doux Crazy Sexy CurlHoney Setting Foam. Look to a curl cream to add body and fight frizz. Try 4U BY Tia Soft Curl Defining Mousse. Round out your hair essentials with a heat protectant, a gel for sleek styles, and hydrating oil to finish. Braids and loc girlies shouldn’t be without a natural lightweight oil, rosemary oil, or African Pride Feel It Formula Peppermint, Rosemary & Sage Strengthening Oil. Keep scalp buildup down by hitting your parts with a scalp soothing treatment like Briogeo Scalp Revival Buildup Detox Spray To quell the itch.

The post Want to Create Salon-Worthy Hair at Home? Try These 8 Tips appeared first on Black Health Matters.

Your Medical Team and Support Factors

If you are considering advanced cancer treatment, you will need a team of specialists who can collaborate to provide you with the proper support. According to the American Cancer Society, there are many professionals that you may encounter, some of them include the following:

Oncologists can include medical, radiation, and surgical oncologists who diagnose and treat cancer.

*Oncology nurses can administer treatments, monitor side effects, and help to educate you regarding your condition.

Patient or nurse navigator: this person can guide you and your family through complex medical systems and help you work with the rest of the cancer care team to overcome barriers to care that may come up so that you can successfully complete your treatment.

Palliative care specialists can include doctors, nurses, pharmacists, and other health care professionals who work together to manage symptoms, such as pain, nausea, or fatigue. Palliative care teams can and often work alongside cancer care teams to help manage side effects during and after cancer treatment. These teams are often used to help patients during any stage of cancer, from diagnosis through treatment to the end of life.

Also, it can be helpful to welcome the expertise of social workers, psychologists, and rehabilitation experts. Cancer does not solely impact your body; it also affects your mental health. As cancer patients navigate the disruptions caused by cancer and the alterations in their reality, things like depression and anxiety can begin to surface. You need to know that based on all that you are enduring, ripples in your mental health are normal, but to begin mending them. You should seek help from professionals as well as find support in groups or with your loved ones.

Support programs come in various forms, and you may find comfort in one-on-one sessions or group counseling and support groups. Even if you do not like the idea of support groups, it is worth considering. Talking with others who can truly relate to your situation can help to alleviate some of the loneliness you may be feeling, you can speak to people who have first-hand experience with similar emotions and challenges. To learn more about this option, you may want to ask those who are on your palliative care team for more information. The American Cancer Society also has some in-person and online group support resources.

Understanding Your Treatment Options

Treatment choices for advanced cancers depend on the type of cancer, where the cancer started, and how much it has spread into the area around it, as stated by the American Cancer Society. In general, metastatic cancer will need treatment that reaches all parts of the body, including:

• Chemotherapy
• Targeted therapy
• Immunotherapy
• Hormone therapy

Surgery and radiation therapy only treat a certain part of the body but can help prevent or relieve certain symptoms. You may be suggested to partake in clinical trials. Overall, treating advanced cancer is complex, and your medical team may use a combination of approaches to treat you.

When treating advanced cancer, the goal is to give you the best quality of life so that you can feel as good as you can for as long as possible. You need to communicate effectively with your healthcare team so they can understand what you want from when you have left and those goals can be addressed best. For instance, you may want to focus on shrinking the cancer, slowing its growth, or relieving your symptoms. You have the right to decide what you want for your future, and this could even include the decision to stop treatment. You must make the best decision for you, which can be hard.

It can also be helpful to get your personal affairs in order. Advanced cancer is not an immediate death sentence. In many cases, the cancer can be managed for years. Still, it is important to know what you want to occur when you are no longer here and to prepare for that possibility in all aspects. This could mean organizing your important documents and figuring out insurance policies, or this could include talking with a therapist to help you and your family digest the possibilities involved in your condition. Find out what being prepared means to you and try your best to take the steps toward it.

Things You Can Practice to Help You Through This Journey

Learn as much as possible about your condition; this can help you ask your medical team informed questions.

* Utilize a palliative health team, and don’t neglect the importance of your mental health.

* Find ways to lower your stress levels through a hobby or meditation, and find pockets of time to decompress.

* Seek support in groups or through counseling.

* Candidly share your healthcare wishes with your medical team and your family.

Living with advanced cancer is a deeply personal journey, unique to everyone. Discover what strategies work best for you, and know that you are not walking this path alone. There are many resources and people ready to support you.

Stay optimistic and continue living your life with purpose because you truly matter.

The post Advanced Cancer Treatments: What You Should Know appeared first on Black Health Matters.

What is a Cancer Recurrence?

According to the American Cancer Society, in some cases, cancer can come back after treatment. When this happens, it is called cancer recurrence. The cancer can come back in the same place it started, or it may come back somewhere else in the body. When the cancer comes back in a new part of the body, it is still named after the part of the body where it originally started.

Where Does Cancer Recur?

Your cancer may recur in the same place it originally started, or it can move to various parts of your body. The American Cancer Society states that recurrence is divided into three categories, this includes:

• Local recurrence is when the cancer reappears in the same place it was found or is remarkably close by. The cancer has not spread to the lymph nodes or other body parts.
• Regional recurrence occurs in the lymph nodes and tissue near your original cancer. * Distant recurrence refers to cancer that has spread to areas farther away from where your cancer was first located. This is called metastatic cancer.

Let’s take a moment to learn more about metastatic cancer. If you happen to hear the word “metastasis” in conversation as your healthcare providers explain your condition, you may wonder what this word means and how it can impact your healing journey.

What is Metastatic Cancer?

According to the Cleveland Clinic, metastasis occurs when cancer spreads to other areas of your body beyond the place where it originally started. Nearly all cancers have the potential to metastasize, but the predictability of this occurrence heavily relies on factors such as the type, size, and location of the primary tumor. The Cleveland Clinic has provided a concise list of other names for metastatic cancer that you may hear.

This includes:

* Stage IV (4) cancer.

* Secondary cancer.

* Cancer with Mets or Mets cancer

How Does Cancer Spread?

As stated by the National Cancer Institute, cancer can spread in a few ways, including:

• Growing into, or invading, nearby normal tissue.
• Moving through the walls of nearby lymph nodes or blood vessels.
• Traveling through the lymphatic system and bloodstream to other body parts.
• Stopping in small blood vessels at a distant location invades the blood vessel walls and moves into the surrounding tissue.
• Growing in this tissue until a tiny tumor forms.
• This causes new blood vessels to grow, creating a blood supply that allows the metastatic tumor to grow.

Are Specific Cancers More Likely to Metastasize?

Cancer can spread to almost any part of the body, but different types of cancer are more likely to spread to certain areas than others. With the exclusion of lymph nodes, the National Cancer Institute has provided a list of cancers and areas prone to metastasis, this includes the following:

•  Bladder cancer is prone to spreading to the liver, bones, and lungs.
• Breast cancer is prone to spreading to the liver, brain, bones, and lungs.
• Colon cancer is prone to spreading to the liver, peritoneum, and lungs.
• Kidney cancer is prone to spreading to the liver, brain, adrenal gland, bones, and lungs.
• Lung cancer is prone to spreading to the liver, brain, adrenal gland, bones, and lungs.
• Melanoma cancer is prone to spreading to the liver, skin, muscle, liver, brain, lungs, and bones.
• Ovarian cancer is prone to spreading to the liver, peritoneum, and lungs.
• Pancreatic cancer is prone to spreading to the liver, peritoneum, and lungs.
• Prostate cancer is prone to spreading to the adrenal gland, liver, bones, and lungs.
•  Rectal cancer is prone to spreading to the liver, peritoneum, and lungs.
• Stomach cancer is prone to spreading to the liver, bones, and lungs.
•  Thyroid cancer is prone to spreading to the liver, bones, and lungs.
• Uterine cancer is prone to spreading to the liver, peritoneum, vagina, bones, and lungs.

According to this list, cancer cancer most often spreads to the liver, bones, and lungs.

Although the list seems repetitive, we urge you to take a look. You may recognize your diagnosis, which can better prepare you to manage your health.

What Are the Symptoms of Metastasis

Now that you know the areas where cancer is most likely to spread, you may be wondering how you can identify metastasis or if there are any symptoms to look out for. As stated by Healthline, metastatic cancer does not always present itself with symptoms, but when it does occur, you may experience a few things, including the following:

• Bone: pain, easily fractured bones
• Brain: headache, dizziness, vision problems, seizures
• Lung: shortness of breath, cough, chest pain
• Liver: jaundice (yellowing of the skin and eyes), bloating, abdominal pain. ]

If your cancer comes back, you may also hear the word “advanced” used to describe your condition. If you are told that your cancer is advanced, it is important to find out exactly what your doctor means. Some healthcare providers use advanced to describe metastatic cancer, and others use it to describe other situations. Understanding what your doctor means is vital, as all metastatic cancers are not advanced.

What is advanced cancer?

According to the American Cancer Society, the term ‘advanced cancer’ is commonly used to describe cancers that cannot be cured. These cancers do not completely disappear and remain present despite treatment efforts. However, certain types of advanced cancer can be managed over an extended period and are thought of as ongoing or chronic illnesses.

Advanced cancer can be locally advanced or metastatic.

Locally advanced means that the cancer has grown outside of the body part it started in but has not yet spread to other parts of the body, according to the American Cancer Society. On the other hand, metastatic cancers are characterized by their ability to spread from where they started, but they are often only considered advanced when they cannot be cured or controlled with treatment.

If you are told that your cancer is advanced, you are faced with many decisions about your health, including the route that you would like to take regarding your medical team and care.

The post What if Your Cancer Comes Back? What You Should Know About Advanced Cancer & Metastasis appeared first on Black Health Matters.

According to the National Cancer Institute (NCI), alcohol use has been shown to have links to head, mouth and throat, esophagus, liver, colorectal, and stomach cancers. It has also been shown to increase the risk of breast cancer in women. There is also evidence that drinking alcohol increases the risk of prostate and pancreatic cancer.

They estimate that 5.5 percent of new cancer diagnoses and 5.8 percent of cancer deaths worldwide are attributable to alcohol consumption. While data suggests that Caucasians consume more alcoholic beverages than any other racial and ethnic group in the US, Black Americans have a greater rate of alcohol-related cancers.

Jennifer Edwards Johnson, DO, MPH, Michigan State University College of Human Medicine, says, “We have known for a while that moderate alcohol consumption has been linked to cancer.” According to Dr. Edwards Johnson, the more drinks consumed seem to have more impact on risks than the type of liquor you drink. The NCI data suggests that all alcoholic beverages, including red and white wine, beer, and liquor, are linked with cancer. Their studies show that just one drink a day can raise your risks. Data from the National Institutes of Health (NIH) shows that nearly 5.5 percent of all new cancer diagnoses and 5.8 percent of all deaths from cancer can be attributed to alcohol consumption.

How Much is Too Much?

Dr. Edwards Johnson says the standard consumption for women is one drink per day. Two drinks per day is considered standard consumption for men. “Nothing is risk-free,” she adds. Dr. Edwards Johnson says that the risks are less associated with the kind of alcohol consumed and more tied to the amount and frequency over time.

According to the National Institute on Alcohol Abuse and Alcoholism, a standard alcoholic drink in the United States contains 14.0 grams (0.6 ounces) of pure alcohol. Generally, this amount of pure alcohol is found in:

• 12 ounces of beer
• 8–10 ounces of malt liquor
• 5 ounces of wine
• 1.5 ounces, or a “shot,” of 80-proof distilled spirits (liquor)

However, the level of consumption and frequency can raise a woman’s risk. According to the  Centers for Disease Control and Prevention (CDC), if a man and woman drink the same amount of alcohol, the woman will usually have a higher blood alcohol level. And not only do women typically experience the immediate effects of alcohol more quickly than men.

But stopping cold turkey won’t necessarily stop your cancer risks—at least not right away. Most studies found that stopping alcohol consumption is not a guarantee of immediate reductions in cancer risk. It may take years for the risks of cancer to return to those of never-drinkers.

If you want to reduce your risks, Dr. Edwards Johnson says,” the best thing is to avoid alcohol consumption altogether.” And if that doesn’t suit your lifestyle, she suggests that you “uncouple your drinking from your habits and rituals.” And she says it is essential to look at why you are drinking.

“Some people report that they drink because it helps them relax. For others, it is a part of their culture and socialization,” she says. “You must weigh out the risks versus the benefits of drinking. Dr. Edwards Johnson says that if you can break the habit of moderate to high alcohol consumption, not only will you reduce your cancer risks, “you will also reduce the liquid calories you take in and reduce your risk for diabetes, obesity, heart disease, and stroke as well. “

The post Does That Glass of Wine Raise Your Cancer Risks? appeared first on Black Health Matters.

Corynne Corbett (00:13): Hi everybody. Corynne Corbett here, Editorial Director of Black Health Matters, and I have the pleasure today of chatting with Vanessa Simmons, actress mommy. But today, I’m talking to her as the founder of U4IA, a website and platform she founded centered on wellness and self-care. And we’ll hear more about why she founded that, what her focus is, what she hopes to accomplish, and what she’s bringing to women with her mission. So welcome, Vanessa.

Vanessa Simmons (01:04): Thank you for having me. I’m really excited to be here and to talk about all things wellness and mental health. So thank you for having me on.

Corynne Corbett (01:13): It’s really, really important for us to have this conversation today or this month because especially talking about wellness and self-care. So why did you start U4IA?

Vanessa Simmons (01:30): Well, I’ve always really been deeply passionate about being able to impact as many people as possible with my platform. I don’t take it for granted. I understand I’m in a very privileged place to have so many ears and supporters. So it was really important for me to get out a message of healing.

And for myself, I wanted to create a community surrounded around the education and inspiration through the world of wellness. The reason why I’m so deeply passionate about that and mental health and well-being, in general, is that being, in general, is because I myself currently deal with anxiety. I’ve dealt with seasons of depression, and being able to tap into resources and find information to help me cope and overcome have really been game changers in my life.

And I feel like it’s important for me to get that out to the community of people who support me, the ears that I do have, and just make wellness the star, put wellness in the spotlight for people to engage in conversation, find ways that they can thrive, ways that they can overcome, because sometimes people don’t talk about these things.

(02:46): We hold it in, and that’s also a form of wellness, being able to talk about it and to be able to find the resources that we need. So, for me, I wanted to be able to give back to my community and the people who support me in an impactful way. And that is through wellness. People are going through a lot of challenges. There are a lot of things going on in the world that are unprecedented, and I feel like our mental well-being should be at the forefront of all of that. And so that was really my inspiration in starting euphoria, just being able to put out information for us all to thrive and live a better quality of life. Whether it be a reminder for people who already are on that journey or introducing new information, new ideas, new ways of coping and healing. Really, it’s all about spotlighting healing in a positive way.

Corynne Corbett (03:42): So, what kind of information do you share on your platform?

Vanessa Simmons (03:47): Everything from ways to prioritize self-care to ways to cope with anxiety. Like I said, I’ve dealt with anxiety, whether that be breathing exercises or different workouts that we can be doing using different supplements to really enhance our wellbeing. Teas are anything within the world of wellness that can enhance our well-being. I’m finding that I’m also finding different experts that I can bring on board and people that I have been interviewing that I have to get some of these interviews up. But things that have fact-based results, science-based results, and things that people can really tangibly tangible apply to their life. So there really is no limit as long as it’s going to be in the realm of healing. I want to share it. I want to get it out there to the people, like I said, that support me and follow me.

Corynne Corbett (04:42): So, let’s talk about anxiety for a minute. How did you know that you had anxiety? Because people don’t know. People can’t put words to feelings sometimes. So, how were you able to recognize the signs?

Vanessa Simmons (04:57): A general feeling of just being overwhelmed from a really young age. I was out there in entertainment doing various different lines of work, whether it be acting or hosting, and I had to come in contact with a lot of people. And the more I would do it, the more I would feel this just general feeling of being overwhelmed. And I just feel like that’s not normal. If I’m doing something that I love, I should be completely enthralled in it and excited. And I am, I love being creative, but I was feeling a general feeling of just being overwhelmed, and it made me tap in and be like, okay, maybe there’s someone I should be talking to. Therapy. It started with therapy, and it evolved from there. So it is definitely about being self-aware and being aware that you need to tap in and realign in some way to bring yourself back, mind, body, and soul.

(05:55): So you can go out and you feel good about yourself and you feel confident when you walk in a room. My confidence was being tested, just feeling generally overwhelmed. And so I was like, you know what? Something has to be done. And then especially when you bring a child into the mix, you don’t want that bleeding over into them. So after becoming a mother, I realize, okay, I can’t go on living like that. That’s not really living life, that’s just merely getting by. And so I had to put some things back in order and it was reaching out, finding resources and tangible things that I can add to my everyday life to enhance my life experience.

Corynne Corbett (06:34): So that’s really interesting. And I think that in our community, sometimes we’re hesitant to look at the resources because we are afraid that let’s say that’s not Christian or that’s not a whatever faith community that we’re in, and that’s not necessarily true. So it is important that we understand that getting help does not necessarily negate faith, for example.

Vanessa Simmons (07:15): Absolutely. I get that all the time when I tell people that I’m diving into wellness, they’re like, well, as a woman of faith, how does that work? And I’m like, okay, well, number one, prayer. My prayer life is first and foremost, but then also being able to look at myself and find the resources necessary to heal. That’s faith in action. And that’s what when you’re praying to God to give you like, oh my God, help me find peace, help me heal. Yes, he will give it to you, but you also have to do the work. You have to do the work, and that’s what that is. Going to therapy, talking to someone so that you can cope while you’re here, but it doesn’t negate God. It doesn’t negate Christ in my life. It’s just showing my faith in action, showing God, I’m serious about what I’m praying for, and you’re showing me the way you got to follow the path. So that’s what I say to that. I have gotten that before. Oh, well, breathing exercise. I’m like, God, put breath in our lungs. So we got to make sure to regulate and take care of our nervous system, and that’s really what the breathing and the meditation and speaking nicely to yourself is all about. God wants that for us.

Corynne Corbett (08:25): Exactly. Exactly. So, what advice do you have for mothers who are giving their all to everyone else and forgetting about themselves?

Vanessa Simmons (08:37): Don’t do that because you cannot feed your family from a cup that’s not full. You need to fill your cup up first. It’s like when you’re on the airplane and they say, before you assist anyone else, you got to put the oxygen mask on yourself. That’s what that is. You have to, and no matter what it looks like, take some time for yourself to realign, whether that be through self-care. For me, it’s as simple as doing my skincare routine and taking a little extra time on myself to make myself feel better. Or if you do have the resources going out for taking yourself on a date, spa date, anything nice, manicure, pedicure, anything to just really soothe your mind, taking five minutes to do a deep breathing exercise and meditation, it all matters. So I would say as a mom, it’s more important that you take those moments because your kids feed off of all the energy we have in our house. So it’s important that your energy is calm and your energy is patient, which they teach us to be, and you can’t be if you’re not taking care of yourself. So it’s really important that you prioritize yourself. It’s not selfish. Self-care is not selfish. It’s actually very necessary to make sure that you’re heading in the right way or healing if you need to.

Corynne Corbett (10:01): So what do you do to fuel yourself?

Vanessa Simmons (10:05): It’s all about balance for me. Like I said, it’s waking up a little bit earlier in my house to take time, to plan out my day, get a little exercise in. Exercise is so important. It doesn’t have to be this big drawn out thing. It can be 10 minutes jumping jacks or on a bike or treadmill, or just simply taking a walk and taking in sunshine. Sun is extremely healing and making sure that I’m okay. So waking up, meditating, even for me work, I love being creative. I’m an actress. I’m very blessed to do what I do. So sometimes getting out and accomplishing goals that I have for myself outside of the family is important too for myself.

Corynne Corbett (10:54): Yes,

Vanessa Simmons (10:55): Yes. About balance.

Corynne Corbett (10:57): So what do you want people to get from U4IA?

Vanessa Simmons (11:04): I just want it to be a source of inspiration and education for people to be reminded of ways that they can prioritize taking care of themselves to have the resources that they need to really thrive. So even if it’s just something that sparks an idea or makes someone go, you know what? Let me go look into taking therapy or just prioritizing themself in some way. So I really just want it to be a source of inspiration, to take a beat. We live in a time where there’s so much hustle culture, and that’s cool and all, but sometimes we need to take a moment, take a beat to realign mind, body, and soul so that we can get back to work in a very healthy way, a more euphoric way. And that’s where the inspiration for the name came from. We thrive, and we want to be living in the most euphoric way possible.

(11:56): Life is a gift and an absolute blessing, and so we need to prioritize our health so that we can experience it and enjoy it and not be weighed down by different challenges that come up, which they will. It’s inevitable. I had to go back into the research I’m doing and writing. Recently I was going through some life challenges and I wasn’t leaning into what I was preaching, and so I had to take a beat, realign and actually take my own advice, started doing my breathing exercises, and almost immediately you do one deep breath exercise almost immediately. You could feel a difference in your mental clarity or taking a magnesium supplement. All of these things are very helpful. Drinking tea, taking time to stop and smell the roses essentially.

Corynne Corbett (12:49): So who inspires you today?

Vanessa Simmons (12:53): Who inspires me? Well, a big piece of my inspiration definitely comes from being a mom. I’m in a chapter where motherhood is very prevalent in my life. My daughter’s 10, so it’s all hands on deck right now. She’s in that preteen phase, so she’s a huge inspiration for me. I just want to be a good example to her and make sure that I’m leading her in the right way. I’m helping to raise a little mini-human, and I want to set her up in life in the right way. So she’s a huge inspiration. And honestly, my moms, I have two moms, my mom, my biological mom, and then I was blessed with a bonus mom, my stepmom. and just as an adult now, and being a mom myself, looking back at the way they handled themselves and the example they gave us, I’m like, wow, that was true inspiration and empowerment. I didn’t realize it at the time because they were just being mom. But as I’m older now, I realize the sacrifices they made and their huge inspiration to who I am and who I’m even evolving to become as a woman.

Corynne Corbett (14:06): That’s great. That’s great. So what advice would you give to someone listening here to find inspiration in their own lives.

Vanessa Simmons (14:25): To dig deep. Health is truly the best form of wealth. I can definitely say that. So prioritize you, and don’t be afraid and don’t feel like it’s selfish, especially if you’re a mom. I know a lot of moms have to deal with mom guilt and struggle with taking time for themselves. So I would say make sure that you carve out some time for yourself during the week and take care of yourself. So yeah, that is my advice and my wish for people to truly thrive in life and live the best possible version of themselves.

Corynne Corbett (15:07): Thank you, Vanessa. I think that’s beautiful and that’s real. I think that what I love about it is people, even though they’re going to see this, let’s say on social media, this is an stuff. Click, click, click, click, click. This is life.

Vanessa Simmons (15:25): Yeah, because we’re clicking, we’re scrolling. We see so many things a day. So my hope is that I can just positively impact just even one person, two people, as many people as I can to just prioritize themselves and see the impact you can have on your life by just taking a few minutes a day to be more mindful of yourself. Yeah.

Corynne Corbett (15:51): Thank you so much.

Vanessa Simmons (15:53): No, thank you.

The post Vanessa Simmons On Self-Care, Mental Health, Motherhood and Her Platform, U4IA appeared first on Black Health Matters.

Being in Garnet’s presence created a safe space to unleash my vulnerability. That happens when you are connected to, seen, heard, and most of all, loved by folks you trust and can claim as sacred family. As I talked and he listened, a collage of feelings and thoughts filled the room. They needed space to breathe and a witness who would not judge them. Before he left, Garnet gifted me a copy of Notes on Grief by Nigerian author and novelist Chimamanda Ngozi Adichie. The book turned out to be the perfect companion for someone like me. Someone struggling to make sense of herself and life in the absence of her mother’s physical presence on Mother Earth.

Throughout my stay in London, I found comfort in Adichie’s words: “We don’t know how we will grieve until we grieve.” They permitted me to define, understand, and experience grief in my own way. Since then, I have come to understand that grief is a spiritual, emotional, mental, and physical response to loss. It is also an energy that makes a home in the body. It happens to each of us throughout our lifetime. There is no way to escape it. It is different for each person. Grief changes us and our lives. It causes us to experience messy and hard moments that leave us feeling overwhelmed, sad, afraid, angry, depressed, out of control, and so much more. It humbles and teaches us that we do not have any control over when it shows up in our lives. If we resist it, we create more suffering and struggles. If we find a way to surrender, we open ourselves up to receive grief’s sacred medicine of grace that we can use to move through our journey.

I have learned to surrender to grief through mothering. Mothering is nurturing yourself positively and upliftingly with loving kindness, compassion, nonjudgment, patience, and forgiveness. When I mother myself, I can practice my self-love and self-care birthrights. Using the five self-love languages I developed in my work with the Thriving Mindfully Academy during the early days of the global pandemic helps me take small steps towards expressing these birthrights. They may help you, too. They include:

1.  Affirm yourself with loving, kind, compassionate, inspiring, and encouraging words (recite affirmations and prayers, chant mantras, sing songs, engage in positive self-talk, journal thoughts and feelings, or talk or write to your mother’s spirit).
2. Honor your body with physical touch and movement (self-hug, reiki, grooming and skincare routine, yoga, tai chi, tennis, walking, biking, strength training, dancing, and other fitness activities)
3. Reclaim your time by prioritizing yourself first and scheduling “ME” time that renews you (rest, sleep, breathe deeply, meditate, participate in activities you love, join support groups, or work with a coach or therapist).
4. Serve yourself by doing acts that express how you care about yourself (schedule a weekly or monthly date to honor your mother in a special way, set boundaries to protect yourself from energy drains, make health appointments, clean and organize home or office space, or do something your future self will thank you for).
5. Celebrate yourself just because you are you with the gift of time, an experience, or a material item that is meaningful (pick something that connects you to your mother).

As you progress in your grief journey, remember you get 1,440 minutes daily. Choose to use some of your minutes to mother yourself in the best way.

Ananda Leeke is a Thriving Mindfully Coach, artist, Human Design Doula, Grief + You Retreat facilitator, and author of Love’s Troubadours, That Which Awakens Me, and Digital Sisterhood.

The post Mothering Yourself as You Grieve Your Mother appeared first on Black Health Matters.

Dr. Fakorede notes that in Southern rural areas, there is a high incidence of diabetes, obesity, high blood pressure, and, in some cases, tobacco smoking that leads to plaque buildup. “80% of the patients I see are Black,” he explains. “These elderly folks started dipping and chewing tobacco when they were eight or nine. Back then, they were told it would keep the worms away.”

There are many health disparities in the Delta, including education, economic, transportation, and housing. The crisis heightens when you also layer in healthcare issues, including underinsurance, lack of insurance, and communication issues. “So the risk factors include sugar, the pressure, and it’s not well-managed, and we wait for them to end up in the ER with a gangrene foot. And that doctor looks at them and says, ‘Well. Chop, chop, that’s the treatment. There has been a lack of awareness, not only on the patient side but also on providers; we need to have a conversation.”

Dr. Fakorede notes that if you use cancer as an analogy, where we catch it early in stage in stage four. The mortality rates of this disease and its advanced ages are worse than most cancers,” he explains. “60% of patients will die within five years from critical limb ischemia, which is an advanced stage of PD. Compared to breast cancer, that is double at that stage.”

This crisis is not just happening in Mississippi. It is also in rural areas of Georgia, South Carolina, Alabama, Arkansas, Louisiana, and Texas—even the urban cities of Philadelphia and Chicago. Our communities are on fire, and we didn’t even know it.

 Four Organizations Come Together to Form The Pulse Alliance to Raise Awareness About PAD

Dr. Fakorede is a member of the Association of Black Cardiologists, one of four organizations that have come together to spread the word about the amputation epidemic. Other organizations, including the Society of Interventional Radiologists, the Society for Vascular Surgery, and the Society for Cardiovascular Angiography & Intervention, sound the alarm about this issue.

• In a survey conducted by the Pulse Alliance,  70% had never heard of Peripheral Artery Disease.
• Nearly 80% of Black and Hispanic adults reported never having a doctor or healthcare provider discuss PAD with them.
• There was a disconnect between the risk factors (diabetes, high blood pressure, smoking) and their personal perceived risk. People with diabetes have 3xs the risks for PAD, while 80% of patients with PAD are smokers.
• We are twice as likely to get a PAD diagnosis and four times as likely to have an amputation.
• Over half (53%) of respondents would wait more than a week with ongoing leg pain before calling their doctor.

Amputation Isn’t the Only Option

According to Dr. Goke Akinwande, MD, Medical Director, Vascular and Endovascular Specialist, and an interventional radiologist who practices in St. Louis, this epidemic is not our community’s fault. “It’s the physician’s fault; we don’t educate people correctly,” he explains.”So we call it the sugar, but are your legs being cut off because of the sugar? That is usually the conversation. However, diabetes is challenging on the small vessels in the leg. Your arteries get smaller as they go down to the foot. When you don’t have enough blood flow to the foot, it causes sores, which become infected.” Dr. Akinwande says to think of it as having a hose tied to a faucet. When you smoke, on the other hand, it impacts the faucet itself and the distal vessels leading to the feet.

“If you have foot pain that doesn’t go away, or it gets worse when you walk or asleep, get it checked out, ” Dr. Akinwande says. “Most primary doctors blame it on neuropathy. Do you know how many patients come to me on drugs for neuropathy? Patients may need an imaging study to see what is going on. So the foot doctor or vascular specialist is your friend.”

“So I’m an interventional radiologist and in St. Louis, a specialist for a more severe form of peripheral arterial disease called critical limb ischemia,” Dr. Akinwande says. “At this point, there you have pain all the time, and the artery is blocked. So, have figured out a way to get through the blockage, get a balloon up, and get a stent in.” When he started his practice, Dr. Akinwande thought many surgeons and interventional cardiologists were also doing this procedure, but they weren’t, and since then, through word of mouth, it has consumed his practice.

Educating the Community

While they were raised on the East Coast, both Drs Fakorede and Akinwande are committed to connecting by using methods of education that help them understand how to improve their health. When Dr. Akinwande was on the faculty of a teaching hospital in St. Louis, he drove to the north side of town where the Black folks live to observe the community; he met a Black female podiatrist there. They began doing health fairs together, and she still refers patients to him today. He talks to patients about ways to change their diets, then asks them to send photos of their Thanksgiving meals, with details like what kind of meat they put in the greens.

“I believe in the direct-to-consumer approach; you’ve got to meet people where they are. That has been my successful model here. People have to realize that most people don’t walk into the doctor’s office to have these conversations,” Dr. Fakorede says. “They go to the streets, churches, civic organizations, sororities, fraternities, The Chamber of Commerce. My approach has been to disrupt in a positive way, and they can see that you care.” He says it opens the doors to conversations for concerned family members, those with personal questions who wouldn’t otherwise inquire.

“I talk honestly to my patients in a language they understand. “Hey, listen, that sweet tea you drink is why your sugar levels, hemoglobin, and A1C number, which is a factor in trend in why your plaque buildup is higher, and that leads to no blood flow and your circulation shutdown,” Dr. Fakorede says. “If we can get your sugar controlled, or you can quit that sweet tea, half of those carbs, that will improve your sugar and give you a fighting chance to say, ‘Hey, give me another go at this.’ That’s what’s missing in the conversations with our patients down here.”

In his office, Dr. Fakorede found a solution for patients who got lost in physician-speak. “One thing I’ve noticed is when we doctors walk into rooms with white coats, there’s reverence sometimes that patients get lost in thought. When the doctor asks, ‘Do you have any questions for me?’ Many are intimated,” he says. “So when the doctor walks out, they get upset and ask the nurse, ‘Can you please repeat what s/he told me?’ So now, I bring in visual aids to explain whatever I am talking about; I speak at a fifth-grade level, use analogies, and ask the patient to repeat the information so I know they understand it.”

Prevention and Screening Recommendations

We have reached a crisis level because our providers haven’t been screening us, and we haven’t known about the tests to ask for. So here is what we need to know about who needs to be screened and when for PAD:

• If you are over age 50, have a history of diabetes, or have used tobacco, dipped or chewed tobacco
• If you have a heart attack, coronary artery disease, have a stent in your heart, or have a stroke.
• If you have had diabetes for over ten years, and sometimes your legs hurt (or feel cold at times)
• If you have a family history of amputation
• When you go to Sam’s Club and can’t get through the entire place, you must rest because your leg hurts. Then it happens all the time, even when you are asleep. If you have a sore, blame a mosquito or spider bite, and it isn’t improving.
• Your foot looks funny. It’s dry, scaly, and always ashy, and no amount of lotion seems to help.

The post The Amputation Epidemic We Need To Talk About (And Preventions Strategies) appeared first on Black Health Matters.

Check out their chat (and the transcript is also below).

Roslyn Young-Daniels (00:15):

So listen, Mr. Rucker. Yes ma’am. What does Black health mean to you?

Lamman Rucker (00:20):

Oh, that’s such a huge question, but really it means everything. It means being, well, it means it’s beyond feeling good. It’s being well, and I think that’s the difference we’ve gotten in the habit of just making sure something hurts. Let me do what I can to feel better. But the problem’s not solved. We don’t really know even where the issue may come from. We know it hasn’t gone away, but we don’t really want all the information because then the truth really forces us to do something different. So, just for me, it’s really my hope that we get beyond the short-term gratification of how we’ve defined black health and really understand the long-term, not just definition, but the long-term value of wellness.

Roslyn Young-Daniels (01:19):

What inspires you?

Lamman Rucker (01:21):

I don’t even know how I found myself here, to be honest with you, but at the same time, of course I would. How can you not? Because I’m a human being, first of all. I live in, I got a body, I have a mind, I have a heart. And even I talk a lot about even just being an artist. I’m always navigating the worlds of what’s happening with other people. Then, as an educator, my life has been committed to children and families and the community. And then there’s countless stories and testimonies of what it means to be well, and you know what unhealthy families look like. You know what malnourished children look like and how all these things are interconnected. How unhealthy environments contribute to us being mentally not well contribute to everything from all the other factors that we can think of. So when you look at cycles of violence, they’re all typically reflections of desperation or fear or other deficiencies that exist.

(02:38):

So that’s something that I was never comfortable with, just being okay with. So one of the things I was taught, one of the things that just I learned, and I don’t even know if this language was given to me, but I just always felt like it was more important to be part of the solution and not part of the problem. So whatever ways I can contribute to how we move the needle forward and heal ourselves, there’s only so much healing of one another that we can do, but we can encourage, facilitate, and model. We can provide information, resources, encouragement, inspiration, motivation, and information. So to me, how many jobs is that? And I’ve just always found my way into that space. But as an actor, artist, educator, activist, entrepreneur, philanthropist, all the adjectives or labels I can put in front or behind my name at some point, it’s just about living in your own humanity and connecting to the humanity in other people.

(03:53):

And I don’t know, maybe even as a little boy, we all want to be superheroes. So, this is my way of saving lives. This is my way of putting an L on my chest, not Superman, just being myself, right? This is my version of being incredible Hulk, or being Spiderman or Batman or all the things you imagine as a child. You want to be part of what’s good. You want to, and I really, even philosophically, I think everybody should figure out what is your superpower? You have it you. There’s something about you that’s special, and that’s supposed to impact some other public and the greater good. And I think the sooner you figure that out and the sooner you even find what that is for you and about you, then you can’t wait to give it away. We can’t take it with us. And if you do, it’s gone once it’s gone.

(04:54):

Unless you give it away to everybody you possibly can, then it never dies. That love, positive energy, healing, teaching, whatever that is, it keeps going. And that’s what’s got us this far. That’s true on this continent. We’ve been dealing with a whole lot of stuff. There’s no way we’d be here without those same elements. So I’m just doing what’s already been done before. It just happens to be on a loop, maybe more public platforms, but I’m living the life and doing the things that my ancestors have been doing for countless, countless, countless years. So I’m just continuing to just do my part in whatever way I can. Best ways. I know how.

Roslyn Young-Daniels (05:32):

That’s wonderful. One last question. When we have these types of events, women make up about 80% of our audience,

Lamman Rucker (05:40):

I didn’t notice.

Roslyn Young-Daniels (05:43):

What can you personally say to the brothers out there to make them be more proactive about their health? To have them show up and engage more in health services processes and in their access to care?

Lamman Rucker (06:00):

Well, that’s one. Hey brothers, all the women are here.

Lamman Rucker (06:06):

Alright. Eight to 80 are here. No, but no, but at the same time, more seriously, I think, and this is the kind of work I’m even actively doing now, I’ve got a mental health tour where one of the topics that always comes up is men being honest about what’s really going on with them. And I think that that’s something that you all can all help us with. Men can do that not only for themselves, but for one another and not just, oh baby, you need to go to the doctor. But it’s that a lot of how we’ve all been socialized, and again, no disrespect is that the woman’s body is the only body that’s important. Our bodies aren’t important. Our job is the work ourselves to death for you, but never to prioritize our own health, our own wellness. And some women actually perpetuate that as opposed to no son, father, husband, brother, daddy, uncle, whatever.

(07:06):

Your body is just as important as mine. Just because you can’t bear children doesn’t make you any less valuable. I need you. I want you here. Do this together. When y’all go get checked, take him with you. And similarly, like I said, hey, come. These shouldn’t be things we do in segments or fragmenting the household. Oh, okay. Oh, there’s a health summit. Okay, alright baby, you go here, you go to that. I’m going to go over here and do this. No, let’s do this. Right? This is a family event. This isn’t a women’s event. And even when it is, there’s still information at these women’s events that benefits us. I’m learning all the time when I’m in the green room, I’m learning all the time. I’m listening. I was having a conversation last night and I’m learning about women coming into their womanhood as teenagers and preteens stuff I’ve never heard.

(08:02):

As long as I’ve been doing this work, as much as I’ve even been involved in educated in reproductive health and working with young girls and families and so forth, I’m learning new stuff every day. So there’s so much to learn. If we stay engaged and we make sure that we are actively participating and not feeling like we’re on the sidelines, this is just as important to us. Even knowing about you all and knowing what’s going on with you is helpful to us. It helps us love you more. It helps us understand you even when we don’t understand you most of the time, or no, I’m saying even when we don’t know what’s going on, there’s ways for us to know and learn and understand that if we’re part of the conversation. Instead, we often see ourselves as doing two different things. Oh, that’s for them.

(08:50):

This is for us. We forget that. However different our bodies are, our bodies are also very much the same. Our hearts are the same. We might go about how we communicate a little differently, but we’re still often asking for the same needs. It’s the same conversation that’s being had. We might just be having it a little differently. So we got a lot of stuff we have to work through. But there’s also ways that some of this can maybe speak to us a little bit more. How is this experience maybe targeted to women in ways that it’s not actually targeted and market to men? Sometimes that happens even unbeknownst to you. So there’s some of that. I think there are things we can do differently, but a lot of it is just encouraging men to tell the truth and acknowledge how well you really are. Like you said, go to the doctor.

(09:41):

The truth doesn’t stop being true just because you don’t go and find out the truth. Our heart health, our bodies, our minds, all that’s important. Don’t wait until something’s a problem before you go to the doctor. Go long before any problems ever show up. So these problems can be prevented. And if we really want to take care of our families, if we really want to provide and show up and protect and all these things, we can’t do that if we’re not here. We can’t do that if we’re not healthy or well inside and out. So you can look as good as you want to look. You have as many muscles as you want, but if you’re not really well, we’re not well. Our families aren’t well, and again, those things perpetuate if we’re not careful. So there are numerous different things, but much of it is just staying connected. Keep us in the conversation, talk to us, and love and encourage us to participate in this in support of you and solidarity with you, but also for our own good.

Roslyn Young-Daniels (10:45):

Awesome. Alright. Thank you, Lamman.

The post Lamman Rucker On Advocating For Health, Wellness and Black Men appeared first on Black Health Matters.

Here are the ten things we do not like about our doctors and how we would like them to improve.

They withhold the context of information.

A patient’s test results may be part of the doctor’s job, but they can be life-changing for the person on the other end of the call. The 21st Century Cures Act may have forced practitioners to offer results sooner, but delivering them without context can be jarring for recipients. Relying on digital portals without taking care to add a human component is a huge mistake.

They only focus on one aspect of your health.

It has been documented that a preoccupation with one condition can lead to misdiagnosis. For example, some healthcare practitioners are so focused on patient weight that they ignore complaints in other areas. Sometimes, their refusal to see what impacts a patient’s health can stop them from progressing in the area they are focused on. Making recommendations requires considering the whole picture to be safe.

They lack empathy.

Bedside manners are crucial to creating and maintaining a solid doctor-patient relationship, especially if that patient is managing a chronic condition, whether they have obesity or prediabetes. What works for a doctor may not work for a patient, so doctors must find a way to empathize with their patients to treat them properly. Judging a patient for non-compliance without taking the time to consider what their day-to-day life is like is ineffective and demoralizing. Without empathy, it is hard to establish trust. “Doctors are the only people on the planet who have the idea that you can tell people, ‘Here, work on this every day, and I’ll see you in two or three months,” said Dr. Steven Feldman, MD, PhD, in a study published by the Association of American Medical Colleges.

They are dismissive.

There is nothing worse than pouring out your struggles to have them dismissed. Black people, and Black women in particular, are commonly misdiagnosed even when their symptoms are glaring. Dismissing patient concerns is not how to gain their trust and resolve their issue.

They don’t explain themselves.

Spending your life around medical jargon can make you immune to how it sounds to a layperson. Doctors need to practice relaying information digestibly so patients can understand them clearly. The need for healthcare literacy is so personal. Northwestern and the CDC have created programs designed for professionals to learn how to speak with their audiences.

They don’t listen to us.

A study published by the Irish Journal of Medical Science found that perceiving their physician as unwilling to listen to them was a significant reason that people opted to change caretakers. The doctor might be the medical expert, but we are the experts on ourselves, so our voices must be heard.

They show their biases.

Systemic issues start at the person-to-person level. Everyone is entitled to their opinions, but placing them front and center can be alienating regarding patient care. However, doctors must ask themselves if invisible bias impacts their medical advice.

They lack availability.

Work-life balance is important, but failing to have options for your patients can lead to them skipping out on essential appointments or seeking other options. It is highly stressful to schedule a follow-up with your physician only to learn they are not available for months. Failing to create flexible patient scheduling options means you do not value their time.

They are often behind schedule.

When patients finally book an appointment, they are treated to the joy of squatting in a waiting room until the doctor is available. According to a report from CBS News, “The average time you spend waiting at the doctor’s office is 24 minutes.” The courtesy we’re expected to extend to doctors goes the other way to us. There are instances where we have been turned away when we’ve been ten minutes late. Punctuality is part of professionalism, even for doctors in the medical field.

They have an inefficient office culture.

If everyone in a doctor’s office is not on the same page, it creates patient issues. It is not uncommon for patients to fill out all the necessary paperwork for their appointment ahead of time, but they are asked to do it again when they reach the office. One person taking a sick day or being unable to navigate a system should not completely upend the patient’s experience with your office. This needs to change.

The post 10 Things Patients Don’t Like About Their Doctors appeared first on Black Health Matters.

“The practice of “doctor shopping” among overweight patients may be a result of negative experiences with the health care system, whether that be off-putting comments by office staff, unsolicited weight loss advice by providers, or improperly sized medical equipment and office furniture, says Kimberly A. Gudzune, M.D. M.P.H., an associate professor of medicine at Johns Hopkins School of Medicine, led the study.

In subsequent research, Gudzune noted that clinicians might avoid performing exams on patients with obesity, encounter technical difficulties, and feel unprepared when it comes to training to treat patients with obesity, and as a result, weight loss counseling became a lower priority when talking to their patients. These further impact patients who avoid screenings for cancers, from pap tests to mammograms to colonoscopies.

To find the right provider, patients might have to research before committing. The doctor-patient relationship is integral to the pursuit of their overall health. As a doctor, you should help foster a safe space to manage their healthcare concerns and your goals for them. This safe space must include all people, including those who have obesity.

Conduct a SWOT analysis to determine if your practice can be someone’s healthcare home. They are generally used to evaluate a business’ pitfalls and successes. However, this tool can be applied to any decision. In this case, it helps you approach the process methodically and dispassionately to consider what is most important to your patient.

Any patient-doctor relationship can be measured using it. This SWOT analysis will help you estimate your practice and its ability to treat different types of patients. Here’s what to consider in your SWOT analysis:

Strengths

Presenting yourself as an open slate is a strength. Please don’t make assumptions about your patient feelings or self-esteem.

• Black women have embraced their curves for years and feel more confident. Don’t detract from that. Focus on the facts instead. “Compared to women of other racial/ethnic groups, overweight and obese Black women exhibit acceptance of a larger body size,” according to Current Cardiovascular Risk Reports. Acknowledge that and use it to connect with them. Be congenial without being overly familiar.
• Learn how to market your empathy as a plus to potential patients.
• Your knowledge is a strength as well. Share the kinds of things you have learned in continuing education.
• Is there clinical equipment or a soothing environment that can make your space feel more comfortable and inviting for patients?
• Can you ensure that some chairs and robes fit them?
• Is your location convenient for the type of patients you treat?
• Do you have hours that will work with their schedule?

Start to think about the demographics of the people you treat and how you can show your support for them through consideration.

• Ask them what their communication style is. Learn how different styles work with your own.
• Work to ensure patients feel comfortable talking to you about everything, including their weight. A joint study by the Monash Business School and the Texas A&M University found that patients have difficulty asserting themselves due to a perceived “imbalance of power between the patient and medical staff.”
• Ask them if they feel like there are subjects they want to discuss. They want to tell you but can’t. Ask them if they would like someone else in the room, a friend or family member, or on FaceTime. Or offer one of your nurses. It will lead to more effective treatment.

Weaknesses

The use of the words obese and obesity can be triggering, and according to one study, it felt discriminatory to Black patients.

• Those who have obesity have seen how it leads to stigma when it comes to healthcare.
• Providers spend up to 28% less time with overweight patients, limiting patients’ ability to relay symptoms and seek solutions. That fact should inform your care.
• It’s important to know what you know and don’t know as a doctor, especially when treating someone facing stigmas. Before accepting a new patient, ask yourself if you are familiar with treating patients who share their lifestyle and concerns. Ask yourself if you give this advice to anyone in their circumstance or if you are jumping to conclusions based on looks.
• Ask your patient what their preferred language choices are and stick to them.
• Consider your language carefully. Familiarize yourself with the ways that terms and tools are evolving. This is particularly useful when discussing weight with patients.
• Before referring to the Body Mass Index, consider how it was created and who informed the research. Acknowledge its limitations so that you can establish trust. An Oxford University study found that “subtle aspects of communication, like word choice and tone of voice, influenced patient outcomes” in the weight loss arena. The AMSA has recommended physicians reconsider how they discuss weight. Exercise caution and consider your patient’s viewpoint.

How can you make this doctor-patient relationship benefit your patient’s life? Are you doing everything you need to ensure information flows two ways? How can you grow as a healthcare provider?

Dr. Courtney Whittle, MD, M.S.W. Diplomate of ABOM, acknowledges how patients react to doctors bluntly and rudely discussing their weight. Because culturally, our thickness might be celebrated in some circles while it may be deemed unhealthy in others, the shift can be jarring. “How many of us have gone to the doctor, heard someone bring up our weight, and been ready to take our earrings off,” she asked the audience during the Black Health Matters Winter 2024 Health Summit & Expo, who swiftly recognized the scenario.

“Weight is personal, and although you may be their physician, your questions can seem invasive,” the doctor continued. When listening to patient complaints about their ailments, do not dismiss them with a terse instruction to do more cardio or cut carbs. Listen closely and make sure you are doing so consistently and respectfully. The patient is not the enemy. You’re supposed to be working together.

If you sense your patient suspects bias, ask your patient if they are comfortable sharing their concerns with you and trusting that you will take them seriously. Most importantly, you must listen to them and take in any evidence they provide with an open mind. Please don’t belittle them.

Opportunities

Recent research reveals the importance of the 5A model (ask, assess, advise, agree, assist/arrange) in delivering meaningful consultations in weight management for patients with obesity. The study authors note patients with obesity often want to help set goals of losing 5 to 10% but have difficulty talking about their weight.  “The 5A model also effectively improves physician-patient communication, patient motivation, and healthcare practitioner confidence in counseling patients.”

The 5A model is multifaceted and would require training if you want to incorporate it into your practice, but it is something to consider if you have a large percentage of patients who have obesity.

When audio tapes were analyzed in the University of Oxford study, they found it was not just the words that mattered but tone and delivery when talking to patients with obesity. When weight loss referrals were given with neutrality or highlighted health issues, only 50% of participants participated in a weight loss program offered. But when it was framed as good news, there was 83% program participation.

Threats

Ask yourself what issues arise from working with you as a healthcare provider.

Review your previous charts and highlight any notes you made that could be misconstrued. Patients have access to these notes. They are a helpful tool but “may also cause patients to feel judged or offended.”

• The New York Times reported that an analysis of outpatient clinic records published in JAMA Open Network on stigmatizing language with terms that used combative, argumentative, failed, and noncompliant on charts of diabetic patients, 3.15 percent of those terms were in charts of Black patients versus 2.6 of them of white patients.
• Revisit remarks you make that are taken out of context. Keep a file of comments and complaints and check them regularly. Learn how you can do better.

These can stem from complicated factors like a potential lack of cultural competency to more practical issues like their office’s distance from your home or workplace.

• Will they struggle with parking, filling them with dread every time they have to pop over for a follow-up?
•  Are there unconscious biases you are unaware you and your staff need to uncover when it comes to obesity?

According to Gudzune, patients with obesity have a 68% greater incidence of emergency room visits, not because it leads to hospitalization, but because they don’t have the continuous care of a primary care physician.

The American College of Obstetricians and Gynecologists found that “weight bias often is implicit and beyond physicians’ immediate awareness, making it difficult to identify and remedy.

Current Psychology reports, “Empathy is crucial in healthcare required to develop healthy and effective patient communication.” This is more crucial in larger patients.

With the right perspective and environment, your obese patients will be more likely to view their unhealthy weight as a medical concern and work with you toward solutions.

Supported by an educational grant from Novo Nordisk Inc. 

The post SWOT Analysis: How To Identify the Power and Pitfalls of Your Medical Practice appeared first on Black Health Matters.

CISCRP

Presented By:

Dr. Patrick O. Gee, Healthcare Consultant and Community activist

Sandy Powell, Community Engagement Research AdvocateHope Ventricelli,

Senior Manager, Community Events and Programs, CISCRP

Yejide Obisesan, Administrative Director at Georgetown-Howard Universities

Center for Clinical and Translational Science

Information empowers patients and researchers. Dr. Patrick O. Gee, Healthcare Consultant and Community activist; Sandy Powell, Community Engagement Research Advocate; Hope Ventricelli, Senior Manager, Community Events and Programs, CISCRP; and Yejide Obisesan, Administrative Director at Georgetown-Howard University, Center for Clinical and Translational Science, discussed this at the Black Health Matters Spring Summit.

Gee was motivated to participate in advocacy after being told why he was passed over for a clinical trial by a healthcare professional. Ventricelli inquired about his experiences.

“I was rejected from the study, and when I asked why she made this exact statement, he who owns the data owns the patient, and Patrick, you can’t be in the trial because we can’t get any money,” he told the audience. “That was very devastating to hear since that was the very first time that I was able or wanted to participate in a clinical trial.”

It was hurtful, but it added context to his clinical experience. “Your data is money. Medical companies make money off of your data because they will sell it to other researchers without your permission. Make sure when you sign the dotted line, you reread it, you take your time. If the trials team is trying to rush, you get up and walk away,” he advised. “You don’t want to end up being the next Henrietta Lacks or being a part of an egregious clinical trial.”

He has studied the details of trials to advocate for himself and suggests others do the same. “One of the things that people should know before they begin with a trial is to do research on the trial,” he said.

“One of the keys for me has been to ask questions, and that’s one of the things that I think we have been accustomed to someone spewing information at us, and we’ve been hesitant to ask those questions, and so on the front end, I’m asking questions.”

Obisesan reminded the audience that they are in control of their data. “You get to read that informed consent and go through it for as long as you want. And you can ask any questions if there’s a word that you don’t understand or if a timeline or something doesn’t make sense, you can ask any questions, and also you’re allowed to take that informed consent sheet with you,” she said.

Powell shared her own experience with rejection. “I have attempted to participate in three clinical trials. I have not been accepted as a result of the data that they were looking for,” she said. She uses her own clinical experience to advocate on both sides of the research spectrum. She could seek to improve patient-researcher relations with perspective.

“One of the things that I’ve had an opportunity to do through the patients’ program is to look at it on the back end through the lens of a researcher that’s looking to do it but also able to lend a voice on the other side of the fence as part of the community,” she said. “I’ve had an opportunity to sit in some of those panels to actually lend a voice to that.”

She described how she has been able to contribute by helping to facilitate helpful interactions that provide aid to potential participants before asking for their time and energy.

“We go into communities, and we’re not going looking for anything. We’re not asking for anything, but we’re going to see how we can be of assistance to the community, and some of the things that we’ve been able to do, as a result of that, through the program is provide transportation services for the community,” she said. Her teams have also provided food and other benefits “before we turn around and say, hey, we need you for some clinical information.”

Obisesan agreed that changing methods can change outcomes. “There can be, I’d say, a mild naivete and a lack of understanding in what it really means to approach a community and ask them to participate in research, especially communities that are underrepresented in research and they’re underrepresented for a lot of historical reasons,” she said.

“There can also be a paternalistic approach to coming to communities about education,” she added.

She recommends respecting “the knowledge and the history that community members have and approaching them like a partner with humility.”

Obisesan agreed that changing methods can change outcomes. “There can be, I’d say, a mild naivete and a lack of understanding in what it really means to approach a community and ask them to participate in research, especially communities that are underrepresented in research and they’re underrepresented for a lot of historical reasons,” she said.

“There can also be a paternalistic approach to coming to communities about education,” she added.

She recommends respecting “the knowledge and the history that community members have and approaching them like a partner with humility.”

“That makes a difference in communities coming in and saying, I do want to be involved,” she continued.

The post Taking Control of Our Health: Information That Empowers appeared first on Black Health Matters.

 Black Community: Insights into the APOL1 Gene

Presented by:

Dr. Stacy A. Johnson

Sponsored by Vertex

Dr. Stacy A. Johnson addressed an engaged crowd on kidney disease, a subject “near and dear” to her heart. As the Medical Director of Vertex Pharmaceuticals, Johnson helps develop innovative treatments using research. According to a study published by Johns Hopkins in 2020, “Black Americans experience kidney failure at three times the rate of whites.” Dr. Johnson explained what kidneys are, their desired function, ways to identify that they have been compromised, and potential genetic components of kidney issues that could disproportionately impact Black people.

What are the kidneys?

Dr. Johnson explained that the organs provide important functions in the body. “They work twenty-four hours a day, seven days a week, every day to filter and clean your blood,” she said. “The kidneys get rid of excess fluid, they get rid of excess waste, they help balance electrolytes.”

The doctor’s presentation helped the audience understand what the organs look like and how they fit into the body’s systems. She described one portion of the organ as a sort of tennis racket. “Think of that as a filter,” she said. “You want a filter because your blood contains things you want to keep and other things you want to get rid of. So you can’t just have a structure that lets everything out.”

What are some of the symptoms of kidney disease?

“Sometimes the kidneys get damaged, and when they don’t work properly, you start to see some signs that you can tell that the kidneys are not working properly,” she said. Fatigue and perceived weight gain can be signs. “So one of the signs that the kidney is not working properly is accumulation of excess fluid. This might show up as swelling in your legs. It may even show up as high blood pressure because your kidneys are not removing extra salt. Then, the other thing that happens is that when that tennis racket-looking filter gets damaged, it can no longer do its job properly. So instead of keeping the good stuff like protein inside your body, it spills the protein into the urine, which is not what you want.”

Kidney disease is progressive, meaning it accelerates. “It progresses. Eventually, it can get to the point where you need to have dialysis or a kidney transplant to survive,” said the doctor.

How common is kidney disease?

Dr. Johnson revealed how common kidney disease is. “The CDC estimates that approximately one in seven adults has chronic kidney disease,” she told the audience. She acknowledged that the disease can be lying dormant, threatening unsuspecting sufferers. “The dangerous thing is that of the people, of the 37 million or so adults who have chronic kidney disease in the US, nine out of ten of them don’t even know they have it.” She shared conditions that can lead to kidney disease, including diabetes, high blood pressure, and auto-immune diseases.

What kind of research is being done on kidney disease in the Black community?

Dr. Johnson shared insights into the research on the APOL1 Gene. She outlined risk variants. “Among African-Americans, the people who had the most severe type of kidney disease actually also had these changes in their DNA,” she said.

How You Can Take Action:

The session provided valuable tips for preserving your kidney health.

•  Pay attention! Inspect changes in your body so you can accurately describe them to your doctor.
• Learn about the therapies available. If you are experiencing kidney issues, do not assume that only one treatment works for you.
• Ask your healthcare provider about the research on the APOL1 Gene and what you need to know.

The post Understanding Genetic Kidney Disease: Insights on the APOL-1 Gene appeared first on Black Health Matters.

We decided to dive into the topic of whole-body deodorants and get professional guidance to help you determine if it is worth trying. We turned to a board-certified dermatologist and dermatologic surgeon, Dr. Brooke A. Jackson, for insight into whole-body deodorants.

BHM: On a molecular level, how do whole-body deodorants work?

Dr. Jackson: Let’s discuss deodorant versus antiperspirant. Deodorants minimize odor through antibacterial properties and fragrance of some sort. Antiperspirants reduce sweat and odor. Often, chemicals such as aluminum are used to minimize sweat. Aluminum salts dissolve on your skin, blocking your pores from secreting sweat.

Over the past few years there has been some concern over the use of aluminum in antiperspirants as a potential link to cancer.

Because aluminum prevents you from sweating, some proponents of aluminum-free products believe that the action of aluminum-containing products that prevent you from sweating out toxins could eventually lead to cancer. Scientific evidence to support this claim is lacking.

According to the American Cancer Society, no clear link between antiperspirants and breast cancer has been established, and breast cancer tissue has not been proven to contain higher concentrations of aluminum. Toxins are excreted from the body through the liver and the kidneys, not through sweat.

BHM: Are whole-body deodorants safe?

Dr. Jackson: Generally, yes, let’s drill down on that. Most whole-body deodorants do not contain aluminum. However, they contain potential irritants such as fragrance, alcohol, and astringents, which change the skin’s pH, making it less hospitable to odor-causing bacteria. Patients who have eczema or sensitive skin may find these products problematic. While aluminum absorption is minimal, the effect of whole-body aluminum-containing products has not been studied.

BHM: Can whole-body deodorant be used everywhere?

Dr. Jackson: Theoretically, yes, but practically, why would you need to? These products are not intended to be body lotions. The use should be limited to those areas on your body prone to odor or excessive sweat. These products are for external use only.

BHM: Are there any potential side effects of whole-body deodorants? If so, how can people reduce them?

Dr. Jackson: Alcohol, astringents, and fragrance can be issues. Approach with caution if you have sensitive skin

BHM: In your experience, are natural whole-body deodorants safer or more effective than their counterparts?

Dr. Jackson: natural deodorants often contain botanicals and fragrances, which can also be irritating.

BHM: Do you have any product recommendations for whole-body deodorants?

Dr. Jackson: Wear breathable wicking fabrics such as Coolmax, dri-fit, and Under Armor. Try going commando at night and maintain a healthy weight, as moisture, sweat, and bacteria tend to be more of an issue in those who are overweight.

If you are considering trying this new hygiene trend, look into our list of the top 3 whole-body deodorants.

1. Dove is our first choice as it promises freshness for up to 72 hours and prioritizes odor control and skin health. This whole-body deodorant can go beyond your underarms and even alleviate chafing. Infused with shea butter and vitamins B3 and E and coming in at $11 -$13 1Dove’s unscented whole-body deodorant could be perfect for you.

2. Lume is another versatile product for odor control, as it also guarantees 72 hours of protection. Depending on the type of formula, it can be found for $20 or below; we suggest the unscented formula as it is free from essential oils and fragrance oils and fully embraces the aspects of its natural ingredients.

3. Next up, we have Native. This brand is quite famous for bringing natural alternatives to the deodorant aisles, but now, they have also joined the whole-body deodorant market. According to their website, their unscented whole-body deodorant is clinically proven to provide 72 hours of protection. It is also made without aluminum, parabens, baking soda, or talc. For $13, you can give Native a try.

The post Are Whole Body Deodorants Worth Trying? appeared first on Black Health Matters.

Presented By Nick Taylor. Director, Lead, US Public Affairs & Patient Advocacy Sanofi

Dr. Margaret Alabi, Director, US & Global Patient Advocacy

Elise, Prurigo Nodularis Patient Advocate

Dr. Margaret Alabi, Director of US & Global Patient Advocacy, led a discussion with Nick Taylor, Director Lead of US Public Affairs & Patient Advocacy Sanofi, and Elise, a Prurigo Nodularis Patient Advocate, discussed what it is like to live with prurigo nodularis at the Black Health Matters Spring Summit.

“This chronic skin disorder is marked by the emergence of itchy hard nodules that can cover vast areas of the skin, leading not only to physical discomfort but also significant psychological distress. The itching is relentless, sometimes worsening at night, making it difficult for sufferers to find relief,” said Taylor.

“This conversation is about empathy support and the collective effort to bring awareness and visibility to Stories like Elise’s,” said Dr. Alabi. “By sharing these experiences, we aim to build Bridges of compassion and understanding for this condition and hopefully. Create an encouraging and supportive community that recognizes the depth of the impact of prurigo nodularis on the lives of the persons who navigate this condition daily.”

Elise initially thought her prurigo nodularis was something else. “The summer of 2014. I had what resembled a mosquito bite. So, I did what I would normally do to treat a mosquito bite,” she said. “But from that one bump, It eventually LED and spread to more bumps forming; it just wasn’t getting better. Eventually, it spread down my arm to the next arm, spread from my legs, and all the way up my back. So it was all over my body.” Aloe and lotions failed to offer her relief, so she sought medical care.

There would be a significant time until she got answers. “The first dermatologist I went to probably took two minutes with me. Literally two minutes, he looked at my skin, and he told me I had scabies,” she said. Her training as an esthetician helped her reject that inaccurate diagnosis. She knew what scabies looked like because she had studied it. The doctor was wrong.

The misdiagnoses continued, as did the unbearable itching caused by the condition. She turned to hairbrushes to try and calm the discomfort as doctors fumbled her case.

“It continued to spread, and on the third visit, he told me I had dermatitis. So I’m like, okay, we’re not getting anywhere,” she said. Her journey continued through a path of more misinformation.

“Took a little break and went to another dermatologist. He diagnosed me with keratosis pilaris, and that was getting nowhere. So I went to another dermatologist, they said I had eczema,” she said.

“I found it difficult to find a specialist, not only one familiar with prurigo nodularis but one who dealt with a diagnosis like mine,” Elise continued. “So I didn’t receive my prurigo nodularis diagnosis until about three years later.”

The doctor she found in 2017 tested her skin instead of spewing a diagnosis after a sideways glance. “The first time I visited her. She said, okay, let’s do a biopsy,” said Elise. “Why didn’t anybody else do this? We could have cut out three years of me searching, and it’s spreading.”

She revealed how the visibility of the disease was one of the most upsetting aspects. “I don’t want to show off my skin. I don’t want to be seen as disgusting or [have] people. Looking at me weird,” she said.

Her coworkers tried to offer her encouragement, but they could not relate to her feelings, as she had lived into adulthood without this condition and now had to deal with its constant presence.

Elise explained how the average person’s lack of a reference point about her condition impacted her workplace. “I remember just a couple instances where I had clients that were uncomfortable with me touching them, and I had to reassure them I had to reassure them. I’m not contagious,” she said.

“Having this skin condition just reaffirmed as a human race that we need to treat people how we want to be treated. Put yourself in my shoes if you can, and try to people treat people a little bit more kindly.”

Elise finds comfort in a community like many people with chronic conditions. “Knowing that I’m not alone and that I have somebody walking in my shoes, it does help a little bit because I can talk with them,” she said.

The post Living With Prurigo Nodularis appeared first on Black Health Matters.

Presented By: Matthew L. Boyd, Pharm.D. Senior Oncology Medical Science Liaison

Johnson & Johnson Innovative Medicine

Matthew L. Boyd, Pharm.D., shared information on efforts to diversify clinical trials at the Black Health Matters Spring Summit. He spoke from personal experience. “I work with a lot of those community and academic institutions to bring our innovative trials to those institutions to support and take care of patients, hopefully,” he said.

He revealed that of the 24 out of 31 trials approved between 2015 and 2017, “less than five percent of them had Black or African-American enrollment.”

“So, think about that, all the cancers that we particularly treat from non-small cell, lung cancer to prostate cancer, to multiple myeloma, which disproportionately affects African Americans and Black patients, less than five percent of those,” he continued. “We cannot just be okay with that number being where it’s at.”

He acknowledged that the medical establishment has not always respected minority communities. This has led to significant mistrust among certain demographics.

“That leads to African Americans and minorities being less likely to go to their doctor,” he said. “There’s a lot of mistrust opportunities there.”

He described other hurdles to engaging diverse participants as well. “We also have some communication barriers. We know that many of our health systems are based in what can be described as almost redlined areas,” he continued.

Dr. Boyd explained the steps that need to be taken to engage those people. “You’ve got to travel there,” he said before pointing out other factors contributing to the staggering statistics. He emphasized the importance of “being able to talk to patients directly where they are in their neighborhoods and having opportunities to engage with patient populations and community leaders.”

Mistrust and redlining are not the only issues affecting diversity rates.

“There’s a lack of diversity within our healthcare institution as well,” he said. “So the position that you’re seeing, the nurse that’s going to be treating you, the phlebotomist that’s going to be drawing your blood, do they look like you?

Is that someone you can talk to, someone you can trust to tell you what’s currently happening?”

Misunderstandings about financial commitments can deter patient participation. They can avoid seeking care and information because they assume they will be charged.

“One of the things that sometimes people are not told or are not counseled on is that many of the clinical trials I work in are fully funded. Meaning you are going to get that medication for free. You don’t have to pay for it,” he said.

Assistance with enrollment allows potential participants to make an informed decision.

“You’re enrolled in it. We’re collecting data on it. But you get that treatment for free.

One of the things that we’re also doing is ensuring that those items are passed down on to patients so that you’re informed that you’re getting that treatment for free so that people can talk you through enrollment,” he said.

The Research Includes Me initiative has a website that clearly defines the parts of a clinical trial.

Dr. Boyd and his colleagues consider “the convenience factor” as well, knowing that practical concerns can prevent a patient from seeking care. “It’s very hard for a mom or dad who has just received this particular diagnosis to say, I’m going to be enrolled in this clinical trial, and I’m going to go take all these labs, and I’m going to go and deal with the parking situation,” he said.

“The logistical burden that patients have to go through. That’s been a big factor that’s led to enrolled patients, who then decide I will no longer be enrolled because there are too many appointments.”

The next phase in intentional inclusion in clinical research is building partnerships with institutions prepared to serve different types of people. Providing them with the proper resources to extend their offerings is imperative.

“It means going to different institutions, helping them build out the infrastructure to actually be able to do research at that particular institution, providing grant funding to hire and train people,” he said. Learn more about Research Includes Me here.

The post Diversity and Inclusion in Clinical Trials appeared first on Black Health Matters.

Presented by: Sherell McDearmon,

Director, State Strategic Alliances at Bristol Myers Squibb

Congressman Glen Ivey

Dr. Jennifer L. Ellis

Sherell McDearmon, Congressman Glen Ivey, and Dr. Jennifer L. Ellis advocated for civic engagement to promote healthcare access during the Black Health Matters Spring Summit.

“We are all gathered here today to embark on a journey that delves into the fabric of the community’s health landscape, understanding that reliable access to healthy food and medical care in a safe environment are the basics for good health,” said McDearmon. “Many of you know the surprising fact that your ZIP code has more impact on your health outcomes than your DNA,” she told the audience as they shook their head at the disturbing fact. She shared information about the grants issued to advocacy groups on behalf of Bristol Myers Squibb to help patients practically handle barriers to treatment.

“Every day, in every state, every city, including here in Washington DC and every country worldwide. Patients are waiting. They’re waiting for relief from the fears and burdens of illness and disease. They need hope, hope that tomorrow will bring Improvement and change,” she said. “BMS is proud to have committed grants to independent patient advocacy groups, community-based and faith-based organizations, medical societies, and healthcare nonprofits to start and expand community health worker and patient navigation programs,” McDearmon continued.

“Grants to independent organizations assist patients with social care needs, such as transportation to clinics financial, assisting assistance, housing, healthy food, as well as guiding them passionately through complex, clinical care Journeys.”

The Congressman approached the crowd with extreme vulnerability. He discussed his difficulty with managing his diet and the challenges experienced by his family members as well.

“I wanted to be clear that I’m not talking down to anybody here. I ain’t better than anybody in here. A lot of the things we’re trying to do through these policy outreach efforts are aimed at people just like me who are doing things that are slowly killing ourselves, and we need to change that path,” he told the audience.

He acknowledged the gravity of the situation for Black people facing medical bias and other systemic issues.

“Our whole community needs to get serious,” added Congressman Ivey. “Conferences like this are a huge step in the right direction.” He explained how state lawmakers determine who can access care in their districts. “It’s different for us. So we have to make sure that the people in charge, whether it’s in politics or heading up the health care system or running hospitals, they have to know that we will hold them accountable,” he said.

Dr. Ellis described how one patient she encountered was so desperate to acknowledge her discomfort that she went to desperate lengths to obtain the attention of the professional entrusted with her care. Facing the stigma of mental illness exasperated the patient’s situation.

“She thought she was having a heart attack. So she pulled the fire alarm because no one was coming to help her,” said the doctor. It turns out the patient’s desperation saved her life. She was indeed having a heart attack. She spent three days in the hospital without treatment.

The doctor also advised the women in the audience to familiarize themselves with the ways heart attack symptoms differ in women. “This audience is a little bit more female than male. So, one of the other things with women is. We get into trouble because sometimes our heart attacks are presented differently,” she said. She also recognized that other diseases like anorexia are not absent in the Black community, but they show up in different forms.

Dr. Ellis recommended relying on repetition to seek better outcomes with the flawed system as change scrolls in. She noted how emergency room doctors could fail to assess patients accurately due to narrow training and subconscious biases. Dr. Ellis suggested asking pointed questions like “Could it be my heart,” repeatedly even if you are being dismissed by the practitioner you are speaking to.

“They’re not doing this on purpose. They are not bad people. That ER doc is just a product of the environment and his upbringing; he is not hurting you on purpose. But he is not necessarily thinking that you have heart disease because that’s not in his matrix. So, part of our job is to educate him a little bit,” she said.

The post From Awareness to Action: The Power of Advocacy in Health Equity appeared first on Black Health Matters.

Dr. Camille Adam Jones, Psychotherapist and Wellness Advocate

Roslyn Young-Daniels, Founder and CEO of Black Health Matters

Lamman Rucker Film and Television Star

Roslyn Young-Daniels spearheaded a spirited conversation about mental health in the Black community after the Black Health Matters Spring 2024 summit.

They emphasized the need for transparency and unity.

“This has been an ongoing effort by people in our field to silence the shame and to remove the stigma in mental health concerns in the Black community,” said Adam Jones. She connected health issues that face deep stigma in society to the need for mental health care. “Substance abuse, domestic violence. You know, all of these are often rooted in mental unwellness,” she continued.

Many of these were discussed at length during the national social distancing spurred by COVID-19. “The isolation in COVID allowed everybody to say what is happening worldwide.”

The trio discussed the need for intersectionality in these discussions.

Young-Daniels expressed a desire to include more Black men in conversations about their health and wellness and that of their loved ones. “Now, if you look around this room, it is dominantly women,” she said. “So I asked Lamar, what can you say to our brothers so they feel encouraged to come? And he said, make a place for them at the table.”

Rucker, a host at the Summit, was initially supposed to introduce the two experts and bow out, but he felt welcome to participate because of their warm exchanges and the vibrant audience. “He’s making sure we’re making a place at the table in this discussion,” Young-Daniels added.

The world may have sped back up, and the mask mandates may have been lifted, but the need for mental health care remains more urgent than ever.

Dr. Adams-Jones described how she put her physical health at risk due to an inability to slow down and prioritize. When she was experiencing a medical emergency, her husband told her, “Camille, just stop.”

Her brain would not let her absorb the advice or set the boundaries she needed.

It was difficult for her to pause even while panicking. “I did not know how, and then we got to the hospital, and it was a Black nurse, and I’m texting work. I’m dealing with an HR nightmare, and she says, let me ask you something. Is that text message worth your tomorrow,” she recalled. The question was sobering.

What she was experiencing was a rash onset of superwoman syndrome, something that plagues many Black women. “I believe, in part, we must own some of this. We gotta take the S off our chest and stop trying to be Superwoman,” said Dr. Lowry Lomas.

Rucker described similar pressures men face, who are less likely to gather to discuss it the way women do. “Things are just as real for us, too, and we don’t often know what to do; we don’t have anybody to talk to, even you. You live with us, you’ve birthed us, you’re our sister, you’re our lover, our grandmother. We can’t talk to you; you don’t know how to talk to us, and when we talk to you, you don’t listen,” he said.

He expressed his perspective on the gaps in communication between men and women, stating that men desire a safe space even if they don’t always show it.

“We need you, we want you, trust me, don’t let none of these dudes tell you. They don’t want to be with somebody. We are doing our best to act. Like we don’t need you and focusing on all this, other superficial foolishness, all its fake swag, all this stuff,” he said. “It’s a lie. But that’s our defense mechanism. That’s also how many of us are socialized. Don’t fall into that trap.”

Dr. Adam Jones recommended looking inward before prioritizing romance and creating space for yourself. “As a therapist, I have so many people out here dating who are unavailable to date, brokenness, so thick. Just grieving hard, just nothing fixed, nothing unpacked,” she said.

“What you were doing is just contaminating someone else’s life, producing toxicity to raise children, amongst bringing this grief into the entire community,” she continued.

“When you decide to say, I’m unavailable, I’m gonna sit in the house. You’re doing a community service and a self-care service for yourself.”

The post Your Mental Health: Setting Boundaries Unapologetically appeared first on Black Health Matters.

Presented By JaBaris D. Swain, Medical Executive, Health Systems Integration

The Janssen Pharmaceutical Companies of Johnson & Johnson

Dr. Shelina Ramnarine, Director Of Our Race To Health Equity Community Engagement at Johnson Johnson

Dr. JaBaris D. Swain and Dr. Shelina Ramnarine highlighted how inclusive medical illustrations can aid confidence and trust in healthcare professionals at the Black Health Matters Spring Summit.

They began by asking the audience how often they have encountered medical imagery that reflects them. The response was predictably underwhelming. “Imagine how challenging it must be when you go into the doctor to get care and you’re not even represented in that setting,” said Dr. Ramnarine.

“Forty-seven percent of dermatologists and dermatological residents in the U.S. thought their training was inadequate for preparing them to identify and treat conditions on dark skin. That’s a high percentage. That’s almost half,” she continued. “We have another statistic that says 64.6 percent of medical respondents note that access to inclusive medical illustrations would significantly help them diagnose and treat patients of color.”

She stressed the value of a proper education. “We need to ensure that all medical professionals that we see can treat Black and Hispanic patients.”

Dr. Ramnarine noted that increasing the rate of professionals entering the field with this knowledge would also be useful. “Patients of color, we know, are more likely to seek help from practitioners that look like them because they can understand and relate. They know what things look like on that skin, so we do a lot of work diversifying the pipeline of healthcare professionals.”

She explained how Johnson & Johnson is helping to change the materials available to educate doctors and students. “Illustrate Change is an initiative to build the largest medical library of medical illustrations. So, it started with 25 illustrations and some research we were doing on maternal mortality in Atlanta. We were trying to understand why the rates of maternal mortality are higher in Black women. One of the things that came out of the market research was that patients didn’t feel seen when they went to the doctor’s office because no imagery represented them,” said Dr. Ramnarine.

She shared that these resources are free and accessible. “These illustrations are available on the website free of use. For those of you who may work at a health center or individuals who are patient-facing, advocate organizations, the illustrations are available to download and use in whatever setting you like.”

The illustrations aid patients as well. “If you’re a patient and you’re trying to understand what something looks like for me, and we know that breast cancer, for example, is different in black women, they tend to get triple-negative breast cancer. You want illustrations that you can relate to and look like that on your skin,” she said. “When patients see themselves depicted in medical illustrations, they feel understood.”

Dr. Swain, who helped work on the site, demonstrated the need for the initiative by asking for audience participation. “I challenge everyone if to take a moment to Google psoriasis,” he said. “When you do it, all the images will be of White skin.”

“Think about when you go to a physician or a dermatologist, and you show them your hand or show them, pull up your shirt and show them a rash, you know, a lot of them will have to go to a medical resource, to try to identify what the rash is but the overwhelming majority of those resources are depicted on white skin,” he continued. He recounted a childhood story to drive home further his point. “This sounds crazy, but I remember when I was growing up, a young woman had a darker complexion on the back of her neck, and people were like, oh, they need to shower, and she’s not clean. She needs to wipe her neck. But that actually is an indication called acanthosis nigricans, and it’s an indication that the patient may have diabetes,” he said. “If that’s not depicted in an illustration or graphic, then that can be missed.”

Learn more about Ilustrate Change here.

The post IN LIVING COLOR: Building Trust Through Representation in Medical Illustrations appeared first on Black Health Matters.

Please note that National Silence the Shame Day is May 5, 2024, and Silence the Shame and Microsoft will also launch an app on that day.

Corynne Corbett (00:12):

Hi everybody. I’m Corynne Corbett, editorial director of Black Health Matters, and I have the pleasure of chatting today with Shanti Das, founder of Silence, the Shame, and host of the Mibo Show. And we are going to be talking about a really important topic today, which is mental health and wellness. And we’re going to talk today about why Shanti started, silence the shame, and talk today about the importance of speaking about the importance of mental health and wellness and speaking up about it, and stop keeping all of this to ourselves. So welcome Shanti.

Shanti Das (01:09):

Thank you Corynne, for having me. I’m so grateful to you and Deidre and everybody at Black Health Matters. You all do a phenomenal job and it’s an honor to be on your show today. Alright, thank

Corynne Corbett (01:18):

You. So tell me about your background and then what led you to start your nonprofit Silence of Shame

(01:26):

SSS.

Shanti Das (01:28):

Absolutely. So my background is in the music industry and entertainment. I got my start in the early nineties working at LaFace Records, helping to promote and market artists like Outkast Usher, TLC, Toni, Braxton, few household names. And I had a pretty great career over a 20 year span, actually working at a label, but over 25 years doing live events and marketing artists like Johnny Gill and Kelly Price and others after I left the label side. But the reason why I started silence to Shame Corynne is because I went through a lot of my own emotional health and wellness issues, particularly stress related, depression related when I was working in the business in the 2000 decade. But I didn’t really know how to deal with it in terms of my stressors. I wasn’t going to therapy, I didn’t have healthy ways to cope. And so I ended up quitting and walking away from my job in 2010 and came back home to Atlanta.

(02:32):

And then in 2014, my best friend took her own life and that kind of sent me on a downward spiral. And so all of the other stressors and unresolved trauma that I was dealing with came to a head. And I also think it’s important to mention that when I was just seven months old, my dad died by suicide. So this was something that had been kind of this cloud hanging over our family for a very long time. So once I got the help that I needed, I started just openly speaking to friends, family, excuse me, anyone that would listen about what I had gone through and how I was on this journey to silence my own shame. And so started a hashtag, and then the organization was formed and we got our 5 0 1 C3. And here we are seven, eight years later and we exist to educate and empower communities around mental health and wellness. And so I consider myself a mental health advocate and we support Black and brown communities and the work that we do and ultimately the community at large and really just want to help erase stigma. And we look at ourselves as that step before therapy because there is still so much stigma, particularly in the Black community, which being a Black woman, I just find that a lot of us still need the support but are ashamed and embarrassed to go and seek help.

Corynne Corbett (03:52):

And I agree with you. I come from a family of first preachers generation two generations ago, preachers current generation, six therapists in my family, six therapists in my family. But still there is serious stigma around it. But at the same time, we see so many people dying by suicide because it’s not taking your own life. You are choosing to die by suicide. And there are young people doing this, so we cannot ignore this. This is an epidemic. So we need to talk about this because there are children doing this. Who,

Shanti Das (04:52):

And lemme say, it’s interesting you said dying by suicide because a lot of times in our community, we’ll say committed suicide. And I stopped saying that once I learned it denotes a criminal act. And I would also tend to say that sometimes people aren’t choosing, in my opinion, Corynne because they aren’t in their right frame of mind. Exactly. So they’re dying by suicide. But I didn’t want to die even taking myself, for example, I didn’t choose to die necessarily. I just couldn’t stop those thoughts in my head. So, in all fairness to the suffering people, sometimes it feels like a choice, but then it’s uncontrollable on our end. And so we either need medical support or intervention with trauma therapy and that sort of thing to really help shift our thoughts in the narrative.

Corynne Corbett (05:36):

Right. And so, as I mentioned earlier, I have had a couple of other podcasts, and I have interviewed highly functioning people who are no longer here, Ericka Kennedy and Chesley Krist. Oh wow. So, for me, it is a really eye-opening thing, I will say, to talk to people who are vibrant or seemingly vibrant, who are functioning, who are talented, who are struggling internally, who have issues that still can’t choose an alternative such as that. Right. So, having an organization like yours is a lifeline. It is a very important lifeline. So thank you. And I think that people, so for people who are struggling with the idea of therapy, this is an important step for them.

Shanti Das (07:15):

It is. And so we do a lot of what we call community conversations where we’ll have panel discussions with people in everyday life sharing their lived experiences, mothers, educators, you name it, various backgrounds, talking about some of the stressors and things they deal with. And we also include a lot of really great clinicians, whether they’re psychologists or psychiatrists, right, because psychiatrists are medical doctors that prescribe medication, and psychologists do more talk therapy. And so we try to make sure there is a well-balanced range of voices, if you will, on our panels to provide the best information possible. We also have a heavy emphasis Corin on youth and young adults. So we have these programs geared towards youth that are our Teen Cope clinics, and we provide peer to peer support and informational panels. We also do wellness stations where we give them healthier ways to cope, teaching them how to do their own podcasts like this, art, drawing, or building a bike.

(08:22):

Just different things that they can do to occupy their minds when they’re feeling sad and that sort of thing, building up that resiliency inside of them. We also, Corynne just launched our Silence, the Shame University. It’s a program called Climb Up, specifically geared towards college students. And it’s a six month training program. And we are so proud that we have our first cohort here in the state of Georgia with over 28 college students. And it’s again, teaching them leadership skills, but with a special emphasis on wellbeing. We have our own podcast, a Silence Shame podcast that people can tune into. And then lastly, I’m really excited about May, as you mentioned, is mental health awareness month May 5th. We actually have our own day, May 5th is National Silence Shame Day. So this year on May 5th, we’re going to be pushing the community towards our very own silence shame app that will be available on your iOS phones or Android.

(09:16):

We have partnered with Microsoft to bring this app to the community. Yes, there are a lot of other wonderful apps in the marketplace, but we do hope that people will utilize our app and see it as a place that they can go to and provide encouragement, give mental health literacy so they can learn about some of the mental health challenges and disorders also encourage you to do mindfulness and get active and that sort of thing. So we’ll have a daily dose and meditation inspirations, and we’re going to have videos from different influencers throughout the months that we encourage people to do their own little five minute, 10 minute meditations, whatever works for you. So we just want to be able to bring additional resources to our community and it’ll be free on your phones. And so we’re incredibly excited about that. So yeah, we are just trying to do our part to continue to help erase stigma and really build communities and make people in the communities more resilient and have healthier ways to cope.

Corynne Corbett (10:18):

So is your hub primarily in Georgia right now?

Shanti Das (10:23):

It is. We are based out of Atlanta, but we do do national programs when we of course have the funding for it. Just some years ago we did a seven city team mental health tour with Jack and Jill of America. We also, in 2020, we were the mental health charitable partner for the NFL Players Association. So we’re about to apply for another grant with them. So you may see us speaking at events in New York. And for me personally as a mental health advocate, I share my story all around the country as well as some globally. So I’m always putting so shame at the forefront. I just spoke last month in New York at Lincoln Center for Women in hip hop. And so again, but it was about wellness, it was about self-care. Anytime I can find a way to insert myself for so shame and certainly bring the topic to the forefront, I try to answer the call.

Corynne Corbett (11:18):

Yes, yes, yes. I think that’s important. Let’s talk a little bit about the podcast, Mibo Show.

Shanti Das (11:23):

Yeah, so it’s funny, I’ve been this mental health advocate since, again, I mentioned almost taking my own life in 2015, but also I think there’s mental health and then there’s physical health. So I just look at it as health now. So I really try to think of myself as someone that lives Corinne at the intersection of health and culture. So about two, well, let me start here. Five years ago I lost my sister unexpectedly to a blood clot that was a result of a leg injury that she had and the blood clot had formed and she wasn’t aware of it. And it was the first time she had flown. And so there were probably some other underlying things going on. And I think the blood clot led to a stroke and she was gone within 20 minutes to say that was devastating as an understatement.

(12:11):

And then my mother had suffered with Alzheimer’s for about 12, 13 years. And so after my sister passed, I became her sole caregiver watching my mom deal with the Alzheimer’s and being there for her also, she had diabetes and hypertension, and then my brother and now, so it was three siblings now, I mean two siblings. And now I have only one sibling, but my brother suffers with heart disease. And then I, two years ago had my gallbladder removed. So I was like, I really got to also pay attention to a lot of the physical health issues that are happening within my own family that truly, truly plague the Black community. And so I said, I want to start my own company called Ebo, MI for mind, and BO for body. So it’s all about mental and physical wellness. So I launched the Mi Ebo show last year and dedicated it to hip hop 50 and Johnson and Johnson is one of my supporters.

(13:04):

And they provide medical experts for each episode or either a community partner for each episode to talk about which specific therapeutic areas. So I interviewed last season everybody from Mc L to Yo-yo to Charlemagne to Eric, sermon on Heart Health and Roxanne and Shante and I talked about eye health and that sort of thing. So I’m excited about season two, launching on May 1st, and I’m going to have the legendary DJ D. Nice. And we’re talk about Black men’s mental health, and we have Tisha Campbell coming up on this episode, Erica Campbell from Mary Mary. And we’re just in so many more and we’re going to be talking about various health issues either that they’re dealing with or that they’ve seen their family members go through. And so that is why I am just so grateful to you all at Black Health Matters for seeing what I’m doing. Also even just outside of Silence of Shame and really just bringing the conversation about health to the forefront of our community.

Corynne Corbett (14:01):

But I think in terms of what we are both doing, it is about elevating conversations. Number one, looking at what we do as it’s about saving lives. Really what we want to do is saving lives. I come from an editorial background, but I also come from beauty and that’s pretty, that’s cute. You come from music, that’s cute. But really at the end of the day, at the point in which we are in our lives, we really want to do more than things that are cute. We want to do things that are meaningful and purposeful,

Shanti Das (14:42):

Purpose-driven work, to your point in saving lives, saving lives. I’m 53, I’m dealing with menopause. That’s another podcast conversation another day. And so many things are happening to my own body. And I look at my family and the comorbidities that existed within the family, and I’m like, okay, hold up. I really need to pay more attention about what I eat, how I move, what’s going on. And especially working, coming from the music industry, we know that community needs it and I want to be an inspiration to those folks so that while they do have these really rigorous schedules that they are pouring back into their lives mentally and physically.

Corynne Corbett (15:21):

Exactly. Exactly. So as, no, it

Shanti Das (15:25):

Just mind, body, health,

Corynne Corbett (15:27):

Mindbody, health and longevity, those are the things. We encourage all of that and providing information so that we can see people live. Maybe we can be talking about living to a hundred instead.

Shanti Das (15:45):

That’s right. That’s right. Absolutely.

Corynne Corbett (15:50):

What advice do you give, do you have for us to encourage the next generation to be mindful of their mental health?

Shanti Das (16:15):

That’s a great question. I’m sorry. Were you going to No.

Corynne Corbett (16:18):

To be mindful and I guess to be kinder to themselves as well.

Shanti Das (16:24):

It’s funny you say that because that’s how I was going to start with something like that. So thank you Corinne for that question. So my advice to the next generation and being kinder to themselves is first of all, just giving themselves grace. That’s probably a word that the younger folks have heard their moms or grandmoms or pop pops refer to. But it really is something, and it is that kind of unwarranted favor from God. You can give yourself that unwarranted favor, favor that you don’t think you deserve, but that you truly actually deserve. It’s being a little bit more kinder, more gentler walking up. I was speaking last week to a gentleman, Dr. J Barnett, who does a lot of work. He’s a Black male therapist and former NFL player, and he talked about waking up more with a sense of ease instead of just jumping up so quick and putting all that pressure on yourself first thing in the morning.

(17:17):

So for me, I like to wake up and pray, and if that’s not your thing, wake up and do meditation or just wake up and be still. Sometimes there is beauty and stillness. It’s beauty and silence. So you can sit there and process through your feelings before you get your day started. That is eating breakfast in the morning and you don’t have to go and have a full breakfast at IHOP or something like that, but put something in your body, drink water, start the day from the purest form that you can, putting good things into your mind and good things into your body. The other thing I’ll say is be kinder to yourself in terms of taking care of your body. It’s so important that we go to the doctor that we get physicals. People might say, oh, I’m 25, I’m 30 years old. I don’t really need to do that.

(18:11):

Well, yes you do. It’s important just to have that checkup, right? Check in with your mind and check in with your body to see how you’re doing and share that with your peers. Oftentimes, it’s hard to open up to other people. I tell people, get yourself a starting five. What does that mean? We need five people in our lives that we can trust. It could be a doctor, it could be a confidant, a spouse, a girlfriend, whomever you feel like you can trust, a pastor, a life coach. Make sure that there are a few people that you can check in with on a regular basis about mind and body health because not all of your friends will understand and get it, but you need to surround yourself with life-minded individuals, and take charge of your life when you are at a young age. And as you’re starting to grow and your body starts to change, join support groups and don’t keep that information to yourself.

(19:03):

The other thing I would say is also find healthy ways to cope. For me, when I was working in entertainment, it was a very, and I’m sure you can attest to this, it’s a very social industry. There’s always a dinner, there’s always a luncheon, a gathering or something. There’s always champagne and cocktails flowing. And for me, sometimes when I was sad, I would turn and drink a cocktail instead of finding a healthier way to cope. So learning what you enjoy to do, whether that’s exercising, swimming, going fishing, even traveling for me kind of sets my mind and spirit free. So kind of tap back into your inner self and find what things work for you. Again, it is all about finding healthier ways to cope. And I wish I had have had some of those ideals, if you will, and principles and things that I stood on when I was a young girl working in entertainment.

(19:57):

It was just work, work, work, work, work. Amen. I sacrifice so much my mind, body, my family, missing family events and different things. And now here I am 53 years old, my sister’s deceased, my mom’s gone, and I’m just kind of resetting my life right now, if you will. And so you got to be more kinder to yourself. You have to learn how to have healthy ways to cope. You got to try to eat and do the best you can. And that’s not to say everybody’s going to be perfect there. You get your cheat days in, but it’s about having, and I don’t even really believe in work life balance. I think it’s work life rhythm, because life is going to life. You’re going to have changes, you’re going to have ebbs and flows, and you’re going to have good days and bad days, but it’s about trying to weave in those healthy practices to try to help you along the way so that you can actually try to do the absolute best that you can and have those accountability partners that can encourage you to pour into your mental health or to pour into your physical health.

(20:58):

Again, that is why I love you all newsletters, Black health matters. You’re always bringing so many important things, whether it is mental health or physical health to the forefront for our community. And it’s those great reminders. And so yeah, subscribe to your newsletter so that you can know what’s going on. But we have to educate ourselves and we really do have to care about it because the one thing I can say is I’ve lost a lot of people over the years, whether it was due to mental health challenges or just physical health challenges, and their bodies succumb to diseases. And it is up to us because we know that there’s so much in this world that makes it hard for us to have access to good healthcare, to have access to good clinicians and good therapists. And so we have to really educate ourselves and try to stay in tuned as much as we can.

(21:46):

And we have to advocate for ourselves as Black folks. We know when we go to the doctors and hospitals all the time, we don’t always get the outcome that we want, and sometimes we don’t ask the right questions. So educate selves, support organizations like Silence, shame, who are out there trying to educate you about mental health and wellness, and put you towards the resources and all these other great organizations that are doing good work. It really is up to us to take care of our minds and our bodies. And of course, spirit is always constant in my life. So, mind, body, and spirit are actually a real thing. It’s not just a cliche and something that I say absolutely, and that is how I live my life, and I just want people to be more kinder to themselves and just try to live by those moments.

(22:31):

I think that’s why what I ended up calling my organization is so important because, and again, going back to Dr. J Barnett, he’s so profound. Y’all should look him up. King j Barnett on Instagram, he said something else. He said, shame loses power when it’s exposed. That’s good. Whether you expose it to a lot of people or to one person, you are silencing that shame within your own life. So get the help that you need. It is nothing to be ashamed about, nothing to be embarrassed about. And to your point, we are in the business of saving lives. We don’t want anybody to think that suicide is an option, although we know some people do succumb to it. And as I was saying, even with my own father, I forgave my father years later because I realized my dad was sick and he wasn’t in his right frame of mind.

(23:17):

I know he wouldn’t have willingly left his wife and three young children, but he was struggling and he was sick. And so I just want people to be healthy. I want us to have healthy minds, healthy bodies, but we got to do the work. And it starts with us standing up for ourselves and giving ourselves grace and showing up for ourselves as we show up for everybody else. We show up to that job every single day, or we show up on the weekend to the little league with our kids, show up for yourself. Stop. Especially Black women, I’m talking to you. Everything else. Stop putting yourself rather on the back burner for everybody else because when we are dead and gone, life continues. And people will say, oh,

Corynne Corbett (24:03):

That part right there.

Shanti Das (24:05):

I loved her. Karen was amazing, but oh, I got to book this flight. I got this trip going. Life goes on.

Corynne Corbett (24:12):

Very true. So

Shanti Das (24:13):

Take care of ourselves while we are here, while we’re trying to take care of the rest of the world, we still got to take care of ourselves. So you got to budget in time for you, just like you do everybody else.

Corynne Corbett (24:23):

And I’m going to add one more thing. Stop holding grudges over little things.

Shanti Das (24:28):

Oh, yes. Because that leads to stress and anxiety, which can, here’s the

Corynne Corbett (24:33):

Thing,

Shanti Das (24:34):

Mental or physical health challenge,

Corynne Corbett (24:36):

Right? Because if it’s not life and death, at the end of the day, it doesn’t matter.

Shanti Das (24:41):

That’s right.

Corynne Corbett (24:43):

Hundred percent and of the day, it does not matter. And that’s what grand scheme, that’s the thing. If you have not been through really hard challenges, you don’t learn that lesson until it’s really too late.

Shanti Das (24:56):

That’s right. And I’ll tell you, Corynne, I used to get so stressed out, even just at the red light or people driving so crazy, and it would just totally change my mood and the way I approach things for the rest of the day. And so now sometimes when people stress me out, I use this breathing technique called the 4 4 8. And instead of yelling expletives at somebody, I’ll breathe in for four seconds, hold it for four seconds, and then do a long exhale for eight. And I’ll do several repetitions of that. And it really is a good way to recenter myself. And to your point, it’s like not sweating the small stuff. I’ll just do a breathing technique like, you know what? You’re not going to steal my joy. You’re not going to steal my peace today. No, and that is a great point. And it’s a good way to live. Right?

Corynne Corbett (25:45):

Well, tell us how we find silence to shame.

Shanti Das (25:49):

Yeah. So you can find silence to shame on our website@www.silenceshame.com. You can follow us on Facebook at Silence th Shame, or you can follow us on Instagram at Silence the Shame.

Corynne Corbett (26:06):

And

Shanti Das (26:07):

If you want to relate to our organization, we are a 5 0 1 C3 nonprofit. You can text the word silence, S-I-L-E-N-C-E to 7 0 7 0 7 oh,

Corynne Corbett (26:19):

Okay. And then the podcast.

Shanti Das (26:22):

Yeah, saying you can listen to the mibo Show. You can binge season one, or you can check out season two. Again, that’s launching in May at the the mibo, MIBO show. It’s on YouTube for the video version or at the Mi IBO show on all audio platforms for podcasts.

Corynne Corbett (26:40):

Wonderful.

Shanti Das (26:41):

Please make sure to

Corynne Corbett (26:42):

Subscribe and rate us as well. Wonderful. Shanti Das, thank you so much for joining me today. Make sure you follow Silence to Shame and watch the Mibo Show. Folks. Thanks again. Thank you. Have a good day.

The post Shanti Das Speaks To Us About Her Silence The Shame Platform and Making Health & Wellness A Priority appeared first on Black Health Matters.

Beyoncé’s recent unveiling of her natural hair entered the chat, and Pandora’s box opened. For years, the singer’s hair fueled endless rumors and speculation, highlighting a troubling gap in our understanding of hair health and care. This gap has led to misinformation within our community and contributed to the increase in hair loss. Our community is bombarded with an overwhelming array of hair growth remedies. Often, these products promise exponential growth and flawless retention. However, the reality is more complex.

Everyone’s Hair is Not The Same (Not Even on Own Heads)

Various combinations of hair types and textures make up one head of hair. Shaped by oval follicles, textured hair naturally grows outward and upward in a curved, coily, or wiry pattern. This unique growth pattern is a flat helical twist that defines the curl. Textured hair often struggles with dryness and length retention. The natural oils (sebum) produced by the scalp have difficulty traveling down the hair shaft due to the bends and curves, leaving the hair drier, brittle, and prone to breakage, especially on the ends.

Next time you do a length check, keep these factors in mind. If your hair grows out and not down, you most likely have an oval-shaped follicle, and your length may look like an afro or coils and curls that stack on top of each other v. straight and wavy hair that tends to grow flat and down. Genetics plays a leading role in determining how our natural hair grows.

Locs, for example, thrive with minimal manipulation due to their structure. Relaxed hair faces a different reality. The new growth at the root has a different texture than the relaxed strands, creating weak points prone to breakage. This is due to the relaxer altering the hair’s chemical structure and weakening the natural (disulfide) bonds that strengthen hair. Braids can also promote growth by minimizing manipulation, similar to locs. However, leaving them in too long, product build up on the scalp, using too much synthetic hair or braiding sections too tight can lead to breakage and scalp irritation(folliculitis). It’s important to remember that long hair isn’t achievable for everyone.

Diet & Lifestyle

Beyond the growth cycle, diet, medical diagnosis, and lifestyle choices significantly
impact hair health. A balanced diet rich in essential nutrients like vitamins A, B, C, D, E,
iron, and protein provides the building blocks for strong hair growth. Some medical
diagnoses like thyroid disease and high blood pressure medications can
disrupt hair health.

Rethinking the Growth “Fixes”

Some of the oils can cause the hair to dry as most oils are sealants and will seal in the hair’s condition; for example, if you put oil on dry hair, the oil will seal the dryness. To keep hair healthy, it needs moisture. Humectants, like vegetable glycerin that attract water to hair strands, are ideal for moisture retention. Emollients, like shea butter, coat hair to prevent dryness and itching. However, occlusives, like coconut oil, can build up on the hair shaft and clog the scalp. Not all oils are created equally. Some can contribute to hair loss and thinning. To find customized solutions for your hair, check out myavana.com.

How to Hold On to What You Grow

Length retention refers to minimizing breakage and retaining the hair that grows. The goal is to nurture healthy growth and prevent split ends from traveling up the hair shaft, compromising length. Contrary to popular belief, regular trims don’t hinder hair growth. A minimum commitment of a year and consistent care from a trained professional can yield positive growth and healthy hair results. Patience is vital. Hair growth is a slow and steady process. Unrealistic expectations can lead to frustration and disconnection from your hair’s natural path.

Embrace the  Journey

The key to healthy hair growth and length retention is a holistic approach. This means understanding your hair’s natural growth phases, incorporating a balanced diet, awareness of medical conditions and medications, managing stress, and embracing your genetic makeup. Remember, hair growth is a journey, not a destination; let us embrace and celebrate the beauty of diverse hair textures and lengths within the Black community.

3 Strategies for Hair Length Retention

1. Regular Trims:

Split ends are like tip burns on a plant leaf; they travel up the hair shaft, causing breakage. Prioritizing regular trims every 4-6, 6-8, or 8-10 weeks (depending on your growth cycle) to remove split ends and encourage healthy growth.

2. Gentle Styling.

Rough handling and harsh combing or brushing can lead to breakage. Use a wide-tooth comb or detangling brush, starting from the ends and working your way up. Low-tension versatile styles without added hair like braids, twists, and bantu knots that can minimize manipulation and reduce breakage. Use satin or silk pillowcases, scarves, or bonnets to prevent friction from resources like GlowbyDaye.

3. Moisturize.

Dryness makes hair brittle and prone to breakage. Steam/Hydration treatments with conditioners specifically for your hair’s unique needs, regular use of a leave-in, and drinking water are essential for maintaining moisture. Remember the hair type, texture, and porosity will determine the hair-specific moisturizing need

The post Length Check: The Myths and Realities of Growing Long Hair appeared first on Black Health Matters.

Seales has sparked a conversation about autism in Black women and girls that has been overlooked for too long. According to the Autism Journal, “female and Black populations in the United States are diagnosed later.” The publication declared that “autistic Black girls are effectively invisible in the current scientific literature.”

The Centers for Disease Control (CDC) defines Autism spectrum disorder (ASD) as “a developmental disability caused by differences in the brain. People with ASD often have problems with social communication and interaction and restricted or repetitive behaviors or interests. The organization noted, “People with ASD may also have different ways of learning, moving, or paying attention.” Seales posted a clip to her social media that highlighted the need for express clarification associated with being placed on the autism spectrum. The National Institute for Mental Health explains that “Autism is known as a “spectrum” disorder because there is wide variation in the type and severity of symptoms people experience.” These symptoms include “difficulty with communication and interaction with other people.”

People who are on the autism spectrum are neurodivergent. This is a comprehensive term that refers to people whose brains function differently. The history of the term is connected to empowering those it refers to. Harvard Health said, “The neurodiversity movement emerged during the 1990s, aiming to increase acceptance and inclusion of all people while embracing neurological differences.” The movement has been successful in increasing media representation, but the face of that representation has been consistently White and male.

Frontiers in Psychiatry published a study focused on how stigma experienced by autistic adults relates to metrics of social identity and social functioning. It found that “almost half of autistic individuals experience some form of victimization in their lifetime, including bullying and other forms of stigma.”

The Autistic Girls Network states that “the assessment tools used for diagnosis and research in the field of autism have almost always been developed from research using predominantly male samples.” Progress in the rate of diagnosis for Black children overall is advancing slowly, according to the CDC, but the gaps in the research get even wider as it pertains to Black girls. Bria Herbert, diagnosed at 19, shared her experience with The 19th. “Autism and most mental health disorders present differently in Black women,” Herbert told the independent publication. “Because autism is looked at through such a White and male lens, people don’t recognize similar behaviors with traditionally feminine or Black interests.”

Daniel Jones of The Aspie World dedicated an entire episode of his YouTube show to recognizing the way that Black women and girls are excluded from the discourse surrounding autism. Celebrity advocates for autism research include Toni Braxton, Shawn Stockman, and Holly Robinson Pete, who discussed the topic on Seales’ podcast Small Doses in April of 2021. April is Autism Awareness Month, and as awareness is raised and information is spread, the experiences of Black women and girls must be included in efforts to continue learning about the spectrum. Advocates and academics are arguing for their inclusion in different spaces.

A paper published in the Review Journal of Autism and Developmental Disorders stated, “Growth in autism research necessitates corresponding attention to autism research ethics, including ethical and meaningful inclusion of diverse participants.” It said that “the exclusion of marginalized subgroups of people with autism is a major ethical concern.”

The post Amanda Seales Just Announced She Has Autism – Here’s Why So Many Black Women Go Undiagnosed appeared first on Black Health Matters.

What is COPD?

According to The Mayo Clinic, COPD “is a chronic inflammatory lung disease that causes obstructed airflow from the lungs.” It’s typically caused by long-term exposure to irritating gases or particulate matter, most often from cigarette smoke. Emphysema and chronic bronchitis are the two most common conditions contributing to COPD. These two conditions usually occur together and can vary in severity among individuals with COPD.

Symptoms include:

• Frequent coughing or wheezing
• Excess phlegm or sputum
• Shortness of breath
• Trouble taking a deep breath

COPD is a progressive disease that can worsen over time. Patients may have to use oxygen.

What is Atrial Fibrillation?

According to The American Heart Association, Atrial Fibrillation is an irregular heartbeat. Atrial fibrillation is a quivering or irregular heartbeat or arrhythmia. Atrial fibrillation, also known as AFib or AF, can lead to blood clots, stroke, heart failure, and other heart-related complications.

Some people describe their symptoms as their heart flip-flopping, skipping a beat, or beating hard against their chest. Others have no symptoms and had the condition diagnosed during a check-up.

About 15-20% of people who have strokes have this condition, so doctors often prescribe blood thinners to them. If the condition goes untreated, you are at an increased risk for stroke or heart-related death.

Please see your health care professional if you have any of these symptoms.

The post Louis Gossett Jr. Died from COPD: The Lung Condition Explained appeared first on Black Health Matters.

• We have higher rates of specific diseases such as chlamydia, gonorrhea, and syphilis than white women. The CDC reported that Black Americans had 31% of cases reported in 2022. Rescripted says that those of us who identify as Black women also contract long-term STIs like herpes simplex more frequently.

But our high rates are not the result of sexual activity alone but also access to quality healthcare, education, and medical racism. Add in the shame and fear of asking a partner to wear protection. We wanted some insight into this sensitive topic and the need for more discussion among women of all ages, so we turned to Dr. Shea Graham, a published researcher, university instructor, licensed psychotherapist, and Clinical Supervisor at Addiction Recovery Systems Supervisor at ARS-Pantops in Central Virginia. She is recognized as an “expert” under Virginia code §19.2-300 and collaborates with courts to provide mental health evaluations.

She offered us some insight into why we need to start talking about sexual health with current and future partners, what happens when we don’t, how STIs impact us emotionally and mentally, and how therapy can help.

BHM: How can we advocate for ourselves when navigating our sexual health?

Dr. Graham: The first thing is to realize that you deserve to have good health, to be in good health, to protect your good health if you have been blessed with it. Sometimes, there is a lot of guilt around safeguarding your health, which means, “Oh, I don’t want to ask my partner to wear a condom because that will signal to him that I don’t trust him.” Or “I don’t want to ask my partner to get tested because that will signal that I don’t trust him even if he says that he is clean.”

The bottom line is that your responsibility is to protect your body and health status. Your partner could be unintentionally misrepresenting his health status.

Most STIs don’t have symptoms, so unless he presents you with his test results, you should operate like every test is positive. So, when you enter a relationship with a new partner, assume they are positive for every STI possible, and if so, what would you do differently? Being an informed partner is one way to empower yourself to protect your health. Communicating is another way to protect your health.

BHM: How can we break down barriers to discussing sexual health and prevention with our partners?

Dr. Graham: When talking to your partner, do it as soon as possible. The moment that you realize that you want to have sex with someone, you should talk about sexual health. It could be as simple as saying, “Hey, when was the last time you were tested?” If you have your test results, feel free to share your test results with your partner. This will also signify your willingness to be vulnerable, which can aid in reciprocating vulnerability; sometimes, you must initiate discussion.

Also, within our community, because there is such a heavy stigma around STIs, most people feel ashamed even just mentioning it.

Introduce the health discussion and frame it in a way that allows your partner to know that you are asking these questions because, as an adult, it is your responsibility to know your medical status and to protect yourself against STIs.

It is okay to open the conversation by acknowledging how uncomfortable the topic can be, but it is crucial to push through and address the matter to protect your and your partner’s health. So, start the conversation with honesty, and hopefully, if your partner is serious about health and sexual health, they will be open to the discussion.

Ladies, it is a red flag if you start a sexual health conversation and your partner is dismissive. That is a massive red flag, and you should not ignore it. You should take a step back and examine if this is a person you want to trust your body with and risk your health for.

So, communicate, get tested, advocate for yourself, and sit with those uncomfortable feelings. Just because something is uncomfortable does not mean you should avoid it.

BHM: What role does emotional well-being play in managing STIs?

Emotional well-being plays a huge part because every human experience has that emotional undertone. It would be impossible to go through any stage in life without experiencing some emotion: the human experience. Sometimes, when things happen to us, our bodies hold onto that. If a trauma happens or something significant happens, our initial response is what our body does. So, our initial response is our stomach may turn, or something will happen, and we will get hot; that’s our nervous system at play, our fight, flight freeze response.

Once our bodies respond, our mind starts to make sense of it. Once our mind starts to process these things, our emotions respond. You can’t have one without the other. Sometimes, your body will respond, and there is such fragmentation; for some people, their minds, bodies, and spirits are fragmented. It can be difficult for these people to understand what is happening around them; their bodies will respond, and they won’t know why. They are in this constant state of fight, flight, freeze, and that is when seeing a therapist can help. You can process stressors with a professional who can give you the coping skills to either deal with your reality or who can help you construct a narrative to take those fragmented pieces of trauma and put them together in a way that is empowering to you.

BHM: Is there a way to make therapy a more prominent option for those living with STIs?

Dr. Graham: One of the central tenets of talk therapy is self-determination. The client enters therapy, and then the therapist provides the service. If you are thinking that you can push a loved one into treatment so that they can get the help that they need, that is not going to be helpful. For those seeking treatment, there are resources to find a qualified therapist in your area. The American Association of Sexuality Educators, Counselors, and Therapists (AASECT) is an excellent platform to find a certified therapist in your area to process these things with. Not every therapist is qualified or trained to support you in an affirming way. Some therapists have not done the necessary work to challenge their own biases, and they may pass negative judgment on your medical situation.

BHM: When Black women receive STI diagnoses, how can they address the internalized shame that they may feel?

Dr. Graham: Unfortunately, there isn’t an easy solution. My suggestion would be to start to journal about the untruths that you internalize that you carry as it relates to your diagnosis. Then, bring those notes to therapy to process and challenge them. A great therapeutic intervention called cognitive behavioral therapy (CBT) helps my clients identify, challenge, and replace negative thoughts about their reality.

BHM: What advice would you give to someone looking for ways to manage their STI diagnosis as it relates to their psychological and social wellness?

Dr. Graham: Know that you are not alone. You do not have to cope with this new diagnosis by yourself. There are support groups, and once you are diagnosed, if you utilize a wraparound clinic along with your diagnosis, your provider should give you resources so that you can get linked to a nonprofit or a community board in your area. Start attending those weekly support groups. If you are in an underserved area, meaning you are not provided with these resources, you can attend a NAMI support group. You can also do individual therapy with a certified sex therapist; I cannot stress that enough; if you want to talk about STIs and don’t want to be judged by your therapist, work with someone who understands that these things happen to humans. You are not any less human or any less deserving of evidence-based care simply because of a medical diagnosis. Remember that awareness and action are great tools in managing an STI or proper prevention.

To end things off, we’d like to leave you with one of Dr. Graham’s favorite phrases: “Emotions are wonderful consultants; they are terrible CEOs, and they should not be calling the shots.” Don’t be afraid to break the silence regarding your sexual health and to care for yourself in all ways, including medical and psychological services.

The post The High Price Black Women Pay For STIs appeared first on Black Health Matters.

But her perspective informed her story and made her an accomplished storyteller today. Having been diagnosed with lupus at 30, Alford has made adjustments, like learning to say no, but she can still define success on her terms.

Click to listen to our chat or read the transcript of our chat below:

00:00

Hi, everybody. I’m Corynne Corbett, editorial director of Black Health Matter, and I have the pleasure of chatting with an award-winning journalist, Natasha S. Alford, about her memoir, American Negra. Today, I want to focus on cultural issues, identity, hair, and health issues.

What were your challenges with cultural identity and growing up as a Puerto Rican/Black girl in Syracuse, New York.?

00:39

First, Corynne, thank you for having me on; I’m so honored to join you all. And you know, health is a part of this story, both from a cultural and identity perspective and just literally talking about physical health.

This story really highlights what it is like to grow up between two cultures. Growing up in a multicultural family, you’re often told you are both. In my case, I had very supportive parents. They’re like, you know, you are an African American Girl, you’re a Puerto Rican girl, nobody can take that away from you.

But I found that our society was not always accepting of the diversity within those cultures. And so there were a lot of people who sometimes questioned how I could be Latina. Some people asked me to sort of perform my identity; they wanted to know if I could speak Spanish or if I could cook certain foods.

And in all the African American side, although I was generally welcomed, right, most people saw me as a black girl, there were still questions about, you know, just what was my ethnic makeup? So I got a lot of questions of, you know, what are you, and people will look at my hair and be like, are you mixed? Are you something else?

So when you grow up with those questions constantly being thrown at you so early in life, you start to ask the question of yourself, what am I can I truly be 100% of both of these cultures. And so American Negra is the story of finding myself and my voice, but also finding my way as a young person, particularly regarding health and accepting what it means to live a healthy life.

2:19

Yeah, and that’s so important just finding yourself and I think everyone is finding yourself but when you also layer in health, culture and identity, that you know that’s a lot of things that add on to finding yourself right. So tell us how that played out in your hair story and how others saw you both in a Latina in the back cultures and how you saw yourself?

3:18

Hair is such a complex issue. It is an issue that can sometimes spark confidence, if you love the way you look you sort of move through the world in a different way. But if you lack confidence, that can also show up, you or question yourself, that can also show up when it comes to hair. Growing up as an African American and a Latina girl, what I found is that in one culture that my hair texture was celebrated. It was seen as exotic it was seen and long, curly, black hair, but when I was on the other side and looking at Spanish language media, I always saw straight hair. I always hair that was very, very long and Eurocentric, that was the standard of beauty. So in that culture, the texture of my hair, the African influence, the descendency, it would be more likely that me perming my hair would make me fit in.

4:33

So, looking back, what do you wish you could have told your younger self?

5:00

I see that I actually am most beautiful when I’m just myself. You know, I’m most comfortable, I’m able to move through the world with a freedom that I didn’t have before when I was trying to conform, whether it be with hair, or and just sort of presenting myself a certain way culturally.

And so yeah, I think it would be not to waste an ounce of time and that you know, there’s so many aspects of our society that want us to feel shame about our bodies about the way that we look. So we will spend money so we will we will change and there’s such power and taking back that narrative and saying I love myself the way I am.

5:41

So, I’ve got to tell you I was recently just last weekend at the National Black Writers Convention, no, National Black Writers Conference, and a woman, that was a vendor there, said, I want to give you a book recommendation American Negra, and she said, she loved it because she’s a Black woman married to a Panamanian man. And she has daughters. She said that she felt like this was something that she could see. She could give it to her daughters. As an example of, you know, this is a reflection of, you know, something that you can be proud of. This is how you can go up to live biculturally. And she was really, really excited about it. She was like this: this woman who wrote this book, she went to Harvard, you should read it. I said I’m reading, so she was, she’s issues, really excited about it. So you know, you are making an impact, and lots of different spaces.

So, let’s talk about your time at Harvard and how culture and identity evolved while you were there.

6:48

I am blown away, and I can’t believe that it is amazing.

07:10

Well, first, I have to acknowledge that the story is incredible. So thank you to that woman for being, you know, an ambassador for the book. That’s exactly why I wrote it in the sense of, even if you don’t have the exact ethnic background that I have, or you know, cultural background, that people who haven’t felt seen and representations of blackness and Latino ness and American identity see themselves. You know, the book explores what it means to go to a place and to learn that you belong. A lot of my struggles at Harvard, in some ways, were centered around belonging and centered around deservingness. There was a part of me, I think, this duality that WEB DuBois often talked about. There was a part of me that felt that I certainly belonged there.

But there was this other part of me that felt that I still had to prove I belonged there. And so it created a lot of pressure for me. Sometimes, academic insecurity, holding back in class, not using my voice, and not raising my hand are things that I think a lot of young people can relate to if they’re first or second-generation going to college. And so what American Negra does is it shows the journey of finding your voice, finding your confidence, you know, shedding imposter syndrome, and accepting your talents and gifts in that space. And one of the reasons I was able to do that was because of the Harvard Black community, which is a very strong community, a very deep-rooted community that has been around since really the beginning of the college. Black people have always been at Harvard. Harvard tragically built its institution in many ways off of the wealth of slave labor. And so even indirectly, you know, our existence is a part of this institution in this really interesting way, a really sad way. And yet, there have been so many brilliant scholars who’ve come through this place. And so what I wanted to show in American NACADA was our belonging. There’s a lot of conversation right now about DEI. And you know, whether, when people say DEI, they’re referring to Black people, even though DEI benefits so many, but it’s this question of do we deserve what we have, and I think the book really shows, both historically and in my personal story, what it means to know that you belong someplace and know that you deserve to be there.

9:35

Absolutely, absolutely. Now, let’s talk about the Dominican Republic for a minute. What did your time in the Dr. Contribute to your thoughts about being an Afro Latina?

9:53

Readers who see American Negra will see that the Dominican Republic was a turning point for me. I remember landing It was in 2005, the summer of 2005. And, or it was the summer of 2005 or 2006, I have to double-check. But when I got there, I was completely blown away by how many brown-skinned people were there. And it’s not brown in the sense of, you know, the way that we talk about Latina that in the US, we think of sort of tan. So, with just little hints of color, I saw black people everywhere. I saw Afro-descendants everywhere. They were speaking Spanish, you know, they were born and raised in the Dominican Republic. And many of them saw me and assumed that I was Dominican. And so, for the first time in my life, I’m experiencing what it is to blend in as a Latina, to sort of fit in not to be seen as another just because I’m black, but for people to assume just from looking at me that I must be one of them. So I talk in the book about what that does to me, you know, on an emotional level, but also intellectually, this sort of curiosity that it sparks for me to say, Okay, wait a second, I’ve been hearing that Black people have been across the diaspora for years, right, that there were boats that stopped in all these places. But what does it mean to really know that history? How are we connected? But also, what ways are we divided. And so I also learned a bit about the country’s relationship to Haiti. And times when, you know, the relationship was actually really devastating and violent. And so I talked about that in the book as well, which, you know, in modern times, is obviously very relevant to a lot of what we’re seeing in the news right now.

11:34

Yes absolutely so now let’s talk about your health receiving a Lupus diagnosis tell us that story.

11:48

Well, I was just turning 30, or I had just turned 30 years old. And when you turn 30, it’s a it’s a new phase of adulthood, but you’re still pretty young, right, there’s still some assumptions that you make about what it means to be a 30 year old. And so when I got this diagnosis, completely unexpected, you know, I was running in the gym one day and unable to move my wrists. All of a sudden, it felt like my legs were heavy weights with sandbags, tied to them. It took me a while to realize I even had to go to the doctor because I learned so early that the doctors only to be gone to when it’s an emergency. Other than that, you push through the pain. That’s the sort of culture that I came from. That was the kind of upbringing that I had and watching my parents and, you know, my family and the examples around me.

So by the time I went to the doctor, I was blindsided when I was told that I had lupus. Lupus is an autoimmune condition in which your immune system attacks healthy cells. So rather than attacking the invaders, it’s attacking healthy cells that can cause joint damage, organ damage, sometimes it manifests in skin rashes and other pains in the body.

But there’s also a mental toll, depression, and anxiety that comes with having an illness like this because your body is under attack, and it is so unpredictable, even with the different ways that you can manage it. And so what American Negra does is it takes you inside the experience of getting a diagnosis like this, but also what it means to get a diagnosis when you’re at the peak of your career, the right things are about to take off.

You know, you have high expectations for yourself, and how do you manage having big dreams with having a big illness? And so you know, it’s not easy; the spoiler is that it took me a while to accept it took me over a year before I really committed to taking my medication to go into the doctor to taking care of myself. And there were consequences to that which I do talk about but ultimately, the journey of acceptance was a really powerful one because then it allowed me to create a new normal for myself that didn’t require me sacrificing my health in order to succeed.

14:10

It’s an it’s, so let’s talk about lupus not just in the black community. It is also in the Latino community. It is yet so. So, raising awareness of this American mega is a vehicle that raises awareness about the prevalence of lupus is also an opportunity to discuss having lupus because also in our communities, we don’t talk about having autoimmune diseases. You know we keep quiet about these things because that’s our culture.

14:24

Yes

14:55

Yes, and I think that it’s a larger field. Share of American culture is that we put our work first, our health comes second, and there’s a lot of shame and stigma around being a person with a chronic illness because it begs the question, well, what can you do? How productive can you be? Can you still work? And so much of our value in this country is defined by what we do for work. So there’s a reeducation, I think that needs to happen. And you’re right that I’m trying to raise awareness about how this disproportionately affects different communities. First and foremost, lupus disproportionately affects women. So that’s just like across the board: women are more likely to get lupus. But then, when you look at race and the way that we categorize race, generally, in the United States, black women are three times more likely to get lupus than our white female counterparts. Hispanic women are also more likely to get lupus. And one of the questions I post in the book, it’s just because of the way that we track race, ethnicity, you know, for the black Latina, I don’t know what the exact numbers are, I’m not sure that anybody’s looking to see how we are affected by lupus, but they should certainly ask the question. And because of that, you know, we, as Black women, are already facing all of these stressors, right? You look at Black maternal mortality rates, you look at our rates of heart disease, you look at our rates of breast cancer. And so it’s yet another burden that we have to carry, which I think highlights the need for us to be open about it and talk about how we’re coping and getting through to lean on each other. And not feel shame because this is not something we asked for. There’s nothing that we did to deserve lupus, but we do deserve to live rich, meaningful, healthy lives, even despite having this illness. And so I hope to break the stigma by being so public about it at this young age.

16:10

Right. And so let’s talk about caring for yourself. How are you caring for yourself as you continue with your career? What adjustments are you making? Because it’s not that your life has stopped, right? But you make adjustments, and you carry on?

Yeah, certainly has it. Yeah. As the mother of a toddler, you know, between this book, being on CNN, and working at the Grio, it definitely has gone on. Life is going on. You know, I think the big difference between me now and before is that I know how to say no, I didn’t know how to say no before, anytime I was invited to do something. Anytime I had a chance to take on more projects, I did more work. I was doing it because that was how I was cultivated and acculturated, you know, to think that you have to grind and take every opportunity and make the most of it. Now, it’s all about quality over quantity, you know, the quality of my experiences, the quality of my relationships, the quality of the work I’m doing. That’s what matters more than squeezing everything I can into a day. And so even with this book tour for American Negra, we did, you know, the northeast, we went to all these cities DC, Boston, New York, Montclair, New Jersey, Syracuse, my hometown, Rochester, but I built in a pause, because I said, you know, the temptation will be to run myself down to the ground promoting this book. But I have to be a living example of what it means to care for yourself. And the truth is, I’m going to need a break. And so we will pick up the rest of the tour. We’ll go to the south. I’m going to Chicago next month. But I needed to live out those values even as I was doing something like promoting a book where I talked about having lupus.

18:55

[Fo] young women who are growing up in areas where not many people who look like them have their cultures and identities questioned. What should they do?

20:10

Well, I think the first step is realizing you’re not alone. Wherever you are in the world, you are not alone. There’s somebody who shares your experience. And so, even in this digital world where we have all these connections, it is very easy to feel isolated. And so I encourage you to find a community where you can find others who share your experience. That’s the first thing. But I think the second thing is that finding who you are is layered. There’s who you are at work, the jobs you enjoy, and the career you want. There’s also who you are in terms of your family story. One of the things I did in writing American Negrae was go and get genealogy assessments done. So I learned about my ancestry things that I had gone years, never knowing about my family. We were connected to a plantation in Darlington, South Carolina, and my ancestor was enslaved there. My ancestors in Puerto Rico worked in sugarcane fields, and you know, essentially me, these big, rich business owners even richer, but those were the histories that I had been denied. Because, you know, how often are you born and you only know your immediate family’s history. And so it was something about learning where it came from that was so powerful, and it made me feel so much more empowered. Again, it was much more like I belonged as an American; I deserved to be here and proud of what my family has contributed. So I encourage people to get to know themselves and maybe do some of that deeper work to discover your family story and your story. I think that it helps you to see yourself in context in a different way.

22:07
But it, it’s been a joy to talk with you. Thank you so much for having me. I want to encourage all your listeners to follow me I’m right on Instagram, it’s Natasha S. Alford, American negative also has its own Instagram account where we’re posting pictures from book tour events, people’s different reviews. It’s just its really community building is what we’re doing with this book. And you can learn more if you go to AmericanNegra.com is just N E G RA. But we are online and we’re doing this tour we’re traveling around the country went to Puerto Rico for an event. So if you don’t come to see me in person in person, you can always go online, and of course, you can get the book on Amazon, where it is a top book in African American history right now, even four weeks after it’s released. So go ahead and check it out and leave us a review, too. You too.

The post Natasha S. Alford: On Culture, Identity, Health, Hair and Her Book, American Negra appeared first on Black Health Matters.

People of Color in Tech reported, “In past business cycles, Black workers have been the last to be hired during expansions and first fired during contractions, so an increase in the Black unemployment rate is eye-catching to forecasters,” from Comerica Bank.

But if you look closely, we are represented in every industry where layoffs occur.

DEI Is Under Fire

Last summer, we saw three high-profile Black female Hollywood executives who happened to be DEI chiefs at major studios (Netflix, Warner Brothers Discovery, Disney) and the Academy of Motion Picture Arts and Sciences all lose their jobs over a ten-day period. According to Inc., companies including Zoom, Snap, Meta, Tesla, DoorDash, Lyft, Home Depot, and Wayfair cut DEI teams amid broader layoff plans. Even hospitals, like Johns Hopkins, bowed to the pressure, which led to the departure of Dr. Sherita Golden.

Tech Layoffs Hit Us Hard Too

According to Layoff. Fyi, in 2023, 1186 tech companies laid off 262,682 employees, and so far this year, 168 tech companies have already laid off 42,324. Although we only make up about 7% of the tech workforce, the layoffs disproportionately impacted us. Surprised, no. Okay, neither were we.

Last winter, Congresswoman Barbara Lee and the CBC sent a letter to the acting US Secretary of Labor,  Julie Su. “We write to express our concerns with recent reports highlighting the impacts of widespread layoffs within the tech industry and its disproportionate impacts on the African American community and women,” the group wrote.

Bloomberg News revealed “that people of color accounted for 94% of new hires at the US’ largest public companies in the year after the Black Lives Matter protests.” The latest findings show that organizations find a way to do it when pressured to hire and promote qualified, diverse talent.

Our take: sometimes, these moves are performative. You can tell when companies revoke programs when no one after a few years.

Others find the environment less than ideal and are happy to leave when the time comes. “Black people, especially Black women, have reported experiencing discrimination and bias in the tech industry, which can impact their career advancement and overall job satisfaction.” according to Forbes. They choose entrepreneurship instead.

The Healthcare Sector Took a Hit, Too

According to Challenger, Gray & Christmas, the healthcare category, which includes hospitals, medical technology, health insurers, and medical clinics, cut 58,560 jobs last year. An almost 100% increase over the year before. This year, Pfizer, Thermo Fisher Scientific,  Sanofi, Catalent, GSK, and Novartis will all restructure or reduce staff. And the healthcare industry employs more than 23% of Black women or more than one in five of us.

The Incredible Shrinking Media Business

Paramount handed out pink slips to over 800 employees across Paramount+ and Showtime. BET, Nickelodeon, and all their other networks. Sports Illustrated’s editorial team was gutted. Vice Media shut down, laying off hundreds of workers. And more than 3,000 jobs this year, plus those coming from Condé Nast. (Add that to the 21,400 media jobs lost last year).

Watch Out For a Change of Mood

When you are unemployed for a period of time, you may develop a form of situational depression. According to Medical News Today, symptoms might include:

• Feelings of emptiness, sadness, or hopelessness
• decreased interest in favorite activities
• irritability or frustration
• reduced energy levels or motivation
• appetite or weight changes
• sleeping more or less than usual
• forgetfulness or indecisiveness

Additional Symptoms can include:

• low self-esteem
• reduced focus and motivation
• feelings of stress, anxiety, or overwhelm

(Financial stress may trigger symptoms)

Consider Entrepreneurship

However, as we are pushed out of lucrative positions, many of us have no choice but to try entrepreneurship. According to The Brookings Institute, between 2017 and 2020, the number of Black women-owned businesses increased by nearly 20%, far exceeding the growth of women-owned and Black-owned businesses.

If you decide to strike out your own, check out serial entrepreneur Kathryn Finney’s tips on avoiding entrepreneurial overwhelm.

The post Why Are Black Women Losing Their Jobs? appeared first on Black Health Matters.

Their collaboration began earlier this week when the two penned a powerful essay in Time entitled We Shouldn’t Have to be Willing to Die to Give Birth in the United States. Among the facts shared in their piece is that 3.400 women have died since Serena and Elaine had their children. The CDC reports that Black women are three times more likely to die during or after childbirth. But the two don’t want to frame this as only a problem faced by Black women or poor women. (However, here, that is our primary concern.)

The roots of Birth Fund began with Welteroth’s desire to give back. According to Afrotech, she started with a birthday fundraiser in December 2013. The Birth Fund is a coalition of Founding Family Funders who raised $16,000 to support out-of-pocket midwifery care for two families at Kindred Space LA.

The two believe that providing access to midwives may be one way to prevent the staggering maternal death rate in our country. Check out this conversation with Jennie Joseph to learn more about the maternal health crisis.

The Founding Family Funders include John Legend and Chrissy Teigen, Kelly Rowland, Abby Phillip, Ayesha Curry, Savannah James, Karlie Kloss, and Ashley Graham.

You don’t have to be a celebrity to contribute to Birth Fund, but they will match any contribution up to the first $100,000.

The post Elaine Welteroth & Serena Williams Launch The Birth Fund appeared first on Black Health Matters.

Affectionately known as “The Finisher,” Mister Cee was previously a disc jockey on Hot 97 and a fixture on the party scene in New York and New Jersey. Up until the time of his death, he was spinning at 94.7 The Block. The latter released a statement on social media reacting to LeBrun’s sudden passing in a joint post with another host at the station, Shelley Wade.

“Yesterday was such an emotionally traumatizing day. For hours, we were concerned because we couldn’t reach Mister Cee…and then we got confirmation that he had passed away,” the statement read. They posted a still image of the iconic Apollo Theater, a loving farewell tribute to LeBrun, acknowledging the gap in the culture he left behind.

According to the American Journal of Public Health, “Black men continue to have substantially lower life expectancy at birth than Black women and White women and men” and “There is a lag in increases in survival between the ages of 45 and 75 years for Blacks with the largest gap in survival for Black men.” In 2019, NPR reported that “Black men have the lowest life expectancy of any major demographic group in the U.S.”

LeBrun is not the only legendary producer or artist to leave the limelight tragically early. Biz Markie died at 57 as well after suffering a severe stroke. COVID-19 claimed the life of DJ Kay Slay at 55. The sun set on Phife Dawg’s life due to diabetes complications at just 45. Heart failure led to the death of Craig Mack at 46. Their absence reflects the truth that fame does not isolate Black men from devastatingly short life expectancies. Pioneers in hip-hop like Mister Cee, who worked closely with the late Notorious B.I.G. and Big Daddy Kane, arrived on the scene before the maturation of the genre’s financial potential, placing them in a different economic position than the moguls who succeeded them.

Miss Jones, another iconic radio personality, commented on the need for hip-hop to have a health fund to help provide access to care for those called to create and promote the art form during an interview with PIX 11. She implied that a duty of care is owed to hip-hop people who paved the way and that a fund should be established. The same argument has been made for legends in other industries, including professional sports. Rappers Method Man, Fat Joe, French Montana, Busta Rhymes, and Chuck D have called for greater transparency in healthcare pricing, calling on Congress to pass legislation preventing opaque business practices.

Like many creative careers, those who dedicate their life to hip-hop often have trouble accessing health insurance consistently. D.J.s are among them. Even those lucky enough to find consistent work that offers traditional health care plans frequently find that later in their careers, they are playing catch up. Leaving a large chunk of time that they are uninsured or underinsured creates a prickly legacy of barriers to treatment. This lets routine and preventable ailments go left untreated.

The post The Sudden Death Of Mister Cee Highlights The Need For Healthcare in Hip-Hop appeared first on Black Health Matters.

‘Some people’s bodies reject dialysis. And thank God that mine accepts it, and I can live… If I didn’t go to dialysis, I wouldn’t live probably longer than a week or two, “Robinson told The Daily Mail. “So it’s serious, can’t miss a day.” The Three Time Dunk champion has been hospitalized several times due to painful vomiting. When Robinson was drafted and ended up with the Knicks in 2005, he was told his blood pressure was high. Follow-up tests showed his kidneys were failing, yet he went on to have a career that spanned 11 seasons.

We wanted to know more about the factors at play regarding Black men and kidney disease, so we went to Dr. Kirk Campbell, President-Elect of the National Kidney Foundation, and Irene and Dr. Arthur M. Fishberg Professor of Medicine at Mount Sinai Hospital.

BHM: Nate Robinson isn’t the first athlete we’ve heard of who battled kidney disease. What factors are at play that lead to their diagnosis?

Dr. Campbell: An active lifestyle with healthy dietary practices is important for overall and kidney health. However, individuals can still get kidney disease due to non-lifestyle related reasons. These could include genetic predispositions, hypertension, diabetes, and other systemic medical conditions.

BHM: Are there genetic predispositions at play?

Dr. Campbell: Approximately 10% of patients with chronic kidney disease have identifiable causative single-gene mutations. This does not include even more common genetic modifiers of kidney disease. An example is mutations in the gene APOL1, encoding Apolipoprotein L1. Approximately 14% of African Americans have APOL1 high-risk genotypes. These mutations account for up to 70% of nondiabetic kidney disease in African Americans and up to 40% of end-stage kidney disease requiring dialysis in this demographic.

BHM: Are Black men more predisposed to kidney disease than Black women?

Dr. Campbell: Black men in the US are the demographic group with the highest lifetime risk of kidney failure. A recent report found that though Black Men made up a little over 6% of the US population, they accounted for almost 17% of chronic kidney disease cases. The reasons are multi-factorial and include potentially higher rates and variable management of kidney disease risk factors, including hypertension and diabetes. Access to care and socioeconomic factors could also contribute.

In the meantime, Robinson is holding on for when he feels healthy and normal to spend time with his family and children. And there is still time for Robinson to find a compatible donor.

The post Ex-NBA Veteran Nate Robinson Desperately Needs a Kidney Transplant appeared first on Black Health Matters.

BHM: How does access to nutritious food directly correlate to our health conditions?

Johane Filemon: Our community has experienced health disparities since the genesis of this country. Today, access to basic medical needs and a qualified and licensed nutritionist is hard for many in our community, primarily due to their financial capabilities and access to health insurance. Others have poor access to nutrient-dense foods due to the food deserts surrounding them. Because of this, you will find that many are experiencing more health conditions linked to the foods they eat and the lack of nutrients they provide. They lack knowledge of nutrition and have to eat what they have access to.

BHM: Are there any specific vitamin or mineral deficiencies that impact us as a collective?

JF: Vitamin D deficiency is often prevalent in our community. The pigmentation or melanin in our skin reduces Vitamin D production. The fact that most of us are indoors most of the time does not help. Low Vitamin D levels have been associated with decreased immune system function. It is essential to consume foods high in Vitamin D and take daily Vitamin D supplementation to maintain adequate Vitamin D levels.

BHM: Which vitamins and supplements are essential for our overall health, and what are the best ways to ensure their safe and effective use?

JF: There are 13 essential vitamins that our bodies require to function daily. Food is the first place we should aim to get them. Vitamins A, B, C, E, and K come from various foods. This is why consuming a diet of colorful plant-based foods is important, so we often consume these various nutrients. Supplements should come in second to support what we cannot get from the foods we eat, which can be due to various reasons.

BHM: What are your top tips regarding prioritizing our health and wellness while limiting the risk of getting overwhelmed?

J F: Making changes that benefit our health and wellness doesn’t happen overnight and can take baby steps. Stressing over these changes can be counterproductive for our overall health. This is why we need to give ourselves a lot of grace as we make these changes. This does not mean we should not be proactive; it is okay to make one change at a time. Start with consuming more colorful plant-based foods. A diet that consists predominantly of various plant-based foods allows for more consumption of different vitamins and minerals, promoting good gut health by feeding the good bacteria in our gut and our overall body.

BHM: As research often suggests, Black people have higher rates of diabetes, hypertension, and heart disease. What are the best ways within nutritional wellness to combat these conditions?

J F: Start with the basics! Consuming a predominantly plant-based diet where 1/2 of your plate is non-starchy vegetables and fruits as tolerated, 1/4 of your plate a protein, and 1/4 a starch. When managing diabetes and hypertension, tolerance of different foods can be person-specific. It is essential to get the recommendation of a dietitian nutritionist who can evaluate a person’s current health status when making recommendations for better success.

BHM: How can people verify their quality and purity when taking supplements? Are there any red flags they should look for when choosing them?

JF: Unfortunately, supplements are not regulated. I recommend always asking an expert for advice on which supplements are best, especially if a medical diagnosis and prescription medications are also being consumed. Look for supplements that have minimal extra ingredients. Any supplements that claim to heal or make extreme changes “overnight” and “it’s all you will need” to get the results you are looking for should be a big red flag.

Eating a well-balanced diet is the primary source of good nutrition. Still, Supplements and wellness products can be helpful for an additional wellness boost. BHM has created a list of a few Black-owned wellness and health brands.

Veev Nutrition

Veev Nutrition is a brand that focuses on gut health and well-being. Our Johane Filemon founded it! Veev Nutrition is a supplement line created with premium ingredients with a proven history of fighting inflammation, building a diverse gut microbiome, and repairing the damage caused by toxins in our environment and food. An additional bonus of this brand is that it is black and woman-owned, so not only will your support aid in your health, but it will also contribute to our community.

Body Complete Rx

Body Complete Rx, founded by Samia Gore in 2017, is a black and woman-owned wellness brand offering plant-based supplements designed to support many health and fitness goals. Body Complete Rx worked with renowned nutritionist Dr. Ruby Lathon to formulate and launch five product lines, each prioritizing a different wellness goal to support a well-rounded, healthier life.

Peak + Valley

Peak + Valley, founded in 2015 by Nadine Joseph, is known for its supplements for brain and skin health and stress support. Nadine traveled worldwide to source herbs to support and uplift the global herbal community through direct sourcing practices. Nadine’s brand reflects her upbringing, as she looks for natural remedies at the intersection of science and traditional medicine. With Peak and Valley, she hopes to build a better herbal trade with transparent sourcing, unquestionably high-quality ingredients, and science-backed knowledge.

Black Girl Vitamins

Black Girl Vitamins is another excellent brand for those seeking support for vitamin deficiencies. The founder, Maxine, created Black Girl Vitamins to address the nutritional needs of underserved Black women and the scientifically proven nutritional deficiencies common within our community. According to their website, some of the areas that they focus on include:

•  Vitamin D, 82% of black women are deficient.
•  Iron, Black women are 3x more likely to have anemia.
• Cholesterol, the highest prevalence of heart disease, occurs in the black community.
•  Pregnancy, the highest infant and maternal mortality, as well as PCOS, occurs among black women.

Black Girl Vitamins carefully crafts products to nourish and empower Black women so that they can thrive on their wellness journeys.

Golde

Golde is Black and Japanese-owned and was founded in 2017 by Trinity Mouzon Wofford and Issey Kobori. Golde is making wellness accessible, fun, and easy for everyone, providing its supporters with healthy superfood essentials. Their product lineup focuses on superfoods that address common health needs, including stress relief, gut health, skin hydration, and immune support. Of all their products, their matcha additives are immensely popular and have other products that can benefit unique needs.

Before trying any of these products, please speak to your healthcare provider to ensure they will be safe and effective. Remember, it is never too late to prioritize your health, nutrition, and wellness.

The post RDN Johane Filemon on How Supplements Fit into to Your Nutrition Plan appeared first on Black Health Matters.

While the wig market booms (projected at $15.27 billion by 2034, according to futuremarketinginsights.com, prioritizing health remains critical.

Wigs offer endless possibilities for self-expression and convenience. However, some online sellers prioritize affordability over quality. This can lead to wigs with unknown materials, poor sanitation, and potential scalp irritation to cause infection.

 An Informed Shopping for Healthy Hair

• Beware Bargains: Good wigs require quality materials. Super-cheap wigs, often made from synthetic materials, can irritate, tangle, and look cheap.
• Question Reviews: Glowing reviews in broken English raise red flags. Seek detailed reviews with pictures from verified buyers mentioning hair texture, cap construction, and wearability for textured hair like ours.
• See Clearly to Buy Wisely: Blurry photos hide imperfections. Reputable sellers showcase high-resolution images from various angles for examining wig construction and texture. Don’t hesitate to zoom in.
• Know Your Material, Know Your Care: A good description details the wig material (human hair, synthetic blend) and cap construction (lace front, full lace). Most importantly, look for care instructions. Proper washing extends lifespan and keeps your scalp healthy.
• Look For The Return Policy: It Is Your Safety Net: Sometimes things go wrong. Ensure a clear return policy if the wig doesn’t work out. A good return policy signals confidence in their product and customer satisfaction.

Prioritizing Wellness Beyond Beauty

• Research Beyond the Seller’s Facade: Don’t just focus on the wig; research the seller’s reputation. Look for reviews on independent platforms or social media to get a well-rounded picture of their customer service, product quality, and overall experience.
• Search for Customer Photos and Videos: Want to see the wig styled on Black women? Search for customer photos and videos using the wig’s name or brand. This reveals how the wig performs in different lighting and styling scenarios.
• Embrace Customization: Some sellers offer customization options like adjusting the length, pre-plucking the hairline for a natural look, or adding color.
• Don’t Be Shy, Ask Away! Reputable sellers are happy to answer your questions. From sizing to care instructions, don’t hesitate to contact their customer service.
• Invest Wisely for Style & Health While a licensed hairstylist specializing in wigs might be safest, these tips empower informed online wig purchases. Invest in your confidence, health, and style by becoming a savvy online wig shopper.

Bonus Tip: Look for Black-owned wig companies like trueandpuretextures.com that cater to Black hair textures and needs. They often understand the importance of quality materials and prioritize healthy hair journeys.

 Additional Resources

A Guide to Hair Fibers

Virgin hair vs. Remy hair

Writer: Erin H. Maybin is a licensed Cosmetologist in NY, PA & CA, Educator, Advocate, and influential member of the NYS Appearance Enhancement Advisory Committee. As EVP of Education Development and co-founder of the Natural Hairstyle & Braid Coalition, Erin spearheads the transformation of textured hair education in both private and public sectors.

Her groundbreaking initiative, Hair S.T.E.A.M. LAB, is an education platform that explores the science and artistry of hair using steam.

Erin is also the co-author of Laid to the Side: Disrupting the Silence of Black Girls Hair Stories in School.

For more information: www.erinhmaybin.com

The post How to Safely Buy Wigs Online: A Black Women’s Guide appeared first on Black Health Matters.

If you have been diagnosed with type 2 diabetes, it is important that you take your diagnosis seriously. With proper management, it can be controlled by making healthy lifestyle choices and working closely with your healthcare provider. Managing your diabetes can also help reduce your risk of developing complications.

The key to successfully managing your type 2 diabetes is understanding the facts. Being informed is a first step to taking control of your health. Once you understand the facts, you can be proactive about dispelling myths surrounding the condition and feel inspired to take action.

Lilly is also working to help you take control of your health through clinical trial participation. Click here to learn more.

Fact or Fiction

Continue reading to review some common type 2 diabetes myths and facts.

MYTH: I will have diabetes because several people in my family have it and there’s nothing I can do about it.

FACT: While having a family history of diabetes does increase your risk of developing the condition, it is not the only contributing factor. It does not guarantee that you will automatically have diabetes. The development of type 2 diabetes can be influenced by a combination of genetics and lifestyle. Even though you can’t control your genetics, you can control your lifestyle.

MYTH: If I have excess weight, it is only a matter of time before I develop type 2 diabetes.

FACT: Having excess weight is among the strongest risk factors for type 2 diabetes. The more excess weight you carry, the higher your risk. While having excess weight is another risk factor of diabetes, it is not the only contributor. This risk also varies among individuals which is why some people with excess weight never develop diabetes and others who are at a healthy weight do.

MYTH: I have not experienced any symptoms so my blood sugars must be normal.

FACT: High blood sugar levels can occur without notable symptoms especially in the early ages. On the other hand, some people do experience symptoms. High blood sugar levels can still contribute to long term damage, even if you aren’t experiencing symptoms.

Common symptoms of high blood sugar include:

• Increased thirst
• Increased hunger
• Frequent urination
• Unexplained tiredness
• Unexplained weight loss

MYTH: I have to stick to a specific diet in order to manage diabetes.

FACT: There is not a one-size-fits-all diet for people living with diabetes. It is most important to make healthy food choices, and it’s recommended that you follow a meal plan that is specific to your health needs and lifestyle. Key components for managing your diet include carbohydrate management, portion control, and consistency.

MYTH: I don’t need to take medication to manage my diabetes.

FACT: There are several factors that determine whether you will need to take medication to manage your diabetes. Lifestyle changes can be highly effective in managing the condition. While some people are able to successfully manage their condition without medication, others may require multiple medications and that’s okay.

Remember that your type 2 diabetes journey is unique. You should discuss with your healthcare provider whether or not medications are needed. Work with your care team to adjust your treatment plan based on your specific needs and goals.

References

• National Library of Medicine. Diabetes myths and facts
• American Diabetes Association. Know Your Facts About Diabetes
• Debunking type 2 diabetes misconceptions

The post Is Type 2 Diabetes Manageable? Dispelling the Myths appeared first on Black Health Matters.

Type 2 diabetes disproportionately impacts the Black community. African Americans are 60% more likely to be diagnosed with the condition and at least twice as likely to be hospitalized and experience long-term complications including death, when compared to non-Hispanic whites

Factors that may contribute to this health disparity include genetics, socioeconomic factors, and access to quality healthcare. Prevention and management are key factors to reduce the impact of type 2 diabetes among African Americans and improve outcomes.

You can navigate your type 2 diabetes diagnosis by understanding the risks and making informed choices. There are several adverse health consequences of type 2 diabetes but many of them may be preventable.

Uncontrolled Type 2 Diabetes

In general, type 2 diabetes control is evaluated by measuring routine blood sugar readings. Blood sugar goals may vary slightly based on patient-specific factors such as age and presence of other health problems. There are two ranges for blood sugar goals.

• Fasting (before meal): 80-130 mg/dL
• After a meal (2 hours): less than 180 mg/dL

The A1c test is a blood test that is used to measure the 3-month average of your blood sugars. It is used to provide additional insight into diabetes control. A1c is expressed as a percentage with a recommended A1c target of < 7% for most people with diabetes.

Consequences of Uncontrolled Type 2 Diabetes

If left uncontrolled, type 2 diabetes can result in long term consequences over time. These health risks involve various parts of the body and can greatly impact quality of life and overall health.

Long-term complications of uncontrolled type 2 diabetes include:

Heart problems

Heart disease is the most fatal complication associated with type 2 diabetes. People living with diabetes are two times more likely to have a stroke or heart disease than people who don’t have diabetes. Symptoms of heart disease include shortness of breath, tiredness, chest pain, and numbness in your arms or legs. You can maintain your heart health by managing your diabetes.

Kidney damage

Diabetes is the leading cause of kidney damage resulting in chronic kidney disease (CKD). Our kidneys serve as blood filters for our bodies. High blood sugar levels can be present in uncontrolled type 2 diabetes and cause the kidneys to have to work harder, diminishing their function and causing damage long term.  CKD often develops slowly, and it may be difficult to identify symptoms of kidney disease until it’s too late. You can prevent kidney disease by keeping your blood sugar at goal.

Nerve damage

Nerve damage affects nearly 50% of people living with type 2 diabetes. The most common type is peripheral neuropathy which impacts nerves in the hands, feet, legs, and arms. Symptoms include tingling, pain, increased sensitivity, or numbness of the affected area. Controlling your blood sugar is the best way to prevent nerve damage. You should also have foot exams completed routinely and help identify issues proactively.

Vision issues

Diabetes can damage your eyes over time. It is the leading cause of new cases of blindness in adults 18-64 years of age. People of color are at higher risk of going blind due to diabetes complications. While there aren’t any signs or symptoms to monitor for, you can be proactive by completing an annual eye exam to monitor for eye disease and delay vision loss.

Mental health

Living with diabetes and managing your condition can come with an overload of different emotions. You may feel anxious, worried, discouraged, and frustrated. Address mental health concerns with your health care provider and consider speaking with a therapist or counselor if needed

Take Control

You can lower your risk of diabetes-related complications by making healthy lifestyle changes, monitoring your readings regularly and working to keep them at goal, taking your medications as prescribed, and following up with your doctor regularly. Medication therapy plays a major role in lowering your risk, especially for those at high risk or who have prediabetes.

Take control of your health and avoid the consequences of type 2 diabetes through informed choices, regular checkups, taking your medications, and committing to a healthy lifestyle.

Lilly is also working to help you take control of your health through clinical trial participation. Click here to learn more.

References

• American Diabetes Association. Statistics About Diabetes
• United States Department of Health and Human Services Office of Minority Health. Diabetes and African Americans
• Centers for Disease Control and Prevention. Manage Blood Sugar
• American Diabetes Association. Diabetes Complications
• Centers for Disease Control and Prevention. Diabetes and Mental Health

The post Avoiding Consequences of Type 2 Diabetes appeared first on Black Health Matters.